Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Politics”

You Worry About You. I Will Worry About Me.


The news is encouraging. States and counties all over, are finally seeing lower transmissions, hospitalizations, and as the trend goes, deaths from Covid19, from the current variant. Our fingers are all crossed that this will be the end to the pandemic, so that it can be dealt with more like a flu, as it was often mischaracterized in the beginning. Because like the flu, there are now vaccines and treatments. And that is just one main difference. In the beginning of the pandemic, there were no vaccines or treatments. It was clear this was no flu. And the bigger distinction, flu never took the lives of so many from one outbreak as Covid19 has taken.

For the longest time, all we could do, is follow recommendations for something we had no idea what we were dealing with. It should have been no big deal really. We initially were asked to wash our hands and stay a decent distance from each other. Admittedly, the whole mask recommendations were a big debacle in how they were handled, whether due to shortage of supply, or efficiency, or even laziness by those unwilling to do the most basic of covering their mouth/nose when they sneeze or cough. And let me tell you, I saw my share of human “pigs” just spew nasal eruptions directly to the store shelving in front of them, no barrier between their face and those exposed during this time.

I will not waste my breath on the endless political arguments and false tropes on what was necessary to get through Covid19. Here is what I do know. I have followed the recommendations, ALL of them. I am one of the few that I know, that has still not been tested positive. And I plan to keep it that way. Which means that the mitigation efforts I followed did work. I want to be clear, this is not a judgmental statement either. The mitigation efforts may not have been perfect, but clearly they did prevent the pandemic from being worse. But it would have definitely been better to have more people willing to do what was necessary. No doubt, this would have been over sooner.

So with numbers continuing their downward trend, mandates and recommendations are being dropped by states and local governments. There are still some that are keeping efforts in place as they are just not there yet with their numbers. Even with the constant updates from the CDC, my daughters school district held an emergency meeting yesterday, and voted on an updated safety policy to reflect the new CDC guidelines, which now reflect masks being optional. And in spite of the meeting being held to change the mask requirements, there were so many parents still expressing their political outrage at something that was now a moot point.

I did not even need to ask my daughters, if they would continue to wear their masks for the time being, to wait for numbers to go even lower. They are doing it willingly. Because they know how important it is to those in their lives, especially me, that they not be carriers of Covid19.

But not everyone will be like my daughters. There will be a major “release” of those wanting to shout from the rooftops “off with the masks,” by anyone who has been opposed to them. In just the last few days, I was told twice, and I emphasize “told,” I “could and should” take of my mask. They see the removal of the mask requirement as if it were proof to them, the masks were not needed in the first place.

Again, I have not had Covid. And I do credit masks for that. I do not do crowds even without the pandemic. I have not stayed isolated “in fear” as some proclaim politically. I get my own groceries. I pump my own gas. Last Summer, prior to the Omicron outbreak, I even took my daughters on a small trip. Neither they or I caught Covid, because we still followed the recommendations since we were not done with Covid19.

They understand that I have a compromised immune system, and struggle to maintain antibodies. I have already had three full doses, which it took to get me the coverage needed. A blood test next month, will likely reveal, my coverage pretty much depleted, needing a fourth dose. Meaning, I am still at risk. But I am not going to hide. I am doing all I want to do. And I am doing it with the advice given to me by my doctors.

So, when someone says to me, “you can take off your mask, I’m vaccinated” or “take off that mask you don’t need it,” I politely say, “yes I do.” It does make a difference to me. You do what you want to do and I promise I will not say anything to you about it. All I ask is the same in return.

The downside to the mask for me, as a cancer survivor who struggles with a multitude of health issues and restrictions, I do all I can to hide it from everyone physically. The outer shell that is my body, hides the trainwreck inside. But the mask, will let everyone know, there is something wrong. I am okay with that, because I follow my doctors’ advice and recommendations. They know what I must do to live through this crisis.

Closure Or Grief


I am going to do something I have never done on “Paul’s Heart.” In fact, over the years, I had been reminded of this several times by the particular person I am going to write about today, my sister.

Originally when I began writing this blog, it was not intentional that I did not include her in any of my posts, I simply had no reason, or there was no tie-in, to what the purpose of my blog is and always has been about. From the beginning, this blog has been about providing inspiration and support for those battling not just cancer, but any serious illness or crisis, parenthood as a cancer survivor, especially one with serious late developing side effects, and parenting itself, now as a divorced father. My sister simply never played a role in any of those posts.

