Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Family and Friends”

Thoughts On My Back


This one is for you my friend.

As a long term survivor of Hodgkin’s Disease, cancer, I have learned alot medically, and about my survival.  I have learned about risks, protocols, and needs.  I have been through much worse in my life with radiation and chemotherapy.

If you have never been a patient before, there are a lot of things that go on in a patient’s mind, at various points of procedures.  The mind races as people hustle around you, roll you, and all of a sudden choose that moment in time to mass introduce everyone to you, which if you are going under anesthesia, will not remember them anyway.  Your mind is consumed with what to expect following your procedure.  Almost as in real life outside of the hospital, inside, I do not take the time to look around, notice my surroundings, relax, enjoy, appreciate.

This story is dedicated to my good friend who takes notice and appreciates her surroundings.  This is more than just a child laying in a grassy field looking up at puffy skies.  This is a grown woman, possibly with things of her own on her mind, but as she travels, she takes photos and speaks about the very details that she notices during her visits.  She slows down.  She enjoys.  She relaxes.  She appreciates.  And then she recalls, in vivid details.  So Cathy made the suggestion to me, as I have seen my share of ceilings, what do I see?  What do I think about?  Interesting that I had never really given it much thought until now.  But with a pair of procedures coming this Wednesday, I started thinking.  Hmmm…

So yesterday, I payed attention to my first ceiling.  I say the first ceiling because once I was rolled into the procedure room, all I noticed were the multiple monstrous digital flatscreens.  If my throat did not hurt right now, I would probably grunt like Tim “The Tool Man” Taylor.  (All together, I know you are doing that right now.)

But this is the first ceiling I looked at, my holding room.  Wendy looked at me funny because I was staring at the ceiling, and she asked me if I was counting ceiling tiles.  When I told her “no,” for some reason, she referred to the light grate which of course was about one and a half foot wide, and two feet long.  The argument, how many squares total were in the light grate.  If you have Facebook,  then you have seen this puzzle several times where you have to count how many squares actually exist.  Initially, it looks like sixteen or something, but then you look at the squares that are formed by the other squares and so on, the number comes out to be in the twentys.

We never did get to finish calculations because just then the techs came in to roll me to the procedure room where I would undergo my first colonoscopy and second endoscopy.  You would think that would have been on the forefront of my mind.  But thanks to my friend, the techs were now standing there, staring at the ceiling.  Counting.

Okay, seriously, I want to get this done and over with, the colonoscopy, not square counting.  I will do the math at home, or maybe I will not.  Maybe I will give it a shot for my next procedure.

For anyone wondering how many squares there were?  There were six across, and seven long.  So the answer is not 42.  You do the math.

Man Up! The Big C (Colonoscopy).


Consumer Reports recently submited a report stating that  only a few cancer screening tests were truly necessary.  The writer offers excuses such as not beneficial, causing unneeded scares and paranoia, and financially not worth it.  As a cancer survivor I know all too well the importance of catching a developing cancer as early as possible.  There is no early detection for Hodgkin’s Disease and it is rare enough that it is difficult to diagnose and often misdiagnosed by something as simple as the common cold (yes, that was my original diagnosis).

When all is said and done, try explaining to a family who in spite of health benefits cannot afford the extremely expensive treatments because the cancer diagnosed was not caught earlier by detection and could have been treated at a less cost.  There are actually some in our society who would even make the argument that too much money, and too many tests get performed.  I know that my heart surgery, would not have cost over $100,000 had I been followed up as they do today for late effects because the issue would have been caught sooner and perhaps a bypass would not have been needed..

For now, screenings are available, and they do benefit us.  And we should have them.  Women have their boobs smashed in searching for breast cancer (a service that I was willing to perform free of charge when I was younger and single).  They even climb up on a table with a papercloth gown exposing their girly bits once their legs are placed up in stirrups.  Of course, there are skin cancer screenings.

But when it comes to men, we are a little funny about that stuff.  We have a lot more confidence in our health that we find such things as prostate screenings and colonscopies are unnecessary.  The last thing we need to tell us we are sick is having a finger or camera shoved up our ass.  Besides, and I am not saying that I believe this, but there are men that do, that it might have some… well… homosexual connotations by having these exams done to them.  Me personally, I have always been of the mindset, I do not want anything going in through the out door.

Again, a personal note, I know dozens of people who have battled colon cancer, and too many that have died.  My cancer treatments that I went through run the possibilities of developing a secondary cancer, perhaps colon cancer.  A colonoscopy would be beneficial to me.  In fairness, my doctors have not pushed me until now, my friends urged me years ago.

I love this blog, Paul’s Heart.  I am not about sensationalism, so I have no plans of videotaping my colonoscopy.  If I end up being this major baby and I got to destroy it and cannot, I do not want that leaked out.  But with my wife by my side, she will help dictate the things that are done, said by the staff, said by me, recovery, and trip home.

That is right, in just one and a half days, I will be going through not only a colonoscopy, but completing the “pig on the spit” image, an endoscopy.  I have had an endoscope done before where they go down your throat.  It was no big deal.  And after having gone through a cystoscopy (putting a camera up the manliest of parts) done, and that they made me do without anesthesia, never again I tell you.  But it has prepared me that I can handle the colonoscopy.

So what has changed my mind?  What are the risks for and against?  I have lost too many friends to colon cancer.  My body was exposed to too much when I was treated for Hodgkin’s Disease.  Contrary to a magazine that should probably stick to writing about microwave ovens and stereo systems, I have two of the most important reasons to pursue any cancer screening available to me, no matter the results or the risks, my daughters.

