Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Recreation”

Life Goes On… It Has To


It should not have been a big deal really.  We were not asked to do much.  We were just asked to do our part to slow the spread of a virus that is going to kill a lot of people.  Either some people just refused to believe it, some did not want to be inconvenienced by it, some did not think it applied to them, and some thought it could not happen to them.

I just happen to live in one of the states where people do not want to be inconvenienced by it, people do not think common sense applies to them, and definitely deny anything will happen to them, and if it does happen to them, “so what!”

That fifteen day period is over, and we as a country are even worse off, and now, because of the invincible and arrogance, we are being asked to give another thirty days in effort to prevent the worse case scenario from actually happening, deaths of hundreds of thousands in the United States alone.

I do not know, maybe I just cannot understand the thinking.  Fifteen days was just a little over two weeks.  How hard was it?  I did social distancing for over a year and a half through my cancer battle.  That was thirty years ago.  I am still here.  And I plan on being here for many more.  So for thirty more days, I can do it, and as I have stated before, I medically do not have a choice because of my late side effects from those treatments.

One major thing impacted by this virus was of course the economy, especially the restaurant and entertainment industry.  Social distancing has turned bustling restaurants in the peak of tourism seasons, into drive-through business only.  These businesses are doing all they can to hang on to get to the end of this.  If only those who were indifferent to this crisis would have taken the fifteen day request more seriously, who knows, we must have been on our way to resuming day to day activities.

But there are things that definitely need to continue, along with the economy, and two of these things can have a profound impact.  Of course, both are issues that I strongly advocate for on “Paul’s Heart.”

If you are a long term cancer survivor, relying on routine tests to monitor progression of late developing side effects, or even cancer patients in current and active treatments, depending where you live in regard to the activity of the virus, your life may have been put on hold, so as not to risk your exposure to the virus.  Think about it, a human life, facing two doors, each with a tiger behind them, has to choose and open of those doors.  That is the situation being faced regardless of the seriousness or type of medical issue many face.

Patients now have to delay their follow up appointments or their treatments to reduce the risk of being exposed.  For some, like me, having to make a decision, does a developing symptom require any kind of delay?  Over the years, I have had several “false alarms” or “undiagnosed” events.  I have a very difficult task to figure out if it is severe enough to act.  Being as involved in the medical community as I am, I also recognize the need for the medical staff to direct their attention to this crisis if at all possible.

To deal with this, I do have a plan.  To first reach my personal physician by phone.  She knows me well enough, nearly 30 years, that she can ask me every question to determine the situation.  If she feels I need medical attention, the next phone call will be to the hospital and what to do from that point.

Another issue that needs to get recognized, child custody.  Of course it will vary state by state, but most states family courts have already declared that custody orders are not affected by this virus.  After all, both parents are capable of taking care of their child(ren).  As an example, Allegheny County Court in Pennsylvania is one such court that has made this declaration.  It really is a no-brainer.  There are plenty of nightmare stories, where a custodial parent will attempt to deny a custody visit from taking place because a child is sick.  ***I FORGOT – NEED TO MENTION I AM NOT REFERRING TO MY OWN SITUATION – FOR THE SAKE OF TROLLS***  Judges routinely faced with this situation will always rule in favor of the custody order because unless there is a history of neglect, there is no reason to deny a visitation, except in a rare and extreme situation (such as requiring hospitalization).

Now with a situation like we are currently in, common sense needs to prevail.  And this is a situation similar to mine.  If there is a geographical distance that has an impact, then there do need to be considerations.  But it is communication between both parents that will result in agreeing to put the custody order aside for the time being.  This is called co-parenting.

For instance, if travel is involved, especially commercial, does this increase a risk for the child(ren) either contracting it, or carrying it?  No responsible parent would ever be that selfish to put their family at this kind of risk.  While I want to believe that age has some sort of immunity, it is not something I am willing to risk my children getting.  And with my increased morbidity issues making me high risk, I cannot risk them carrying the virus to me.  It was the hardest decision in the world for me to delay any visitations until the danger is at least reduced in a major way.  The worst thing in the world, because of my health issues, is to have either of my daughters come down with this virus, and be unable to visit them.

Finally, and I know this from personal experience, the one thing that definitely does not carry on, just hanging in limbo, those families involved with international adoptions.  Both of my daughters were adopted during periods of virus outbreaks, one of those, SARS, caused a delay in the process, after we had already been informed our daughter had been matched to us.  All we could do was wait for travel restrictions to be lifted, the fear, not knowing if it would be weeks, months, or even years.  The other outbreak, involving bird flu, actually expedited the process in fear of a travel restriction.

These are definitely stressful times.  If you are reading this, not only are you likely the generation whose first major historical events were the Challenger disaster, or the terrorist attacks of 9/11.  But this pandemic, is something that no generation will forget.  Remember the days when we would hear our parents talk of the struggle walking to school 50 miles in the snow, barefoot, uphill and downhill, and backward, and we rolled our eyes?  I used to laugh at that until I got to do the same thing as my school district did not use school buses, so never had snow days.

