Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Side Effects”

Deadbeat Dad Defined


The term “deadbeat dad” is an ugly term.  We all know what it is meant to do, infuriate and create judgment against someone  most of us do not even know.  It is gender specific, though clearly, but not often, the term “deadbeat mom” also does exist.  But for the most part, you never hear it used.  Wikipedia defines the term “deadbeat dad” “commonly used to refer to men and women who have fathered or mothered a child intentionally fail to pay child support ordered by a family law court or statutory agency.”  The operative word here is “intentionally.”

I will admit that I knew the term “deadbeat dad” before I even became a parent.  And I will also admit, the anger I would feel knowing that a father was not taking care of his children.  For me it was simple, he was not paying, and that was it, he was a “deadbeat dad.”  No excuses.

The penalties for not paying child support and spousal support today are quite serious.  Just as when I was a child, my father had spent time in jail for failing to pay child support.  Again, I want to state as I have in the past, I do not know any of the specifics of my parent’s divorce to this date, nor do I want to.  He did not pay support always, and for that, he went to jail.  However, this kind of action back then did not carry the ramifications as it does today.  Also, the reasons behind a father or mother not being able to pay their support orders are not so simple either.  With computers and social media, an arrest record for either parent due to support issues is a death sentence for either parent to be able to provide any kind of income not only for themselves, but for the children.

Again, this is where the operative word “intentionally” comes in.  “Intentionally” would have to be, a parent protesting the support award amount and refusing to pay the amount, eliminating the income on purpose (can’t give what you don’t have), or simply not paying it.  These are intentional acts.  And I agree, whether father or mother, they should be dealt with.

Without going into the details of my divorce, I can easily just sum it up, that it will clearly be one of the most bitter, angry, hateful divorces for the books.  We both played a major role in the cause, though clearly she blames me, simply because I filed for the divorce.  I “quit” at she put it.  The outside interference in our divorce has only enflamed the process and the emotions.  I frequently receive hateful voicemails, emails, texts, and also replies to “Paul’s Heart” harassing and threatening me.  All under the guise of “free speech” as my estranged wife puts it.

Below are some of the things that have been sent to me:

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These were all posts on my Facebook page, as a “message” to me as I have struggled to pay the support award that was ordered.  Look at the last sentence, “struggled to pay”.  I have been trying to pay the award which due to circumstances beyond my control, have made it difficult, but clearly not “intentional” as someone from my ex-wife’s side is trying to incite.

The unfortunate results of not being able to pay child support orders, for those of us who try to, end up catastrophic, and will ultimately end up hurting the very children the support, as well as the father, is trying to provide.  But when you have outside sources, combined with a former spouse who has only revenge on her mind, though the divorce was the fault of both, bottom line it will be the children who suffer the most.

As I said, I am in this unfortunate situation right now.  The way the process has worked thus far, we presented our cases to a mediator, the judgment was set, and of course an appeal was made knowing I could not afford the amount that was set.  But in the meantime, I was expected to pay the full amount, unfortunately unable to meet that requirement, by no means was it intentional.  Corporate downsizing led to the elimination of the hours I worked, which led to the reduction of my salary – NOT MY FAULT.  Eventually the downsizing continued leading to the elimination of my position in my department – NOT MY FAULT.  I have health restrictions that allowed me to do that job for many years in spite of my many and well-documented severe health issues stemming from my cancer survival – NOT MY FAULT.  With the company no longer able to accommodate all of the restrictions I had, leaving work on disability was my only option, though clearly, it would not be enough money to afford the support award which would have absorbed 80% of my net disability income.  I had to find another job, that would be able to meet my health restrictions, while paying me the amount of money needed for the support award, and for my survival.  The only way I could do this was to separate from the company I had worked for, for seventeen years – NOT MY FAULT.

And so, I have spent the last several months, trying to find employment that would afford the current support award, as well as my living expenses.  I presented evidence to show, that I have completed more than 100 legitimate job applications, all which qualified monetarily, and I met the experience requirements, but unfortunately, have not even received more than even a handful of interviews.  Without a shadow of a doubt, I have proven I am trying to meet the demands.  I am not “intentionally” avoiding the child support order.

