Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “The Heart”

Whether A Promonition, Or A Preview, I Want It


A friend of mine posted this morning, that today is one of her favorite times of the year, GRADUATION DAY! She herself has experienced this many times, as a student, as a parent, and as a leader in her community. My friend gets an extra boost on this day, because of her leadership position, actually gets to participate in the annual graduation ceremony. How cool is that? I would be remiss, if I did not mention, that her reputation locally, is that she often gets referred to as an “official school mom” of the district (for privacy, I am not mentioning the name of the district). But if there is anyone who claims to have more pride in her high school alma mater than my friend, I call bullshit.

Today is Graduation Day in that particular school district. It also happens to be the school district where my daughters attend high school. While I am happy for everyone who got through one of the most difficult school years ever imaginable, dealing with Covid19, and the fact that a graduation ceremony can be had, my true excitement is a year away. And even then, it will be two years in a row that I will get to experience a high school graduation as a parent.

I am a very sentimental person. And Graduation Day is one of those days that hits me in various directions of emotion. In 1983, I became the first one in my family, on my father’s side, to graduate from high school. But there was another issue that I had struggled with during that time, that took a bigger precedent.

My relationship with my father when I was a child, could be described as strained, at best. My parents had divorced when I was three years old. Though I occasionally saw my father, in my later youth, I would consider us estranged. As far as I was concerned, that was his choice.

But as I said, I was graduating from high school, the first one to do so on his side of the family. I knew my friends would have both of their parents at the ceremony, and while my father and I did not speak often, I honestly felt this moment could have been a turning point for us in our relationship. A demand was made by me, not a request, not a favor, not an invitation, but a demand. “Here is a ticket for graduation. Show up, or I never want to see you again.”

I had grown tired of all the disappointments from my father. I was not demanding anything unreasonable. Show some pride. Your son was graduating. An hour of your time was all that was being asked. You had done nothing but disappoint me for most of my entire childhood. This day was the biggest day of my life so far. Be there, or else.

He did not show up. He never called to congratulate me. My father lived less than ten minutes away. Not even a card.

Almost forty years later, I have many friends who have either children, or even grandchildren graduating this Spring. Several of them, are from my world of cancer survivorship, and some, who I know through the world of divorce. My news feed is filled with prom and graduation photos, a wonderful reminder of what is ahead for me next year, and the year after. Yes, I was late to the party, but now the party is just getting started.

I admire and even envy the many families that have endured all the years together, remaining whole as they celebrate this day. This is not to say that everything went smoothly, but one thing that they do not have to be concerned about, are distractions from a struggling marriage, relationship, or divorce.

The pictures are there. Friends who are divorced, but all are together, with their graduate, celebrating their big day. Each parent putting aside their differences, for the sake of their child, because graduation day is not about the parents, or their problems. The photos that I see, will last forever for their children, a happy memory they will always cherish.

My last personal experience with Graduation Day was not a memorable one for me. As a divorced parent of a teenager graduating next year, I need to make sure that this is where the similarity ends with my graduation. Up to this point, I have used my experience as an adult child of divorce, to make sure to be sensitive to the needs of my daughters. Unlike my father, who to be fair, we did make amends in adulthood, my point is to not repeat what my father did in my childhood, with the experiences of my daughters. And so far, I have done all I can to not only remain involved in their lives, but active as well. I have assisted them both with their educations, and have spent as much time with them as I could. Ironically, in spite of Covid19, I actually got to spend more time with them as a result.

But their big day will come next year, and the year after. And hopefully, I have done all the right things, not followed my father’s footsteps of my childhood, although I will likely be one emotional hot mess. It will be our turn, to show up for our daughters, just like my friends, and make the day about our daughters, because it is.

As I mentioned however, there is another group of proud parents that I celebrate this time with, those in my world of Hodgkin’s survivorship. When I first became aware of my health issues tied to my treatment past for Hodgkin’s Lymphoma, it was clearly laid out for me. I will never forget what my doctor said to me, “We cannot stop the progression of what is happening. We cannot reverse what has happened. But what we can do, is do what we can to slow the progress down, to buy time. My plan is for you to be able to see your daughters graduate, get married, and one day be called ‘grandpa.'” They were barely school age at the time, so these words seemed quite aspirational for me to achieve, in no hurry for my children to become parents of course.