But our children will have this story, having missed nearly half of a school year, instead being forced to do their learning at home.  And perhaps they will be the first to remind us of the good old days, when we used to have to bug them to get off their computers or phones.

Home Stretch To Adulthood


The two greatest blessings in my life occurred when I became a father.

I was supposed to spend this passed weekend with my daughters celebrating my older daughter’s “final” birthday of her childhood.  Of course, with my health concerns, putting me at a high risk of complications from the crisis our country is dealing with right now, those plans had to be cancelled.

A slight irony, is that when she was adopted, the world was dealing with a SARS type virus (just as this Corona Virus is a SARS virus).  That episode back in 2004, caused a delay in the adoption process which actually caused a “surprise” birthday party, in Hong Kong.  We went from being concerned of missing her first birthday, to the rapid response and dealing with SARS, to celebrating her birthday, with her fellow adoptive “siblings” and their families.  Sadly this time, a SARS virus has kept us apart.

She had several nicknames, but one that I told her she would always be, “my little ting ting”, a reference to one of her original Chinese names, referring to a graceful swan.

The most amazing thing about being her father, has been watching her grow.  To actually see the influences that I have had on her through her formative years, she still carries with her today.  There is so much that she has done on her own as well.  Look out world, she is coming for you.

Fun.  Intelligent.  Full of surprise.  Empathetic.  A loyal friend.  Respectful.  Determined.  Loving.  Talented.

I cannot believe it.  The next birthday I get to celebrate with her, will be her first as an adult.  Where did the time go?  As I peruse through all the photos that I have taken of both of my daughters, I see all the blessings and time that have passed.  At the same token, it has just gone by, way too quickly.

I wish I could be with her, and she knows that.  But we both know it is safer for me where I am at because of my health.  My attention will be directed to another important date with her, Father’s Day.  Hopefully by then, the danger of this crisis will have passed.

Happy Birthday Madison, forever my “ting ting.”

Love, Daddy

15 Days, Limits Of Group Size – It Is All About Perspective


This meme came across my feed today.  It could not be more appropriate.  Honestly, I had been hoping to follow up my 30th Anniversary post with stories of the adventures of my next ten and twenty years.  Instead, my last several posts have all been geared to help everyone understand the big picture, and why it needs to matter to everyone.

This afternoon, President Trump announced an extreme measure meant to help contain the spread of the Corona virus.  The result from this press conference is simply, politics needs to be thrown out the window dealing with this crisis.  If you were anti-Trump, you heard a press conference that appears to have nearly everyone on the same page, hopefully giving confidence that were will progress forward.  If you are pro-Trump, you should stop hearing (at least for the time being) attacks on the efforts, but rather, from the President himself, this is serious, and it is not going away any time soon.  Both sides should now be on the same page, going for the same goal.  Slow the progression, buy the time needed so that the medical system does not get overwhelmed.  More importantly, casualties kept to a minimum.

One of the hardest things for most people to accept, is being told their life needs to be put on hold, at least temporarily.  No secret, I am a cancer survivor, and I think I can speak for anyone who has ever had to deal with a serious health issue, when I say, “hold my beer.”

15 days.  We, as a country, are being asked to limit our interactions to groups less than ten people.  In some places, businesses are either being recommended or required to close to assist with this effort.  Chances are, if you are a healthy individual, the news of being told to restrict your social activity probably resulted in the same result that a teenager would give being told they could not go to the movies or mall with their friends under normal circumstances.  Que the eye roll and thunder as the pupils hit the back of the head, and the screams of exasperation at the perceived “end of days”.

I just heard a great analogy, that pushing to find out how much longer we are going to have to deal with this, is like asking a fireman how soon we will be able to move back into the house, as they are still putting out fire.

Perspective.  Also known as “keepin’ it real.”

My chemotherapy lasted 8 months, 240 days.  No hair.  Sick as shit.  Fatigued to no end.  No one wanting to hang out with someone looking like a freak.

My radiation therapy went 30 days.  My skin burning worse than any sunburn imaginable, resulting in a peeling that you could only imagine being equaled by a Hollywood makeup artist.

Recovery from open heart surgery, six months, 180 days.  With one full week in the hospital, 2 days in the ICU, I lost all my strength.  I needed the full six months to heal properly, before being able to return to work.

Enough with the sick stuff.  Are you reading this and old enough to remember the events of September 11, 2001?  Have your forgotten all of the changes that were immediately implemented, leaving us no choice to accept the way things were, many of which still exist today, some methods even stronger?

Do you think only bad things in our lives can make us appreciate perspective?  Nope.  I know it is a bad example, but how many have gone on a two week cruise?  Spring Break?  Family vacations?  The truth is, we have no problem with a “social distancing” when we are able to make that decision ourselves.  Because that is a good thing.  But you know what else is a good thing?  Keeping your health.

President Trump has made it very clear today.  We need to do this, limit our social activity for fifteen days.  It is not like we cannot do it, because we can.  But just as I lost control of my life to fight cancer, and the many late health issues have come up, of the events of September 11, 2001, this situation is no different.  I cannot control the outcome of the spread.  But I can deal with how it affects my personal life, which as a collective, will help everyone.

I have gone through this many times.  So can you.

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