My sister often complained that I never included in her in my posts, which did include my mother and my father occasionally. But there was nothing to write to include her. I do not write posts about others who do not have a direct correlation to “Paul’s Heart” or the stories I write, unless I share a guest author, and that is normally to share an inspirational cancer related story.

So, why does my sister get a story now? And I will apologize in advance for any awkwardness you may feel while reading this. Because she is gone. As in dead. She died back in September from COVID19. There, I said it. Her family will not. But I will.

It is unbelievable, that it has been over two years now, that we have been dealing with Covid19, in various stages and surges, and too many still can not get on the same page as far as what needs to be done to not only survive it, but now accept that we must live with it. Just as we were divided on accepting that it was real, just as we were divided on how to mitigate it, we are divided on how to live “with it.”

As someone who has fought a life-threatening illness, at one time thought to be one of the worst things to face, cancer, Covid19 has taken the status of most serious health concerns away from cancer, especially with death or severe illness now preventable. Back in 1988, you hardly knew anyone who had cancer, let alone survived it. Today, you are easily likely to know someone who has or is battling cancer. But we do not give it much thought. We have diagnostics for it. We have treatments for it. We just do what we have to do to hopefully survive it.

The one thing that I can state with certainty that both cancer and Covid19 have in common, it does not seem to be taken seriously, until it happens to you, or at least to someone very close to you. Until cancer, or now Covid19, personally affects or affected you, it either did not matter or did not exist.

Over the last two years, I would have to take off my shoes to count the number of people I know that have died from Covid19. In fact, it is actually easier for me to count the number of people I know that have not been diagnosed with Covid19 than those that have tested positive. But I am not going to talk about the others that have died from Covid19. I want to be clear. This is not me reporting something reported on the news or social media. This actually happened.

Now, in full disclosure, I need to state, my younger sister and I were estranged for a long time, for several reasons. As young children, I guess you could describe our relationship as that of a normal brother and sister. But, as we got older, things changed. We developed different interests, and as adults, these interests eventually developed into hard line stances against each other. No matter our differences though, we could at least remain in the same room. But things would get extreme between us with major events affecting our families, and things would be said, acts would be done. The most serious of those reasons destroyed our relationship as brother and sister permanently, something I considered unforgiveable and I was willing to take to the grave. And that has been guaranteed now.

My sister made her choices. I can criticize them, judge them, and condemn them. But they were her choices. I do not have to understand them, or try to figure them out. She made those choices. She had to live with those choices. Choosing a likely death over certain prevention, now she is gone.

For whatever her reason, she chose to believe the many different forms of false tropes when it came to Covid19, to finally settling in the end, of relying on her faith to protect her from Covid19, or to save her from Covid19. She preferred certain death from Covid19, than possibly, POSSIBLY not guaranteed side effects from the vaccines, which even had she developed any, could have been dealt with, and protect herself from the virus.

Like I said, she had her reasons in the beginning that she chose and fought against mitigation and prevention. But when she finally settled for her final excuse, she chose religion. And this is what I do not understand.

I know a tale has been told in religious circles in varying forms, referred to as the “parable of the drowning man.” In this story, a man, drowning in the ocean, is approached by a fishing boat who tries to rescue him. The drowning man says “no.” A yacht sails near him, steers toward him, offers to rescue the drowning man. Again, just to be told “no.” Then, a coast guard helicopter flies over, drops a life preserver, with the guard telling the drowning man to grab onto it and he will be pulled up. The drowning man says “no.” Finally, the man drowns. Upon his arrival at Heaven’s gates, the man sees God, and asks, “why didn’t you save me?” To which God says, “I sent you two boats and a helicopter and you turned each away.”

I get that religion wants to believe in miracles. But for my sister to have chosen death, over the miracle of the vaccine, was a selfish and false choice. Many religions go to extreme lengths to save the human life, protesting from abortion to the death penalty. Then why, during this pandemic, will so many in these “religions” choose death like my sister did?

If you notice, I give no opportunity for anyone to shout out things such as “this is what the media wants you to hear.” Sure, what I will tell you next, sounds like it could have been a sound bite off of “liberal” media, to convince you or scare you. But I assure you, any similarity, is real and legitimate. This is my sister’s Covid journey and spoiler alert, death.