However, all the while, waiting for the appeal process to take its course, actions against me have indeed been taken, whether you judge me as an “intentional dead beat dad”, or a dad who is trying as hard as he can.  Bank accounts have been frozen, passport seized, notifications from the IRS and the state department of revenue have all been levied against me to force me to pay what I cannot afford currently, though trying to correct.  But the next level of this process becomes very serious as I mentioned earlier, if done for spite, will accomplish what my ex wife wants to do, but it will come at an extreme high price to our children.

As I said, I am trying to find work, but the next threat made legally against me, is to suspend my driver’s license, something normally done for someone with traffic issues or DUI’s.  But the intent is to make me take the award seriously, which I have acknowledged several times that I do.  But face it, with a suspended license, how can I get a job, let alone drive to work?  And with no work, there would be no income.  How does this resolve anything with someone trying to make good on the situation?  Fortunately, I have convinced the enforcement office to delay this action.

But it is going to be the ultimate penalty that I face currently, that will have the biggest, and permanent impact.  As the pictures show above, jail is meant to be the ultimate deterrent in forcing payment of support.  Again, if it is a “true” “deadbeat dad” who is intentionally not paying the support award, this should be expected.  But to the parent who is honestly trying, through no fault of his or her own, and is still trying, to arrest and imprison this parent would not only be unfair, but make it impossible ever, EVER to be able to find a job that would afford that support award.

The consequences go even further, because while imprisoned, there obviously would be no money coming in at all towards the support.  More importantly, the health insurance that I have kept going, would also stop, leaving my ex and my children uninsured.  And then of course, with an arrest record, it would be impossible for me to find a job any time soon following my release.  The only success for my ex wife, is that she succeeds in destroying me.

But for both of us, the price will be much more huge than that.  It is bad enough for our daughters to have two parents who can no longer talk to each other.  But now they will have a mother who forced the system to throw their father in jail.  And of course, I would no longer have rights to see my children for the next ten years until they reached adulthood.  I am already being denied any “extra” opportunities to see the children when I travel back to their state for hearings, just because she does not want to allow it.  Memories for all of us will never happen, all for vengeance.  And she is okay with that.  She has made it clear that everything that is happening is my fault.  No.  We both caused the divorce, I was only the one to file for the divorce first.

I have approximately 37 days now, before I face the serious prospect of being jailed on my birthday, which is also in time for the Christmas holidays when I am also due to see my daughters, to meet the current demands of the court.  I continue to apply for jobs, that will meet my health restrictions and afford me a similar salary and needed benefits.  But time is running out.

My actions are not “intentional”.  I am not a “deadbeat dad” as my ex wife and those around her are encouraging her to have me treated as such.

 

Jeff’s Take


 

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I first met Jeff Iredell a little over a year ago.  A fellow lymphoma survivor, though he had non-Hodgkin’s and I had Hodgkin’s, lymphoma is lymphoma as far as we are concerned.  He was holding a special recognition that evening, and a local golf course was honoring those who had battled lymphoma by lighting up their property in green, the “recognized” symbolic color for lymphoma.

To me, Jeff is a perfect example of someone whose life was so impacted by his illness, that he wanted to make a difference in the fight for others.  As he will explain in his story, he works with the Lymphoma Research Foundation, something that as a fellow survivor, I appreciate all help we can get with a cancer that gets very little recognition or support for a cure.  I have enjoyed watching Jeff recover from his lymphoma over the years when I first discovered him on a Lymphoma Facebook page.

I asked Jeff to tell his story on “Paul’s Heart.

Jeff’s Take

“It was just after Labor Day in 2011, September 9th to be exact.  I had been divorced for about 2 ½ years at that point and just starting to get out of my funk and get back to living life.  I hadn’t realized how co-dependant I had become and was pretty unhappy with life. Then the moment that would change my life forever happened.

