Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Recreation”

If You Would Have Told Me


Each year, I write a chapter for a book called “Visible Ink,” published through Memorial Sloan Kettering Cancer Center.  The following is this year’s chapter, my 7th published effort with MSKCC.

 

If You Would Have Told Me

Paul Edelman

 

            Of all the side effects that were going to affect my life as a cancer survivor, the inability to have biological children of my own, was the hardest to accept.  If I refused treatment, in particular, the drug that could cause my sterility, I would risk achieving remission, or worse, die.

            If you would have told me, that in spite of choosing treatment, that my life would be blessed not once, but twice, by travelling around the world to bring into my life through adoption, two beautiful daughters…

If you would have told me, back as a 22-year old, just diagnosed with Hodgkin’s Lymphoma, that I would have someone standing in front of me, asking for my daughter’s hand in marriage, because I am a traditional father and my daughter deserves that respect, …

            If you would have told me, when I had completed treatments and was declared in remission, that I would be playing a role in planning my daughter’s wedding, …

            If you would have told me, nearly twenty years later, as I lay on a surgical table, about to undergo emergency heart surgery due to late developing damage from my cancer treatments, that I would be standing in the back of the church, just staring in awe at my daughter, beautiful and dressed in white, as she began the next stage of her life, …

            If you would have told me, five years after that, as I was being rolled out of my home, at 3am on an ambulance gurney, dying from a full blown case of septic pneumonia, another late developing result of my cancer history treatments, that I would be walking my child, my daughter, now a woman, down the aisle to someone else who was going to be entrusted with taking care of her, …

            If you had told me that after everything else that I had experienced due to late effects of my cancer treatments, that I would have no choice, when asked, “who gives this woman to be married?”, my daughter would be counting on me to answer, “her mother and I do.”  At that moment, you would think that going through cancer and all of my other experiences would have been the hardest thing I have done.  Wrong!  I did not want to let go.  Reluctantly, but not begrudgingly, I responded “her mother and I do.”

            If you had told me that as the decades of my survivorship passed, that I would be able to dance the special father/daughter dance, I would tell you, time is not kind to the mind of a cancer survivor wondering, “how much longer will it last?”  Yet here I am, a microphone in my hand, dancing with my daughter to a song that I not only picked out for her, but will sing to her, a lullaby that comforted her to sleep as I rocked her and sang to her, “Turn Around”.

            If you would have told me, that I would be holding my first grandchild, me undecided about what I wanted to be called, “pop-pop”, “grandpa”, “poppy” or even a name my grandchild would just give me, I would have to tell you, that a long time ago, as I was introduced to Memorial Sloan Kettering Cancer Center Survivorship Clinic, that is exactly what they told me would happen, that I would see this day.

            There is only one catch, none of this has not happened yet.    

            I do not know when this day will actually happen.  I have two daughters and I cannot wait to go through this twice.  I am only more than willing to do so.  My daughters are in their teenage years, still in school.  I know this emotional time for me will rapidly approach.  But on the calendar, I have plenty of time.  One thing is certain, I know that they want as much of a future with me, as I do with them.

            If you would have told me, when I was diagnosed thirty years ago with Hodgkin’s Lymphoma that I would even have a future, let alone, two of the most important people in my life, my daughters, and survive long enough, to see them get married, and have children of their own, I would have said “I will see those days.”  I have the right people behind me; doctors, nurses, my mother, my closest friends, and of course, my daughters.  With support like that, there is no doubt.

            I will have that chance, to sing “Turn Around” to my daughters one more time, but also as I rock their children in my arms, sing “turn around, and you’re two, turn around and you’re four.  Turn around and you’re a young child, going out of the door.”  And I will tell you, “I told you so.”

Comparing Apples To Potatoes


A recent broadcast of the movie called, “Three Identical Strangers,” clicked a memory going back to my college days and psychology courses that I took, the argument over “nature versus nurture.”  In the movie, and I will do my best not to spoil the movie if you have not seen it, is the story about three adult men (all with different last names), born as triplets, but separated at birth and placed for adoption.  The story, almost too unbelievable to be true, one of the men discovers by accident that he has an identical brother, and then soon after that, the third brother is discovered.  The cruel part of this story, is that the separation was a coordinated effort between an adoption agency, and a scientist interested in the study of the theory of “nature versus nurture.”  You will have to watch the movie for yourself to judge the morality of what was done, and to empathize with the many issues that arose for the men, before, during, and after the revelation of their separation and reunion.  But clearly, there are arguments for nature, as well as for nurture.

As a parent of adopted children myself, neither are biologically connected, I learned early on, the importance of nurture, and balancing the effects of nature.  Relatives would often make comments about behavior concerning my daughters as far as “what they should be doing by a certain age.”  While I am not one to put a whole lot of value into charts and statistics, my defense of what others expected of my daughters was simple.  Unlike biological children, I was not able to talk or read to them through their mothers’ bellies.  And an important amount of time passed from when they were born until they were placed in my arms.  Nurture was going to play as important a role as nature.  Clearly in my eyes, I was not worried about any developmental issues.

Confirming my theory on nurture for my daughters, it was discovered that one of my daughters was actually fostered with another girl, actually sharing a crib.  Though this girl currently lives in another country, our daughters share many similarities that can only lead me to believe, that their foster mother had some sort of nurture impact on these two children who shared only crib space, no physiological similarities.

The effects of raising my daughters together became obvious, two loving daughters who enjoy each others company.  Both have been raised to respect, be honest, loving, and many more of the values that a parent hopes for their children to have.  This is all a part of the nurturing process.

