Paul's Heart

Life As A Dad, And A Survivor

Cross This Off My List


Part 1 – National Colon/Rectal Cancer Month

This month is the annual push for colonoscopies to hopefully prevent a cancer that can be prevented. Not only be prevented, but treatable when caught early enough. Yet so many will ignore this life saving recommendation. For the second year in a row (it was only supposed to be once – but my body did not cooperate with the “clean out” so it had to be repeated), I underwent a colonoscopy today. I also underwent an endoscopy at the same time. More on that later.

My prep was a little more involved this year because of issues I had last year, but for the average person, it is usually just a heavy dose of a laxative the night before the scoping. Depending on the method, yes, there is a large quantity to drink, but it is doable, and many times, you can drink any fluid to mix with the drug. Overnight, you sleep it off. Then you go for the procedure. Most people will be put into twilight anesthesia, meaning you will not remember anything other than the time on the clock on the wall. Again, because I have complicated cancer-related issues, I cannot do twilight, so I am out cold. I have no idea what has been done, but for those who are afraid of this simple test, here is what I felt like afterwards… nothing. I did not walk funny. Nothing leaked out of my butt (sorry for the graphic, but trying to prove a point for the fearsome). Except for a little groggy, I was good to go home in fifteen minutes. I have no recollection of this afternoon. But here is what I will find out and know.

I will find out if polyps had been removed. If they were, they will be tested. If cancerous, that is one road to cross, and hopefully caught early. If not cancerous, the polyp was prevented from becoming cancer. See the urgency of this test? Yet many of you will still blow this recommendation by your doctor for literally no acceptable reason. If your doctor recommends it, you are a fool not to do it.

My situation is a little more complicated because I have other underlying issues. But then again, just like the average person going through a colonoscopy, prevention and screening for my long term cancer survivor issues is the reason I went through my “pig on the spit” day. I mentioned to my doctor before I went out, all asked was to make sure that my breath did not smell like shit when I woke up. Today, just like last year, I went through two procedures at the same time, a colonoscopy and endoscopy. And as my “pig on the spit” comment implies, cameras went through both ends.

The purpose was two-fold. One, to make sure there is no secondary cancer to my Hodgkin’s Lymphoma. Two, to deal with situations that can actually lead up to the development of secondary cancers for me. The extreme treatments I went through more than 25 years ago have left certain areas of my body at risk for some nasty issues. But the great thing is, I am under constant surveillance to prevent, or catch if necessary, things before they get bad, unlike what happened with my heart nearly six years ago.

Radiation reeked havoc on my esophagus. After several years, I have developed some slight swallowing issues, as well as some reflux problems. Long story short, the old esophagus does not work as well as it should. I have two things called Esophogitis Esophanil which I do not fully understand, and honestly neither do the doctors, and something called Barrett’s Esophagus. This is the one factor being watched because it can lead to cancer of the esophagus. Usually biopsies are taken, and occasionally other tests are done just to make sure. So far, neither issue has advanced dramatically. So I do not expect the news to change much if at all when I hear.

The colonoscopy is done because of the increased risk of colon cancer for me from going through the strong types of treatments. I do know polyps were removed last year, and I expect that some have been removed this time. The thing I am grateful for was that the polyps last year did not have the chance to turn cancerous. Hopefully the same result occurs this year.

Do you get my drift? If you can prevent cancer, why not do it? And this is one that can be prevented or if necessary treated if caught early enough.

How Far We Have Come


An odd thing occurred to me today while visiting with my father in the hospital. I was nearly run over by a robot. Okay, maybe I am being a bit dramatic. There was no chance of me being run over by the robot, or even blasted with its powerful lasers.

Okay. I was raised with Twiki from Buck Rogers and of course R2D2 from Star Wars. It should come as no surprise that after Star Trek foretold of flip cell phones with their “communicators”, that with Twiki and R2D2 we would have robots doing human tasks.

The concept does not always work. I have seen my employer throw away millions of dollars trying to replace the hard work that humans do in an effort to be efficient and replace human workers. But how about when the robots actually work. I saw the medical “R2D2” this evening on my way back from the restroom. There had been some nurse work going on in my father’s room, so I stopped outside of his doorway to wait for everyone to leave. And there it was.

Creeping behind me ever so quietly was this box on wheels, but no one had been pushing it. It rolled by itself. There was no tracking on the floor for it to follow. It stopped about a foot and a half away from me. I was not sure if I should move out of its way as if playing some sort of game of robotic chicken. But the delay from my thought displayed something amazing. Its rollers on the bottom of the cart had turned approximately forty five degrees and then the unit rolled two feet. The rollers then turned forty five degrees to the left and the unit rolled, stopped and straightened and continued on its way another four feet until it had arrived at the nurse’s station. As it stopped, it announce, “your delivery has arrived.”

The robotic cart had been delivering medical supplies or prescriptions for the patients on the floor. The nurse put her combination into the lock and the unit opened. The nurse took her delivery, closed the box back up, and the unit continued on its way. It was amazing to watch. I had to wave my hand by a sensor on the wall to open the door to the patient room corridor. The doors just opened for the robot. I had to push buttons to call the elevator. The robot called the elevator directly.