My sister, two years younger than me, was hospitalized with Covid pneumonia. In other words, it had gotten that bad already by the time taken to the hospital. And this was in spite of other household members being positive with Covid. Soon after, she had worsened enough, to need to be put on a ventilator. A few days later, was her 54th birthday, which she spent alone, under sedation. Her family members called in to her, to sing “Happy Birthday” in hopes that she might hear their voices. Eventually, her body could not take the virus any longer. And yes, if this all sounds familiar because you did hear it on television, this is how it happens in real life. All those nurses and doctors who did everything they could to save my sister’s life, instead, witnessed another preventable death. And they are the ones I feel sorrow for. They knew their careers would have some tragic endings, but not like this with so many, choosing this fate, leaving others to deal with their faulty decisions.

To those that know me, I have been clear. If you refuse to take precautions, if you refuse to get vaccinated, if you even deny the seriousness of Covid19, I will never shed a tear when you die. And this goes beyond any animosity my sister and I had between us. I cannot and will not grieve for my sister. But I am angry. Angry at the selfishness that my sister exhibited, for what her selfish decision would do to our mother, who still grieves as much as the day my sister past. With all the health issues I must deal with, all my sister had to do, was get vaccinated, and my sister would have easily outlived me. My mother should not have had to bury her daughter. No parent should have to bury their child, especially when there is a choice that could have prevented it.

No one in my sister’s family wants to talk about what happened. The “church” that she belonged to, does not talk about it, just that “death is an ugly thing”. And it does not seem that my sister’s death will make any impression on to her surviving family members to get vaccinated. And they watched her fucking die!

I have told my mother, she must move on. I know she has unimaginable pain. She did not ask for that pain. She does not deserve that pain. And the fact that everyone else that surrounded my sister does not care enough, that they are willing to possibly put her in that situation again, speaks volumes. I have done my best to encourage my mother to continue following the recommendations, including getting vaccinated and wearing masks, and like me, avoid a positive test, because that is the only guarantee not to lose our life to Covid19.

This post is not about having a debate. After two years, as proven by my sister’s fate, you either believe the situation is serious enough to care, or you don’t. And there is nothing my sister’s death will do to change that.

A Misguided Protest, Also Misdirected


The majority of my posts, are usually off the cuff. When I reveal feelings, they raw and unedited. I do not have any problem being that open when I write. But occasionally, there are times, when I need to let “fireworks” exploding through my mind settle before I hit “publish.” Today’s post is one of those I was better of waiting to press the “publish” button.

In full disclosure, I have always disliked wearing seatbelts. I had only been driving for approximately five years when Pennsylvania joined other states, in making seatbelts mandatory in 1987. In 2008, following my heart surgery, my refusal to wear a seatbelt became more steadfast, even though it was the law, for one simple reason. My breast bone had been broken to access my heart, and the incision itself was very tender. The seatbelt rubbing against my chest hurt, A LOT!, but even more of a concern, in the event of an impact, a jolt forward against the seatbelt, I felt would snap my breastbone in half, something I never wanted to feel.

While I have gotten better at dealing with my rebellion, not so much in the beginning. My first traffic stop for it, was in Manhattan, and cost me nearly $300, just for the seatbelt violation. I did not care. I was not going to wear it. Other traffic stops, not in NYC, cops were a bit more sympathetic to my issue, as I explained in the same way to the NYC cop, and let me off with warnings.

Here is the thing. Do you understand why we are required to wear the seatbelt? I was given one reason by an officer, that it improves our driving, by making us more aware of our safety and our driving. I call bull on that one. I still have all of my other driving habits in tact. But the other reason, and repeated by the other officers, made me aware of something I had not considered.

A seatbelt will keep the driver or passengers secured in the vehicle, preventing an ejection from the car, and possibly a certain death. How many police officers do you think have had that experience? Worse, have you ever had this experience?

I cannot imagine what it is like, for an officer to have to be the one, to notify a family member, that a loved one had been killed in a car accident, and simply because they were thrown from their car, when a seatbelt might just have made a difference.

Oddly, even though I can recognize this “other side,” I still have the resistance to wanting to wear the seatbelt, and for additional reasoning. I will admit, it is not logical thinking, as at least my chest area made sense. But the bottom line, the officer made it clear, the seatbelt is not just about me, but how it affects others.

So, what had me so pissed off yesterday that I risked writing an “F-bomb” laden post? It could not have been about seatbelts, could it? Actually, while not about seatbelts, what happened yesterday, is totally relatable. And before I get into that, I want to preface the rest of this post, my commentary IS NOT POLITICAL nor is it meant to change anyone’s opinion. But rather, to produce an awareness that what we are going through today, really is more than just about us, but those around us.