Long story short, I had developed a blood clot in my lung, the CT scan also showed an enlarged spleen and enlarged lymph nodes. The doctors ordered a biopsy, PET/CT, etc. and then the cancer bomb hit. The doctor performing the CVIR biopsy said, “Usually when I go in to get this, it’s a form of lymphoma”.  Like many others, unless you have had it or know someone with it, you probably didn’t know what that is or that it’s even a form of cancer.  So of course I drove myself crazy once I got back to my room looking up everything I could find. My first piece of advice-avoid random sources, stick with a renowned sources, there is a mountain of misinformation out there.

When the oncologist sat me down to tell me the type, treatment options, statistics, all of it, I took it all in like sponge. I was diagnosed with Stage 4b Diffuse Large B-Cell non-Hodgkin Lymphoma (DLBC-NHL). DLBC is the most common form of NHL in adults and I was on the lower end of the age scale for this particular form.   Lymphoma is a blood cancer that causes abnormally fast growth in the lymphocytes (white blood cells) and typically appears in lymph nodes, bone marrow, the spleen and sometimes other organs. My particular staging indicated I had tumors both above and below the diaphragm and at least two other body systems, in my case, my bone marrow and spleen. I also had tumors on the humerus on my left arm and on one of my vertebrae.

I remember this moment, the day my attitude on life change for good, as if it was yesterday.  He asked, “Are you okay?  It’s a lot of stuff I just threw at you, I know it seems overwhelming, but….” I stopped him in his tracks and replied, “I’m great, forget how we got here, what are we gonna do to kick it’s ass in time for golf season?” He chuckled, shook his head and away we went I never had that “woe is me” moment and reflecting back, that was soooooo not the old me.

Treatment called for 8 rounds of R-CHOP chemotherapy (one every 3 weeks) and 4 rounds intrathecal chemotherapy. Intrathecal is simply a spinal tap where the fluid that is removed is replaced with a small dose of chemo. Traditional chemo cannot pass through what is called the ‘blood-brain barrier’. It’s our body’s natural defense to keep bad things out of the cranial and spinal fluid. Mine was done as a precaution with the tumor on my spine.

Forget what you have seen in movies regarding chemo. Long gone are the days of sitting on a bathroom floor and being sick with nausea all day. The anti-nausea meds have come a long way as have the treatments themselves in being less toxic. I got ill exactly one time and that was on my way home from the pharmacy picking up those same meds because I forgot to refill earlier. That doesn’t mean there aren’t side effects. The fatigue is extreme. I did find that walking on a treadmill for just 30-45 minutes a day did help with that. Then there was the constipation/diarrhea conundrum, you were never sure which was going to rule this treatment cycle. The worst was the Prednisone. You may have taken for allergies or skin irritations, but I was taking 6 times that amount daily for 5 days each cycle. It has healing properties, but is mostly in the mix to help appetite and keep energy levels up. The mood swings, sleeplessness, hot flashes, it was the worst.

All that being said, I weathered the storm pretty darn well. I think much of it was because of positive attitude and really getting involved in the lymphoma community. It was in November of 2011, I connected with another remarkable lymphoma warrior, Megan.  We “met” on our lymphoma support board on Facebook.   We only live 30 minutes from each other and despite having different forms and being separated by 20 years of age, we became quick friends.   We discussed everything regarding our treatments, the gross details we all want to discuss with someone, but may not have that person around to understand what we are going through. This was the beginning of me networking with other lymphoma warriors. They became my new family or as I now refer to them, “lymphamily”.  I came to know many of them better than some of my closest friends despite never meeting them in person.

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I realized that for the first time in many, many years, despite battling lymphoma, I was happy.  I had a whole new group of friends, ones who didn’t care what you looked like, what you could do for them, what your job was, any of the usual drama.  All we cared about was trying to help each other cope, lend support, and get each other back to being healthy again. The support I try to give on a daily basis is fulfilling beyond reason. Then there are some big moments that I receive far more than I give, although my counterparts may argue the same in their favor.

