Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Education”

It Is So Quiet


A family, when including both a mother and father, untouched by divorce, have routines for their children following the holidays, getting back to the normal day-to-day activities of school, work, and things around the home that need to be done.  Moms and Dads seemingly pick up, right where things leave off.

But for families who have gone through divorce, have a different process to go through, because there is a process called “custody”, normally dictated by a court though sometimes simply agreed on by both mothers and fathers.  This means, that following the holiday, one parent will continue to pick up the activities of the children as mentioned above, for others, it is just so quiet.

I do not talk about my own specific details of my divorce for many reasons that I will not get into.  I will clearly specify when things pertain to another family.  But for the purposes of this post, I am simply talking about an emotion.

During custodial periods, especially during a holiday period, for however long that period lasts, the non-custodial parent gets to enjoy the quality of time with his or her children, like that which once was uninterrupted and filled with tradition and lots of fun.  There are increased bathroom routines under the roof with the additional family.  Though meal times may remain relatively unaffected, bed times are often extended either out of pure excitement, or the difference of the times between homes.  The mornings can be just as upside down and staggered causing all kinds of adjustments to be made to the day.  And this will go on for every day of the custodial visit.

The parent who normally spends the majority of their time alone, perhaps with a partner is likely to enjoy the return of the activity around the home and the lack of any down time to recover.  For the non-custodial parent, the time being spent is not infinite.  That particular period does have an end.  And that end, is just so quiet.

That first morning after, it is just so quiet.  There are no extra breakfasts to make.  There are no plans to be made.  There are no “chimes” from a text message being received in the bedroom just twenty feet away.  There is no random appearance from your child just to say “Hi.”

There were a lot of memories shared during this period.  And of course the attention is steered toward the next visit and the activities that await.  But for now, it is just so quiet.

When two people make the decision to become parents, it is more than likely, a divorce being in their future is the furthest thing from their mind.  But things happen.  And though husband and wife divorce, mother and father do not.  And regardless of where either parent lives, when two parents are involved, the child has the right to spend time with, be loved by, and love, both parents.  Mother and Father do not divorce.

During custodial periods, especially holiday periods, that is when the relationships are not only put to the test, but when allowed to continue naturally, allow everyone to move on in a progression of peace.  And the children end up all the better for that.

I relish every moment I get to spend with my daughters.  I do not take this for granted.  There are too many fathers and mothers who do not get to spend time with their children for any number of reasons.  As a child of divorce myself, I know what it was like not to have my father around.  I applaud the state of Pennsylvania, as well as others, that have either taken the steps, or are in the process of, enacting legislation to make shared 50-50 custody the presumption when it comes to the children.  Pennsylvania house bill HB1397 gives the starting point for both parents, as if they were married, both equal parents.  With the exception of domestic violence (or any other criminal act), the children have the right, in their best interest, to relationships and time, with both parents.

It is really common sense when you think about it.  If there was nothing wrong in the house between parent and child, why should the parent be penalized with anything less than equal time with their child?  If something were to happen to the one parent, without question, the other parent would take full responsibility for the child, rightfully so.  So why then, should children be expected, and parents forced to accept, anything less than equal time with both parents?

Sure, there will be some who object to this simple to understand concept, and I will not discuss what I am aware of.  But the simple logic, children deserve a relationship with both parents, when there is no recognizable danger to the child.

Because (Struggling To Understand And Accept Survivors Guilt)


The following is a story that I had written for an annual book compilation project.  I submitted two pieces.  This was the piece that was not chosen.  The other piece I will share at the end of March after publication.  In the meantime, I must thank my good friend, and fellow survivor Lara Vaughan Lazenby for being my mentor on this piece, challenging me to write as deeply and personally, and of course, grammatically correct.

Survivor’s Guilt.  Two words that make no sense being put together.  These two words combined make the ultimate antithesis.

Surviving cancer should be celebrated.  But for many, like myself, the fact that I am here, sharing this story, others are not.  Medicine could not save their lives.  This leaves me with a daily struggle of “why me, why not them.”  That is right, I carry guilt because for whatever reason, for whatever cards were dealt, whatever fate has decided, I am still here.  Others are not.