I have seen plenty of television shows and movies and looking back, it is amazing the things we saw in science fiction that have come true today. It no longer seems far fetched to watch a movie and wonder how long before we see cars that fly and other inventions. Of course I would rather see a movie that discovers a cure for all cancers, and then hope scientists and inventors come up with the same idea in the near future.

We Need To Give A “Crap”


If you have followed my Facebook page, almost on a daily basis, I have “shared” posts announcing Colon/Rectal Cancer Month recognition. This is a big deal to me, but should also be a big deal to you, male or female.

Now if you are saying, “but Paul, you didn’t have colon cancer. What are you worried about?” And for the most part, you would be correct. I did not have colon cancer. But the treatments that I went through for Hodgkin’s Lymphoma left me susceptible to secondary cancers such as thyroid, lung, esophageal, leukemia, and yes, colon cancer. In fact, the driving force behind my internet outreach for cancer patients was a woman named Linda. It was her mission to make cancer survivors aware of the importance of colon cancer screenings, called colonoscopies. The internet support group that we belonged to had already lost so many fellow survivors to colon cancer, and she too would be diagnosed with, and lose her life to colon cancer.

For years, I have dug my heels in the ground, I was not going to let anyone shove a tube up my ass. Yes, I reduced my opposition to the lowest and crudest objection. But I was clear, my “out door” was not an “in door”. I was not alone in my stance. At work, many of my coworkers also voiced their opposition to any roto rooting. While neither gender is crazy about having this done, I have found that only the male population has any problem revealing their aversion to the painless procedure. And considering the test is one that can save your life, a common reason overheard, and a bigoted one at that, afraid of waking up “gay”. That is right. There are some men who are actually afraid of coming out of the anesthesia with an urge that they have been turned into a homosexual. This is not only a horrible thing to think, but it is stupid, and it could cost you your life if you avoid this simple test for fear of something that is not only not true, but can never happen. I am not even going to carry that discussion any further.

It would be easier to understand as a man, that we might simply be uncomfortable with the thought of laying on a table with our bottom exposed, but that would not be met very well by the millions of women who climb up on a table, placing their legs up in stirrups to be placed on exhibition for their doctor visit. And they are not normally anesthetized. I am one of the few men who can testify as to how that feels, not because I have ovaries, and for the record I do not have them, but having had to deal with a kidney stone, I have had to have my legs placed up on stirrups for a wonderful (NOT!!!) procedure called a cystoscopy. You can Google what that is. But I will say, that was unanesthetized. And if I could handle that going in an orifice that was definitely not meant to have anything inserted, I could certainly undergo a colonoscopy for which I would be anesthetized.

I also did have a reason for undergoing my first colonoscopy last year, and not just because it was a smart thing to do. One of my late effects that I have to deal with from my cancer treatments (actually two of them) pertain to my esophagus which was damaged from radiation therapy, often affecting my ability to swallow foods, and previously, unable to swallow liquids at its worst when it flared up. So I actually undergo both colonoscopy to see if there is anything blocking down there forcing the issue, but also, an endoscopy to see if my esophagus has worsened for what is diagnosed as esophagitis and Barret’s Esophagus. I take a medication to keep it under control, but the truth is, I have an increased risk of esophageal cancer. So, two tests, two purposes, only one result I want, negative.

Last year’s tests did not go as planned, inconclusive. It seems, and this is the reason many do not want to undergo a colonoscopy, my “prep” or cleanout did not go well enough for them to get the pictures necessary. It is hard to believe that drinking two liters of fluid mixed with 37 dosages of laxative did not empty me out enough to get the pictures necessary, but that is what happened. So it was decided that I would repeat this year. Only this time, I would have to do a “super prep” which has meant me drinking a laxative for two weeks already with the normal prep yet to come.

Here is how important this test is, not just to me, but to you as well. I am dealing with caring for my father. I cannot put this test off any longer than I already have, because cancer does not wait. And the sooner it is caught, if there is any, the better chance of beating colon cancer. So, being a master of multi-tasking, I will have to really plan out carefully a trip to Sloan Kettering for my father and I, because my tests are the following day, and I must begin the aggressive “prep” before I even get to leave Manhattan. It will literally be a race against time, pushing cotton, “prairie doggin”, turtle popping out of the shell. I expect my three hour drive to stretch out to five hours until we get home.

I do not expect to hear the words cancer. This test is about prevention. I feel okay. My swallowing issue is minimally inconvenient right now. But as long as I have “prepped” enough this time, I expect the photos to be good, and the news to be negative. And there is comfort in knowing those in my life will not have to hear that I am dealing with cancer again, for at least the time being.

But even if you do not have the increased cancer risks for whatever the reason, other cancers, obesity, if your doctor wants you to undergo a colonoscopy, you need to do it. The test can save your life. And no foolish notion can ever justify me attending a funeral for something that could have been dealt with. The test itself does not hurt. Ignoring it does.

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