Many of my fellow survivors are getting to experience this annual tradition. For most, their health has held up long enough for them to do so. For several, they have now gotten to see even grandchildren graduate. I am not getting that far ahead. I am focused on reaching one milestone at a time, because I know all too well, that moment could be taken away from me with the uncertainty of my health issues. One particular friend comes to mind, who sadly did not get to see her first grandchild graduate from high school, having passed away late last year.

This time of year is a big deal for students, and it should be. It is also a great moment for parents and grandparents, and it should be. As that time approaches, I know that I have done all I can to make this day one of the most memorable for my daughters. Now I just need to wait for 2022.

31 National Cancer Survivor Days And Counting


Today marks the 31st time that I get to recognize National Cancer Survivors Day. 31 YEARS!!!

My first memory of the word “cancer” came in elementary school more than fifteen years early than my diagnosis, with a fundraiser at elementary school (annually), called “Send A Mouse To College”, sponsored by the American Cancer Society to help find a cure for cancer. Of course, as a five-year old, I had no idea what cancer was.

But by the time I had entered high school, I learned what cancer at least meant, death. Though I had members of my family pass away from cancer during my youth, I was unaware why. But during health education class, I learned about Terry Fox, an athlete from Canada, who had lost his leg due to cancer, and would eventually lose his life in 1981 to that cancer. He was a known cancer advocate raising awareness for cancer research by attempting a cross-country from, east to west, across Canada. His legacy now, since 1981, the annual Terry Fox Run, attracting runners from all over the world raising hundreds of millions of dollars for cancer research.

Unfortunately, it was also his story, that would be the first of many, to remind me, people die of cancer. I had never heard of anyone living after it.

My first personal cancer survivor was my grandmother (pictured on the right). She actually faced cancer twice, but it was her first battle with breast cancer in 1986, that gave me the inspiration when I faced Hodgkin’s Lymphoma in 1988, finishing my treatments March 3, 1990, 31 years ago. She would eventually pass away from ovarian cancer twelve years later.

Since then, I have met hundreds if not thousands of other cancer survivors, in person, or on line, each having their own inspirational story to share.

For most of us, National Cancer Survivors Day is a bittersweet day because we want to recognize and celebrate that cancer can be beaten. Life does go on after cancer. That hopefully one day, everyone who faces a diagnosis will hear the words “you are in remission.”

But NCSD is more than just a date and survivors. It is a time that we also recognize that not all survivors have been able to move on or as some would wish “to just get over it.” Emotionally many face challenges ranging from PTSD to discrimination. Physically, many of us have developed issues related to the treatments used to cure us, progressive in nature, and sometimes, no answer for them.

And then many of us struggle with this day, because we have lost someone close to us, to this awful disease, or many losses, and are not here to celebrate with us.

But we cannot lose sight of this. Today is National Cancer Survivors Day. Cancer can be beat. We are so close to finding the cures necessary.

To all my fellow survivors, today is your day! Another year!

And as I often share an expression, “as I go down the road of remission, I will keep looking in my rear view mirror to make sure that you are still following me. And if you have not made that turn onto that road yet, hurry up! It’s a great ride!”

Finding Meaning In Life


I have a friend who shares two things every morning. I look forward to them each day. One is for me, one is for my older daughter. For my daughter, there is a post celebrating the birthday of an artist from someone over the world, over time, an example of their work, perhaps a quote from the artist themselves, and an observation from my friend. I share this post with my daughter, an aspiring artist herself, just so that she can see the variety of expressions that she has yet to tap into.

The other post my friend shares, is a daily devotional. To her credit, she does both of these posts daily, so needless to say, I count on seeing them, and will be quite worried for her, if she happens to miss a day. This deep thought each day is not necessarily complicated, yet is powerful enough to actually make you stop riding your own personal “merry-go-round” and go “hmmmmm.”

This morning’s post from her did exactly that, three photos “you find meaningful or memorable.” This may seem like a difficult task, especially when opening up my laptop, going to my photographs, and seeing more than 100,000 of them (from the day I started saving them digitally), and I have fairly many when I used to actually print them out, but there are actually three photographs that do have true meaning to me, as they have shaped who I am today.

My grandmother, pictured on the right of her younger sister, passed away in 1988 following a diagnosis of ovarian cancer, her second cancer that she faced, breast cancer being the first, thirteen years earlier (my first personally known cancer survivor). The picture does not show just how tall she is not, only that she is shorter than her sister. But my grandmother was a very strong woman, physically and emotionally. With my mother working a second shift job during the week, it was my grandmother who I spent most of my time with when I was not in school.