I have been undergoing cardiac rehab for several months now, at a hospital facility. As any patient going through this, during Covid19 times, we are more than aware of the risks of being there and exposure. But I am also super appreciative of the efforts to keep me, and all of the other patients safe as we recover. At least most of us. One individual clearly does not. And yesterday, when I saw it, I was pissed off.

Again, this is not about Covid19, testing, vaccines, or even masks. And while I fully support the right to protest, ANYTHING!, when I saw what his mask actually said, I thought, “you are fucking disrespectful ingrate.” His mask reads, “worn by FORCE”, with “force” spelled out using the American flag, followed by “not by fear.”

Back in the beginning of the pandemic, I often said, those who were opposed to the recommendations or requirements of masks, this would be a perfect opportunity to post your opinions or whatever on the mask itself. What better way to let people know your position. And while I get that this jackass definitely is anti mask, that is not my issue.

Think back to the discussions I had with cops about why I wear a seatbelt. My opposition to wearing a seatbelt had the potential to affect others. And at least seatbelts are not contagious. As the title implies, his protest is misguided and misdirected. I do not have a problem with him wanting to state his opposition, and I do not care why. What I do care about, is those that are affected by this mask.

First, the misguided issue. His “worn by force” claim, using the American flag. The United States has nothing to do with him having to wear a mask during cardiac rehab or anywhere on hospital grounds. It is the policy of the hospital, to keep patients and staff as safe as possible, regardless if we have governor that appears to be pro-Covid in governing. But the second half of the protest, “not by fear,” again is a false trope. Those who do not fight the recommendations to wear a mask, are not living by fear. We are living smart, for ourselves, and others. Need proof?

As I began this course of rehab, just prior to the Omicron surge, one of the nurses said to me just a few weeks ago, “this is just so heartbreaking. We were done with this. The numbers had all gone down.” She of course was making reference to how Delta, the prior variant, had caused so much death and heartbreak, and finally the numbers began to look like we were finally getting through this. But then, the intro to our class given every morning went from “anyone exposed to or have a fever, cough, cold, or Covid?” to then include, “we really mean it now,” making reference to the wildfire spread of the Omicron variant.

I have spent a lot of time in and out of hospitals during this pandemic. I have personally seen all the efforts taken by the hospitals to keep everyone safe. I have heard of fellow Hodgkin’s survivors having procedures delayed not just because of lack of a hospital bed, but lack of staff to care for the patients. I have had conversations with nurses of all years of experience from decades to just out of nursing school, having experienced the worse their careers could ever have faced.

To say I was furious yesterday was an understatement. I am also really surprised my vital signs did not show my ire. But here was this moron, wearing a mask, protesting that he had to wear it inside the hospital, all the while, staff were following his sweaty ass from machine to machine, disinfecting it for him before the next patient used it, just as every machine was cleaned before he used it. And every member of the staff there, from nurse to therapist, was there at their own risk of exposure to Covid, including potentially from him, and he was going to gripe about it. His mask may as well have read “nurses are stupid.”

Look I said it, and I meant it, my issue is not that he is anti mask, anti mandate, anti whatever. And I support anyone’s right to protest. But in just the last week alone, stupid and insensitive decisions like this, have an impact on everyone else around. Look at the London bound flight from Miami, turned around and aborted the flight, an hour and a half into it, just because some stupid fought the flight attendants on wearing her mask, something she agreed to do when she bought her tickets. Or this one, a Virginia woman who was just arrested for threating a Virginia school board, that she would show up with guns if her kids were forced to wear a mask in school.

After two years of dealing with this, you either have common sense, or you do not. You either agree to mitigation and prevention or you do not. Not many at this point are going to be influenced to see the reason we are still dealing with Covid after all this time. We definitely know what works, and what does not work.

And what this patient is saying with his mask, has nothing to do with the false trope of “patriotism”, as much as he is flipping his middle finger at the staff trying to help him recover. And before you say, well, “well, what if that is the only mask he has?” There are plenty of disposable masks at the entrance to the facility. He could grab one on his way in. Like I said, protest all you want. I support that. But to do so in spite of those trying to help you, at their own risk? You’re an asshole. There is a huge difference between not wearing a seatbelt, not contagious, and fighting mitigation and prevention of something contagious. But with both, your actions have an impact on others.

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