On July 1st, 2012, Megan and I finally met in person at our Lymphomathon team fund raiser. Certainly this was a moment of joy as we had both just finished treatment 2 months earlier. The next day Megan found out she already had a recurrence of her Hodgkin’.  She still had a long battle still ahead, yet by the end of the day we had filmed a spot for her now famous video and went to dinner. Despite the news earlier in the day, at that moment in time, we were happy. In September, one year after my diagnosis, we walked together at Lymphomathon (A 5K walk in support of the Lymphoma Research Foundation or LRF), in lock step with other warriors, several of whom recognized Megan from the video. And I was happy.

In December of 2012 another fellow warrior from the lymphoma board, Tina, travelled down from New Brunswick, Canada. I flew into Providence to meet her and together we were off to surprise another warrior living in the Boston area, Erica, to lend support as she was heading towards her stem cell transplant.  None of us had ever met, but you would have never know it if you saw us together. And we were happy.

In February of 2013, I went to a meet and greet held by the local chapter of LRF. At that time, I agreed to be on the 2013 walk committee, 5 months later, I was chapter co-president. Fast forward to today and I am on the regional council, helping wherever I can. It’s very rewarding volunteer work, although I would classify it as a labor of love.

Here we are, it’s November of 2014, and I have an awesome lymphamily, some still battling as I type this and the group grows all the time.  I am only 2 1/2 years in remission with the specter of a possible recurrence one day still fresh in my head.  I am still paying off medical bills on a payment plan, my meager life savings spent on treatments. Most of my life has found its ‘new normal’. I do what I want, when I want, no putting it off until tomorrow. My doctor visits are getting further and further apart. And I am happy.

My last piece of advice- don’t rush back into life, you need to listen to your body and work it back in slowly.

The support bracelets I bought right after diagnosis are inscribed with “No One Fights Alone”.  To me, it’s not just a saying, it’s a way of life.  I feel it’s whom I was meant to be and what I was meant to do. I have taken far more from lymphoma than lymphoma has ever taken from me. I don’t sweat the little things anymore.  I stop to smell the flowers, admire the sunsets, and I stop to feel the rain pound on my face.  I still have a dislike for shoveling snow, but hey, that falls under the “little things” category.

One day, a cure will be found for lymphoma, but until that time, I have lymphoma, and I’m happy.”

Jeff

And So It Happens


I believe the best relationships, and friendships for that matter, occur when you do not even try to find them.  As the saying goes, “when you least expect it…”.  And so it happened for me.

Now as one friend likes to tell the story, Josephine and I “met” on Facebook.  I am not going to make fun of anyone who has met and developed a relationship on Facebook, Match.com, Plenty of Fish, or whatever internet dating site.  As I mentioned yesterday, I am not interested in any kind of internet dating, blind dating.  I would prefer to meet someone, or develop a relationship with a natural progression, let it just happen.  Let someone come into my life, and find out about the many issues, and baggage that I deal with on a daily basis.  If I present myself in a way, that lets someone know that I am not going to draw them into my drama, which is different than being supportive of someone during their drama, then at the very least, I will have found and made a very good friend.  And if anything were to develop beyond that, at least it was something that was allowed to develop naturally.  That is just me.  That is how I want a relationship.

And that is the way things have worked so far for Josephine and I.

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Josephine is going to be a familiar name on “Paul’s Heart” because I first actually introduced her with the story, “Meet Michael”.  That story is posted in the archives in September as well as a page on this site.  I met Josephine through her son, Michael.

Michael had just been diagnosed with Hodgkin’s Lymphoma, at the age of 23.  Just one of several coincidences that he and I shared.  Another, our birthdays are just one day apart.  As many cancer patients are prone to do upon the diagnosis of cancer, he reached out to the internet for support and information about the road that he was going to be travelling down.  A friend of his family was aware of a Lymphoma Facebook page.  Michael was drawn to the number of posts of information that I was contributing.

Eventually, Michael would “friend” me as would his mother for more personal support with his own diagnosis and treatment.  They would ask questions about testing, ask for help to interpret results, and more importantly, how to react to side effects whether they were minor or major.  In 24 years, I have only witnessed such strong familial support rarely.  And just as rare, the courage and strength of someone to get through such a life threatening battle.

