Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “The Heart”

Marci – A True “Wonder Woman”


Wonder Woman!  Wonder Woman!
All the world is waiting for you and the power you possess
In your satin tights fighting for our rights
And the old red white and blue

Wonder Woman!
Wonder Woman!

Now the world is ready for you and the wonders you can do
Make a hawk a dove, stop a war with love
Make a liar tell the truth

Wonder Woman!
Get us out from under, Wonder Woman

All our hopes are pinned upon you, and the magic that you do
Stop a bullet cold, make the axis fold
change their minds and change the world

Wonder Woman!
Wonder Woman!

You’re a wonder, Wonder Woman!

Marci, this theme song from the 70’s super hero television show Wonder Woman was a song clearly written for you.  And for those of us who had the blessing of knowing you, our “Diana Prince,” we knew you as a true “Wonder Woman.”

This has been a difficult year for so many reasons, but toughest made by yet another passing of a fellow long term Hodgkin’s Lymphoma survivor.  Grief has been piling and piling on top over the last several months, normally occurring over a year instead.

Marci’s passing has affected me differently though.  The impact that she had on me, the way she lived her life, while clearly sad for the loss of a good friend, she “wrote” an amazing story with her life.

For many of us, treated for Hodgkin’s Lymphoma back before the turn of the century, especially during the 50’s, 60’s, 70’s, and 80’s, treatments were barbaric, and often considered by today’s standards, experimental in value, because though they worked, the long term effects that would develop, were never researched, leaving many of us struggling not only to find care for these issues, but even finding a doctor willing to try.  These issues could be minor, or quite severe.  Some might have been fortunate, not to have developed any.  Sadly, Marci had been one to develop serious issues which I won’t go into detail here, other than a few appropriate places.

But it is the way that Marci always presented herself, a common personality trait of a Hodgkin’s survivor, only presenting the “shell” of what we are dealing with as it is hard enough for us to deal with.  But Marci, she was one of a kind.

To describe Marci as colorful, is an understatement.  Marci and I first met several years ago on a support page for survivors of Hodgkin’s Lymphoma.  I could tell she was going to bring a lot of life to our group.

Though out of privacy, I am not posting pictures of her family, she had a large family that she loved very much.  She also loved her pugs and activities abound.  One art project she was working on, actually a cross-over, was a jeep that was being decorated to reflect her persona of Wonder Woman.

Marci started this with our group long ago, and many group members jumped on that bandwagon, encouraging her, as our “wonder woman.”

This photo was from a post that I sent to her a month ago, as I was driving here in Florida, immediately making me think of her.

Sadly, Marci faced many issues from her Hodgkin’s past.  One of which was a battle with colon cancer.  This left her as a colostomy survivor as well.  But in case you could not tell from the above picture, Marci even managed to rock that situation in her own style, with her own “wonder woman” pouch.  Only Marci could pull that off.

And in spite of dealing with her own issues, as is coming among us Hodgkin’s survivors, she took time to help and support others advocating for childhood cancer and colon cancer.

Marci, you were truly one of a kind, with emphasis on the word “kind.”  And sadly, we know that “Wonder Woman” was mortal after all.  But all that you gave to us, especially to remember by, will be a blessing that will last forever.

“Wonder Woman!
Wonder Woman!

You’re a wonder, Wonder Woman!”

Make This Difference In 2021


I feel odd trying to write an inspirational message, using the television serial killer Dexter as an example.  But here goes.  First, to be fair, Dexter’s status as a serial killer is complicated in that he is really a good guy.  One of his major flaws (besides the ease of killing criminals released by the judicial system often on technicalities), is he is emotionally barren, for at least half of the series, before his “feelings” begin to mature.  I am trying to be respectful in not “spoiling” anything.

You get it though, Dexter does not show, or pretty much, have any emotions, or feelings.  His sister Deb, with a mouth more colorful than a truckdriver or sailor (or whatever metaphor you want to use), has emotions, but has not control of them, often leading her to make decisions that involve regret.  She often tells Dexter she loves him, but he is unable to respond in kind to his sister.  This is not the only time that Dexter has been in this position, through no fault of his own.  It is just who he is.

Anyway, as the series draws to a conclusion, Dexter is moving away, far, far, away.  Deb’s only request, a hug before he leaves, something I do not recall seeing in any of the episodes.  I will leave it there.

There are no second chances.  I wrote just a couple of days ago about my father’s situation with my stepmother, an argument, never being able to be resolved.