I am not sure how much it happens anymore today, but back when I was in school, there were many times I faced teachers who actually taught my parents.  Upon name recognition, it would get pointed out to me that I either had a lot to live up to with expectations, or perhaps the bar had been set low, so no expectations were necessary.  Television sitcoms at the time often pitted siblings against each other in similar settings, with comparisons being made between the siblings in schools.

Though comments were often made about how my daughters resemble each other, at one point assuming they were twins because when they were younger, they were often dressed similarly, there was no mistake they are each their own persons.  Today, they still share the same values they were taught, but they also demonstrate their own unique qualities about themselves.  But it is unfortunate however, when people still feel the need to compare the two, as if nature has decided how either should be treated based on the actions of the other, whether it be by a teacher or a family member.  Even if they were born of the same mother, which they are not, they are both individuals with similar values, but different dreams, different characteristics, different talents.

Nurture has played an important role in my daughters lives.  But the nature part of their lives do exist.  We may never know their biological parents, but we can definitely see the role that nature plays in their lives.  More noticeable is the role of nurture.  It is amazing really.  Looking at photos when I held them as babies, having no idea what was ahead of them in life, to now, they are deciding what direction they want to take in life as far a future careers.  Both have strong talents together, and independent of each other.  One is good at something while the other is good at another.

This much is true.  It is the encouragement and the support that matters most when raising a child.  I really do wish that comparisons were not made between them, because while similar, they are also different.  And they are the best children any father could hope for.  I will stand by them, protect them, encourage them, and support them in all that they dream to aspire to.  After all, is that not what a parent should want for their children, to have a better start to life, a better life, better prepared than what we had.  And that is where the comparison should end, not between the two children.

I could not be more proud of the efforts of both my daughters.  I cannot see what else is in store for them in their future.  And God willing, I will have that chance to witness it.

Oh, and the reference of the title, yes, I know the expression is “comparing apples to oranges.”  While one of my daughters enjoys apples, the other just loves making “potato” references.  Like I said, there is no comparison between the two of them, other than I love them both so much.

 

A Memory From 30 Years Ago I Will Not Forget


The last quarter of 1988 was one of the worst times of my life, though I really should not set the bar based on that.  30 years ago, I was facing cancer, Hodgkin’s Lymphoma.  I spent the last two months of the year, undergoing tests to determine just how bad my cancer was.  However starting 1989, was not going to be any better, because I was going to have to undergo one final diagnostic procedure, and it was going to be a big one, and recovery time was going to be an issue.  Up until this time, proudly, I missed very little time from work.  But this procedure was going to be much more extreme.  My memories of this time period are just as vivid today as they were back then.

30 years ago, actually a week ago, the Philadelphia Eagles visited the Chicago Bears in a playoff game, nicknamed “the Fog Bowl,” because of the strange weather phenomena that took over the stadium as fog engulfed and dropped into the stadium, making it nearly impossible for us to watch the game, let alone, the players to actually see what was happening on the field.  Today, 30 years later, the Philadelphia Eagles are again travelling to Chicago to play the Bears again in another playoff game, though no obscene weather is expected this afternoon.  But who knows?  No one expected that bizarre weather back then.

For the majority of my life, up until 1988, I was fairly healthy, only one minor surgery when I was six years old.  And already in 1988 I had received many new surgical scars, just to determine what stage of Hodgkin’s I was dealing with.  Now for those dealing with Hodgkin’s today, please, please appreciate the fact that you do not have to undergo this procedure, the laparotomy, to stage the cancer.  You get the PET scan.

What was especially frustrating for me, because I was more than aware of the concept of wanting to get this treated sooner than later, especially with my wedding coming up in five months, but if this was going to be the end all and determining factor of treatment options, why not just have skipped all of the other testing, and go right for this?  Of course, looking back, I can understand why now, but back then, it was just so frustrating.

For many of my readers who are long term survivors, this is deja vu for you, and for those who do not understand what exactly the laparotomy is, here you go:

There would be several biopsies performed through the 8″ incision on my abdomen.  My liver, some lymph nodes, and with Hodgkin’s being a cancer of the lymph system, the decision was made to remove my spleen.  Back then, the spleen was often deemed “unimportant”, able to live without, and to a degree, we can, I do, but it comes at a cost when it comes to fighting infections, and today, science knows this, and spleen removal is not done as often anymore because of those risks.

Up until this point, I had only one lymph node that tested positive for Hodgkin’s.  I was currently at stage 1.  Other biopsies and tests and blood work showed nothing.  Just as trying to play football in fog, getting the proper staging for me was just as difficult to do.  But just as there was a winner and a loser in that football game, my spleen was going to determine my outcome.

My spleen came back from pathology, fully involved with Hodgkin’s.  My staging changed from stage 1 to stage 3b (which meant there were symptoms with the staging.  The full diagnosis, staging, labeling, was “Hodgkin’s Disease, 3bNS”.  The NS stood for “nodular sclerosing” which is one of the types of Hodgkin’s classifying its aggressiveness, determining treatment options.

There was one thing I had to get through in the immediate moment however, THE PAIN!!!!!!  I had never had a major surgery like this before.  And now having been cut from my chest, just below my belly button, my insides torn apart to allow the biopsies, the pain was unimaginable.

As I continue through this anniversary journey, my memories are quite clear of what happened and how.

And though I am glad this scar is just that, a memory, it is still there to remind me of where I came from, and a reminder to all the new patients dealing with this diagnosis today of the progress that has been made.

And just as my body has healed from that surgery back 30 years ago, I am routing for the Eagles to be passed their memory of the Fog Bowl, and have my fingers crossed for a victory today to avenge that loss 30 years ago.

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