Over time, Michael would learn a lot about my history as well, and soon, he would make comments that he too “was a survivor” even before he finished his last treatment.  It was during his last two treatments, that through technology, Facetime, he would invite me along to his final chemo treatments.  It was during this time, unbeknownst to me, that invitation would end up preparing me for the day I would set foot inside of a chemotherapy suite for the first time in 25 years as I cared for my father.  But through that screen, as I had seen him in his home, more than a thousand miles away, I would see him in his chemo chair, eating pizza, seeing the bright and decorative background behind him, and his mother and father by his side.  This was definitely not the way I remembered my days in the chemo suite.

In the meantime, I had been looking to take “Paul’s Heart” to the next level, in book form.  I have been doing public speaking as a cancer advocate for as long as I have been a survivor and with my 25th anniversary coming up in two years, I wanted to lay the ground work for a national speaking tour, combined with publishing the book on my survival.

Josephine knew that I was interested in pursuing this direction, and offered to help me.  It was her gratitude for supporting Michael and their family.  The area where they live would be an excellent area to network and possibly find financial support for my two projects.  Coincidently, there was going to be a breast cancer fundraiser there that would be a great starting point to develop this support.  But this would end up being more than just a networking opportunity.  I had arranged with Josephine, to meet her son who was as much an inspiration to me for his courage during his battle, as I was to him for longevity since my diagnosis.

I spent the weekend getting to know Michael and his family.

But shortly after that visit, things went horribly wrong for Michael.  His treatment had caused a terminal condition with his young heart.

Again, I would be leaned on for support, emotionally and technically.  Admittedly this would go beyond anything I had ever witnessed as a patient or survivor.  But all of them, mother, father, sister, extended family, and friends, all needed help and hope for Michael.

All the while, I was going through my own issues at home.  I was in the middle of my divorce.  My dog’s health was failing.  And my father’s health was also ailing.  But one of my biggest flaws is that I always put the needs of others before myself, no matter what.  And this was no exception.

Michael passed away just after the new year, just shortly after turning 24 years old.  My father passed away this past May.

There were other circumstances that contributed to the one of the biggest decisions in my life at that point.  But as I often make my decisions based on familiarity, as well as support, I made a decision to relocate.  And it was that natural progression, that has led to something more than just a friendship.  We do not necessarily have an official name for it, because we both have been clear that we are not interested in getting married, ever again, both of us having dealt with difficult divorces.

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But in Josephine, I have found more than just a friend.  And it has happened naturally.  As I wrote yesterday, if I were actively pursuing a relationship, at what point would I have the discussion that I had cancer, and all of the other medical issues I have to live with?  And after all this time, and in spite of the circumstances, knowing everything about me health wise, and experiencing what her son went through, we have gone beyond being friends.

In each other, we have found unwavering support, as she and her former husband deal with the daily struggles with the loss of their son.  Josephine gives me daily encouragement as I begin to rebuild my life, a better life that I want to build for my daughters.  In spite of the fears from her son’s death, she courageously supports and encourages a healthy living for me, through diet and exercise, that in spite of all the health issues I deal with, I am going to live a long life if she has anything to say about it.

What is happening between Josephine and I is a lot more complicated that just having “met on Facebook.”  But however you want to say it, what we have between each other has happened part in fate, but also because neither of us were looking for anything or anyone.  Where ever we end up though, I owe the most thanks to the one person I cannot do so anymore, and that is her son, Michael.

Josephine is not only a beautiful woman, but has a beautiful heart, a kind heart.  She is a friend to every one she meets, no matter age, no matter any difference.

My children got to meet Josephine this past summer when they came to visit me, and they adore her.  Josephine adores them as well.

My ex has rekindled an old relationship and is happy as well, and the girls have met him also, and like him.

And so you have it, it happens.  People get divorced, and move on  to hopefully better times which is best for all involved.

 

 

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