Paul's Heart

Life As A Dad, And A Survivor

Life Goes On… It Has To


It should not have been a big deal really.  We were not asked to do much.  We were just asked to do our part to slow the spread of a virus that is going to kill a lot of people.  Either some people just refused to believe it, some did not want to be inconvenienced by it, some did not think it applied to them, and some thought it could not happen to them.

I just happen to live in one of the states where people do not want to be inconvenienced by it, people do not think common sense applies to them, and definitely deny anything will happen to them, and if it does happen to them, “so what!”

That fifteen day period is over, and we as a country are even worse off, and now, because of the invincible and arrogance, we are being asked to give another thirty days in effort to prevent the worse case scenario from actually happening, deaths of hundreds of thousands in the United States alone.

I do not know, maybe I just cannot understand the thinking.  Fifteen days was just a little over two weeks.  How hard was it?  I did social distancing for over a year and a half through my cancer battle.  That was thirty years ago.  I am still here.  And I plan on being here for many more.  So for thirty more days, I can do it, and as I have stated before, I medically do not have a choice because of my late side effects from those treatments.

One major thing impacted by this virus was of course the economy, especially the restaurant and entertainment industry.  Social distancing has turned bustling restaurants in the peak of tourism seasons, into drive-through business only.  These businesses are doing all they can to hang on to get to the end of this.  If only those who were indifferent to this crisis would have taken the fifteen day request more seriously, who knows, we must have been on our way to resuming day to day activities.

But there are things that definitely need to continue, along with the economy, and two of these things can have a profound impact.  Of course, both are issues that I strongly advocate for on “Paul’s Heart.”

If you are a long term cancer survivor, relying on routine tests to monitor progression of late developing side effects, or even cancer patients in current and active treatments, depending where you live in regard to the activity of the virus, your life may have been put on hold, so as not to risk your exposure to the virus.  Think about it, a human life, facing two doors, each with a tiger behind them, has to choose and open of those doors.  That is the situation being faced regardless of the seriousness or type of medical issue many face.

Patients now have to delay their follow up appointments or their treatments to reduce the risk of being exposed.  For some, like me, having to make a decision, does a developing symptom require any kind of delay?  Over the years, I have had several “false alarms” or “undiagnosed” events.  I have a very difficult task to figure out if it is severe enough to act.  Being as involved in the medical community as I am, I also recognize the need for the medical staff to direct their attention to this crisis if at all possible.

To deal with this, I do have a plan.  To first reach my personal physician by phone.  She knows me well enough, nearly 30 years, that she can ask me every question to determine the situation.  If she feels I need medical attention, the next phone call will be to the hospital and what to do from that point.

Another issue that needs to get recognized, child custody.  Of course it will vary state by state, but most states family courts have already declared that custody orders are not affected by this virus.  After all, both parents are capable of taking care of their child(ren).  As an example, Allegheny County Court in Pennsylvania is one such court that has made this declaration.  It really is a no-brainer.  There are plenty of nightmare stories, where a custodial parent will attempt to deny a custody visit from taking place because a child is sick.  ***I FORGOT – NEED TO MENTION I AM NOT REFERRING TO MY OWN SITUATION – FOR THE SAKE OF TROLLS***  Judges routinely faced with this situation will always rule in favor of the custody order because unless there is a history of neglect, there is no reason to deny a visitation, except in a rare and extreme situation (such as requiring hospitalization).

Now with a situation like we are currently in, common sense needs to prevail.  And this is a situation similar to mine.  If there is a geographical distance that has an impact, then there do need to be considerations.  But it is communication between both parents that will result in agreeing to put the custody order aside for the time being.  This is called co-parenting.

For instance, if travel is involved, especially commercial, does this increase a risk for the child(ren) either contracting it, or carrying it?  No responsible parent would ever be that selfish to put their family at this kind of risk.  While I want to believe that age has some sort of immunity, it is not something I am willing to risk my children getting.  And with my increased morbidity issues making me high risk, I cannot risk them carrying the virus to me.  It was the hardest decision in the world for me to delay any visitations until the danger is at least reduced in a major way.  The worst thing in the world, because of my health issues, is to have either of my daughters come down with this virus, and be unable to visit them.

