Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Family and Friends”

Remembering Easters With My Dad


There is one unfortunate thing that I had in common with my father, neither of us enjoyed holidays, any of them.  We both had our reasons, similarly, multiple crisis and tragedies that seem to occur at nearly every holiday.  For me, it went a level higher with the spiritual sense, because following my battle with Hodgkin’s Lymphoma, I looked at the big two holidays, Christmas and Easter, for what they were supposed to mean to me, especially given another shot at life.  But the commercialization of all of the holidays, combined with the unfortunate events, just left me really disliking what they holidays were becoming.

My parents divorced when I was very young.  My mother had custody of my sister and I.  But early on, my dad did share some holiday spirit (gifts and Easter candy), though I honestly cannot remember if it was on the actual holidays.  And as I grew, I definitely remember him not being there at all.

I have discussed the relationship with my father in past posts.  Long story short, in my early 20’s, we made amends sort of, agreeing to move on with our lives, build from there, and whatever happened, happened.

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In the mid 1990’s, he and I, along with my brother and sisters started a new tradition.  We did not really recognize the holiday itself, but my father decided that on Easter, he wanted everyone to get together at his house.  My stepmother and Dad would prepare the entire meal.  All we had to do was show up.  And we did.  It was one of the few times that all of us were in a house all together like that.  My stepmother had also begun a tradition, going to a local flea market, and purchasing ceramic Easter eggs which she gave to all the females of the family.

But following a horrific car accident, my stepmother being hit by a car, changed what after a few promising years had become.  For obvious reasons, as she struggled to survive for many months, Easter had been put on hold that year.  But the following year, all us children had decided that we would help my father to once again, hold the Easter dinner.  My brother had actually went and bought the ceramic eggs for my stepmother.  And all the children would contribute food in some form.  Inspired by our effort, my Dad stated that he wanted to take care of the Easter ham.

After the meal was done, we would go outside to hold an Easter egg hunt for my dad’s grandchildren.  My brother and I started a new and weird tradition, doing the Easter dishes.  This would go on for a couple of years.  But another loss, the passing of my sister from a battle with ALL (a blood cancer), we struggled to get together, all with the same efforts.  My brother, other sister, and I would also experience our first divorce during these years since the tradition began.  But for my Dad, we kept on doing it, year after year.

But as much as my dislike for the holidays that I had, with the arrival of my daughters, Easter celebration with my Dad took on a whole new meaning.

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There is no doubt that my daughters played a pivotal role on me giving the celebration of holidays another chance.  Year after year, my daughters would participate in egg hunts along with all of their cousins.

In February of 2013, my father was diagnosed with lung cancer.  Once again we were faced with another Easter being considered for cancellation.  My Dad was concerned that he would not physically be up for it.  But all of us assured my Dad that we wanted to take full responsibility this year, including the ham to keep going what we had grown.  He reluctantly agreed.

Several months later, his cancer turned more aggressive.  He was declared terminal.  And in 2014, as yet another Easter holiday was approaching, this time my father was in a nursing home, in hospice.  We had arranged for my stepmother to be with him, staying in the same nursing home, as they had never been separated before in over 40 years, and we did not want them separated in what could most likely be his last days.  As Easter of 2014 came up, we all decided that we would do Easter together as we had for so many years.

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Easter would be brought to both my Dad and stepmother, and throughout the day, we would all join them.  All the food would be cooked and brought to the home.  And yes, the ceramic eggs were bought.

My Dad passed away a little over a month later.  Easter just does not seem the same.  It is just Sunday to me today.  I know the religious importance of the day as I was taught.  But for all the celebrations and gatherings, the day remains empty for me.

Celebrating Someone Else’s Milestone


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It is funny, having a conversation with my “tweenage” daughter just a few days ago, and then confirming it yesterday, turning 13 years of age, there was no magical transformation.  She was still going to be my “Ting Ting”, a nickname along with a few others that I call her at times.  She was not going to possess any super powers other than the charm she already possesses.  There were not going to be any new special privileges given to her.  So after wishing happy birthday to her, I asked her if she felt any different officially being a teenager.  She said, “no.”

But what Madison fails to realize, is that her turning 13 years old is really a big deal.  She may not realize it, but as her father, I certainly do.  She may be turning her attention to her next milestone, allowing her to be eligible to drive, but as she looks to the future, I am looking at the past.  Madison turning 13 is really a big deal.  It is certainly a big deal to me.

Unable to have biological children due to my treatments for Hodgkin’s Lympoma, it was an opportunity by the country of China to allow what no one else was willing to give a cancer survivor, a chance at adoption.  My cancer survivorship was no issue for Madison or her sister, who was adopted a couple of years later.