This feeling is not to be confused with that of “It’s A Wonderful Life,” the movie whose main character George Bailey, wonders what the world would have been like without him.  Quite the contrary.  I have much to be thankful for over these past thirty years than to wonder in that way.  Especially to be blessed with two wonderful daughters who mean the world to me.

The feelings I have are for those who either were unable to get through their fight, or faced additional challenges caused by treatments or late side effects.  Why them and not me?  Many of us went through the same treatment regimen.  Some were exposed to less of the toxicity than many of us from decades ago.  Technology and advances in medicine are supposed to provide better and safer success, yet I continue to say good-bye to too many.  And even with my own multiple and severe health issues from my treatments, here I still stand.  Why?

I am nobody special.  I am not a celebrity or professional athlete.  I was not in the middle of discovering anything earth-shattering.  I did not lead a squeaky-clean life.  Some of those who have passed never even got to experience life beyond childhood.  And though I lack the power to make the sun set and the moon rise, I will state this is not fair.  Between the doctors, the medicine, our bodies, reactions, and the multitude of other factors, why I am still here, writing this story, and others are not?

Over my thirty years of survivorship, I have personally met hundreds of other survivors, some from all over the world.  From the middle of my treatment schedule, others came to me and asked me, “what is it like?” trying to find out what to expect as they began their own cancer battles.

I soon found myself being someone other patients and survivors could talk to because I “got it” when it came to the emotions and struggles of getting through treatment, and issues with life after cancer.  In the social media circle of support, I often found myself between survivors who had misunderstandings about feelings as a result of support from others.  I found myself a voice of reason to help others understand that the mind of one person dealing with cancer, does not necessarily mean you automatically understand the mind of another.  Others simply view my day to day life as a longevity that they hope to enjoy with a family and a productive life after cancer.  Most importantly, to advocate for yourself and your health.

When it came to those who would pass away, I spent much time with them and their families just trying to offer the awkward comfort.  All the while wondering about their thoughts as I sat across from them thinking to myself, “why me and not them?”

I have spent several years in therapy dealing with my survivor’s guilt.  I do not know if I can ever let go of it.  Maybe I may not even want to.

A friend of mine, named Danny, shared a meme on Facebook that is relevant to all of us who have survived, no matter how long our survival has endured.  “One day, you will tell your story of how you overcame what you went through, and it will be someone else’s survival guide.”

My name is Paul Edelman.  I was diagnosed with Hodgkin’s Lymphoma thirty years ago.  I went through six weeks of radiation therapy, one day at a time.  I endured eight months of chemotherapy, a total of sixteen treatments, one dose at a time.  I took each day of my remission one day at a time.  I fought every challenge of discrimination in the workplace, in the insurance industry, and even in medicine, one day at a time.  And when I did not feel well, and all doctors could do was shrug their shoulders in puzzlement, I made them look harder.  When I was told I could not have a family because of my treatments, I became one through adoption of two beautiful daughters.  I enjoyed a lengthy career doing what I loved.  And I have been blessed to meet and know so many other survivors.

But still, why me?  Why not them?  Because.  Just because.

The Turning Point With My Father


The briefest way that I can preface this post, my father and I spent most of our time estranged, due to the divorce with my mother.  I do not know details, and with my father having passed, I have no interest in hearing just one side.  But the relationship I had with my father as a child, I saw him every other weekend, on a Sunday afternoon usually, for a few hours.  As I approached my teens, I saw him less.  And as I graduated high school, I informed him that I had a ticket for the graduation ceremony, and if there was any father/son future between us, he needed to show up that evening.  He did not.  And that was that.

Over the next several years, I remained true to my threat.  And at the age of twenty-two, I was diagnosed with Hodgkin’s Lymphoma.  And still no sign of my father, or any interest or concern from him.

Following the completion of my treatments, my father and I did have some minor conversations, nothing substantial as far as I was concerned.  He would end the talks saying, “I wish I would have done things differently.”  I would always respond the same, “yeah, me too.”  I had no interest in “coulda shoulda woulda.”  When I needed him, he was not there.  I did not need a father at this point in my life.

Over two decades ago, early in the evening, on December 23rd, my telephone rang.  It was my now-former sister-in-law.  My stepmother had been hit by a car, crossing the street in front of her house.  She was in bad shape, and in the hospital.  There was a lot going on by the time I got to the hospital, but my father was clearly focused, trying to understand everything that he was being told, and be able to make decisions that would affect his wife, his partner at that point of over twenty-five years.

