Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Inspired By…”

A Rough Day (Again)


I do not hide it.  I wear my heart on my sleeve.  I will admit to being calm, cool, and collected in times of crisis, and it is extremely rare that an emotion will be seen from me.  Whether I am sad, angry, happy, intrigued, disgusted, trust me, I will let you know.

As a cancer survivor and cardiac patient, I have an appreciation for all things concerned with the world of medicine.  I am not a doctor, nor do I play one on television, but experience has taught me so much.  In all honesty, I should probably go back to college, and get a medical degree.  I cannot say with certainty as I was never a medical student, but one thing that cannot be taught is empathy.  But it is both my empathy and my experience right now that cause me to have a heavy heart, broken if you will.

For the second time in several years, I found myself in a situation of not just a caregiver, but also clinician.  For the second time, I was able to diagnose and issue that had been overlooked, or willingly ingnored.  Because of the empathy and care that I gave, I do not believe there was suffering, but the ending was still so hard to take.  I spent so much time, so much care, so much attention.  And I know it made a difference.  I could see it every day with improvement, EVERY DAY.

Then I am told to stop what I am doing, that it is not right.  It could cause problems with outside officials.  But the problem is, I was never told.  Not that it would make a difference to me though I would walk right up to the line of insubordination, I would never cross it.  The judgement from keeping me perform my job to the best of my ability and humanity would then fall on the individual enforcing this unfortunate political move.  But they had been given too much credibility because of where each of us rank in society.  I know this for a fact.

So to keep from being punished, which has never been an issue at home or school as a child, nor as an adult, I had to immediately cease my efforts, which still would not provide a certainty that I would not be punished.

Today, I lost him.  He is in a better place.  Everyone knew this day would come.  All I tried to do, and succeeded, was make it better for him.  And simply because someone above me did not like it, he lost that quality of care the last couple of days of his life.

This sucks.

The Waiting


Christmas Eve = the longest night in the world for me as a child, waiting for Santa Claus to come.

The night before Easter = the second longest night for me as a child, same reason as above, just for the Easter Bunny with my basket of chocolate.

The first day of school… ever.

Getting a drivers license… forever.

The end of school… forever.

Freedom to do what I want to do, whenever I want to do it.  I am still waiting.

Having to wait around the doctor’s office, just to be told that you have cancer.

Waiting to hear the words, “Your cancer is in remission.”

Waiting to reach the one year anniversary of your remission of cancer, and second year, fifth year, tenth year, twentieth year.

Now I am waiting to reach twenty-five years cured of my cancer.

Waiting for the paint to dry and the pot to boil.

Waiting to be approved to be adoptive parents.

Waiting for the sixteen hour non-stop flight to be over.

We can hear the children down the hallway.  What is taking so long to bring them to the conference room to be placed in our arms.

Waiting for daughter’s first steps.

Waiting in a dazed state to go to surgery for my first ever open heart surgery.

I hate sitting at home doing nothing.  I want to go back to work.  I still need time to heal.

Waiting for the new season of Newsroom on HBO.

My DVR has a pause button.  I can make the television wait for me.

Phone calls.  Can you hold please?

I have to wait several months to see a specialist.  They know what is wrong and time is of importance for best chance of survival.  A three month wait.

Waiting in the waiting room.  Then I wait so more in the exam room.

Scans and scopes, scans and scopes, scans and scopes.  Results pending.  More waiting.

I do not mind waiting for my daughters to grow up, graduate, get married, have children.

Thoughts On My Back


This one is for you my friend.

As a long term survivor of Hodgkin’s Disease, cancer, I have learned alot medically, and about my survival.  I have learned about risks, protocols, and needs.  I have been through much worse in my life with radiation and chemotherapy.

If you have never been a patient before, there are a lot of things that go on in a patient’s mind, at various points of procedures.  The mind races as people hustle around you, roll you, and all of a sudden choose that moment in time to mass introduce everyone to you, which if you are going under anesthesia, will not remember them anyway.  Your mind is consumed with what to expect following your procedure.  Almost as in real life outside of the hospital, inside, I do not take the time to look around, notice my surroundings, relax, enjoy, appreciate.

This story is dedicated to my good friend who takes notice and appreciates her surroundings.  This is more than just a child laying in a grassy field looking up at puffy skies.  This is a grown woman, possibly with things of her own on her mind, but as she travels, she takes photos and speaks about the very details that she notices during her visits.  She slows down.  She enjoys.  She relaxes.  She appreciates.  And then she recalls, in vivid details.  So Cathy made the suggestion to me, as I have seen my share of ceilings, what do I see?  What do I think about?  Interesting that I had never really given it much thought until now.  But with a pair of procedures coming this Wednesday, I started thinking.  Hmmm…

So yesterday, I payed attention to my first ceiling.  I say the first ceiling because once I was rolled into the procedure room, all I noticed were the multiple monstrous digital flatscreens.  If my throat did not hurt right now, I would probably grunt like Tim “The Tool Man” Taylor.  (All together, I know you are doing that right now.)

But this is the first ceiling I looked at, my holding room.  Wendy looked at me funny because I was staring at the ceiling, and she asked me if I was counting ceiling tiles.  When I told her “no,” for some reason, she referred to the light grate which of course was about one and a half foot wide, and two feet long.  The argument, how many squares total were in the light grate.  If you have Facebook,  then you have seen this puzzle several times where you have to count how many squares actually exist.  Initially, it looks like sixteen or something, but then you look at the squares that are formed by the other squares and so on, the number comes out to be in the twentys.

We never did get to finish calculations because just then the techs came in to roll me to the procedure room where I would undergo my first colonoscopy and second endoscopy.  You would think that would have been on the forefront of my mind.  But thanks to my friend, the techs were now standing there, staring at the ceiling.  Counting.

Okay, seriously, I want to get this done and over with, the colonoscopy, not square counting.  I will do the math at home, or maybe I will not.  Maybe I will give it a shot for my next procedure.

For anyone wondering how many squares there were?  There were six across, and seven long.  So the answer is not 42.  You do the math.

Post Navigation