I give credit to my grandmother for shaping me who I am today. That path took so many detours however, when she passed away. My grandmother was my “moral compass.” In other words, if she was not telling me her opinion of decisions I was making in person, I heard her “voice” in my head when we were apart. One of her main tenets was always, “take care of others before yourself.”

While some may see this as an admirable trait, to make yourself the last priority, that comes at a price. The mother of a dear friend from high school many decades ago, once told me, “you cannot expect someone to love you if you do not love yourself first.” It was not that I did not feel good about myself. I just did not think of myself to make myself a priority.

In 1988, I had to make myself a priority, as I was diagnosed with Hodgkin’s Lymphoma, a cancer of the lymph system. I could not afford to focus on anyone else, though I definitely tried.

But throughout the rest of my grandmother’s life in my adulthood, my grandmother was there, offering her input with many challenges that I faced, not afraid to raise her voice, or speak in “Pennsylvania Dutch”, the equivalence of a child speaking under their breath so as not to understand what was said. My grandmother always seemed to keep me on the straight and narrow path with my decision, pausing me to at least think about actions, and consequences and no matter what, to make sure that I was respectful to all when I made that decision.

Yesterday marked the 7th anniversary of my father’s passing from lung cancer. There are not many photos of he and I together when I was younger, something I swore I would never let happen with my daughters, much to their dismay I have not disappointed myself.

My parents divorced when I was three, and custody went the way that it does in many divorces, not good when it came to the fathers, especially in the 1970’s. Eventually I would become estranged from my father, part his choice, part my choice. This is a time period we would both regret later in life. But as the photo shows, we did work things out. And it gave us an opportunity to learn about each other, and what he now saw in me, and what I “got” from him.

I may have missed 1/3 of my life with him through my childhood, but the other 2/3 gave me so much back, opportunities. Relying on childhood friends for experiences with their fathers, I finally got to develop a father/son relationship of my own. And in the end, I would face the biggest of all challenges that a “child” often faces, caring for that parent as he faced several health challenges, including lung cancer.

He was there when my health began to fail due to my late effects from cancer treatments years earlier. My dad got to see the adoption of both of my daughters, his granddaughters. And unlike his biological granddaughters, my daughters had their own impact on my Dad, not known for being the “cootchie coo” kind of parent, they cracked his gruff shell. As my Dad retired from landscaping, he had informed me that he would take on driving a school bus. And I was like, “but Dad, school busses have kids on them.” That was not a punchline. I was being serious.

My father ended up driving elementary school children, the same age as his granddaughters. And every day, there was a set of twins, of Asian heritage, that he told me, reminded him of his granddaughters. This brought a smile to my dad’s face ever time, a smile I do not ever remember seeing so strongly. But he enjoyed all of the children. Say what? I could not believe it, my Dad was a school bus driver, and not only liked it, but the kids all liked their grandfatherly bus driver.

One of the most memorable things that happened toward the end, as he was forced into retiring from driving the school bus, on his last run, he was given a “get well” card from his “kids” and parents, who were so grateful for all the safe transportation that he provided. I recall him telling me how uncomfortable this made him originally, that he had never had so many, if any care for him, like the way he felt at that moment.

The third photo is a no brainer, the day my daughters came into my life. That moral compass that I lost back in 1998 with passing of my grandmother, was restored in 2004, and reinforced in 2006 with their adoptions. I was now a parent myself, and that mattered to someone, actually two someone’s. Decisions I would make, affected not only me, but them as well. They would become the driving force behind me fighting for my health with all of the challenges that I have faced, and will continue to face. Things I would do or say, now had two sets of ears and eyes, documenting everything I did and said. My actions would be their examples as they grow up. They had now become, my new “moral compass.”

The values I learned from my grandmother and the importance of a parental relationship that I learned from my father, are now an integral part of the relationship I have with my daughters today. And life is good. Each day, one now in adulthood, another approaching it (a day that too many times I almost never got to see because of my health issues), I have expanded my goals in life to include one final chapter myself, one that my doctor promised me, that he would help me see, my daughters graduating, getting married, and becoming a grandparent myself.

Like everything else in my life, that path has not gone smoothly or perfectly, but we have made it the best that we could along the way. And it is not only good. It is great!

And those are my photos that have meaning or have given me great memories.

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