But my daughter’s birthday is also reminding me of another issue concerning my health.  In 2008, I officially became a cancer survivor dealing with a lot of serious, permanent, and progressive health problems.  And as my health was turned over to one of the top hospitals in the country for cancer and survivorship, I met the doctor who would spearhead my survival with one goal in mind.  And I quote the words I will never forget from Dr. O.,

“I can’t stop the things that are happening to your body.  I can’t reverse the damage that has been done.  But what I can do, is slow the process down.  I want to make sure that you not only see your daughters graduate high school, but college, maybe if they get married.  But I want to help you see your grandchildren.”

It seemed like an odd conversation at the time.  After all, my oldest was only around 5 years old.  But I had just survived a near fatal heart episode, and with awareness, and surveillance, and history not on a survivor’s side when they do not receive the proper medical attention, I knew that Dr. O. meant what he said.  He wants to make sure that I see my daughters grow well into adulthood.

I am not worried that my oldest turning 13, means that a clock is running out for me.  Quite the contrary, Dr. O. is in fact doing everything he can to make sure that my health stays solid enough to see the ultimate milestone for me.  But in the eight years since, while it has not been easy getting to see Madison’s special birthday, I know that I am doing all that I can, and Dr. O. is doing all he can as well as everyone else involved in my care to make sure that I continue to see more birthdays ahead for both of my daughters.

Adding A New Tool To Math


I have a unique situation with my children.  We live more than a thousand miles apart.  But from the day that their mother and I officially separated, I knew communication would be an important factor to maintaining the father/daughter relationship as they grow.

Unlike my childhood, when my parents split up, my father lived fairly local.  But there were choices that he made, and long story short, his visits eventually became less frequent, phone calls eventually faded, holidays and birthdays no longer mattered.  Again, this was a choice that he made.  And this was in spite of him living locally.

But here in the 21st century, technology has enabled our society with a tremendous tool to communicate back and forth, more valuable than the telephone, because video images, in real time, allow us to now have conversations face to face with each other, no matter where we are.  Programs like Skype, Tango, Oovoo, and the popular Facetime, allow us to talk, see smiles, share tears, experience sincerity and other emotions.  Having experienced the communications issue with my father growing up, I knew this would be a critical component when it came to a custody agreement.

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So on a daily basis, on occasion more than once a day, I speak, and see, both my daughters in between the times they visit with me.  I say more than once a day, because besides the nightly “miss you” and “love you”, we have found another way to keep our relationship in tact, and my value as their father.  Just as I did when I was in the home before the separation, I was the parent that helped with homework and studying.  And with Facetime, I am able to continue this, along with using internet tools provided by the schools.  Just as I did when I was in the home before the separation, I am, continue to be, and will always be involved in my daughters’ educations.

But technology has provided to be even more valuable than that.  Recently, one of my daughters has been having an issue with one of her subjects.  And in spite of my help, still seems to struggle.  I have been reaching out repeatedly to their teachers and guidance counselor for help, tutors, anyone who could help my daughter.  Unfortunately, the school district no longer refers tutors as procedures do not allow.  I am guessing it has something to do with a litigious reason, somebody complained, sued, and now no student can get help.

Enter my world of Hodgkin’s Lymphoma, and the internet, a fellow survivor that I am frequently in contact with, was aware of my plight with my daughter’s math situation.  She spoke with her daughter who is in a grade several years further, and offered to tutor my daughter, from 2/3 of the way across the country, via Facetime.  And so, having access to the math program, the lessons for the week, and a planned quiz, the first tutor session resulted in a 95% score on that quiz.  In what can be equated to a digital penpal, my daughter is showing hope again for a course that she knew she was struggling with, and would have to face even more difficulties next year.

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It is one thing to not be able to provide help locally, but totally amazing that from one of my personal worlds, I have been able to find help in dealing with another.  Because of a friend, who I had only known through a support group for long term survivors of the same cancer I have survived, and only recently physically meant, my daughter’s education is now going to take a huge turn in a positive direction.

And I am fairly certain, my friend’s daughter, along with her other children are good kids.  And I would not doubt it, given the nature of both my daughters, and my friend’s children, that thanks to Facetime, more than just an educational relationship will develop.  Like I said, in the day of technology, this is the new version of being a “penpal.”

I am thankful to my friend for allowing this to happen.  We have both been through our individual experiences with our cancer survivorship, and other physical issues not related.  But with her kindness and thoughtfulness, it enabled me to provide another level of assistance in my daughter’s education.

Thank you.

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