Finally, and I know this from personal experience, the one thing that definitely does not carry on, just hanging in limbo, those families involved with international adoptions.  Both of my daughters were adopted during periods of virus outbreaks, one of those, SARS, caused a delay in the process, after we had already been informed our daughter had been matched to us.  All we could do was wait for travel restrictions to be lifted, the fear, not knowing if it would be weeks, months, or even years.  The other outbreak, involving bird flu, actually expedited the process in fear of a travel restriction.

These are definitely stressful times.  If you are reading this, not only are you likely the generation whose first major historical events were the Challenger disaster, or the terrorist attacks of 9/11.  But this pandemic, is something that no generation will forget.  Remember the days when we would hear our parents talk of the struggle walking to school 50 miles in the snow, barefoot, uphill and downhill, and backward, and we rolled our eyes?  I used to laugh at that until I got to do the same thing as my school district did not use school buses, so never had snow days.

But our children will have this story, having missed nearly half of a school year, instead being forced to do their learning at home.  And perhaps they will be the first to remind us of the good old days, when we used to have to bug them to get off their computers or phones.

A PPE Nightmare, No Not What You Think


We are hearing enough daily reports about the shortages of personal protective equipment (PPE) that you do not need me to remind you.  Instead, I want to give you a non-Corona virus situation to help understand just how important PPE really is.  What is scary, just this morning, it was revealed that the Center For Disease Control (CDC) last week created a crisis strategy for PPE.  In other words, the CDC is modifying its already minimized requirements for PPE, and in a crisis like we have now, even lowering those standards.  I have not read these changes in great detail yet, so I will not overstep my boundary of this post.  Instead, like I said, I have a story to tell you about PPE.  And hopefully after, you will understand in simpler terms, just what our health care workers are up against, and why this is important to them.

First, to understand, personal protective equipment, is just that, personal (for you), protective equipment (worn to protect you and possibly others).

I worked in medical research for a number of years.  Quite rewarding actually to have an avenue to give back to what saved my life.  Working in medical research, not just wearing PPE was important, but the proper levels of PPE.  And there are different levels depending on how serious a pathogen (germ, bacteria, virus, bad stuff) you were dealing with.

Your dentist wears PPE, usually a mask, and definitely gloves.  Most doctors wear gloves to examine patients.  Scientists and researchers are no different.  The thing about PPE, it is supposed to be once and done.  You wear PPE to prevent you from being exposed, or exposing anyone else.  When you are done with it, you throw it away.  You do not reuse it.  That is why most PPE comes individually wrapped.  It is not meant to be used over and over.  But what happens when it does get used again, and again, and again, and again?  Here is that story.

I had a co-worker, who shall remain nameless, who did just that.  He had several work areas to maintain.  Of course, that would mean that he had to wear a different set of PPE in each area.  Well, “gowning up” or putting on PPE takes time (booties, gown, mask, head bonnet, two pair of gloves, face shield if necessary), as does “ungowning.”  That co-worker had no issue, wearing the same PPE from area to area, and as long as he did not get caught, no harm, no foul.  And by getting caught, I mean, not just by management, but by cross-contaminating from one area to the next.  This alone is disturbing enough.  But it gets worse, much worse.  His laziness not only covered the various work areas, but extended for his entire work week.  That is right, he wore the same equipment to every area he entered, but wore it all week.  You might want to put down anything you might be snacking on or drinking for the next paragraph.

Some of us, including me, would discover what our co-worker was doing.  For the average co-worker who did not give a shit, some of us did, realizing the potential for compromising any studies.  Remember, research, looking for cures, looking for vaccines, these things all require acting appropriately.

Upon inspection, and removal of this PPE that had been discovered, was the evidence that he was doing just as I have written.  With the exception of his gloves, he had reused everything, all week, in every area.  There was “soiled” evidence on everything.  On one particular piece of PPE, was enough to make me vomit, his mask.  The one piece that would go against his lips, cover his nose was filthy, actually crusted with residue from the environment.