Her injuries were extreme, with a head injury, life threatening.  So many doctors.  So much information to take in.

Several hours later into the night, my father felt an opportunity, and a need, to go have a cigarette.  He asked me to join him.  I am not a smoker, but I was figuring that perhaps my father was looking for a little clarification to the many things that were said to him.  I unofficially had a lot more medical knowledge that most of my family because of my cancer journey.

He lit his cigarette.  I stood there with my hands in my pocket, fighting the cold air.

My Dad:   There is something I need you to know.  There was a reason that I never came to see you when you were dealing with your cancer.  My mother had been in the hospital for what I was told, was gall stones.  Instead, she would eventually die from gall bladder cancer.  I will never forget how she looked, because she had cancer.  I could not bring myself to see you in that same condition.

I was speechless, and shocked.  First, what the Hell brought this up?  He should be focusing on his wife, not confessing to me.

Me:  Dad, don’t worry about it.  You have more important things  to worry about right now.  I am fine now.  Just concentrate on her.

My Dad:  You don’t understand.  I would give anything if I could change the way things went.

Me:  I know Dad.

My Dad:  No, I wish I had been there for you during your childhood.  I wish I had been there for you.  I wish I could get that time back with you.

At this point, I am really confused, especially emotionally.  First, at this point, we kind of agreed recently to just “start over,” and this was only stirring up old anger in me.  And second, why was he worried about me?  His wife was the one that need his attention.

My Dad:  We had been fighting.  There was some last minute Christmas shopping to do but I was dealing with the car insurance.  I got mad because I just wanted to get the shopping over with, so while she was getting her coat on, I went out to the car without her.  I started the car to warm it up, while I waited for her to come out.  I looked to my left to see if she was coming, and at that point, all I saw was her being hit by the car, flying through the air.  I could not stop it.  It should never have happened.  I would not have happened if I had come out with her.  It should have been me.

I now saw what my father was doing, rather dealing with.  My father and I did not talk much, let alone express any feelings or emotions.  But my father felt guilty for what had happened earlier that evening.  And in order for him to face and deal with that guilt, he had to unload all of the other guilt he carried.  He had to do it while he had the chance.  And here is why.

My stepmother had suffered a major head injury from the impact.  We would later learn, as she would somewhat recover, she would have no recollection of the accident.  And that was a good thing for her, bad for my father.

They were arguing, and perhaps said some things that were not nice.  And neither would get the chance to apologize.  For my stepmother, she had no recall.  For my Dad, everything was his fault.  He was never going to get the chance to say he was “sorry” to my stepmother, so he was unloading his guilt to those he owed that apology.

On one hand, I became slightly intrigued because he was talking to me about stuff that I was not aware of, but by the same token, he needed to be focused on my stepmother.  I knew that.  I had to keep him focused.  He could not afford to let this be about me.

This tragedy went on for a long time, until she was finally placed in a rehab facility, eventually, to returning home.  My father insisted on taking care of her, presumably for the rest of her life, because of what happened, as if some sort of penance.  She is still alive today, outliving my father now, over five years.  But he never did get to apologize to her.

It was this situation, that I made the rule, I would never go to bed angry, for this very reason.  And just as my father had to deal with divorce, as do I, it was from conversations that I would have with him later on in his life, that I would adopt how I would handle my divorce, and custody.  For one thing, I was not going to disappear or remove myself from my daughters lives.  I know how that made me feel as a child, and I would not let my daughters feel that way.  But the other thing I was not going to do, and continue to be this way, was the way that he carried himself.  He never said one bad thing about my mother.  He knew the divorce was between he and my mother, and had nothing to do with me.  He was not going to involve me in that process, even later in life as an adult.  And it is that example that I support my daughters in the same manner.

It was the second half of our lives that we actually got to do it all over again.  And we took full advantage of it.  A tragedy that evening would be a spark to recover and rebuild, and most importantly, learn.  I make sure that my daughters know that I try to reach them every evening.  I remind them daily that I love them.  And I make the most of any and all time that I get to spend with them.  Most importantly, I make sure that there is never a need or a worry, about leaving something unresolved, hopefully by not allowing it to happen in the first place.

I love my daughters more than anything, and I know my Dad felt the same about me.

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