That had not been the first time, that I had experienced that guilt, of a lost opportunity.  Growing up, though different circumstances, I did not deal with emotions well either, in fact, not at all.  But early in my adulthood, when my grandmother had been diagnosed with cancer, and the mere thought of losing her, I found out, that I did have feelings, and they mattered.  And for the first time, I began to show my emotions.

On a daily basis, I made sure that I told my grandmother that I loved her.  When I visited her, I always gave her a hug.  Except for one time, and it was the last time that I saw her alive.

She was about to begin her second fight against cancer, beginning chemo the Monday after the weekend.  I stopped by to visit with her Saturday morning as I had a full day planned on Sunday with my church’s youth group that I ran.  I had discovered that she had cut her her short, to prepare for the hair loss that would accompany her chemotherapy.  But then I noticed something odd.  Her booklets on her chemo information had still not been touched.  I just attributed that to my grandmother’s nature of just accepting things, and doing what she had to.  That is how she rolled.

As I sat across from her in her living room, she had a distant look on her face.  There was a lot on her mind, clearly with the chemo beginning in just days.  I would soon find out, she had a lot more on her mind than she let on.  I asked her what was wrong.  She just responded that she “just want to get this over with.”  She definitely was not her normal “brave” self with me.

When I went to leave, she did not get up from the couch as I approached the door.  I told her, “ok grandma, I am going to get going.  I will give you a call tomorrow, then come see you on Monday.”  My hopes of thinking she would take that as her cue to come over and hug me goodbye, nope.

The next day, she had passed away.  The one time I did not hug my grandmother or tell her I loved her, because I was distracted by her “distance” and distraction, is how we parted.

You see the pattern here.  Three examples, all three, “coulda, woulda, shoulda.”

My daughters never got to meet my grandmother.  They never knew what happened to my stepmother and the impact it had on my Dad.  What I do not know, is if among all the other stuff they have watched, if they ever watched Dexter.

But one thing is for sure, from the moment they were placed in my arms, they have always been told “I love you” by me.  They get as many hugs as I can give them.  There is no “given” that just because I am their father, they have to love me or that I love them.  No, for the first time in my life, my daughters made me feel that way, and I made, no, make sure that they know every day how much I love them.  There will be no regrets with not having said the most important words to my daughters.

We never know when the inevitable is going to happen.  And 2020 has been extremely cruel with Covid19 devastating so many families permanently.  And now, faced with recommendations, proven to be at least helpful in reducing risks, we are asked to make sacrifices, which could very well be the last time, we see a loved one or friend.  Nobody gets that more than me.

Whether you believe in the severity of Covid19 or not, and whether you have been personally affected by Covid19 or not, does not change the fact, that you only get one last chance with someone, and we do not know when that moment will be.  But Covid19 has made a huge impact on hundreds of thousands of lives, permanently.

2020 has been extremely cruel, and likely filled with a lot of regret, of things left unsaid.  Regardless of what you believe about Covid19, or any other situation that at one moment can change your life forever, you can make one huge difference in 2021, every day.

Good Riddance 2020


So the question across my news feed this morning, was “name something good that happened for you in 2020.”

For the majority of us, this is likely to limit responses to just January, February, maybe March.  There are two notable things that I consider good during this time. 

Being a non-custodial parent, there are many things that I am not included in.  But this moment was something for me to always cherish.  I got to take my daughters shopping for dresses for a school semi-formal.  Though not a big shopper myself, this was one trip I am so glad I got to make.

This was a huge thing that occurred in 2020, just before the Covid19 shit hit the fan.  Each milestone that I hit, I find myself amazed that I am still here.  Back then, we were only encouraged to think about some magical 5-year mark.

But even through the rest of the year, I did manage to have some good things happen.  My cooking improved for one.  I am an okay cook, but not having an option to go out an sit down, and for the most part opting not to do take out, the pressure was on if I wanted to eat.

Most importantly, in spite of Covid19 and the risks, I still managed to see my daughters.  Besides the law supporting the needs of children to see their non-custodial parents, as long as protections and recommendations were followed, visits were going to happen.

Likely, no one is going to say they would like to just reset and redo the 2020 calendar year.  2020 in fact, is probably going to go down as the worst number to avoid than a 13th floor in a hotel.

With hopefully the recovery from Covid19 going in that direction to start 2021, I have things that I am looking forward to, one major milestone, an effort thought I would never finish, and of course getting to spend more time with my daughters again.

My heart goes out to all who have lost someone this year, not just Covid19.  My wish is for all who are reading this, to find peace, good health, and comfort in 2021.

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