Forget the person risk to himself, he was carrying all of this from area to area, putting every study at risk.

That is why, when I hear today, that we have health care workers and responders pleading for PPE, being forced to wear the same PPE for days, even work without, now having the CDC “allowing” reuse of certain PPE with one of the most contagious viruses we have seen in a long time, if ever, I just want to hang my head in despair.  But I cannot.  Because I have so many friends that work in health care, and I know that they are speaking up for what they need.  And they are risking their own lives, and the lives of their loved ones at home, compromised from reusing PPE.

This is a disgrace.  This PPE shortage is something that a 3rd world country experiences.  But in times of companies operating under the guise of Six Sigma, simply put, a method to learn to do more with less, to increase profit margins.  And that means, many, if not most, have been caught with lower inventories of PPE.  Manufacturers probably cut back manufacturing due to lower demand.  And in the firestorm of an emergency like Corona Virus, here we are cut flatfooted, scrambling to find resources, rush production, and in some case, average citizens trying to do their part, making home-made PPE just so that our health care workers can have some sort of “protection.”

Our healthcare workers deserve better.  We deserve better.  All of our lives depend on it.

Getting Through This Crisis Called Corona Virus


The recommendation from the Center For Disease Control (CDC) is really quite simple.  All they recommended, was for us to minimize contact with each other, self-isolate or social distance each other, for a period of fifteen days.  It did not seem like an over burdensome thing to ask, given the potential severity of the Corona Virus crisis.  After all, many time away from others through vacations and other trips, voluntarily.  But this was being recommended.

For the most part, only astronauts and scientists are the ones most frequently performing this act of socially being isolated.  In fact, they train for this.  Others, those with serious illnesses such as cancer and auto-immune diseases, are often forced to stay away from others.  In either case, we do what we have to.

Unlike astronauts and scientists, cancer patients, etc., who endure many months of isolation, having to kill time and loneliness, we are only being asked to do fifteen days.  It should not be so hard.  At least it should not be.  I mentioned before how I dealt with this necessary, and sometimes unfortunate behavior.  The bottom line is I always got through.

So, how am I doing it as a “healthy” person, a non-scientist, definitely not an astronaut?

STAY OFF SOCIAL MEDIA

I am a bit of a hypocrite with this one.  Because of my health issues, I do spend time looking for information, as it will help to protect myself with this crisis as I am one of the more vulnerable people.  It is just, when you are on-line, one thing you are likely to see… others not following the social distancing guidelines.  And this is guaranteed to make you go crazy, perhaps in anger.  After all, you are following the rules, but they are not.

Then, there is also information overload.  I try to keep this to a minimum, so as not to get overwhelmed.  I rely on facts, not hopes and opinions.  And as long as the numbers continue to climb, the risk of me developing this, increases as well, and I must continue to be even more aware.

BINGE WATCHING

With a variety of video streaming services, there is no shortage of things to view from documentaries, concerts, movies, and some very interesting series.  I will say though, it would be nice if Umbrella Academy, Ozark, Stranger Things and others would come out with their new seasons.  This might help some stay inside.

MUSIC MUSIC MUSIC

Play it.  Listen to it.  Write it.  Sing it.  Enjoy it.  No matter how you do it, I am certain that you have a variety of media options to enjoy some cool tunes.

A PICTURE IS WORTH A 1000 WORDS, AND MIGHT TAKE UP A 1000 MINUTES OF TIME

Between my laptop and a huge tote of hard copy photographs, I spend a lot of time looking at old memories.  This also helps me with another issue, as I am currently geographically separated from my daughters, so these memories help keep them fresh in my mind.

WRITING AND OTHER COMPUTER WORK

My laptop is over fifteen years old.  In other words, there is a lot of old “memory” that I could probably eliminate to help extend the life of my old computer.

Also, as I do with this blog, there are also other projects that I have been working on.

This is also a good time to reach out to old friends, if not by email, by phone.

We can all get through this period.  The more that comply with the recommendations, the sooner it has a chance to resolve.  Hopefully these ideas will help sparks other suggestions to help.

As always, I wish you health and safety during this difficult time.

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