Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Side Effects”

The Challenge Of Getting Fit


For at least a month now, I have been going full tilt at the gym, trying for the umpteenth time to get myself back into shape. I am not motivated by the “people who are overweight are more likely to have cancer or diabetes” or “having to buy an adjoining seat on an airplane”. Quite simply, I know I feel better when I exercise.

My problem is not will power or guilt. Whenever I try to get back into an exercise routine, like what I did back when I was in high school (okay, I am not in denial either – it has been thirty years since then), I usually have some sort of setback. That setback can be health related, or lack of motivation related. Just the other day it was power related as the gym suffered a rare closure due to power loss from a huge ice storm that we had recieved.

Breaking from the stereotype of patients who undergo chemotherapy, looking emaciated, I actually gained weight, more than fifty pounds. I suffered from “pumpkin face” as my weight ballooned due to my increased appetite from the prednisone I was taking to counteract one of the other chemo drugs I was getting. By the time I was done with my treatment, I weighed over 200 pounds for the first time in my life. Just as I got through my treatments however, I was just as determined to get the weight off. I lost sixty pounds within four months, half the time that I was on chemo with strict diet and exercise.

Over course, aging slowly and a destroyed thyroid (from radiation treatments) helped me to regain the weight, and again I made yet another attempt to restore my weight and physique. I was successful at it too, if it weren’t for the tightness in my chest. In spite of being in good condition, a major heart issue was discovered and required emergency heart surgery (see “CABG – Not Just A Green Leafy Vegetable).

So, following that surgery, I had to give yet another shot at getting my body back into condition. It was a bit of a slower process because I needed to be careful with issues concerning the heart. But my determination was still the same, to get back into the condition that I was in before the surgery. But then I started seeing my doctors for follow ups, and then realizing that I was dealing with late developing side effects from my cancer treatments, for the first time in my life, I was beginning to feel defeated. Conversations with my doctors became more about what I should not be doing. Exercises that gave me strength and power were now of the list of things I could do. Slowly, I began to let the rest of my physique suffer and it seemed as if the late effects were also progressing a little more quickly.

Two months ago, I took the bull by the horns. No more “can’t”. I have been posting my accomplishments on Facebook, not necessarily as bragging, but rather as accountability and to show, that you can, and still need to take care of yourself. I am hoping this week to accomplish two goals. First, tomorrow, not only will I have achieved the calorie burn I was at when I had my heart surgery, but I will also be at the weights that I lifted. Emotionally this is a huge milestone for me.

The second is a shirt. I plan on wearing a shirt on Friday that was intentionally purchased a size smaller than I normally wear. So, not only am I feeling better physically, mentally, I am hoping to look better as well. Like my doctors told me when they first discovered my late effects, they cannot reverse the damage, but they can slow them down. And that has been my challenge to get fit.

World Cancer Day – Stand Up 2 Cancer


Today is World Cancer Day. All the cancer websites are announcing this day as a reminder to everyone that there is still a fight against cancer to be won. No one is more aware of that than me. I have had twenty-four years as a survivor of Hodgkin’s Lymphoma to remember this fact. I have met thousands of cancer patients and hundreds of survivors. While we have found cures for many cancers, found better treatments for other cancers, we still so far to rid the world of cancer.

The organization, Stand Up2Cancer offers a great opportunity to proudly support or honor someone you know that has battled cancer, and either has survived or sadly passed.

http://wcd2014.su2c.org/

Simply print the template out, write the person’s name that you would like to honor or memorialize, take a picture with it, and plaster it on the internet. I have several dozen copies ready to go with names of so many who have come and gone through my life. And while photographs of me are very rare, I will suck it up this time, because I want people to know that I stand up to cancer. My battle was long ago, but I will not celebrate my survivorship as long as there are those who do not get that chance. So, very shortly, I will be posting the names of those I stand up for against cancer on the “Paul’s Heart” Facebook page and my personal page.

Who will you stand up for against cancer?

Listening To Your Body


Next to losing hair from treatments, the hardest thing for a cancer patient to deal with, is the loss of control. We expect to live our lives as we have done every day before the diagnosis. After all, the fight is going to be internal, not external. Therefore, we should be able to go through our daily activities as normal. If only that were true. And it can be, to a certain degree.

Once the conversation with patients goes through all the stereotypical questions, the next question I get asked is will I be able to do things? Of course you will. But you are really going to have to listen to your body. Whether chemotherapy or radiation treatment, a patient is likely to experience some form of fatigue. And it is important to recognize two things about fatigue. It will get better, and it is only temporary, though temporary as long as the treatment and perhaps a little bit further past the conclusion of the treatment.

But once the fatigue kicks in, it is important that you give your body the break it definitely needs. The fatigue is letting you know that it needs rest.

Simply put, if you feel you have the energy to put a new roof on your house, go for it. But if you do not have the energy to get up out of the chair to change the channel on the television (boy am I dating myself with that statement), then do not. But if you push yourself, you will put yourself at an even greater risk of much more severe fatigue, but also driving down your immune system, and possibly having an impact on your treatment schedule. We will all agree that is something that we do not want to see. The fatigue is temporary.

But listening to your body does not just apply to cancer patients, but anyone really. If you are not feeling well, by all means, get some rest. Do not wear yourself down.

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