I know the risks involved with a colonscopy and an endoscopy.  I also know the risks with my past health history.  But I am getting these done in the best facility I have faith in.  I believe I have the best doctor performing these procedures.  And though these are fairly common procedures, something can go wrong.  I have faith in the doctor and her team that if something does go wrong, I am in the best possible place to handle such.  I can handle any more of a diagnosis I may get, or be completely revealed that all I have to deal with is from the scan last week.

The rest is up to me.  I need to follow the prophylactic care prescribed, and the caution I am given in my recovery.  Other than that, it is up to my body and its physiology, of which I realize I have no control how things act and react.  My plan is to be back here by Wednesday night.  And though I have no intention of becoming the colonoscopy spokesboy, I do anticipate being able to say, it was “no big deal” and glad to have had it done and be sure.

Time for me to “Man Up.”

On No! It’s Snow!


Next week is going to be a very busy week, and a very important week.  I suppose I will get a lot of time to prepare for it this weekend as the weather fearmongerers are at it again.  We are to prepare for a snow storm of historic proportion.  My area is not expected to get hit as hard as say New England, but I need to take this storm, called Nemo, seriously.

Seriously.  Nemo?  An epic disasterous snow storm has been named after one of Disney’s most beloved characters?  I wonder if there are royalties in it for ABC for every time the Weather Channel mentions the name.  I do not see the point to have to give snow storms names now, but it looks like it is something I have to accept.

But again, seriously, the weather service could not come up with a more ferocious or evil name that begins with an “N”?  Nosferatu.  Napoleon.  Nixon.  Nina (of 99 Luftballoons).

In areas of severe amounts of snowfall, you never hear local residents express fear, despiration, panic as today’s trends seem to take us.  Syracuse, Erie, Denver, Minnesota all see more snow in one day often more than we see in an entire year.  Growing up, I remember being able to shovel out tunnels from the snow piles, barely able to lift my legs above the surface of the snowfall.  Of course, as a child, this often meant a snow day off from school.  Snowball battles, skiing, forts, were all the pure enjoyment of a major snowfall.

I recall in my high school years, attending school in a district that did not provide bus transportation, we never saw snow days.  You either took public transportation, a relative drive you to school, or you walked.  Now if you will excuse me, I will now channel my grandparents for the following speech… “why, when I was a kid, I had to walk uphill and downhill, four miles each way, across high bridges, heavy rains, head high snow piles and…”  Phew they are gone just before they can add “barefoot”.  But where I lived that is exactly what happened.  Whenever I visit home with my family, I am always quick to remind them, I actually did it.

But on February 11, 1983, we did get hit with a major snow storm that did have an impact on school, over two feet.  It did shut everything down.  But I definitely do not recall every hearing “end of the world” tones and having to rush out and strip the shelves of everything from bread to toilet paper.  It would snow.  The snow would stop.  We would shovel.  Then move on.  In fact, while many schools had cancelled even the next day, our schools were open, even without a delay.

I still love the snow today.  I have had to alter my lifestyle a bit due to recent health issues.  My heart surgery caused an approximate ten degree drop in temperature tolerance meaning the cold bothers me a little easier.  To think, just five years ago, I was still wearing shorts in January and February regardless of the weather.  Pulmonary issues make it a little more difficult to trudge in the snow.  But then of course, there is age.  Once we hit our mid-30’s it seems we become concerned with the act of shoveling snow.  It is a fact, that snow shoveling is one of the more strenuous acts many of us do, made worse by the fact that it is not often that we have to do it, and we do not train for it.  But we have heard story after story of someone having a heart attack while shoveling snow.

Nearly five years ago, unknowingly, I could have faced that fate.  With a fatal condition developing over the years from radiation therapy for my Hodgkin’s Disease, the main artery to my heart at that point of winter was now close to 90% blocked or scarred.  As it would be discovered just two months later during a stress test, it was literally seconds before the blood flow was restricted to my heart.  I felt it happen.  It scared me.  I stopped.  The feeling stopped.  I went about my business.  Until April.  Following that stress test and subsequent heart bypass surgery, I was told that I had actually prevented what was destined to be a fatal heart attack.  This should have been enough of an attention-getter.

The following winter after my heart surgery, I must admit, I was outside with the snow shovel as always.  I have a three care driveway and approximately 150 feet of sidewalk to shovel.  That winter was not particularlly difficult as far as deep amounts or frequency of storms, but I was out there with shovel in hand.  I found out, that I have neighbors as well, who knew of my health history and quickly came out with their own shovels and snow blowers scolding me to put the shovel down and get back inside.

But being from a stubborn family, I believed that I could still shovel.  Two things I did under my own power, mow my lawn and shovel snow.  Last winter, I finally caved in.  After the first of three decent snowfalls, I could tell that my body was no longer up to shoveling, lifting, and tossing snow.  To push it any harder would have been foolish.  And I know that (see the post “Stress Kills).  So prior to the second storm, I broke down and got a snowblower.  And it was not so bad using it.  And I could still enjoy being out in the snow, and not end up being “out” in the snow.

So for those of us in the path of the Might Nemo, have fun, do not be afraid.  Snow is no different than when we were children.  But the consequences of not using common sense as adults is what is to be of concern.  If you must shovel, pay the neighbor kid to do it.

writer’s note = I woke up this morning (February 9th) to a history, epic, monstrous two inches of dry powder snow.  Of course, the local grocery store shelves were empty, gas got bumped up a nickel a gallon just in time… thank you Nemo and the weather mongerers for the shot into the local economy you gave us.

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