Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Cancer”

I Am A Horrible Caregiver


The truth is out.  I am a horrible caregiver at least by Wendy’s description.  Wendy could not believe her eyes with the first cut that Madison received as I sent Madison to her mother for care instead of my simply just washing it, putting some disinfectant on it, and then a bandaid.  It sounds simple, but it is not, for me.

I have surgery scars all over my body, the biggest being the scar over my chest from the heart surgery.  I have been through cancer and chemotherapy.  Hundreds of needles for bloodtests.  I have even had blood coming from somewhere no man ever wants to see blood.

But show me a papercut and I will hit the floor.

As a patient, I was compliant with whatever the nurses and doctors wanted me to do.  I was called inspirational because I truly wanted to recover, from the cancer, from the heart surgery, and countless other maladies that required a period of rehabilitation.  I am a very proud person.  I am not in the habit of asking for help or assistance.  If I completed tasks before the event on my own, I could to it on my own afterwards.  Nurses were especially supportive while the doctors did the recognizing and congratulating for the efforts.  No one can tell me I cannot do something when I am so focused.

Maybe I was inspired by Rocky in the second movie when Adrian finally wakes up from her coma.  Rocky tells her that he is done fighting, he wants to care for her, and draws him close and repeats, “win, win.”  Mickey yells out, “What are we waiting for?” 

When I went through my recoveries, I know people watched me.  If they knew me, they were inspired by me.  And if theydid not know me, they saw someone fight to get back, what once was.

I take that same approach when the shoe is on the other foot, and I am the caregiver.  With cuts and bruises, I am just pretty much shake it off, get it cleaned up and move on.  But when it is something of a serious level like a heart attack, cancer, or car accident, you have obviously been given a second chance.  And I know what that feels like.  I want you to have that too.  I am not short on empathy, but I have zero supply of pity face to face with the individual.  As far as I am concerned, there is only one time when it is acceptable to give up.  Otherwise you fight.  I will stand by your side and help you, but the sorrow goes away once you are given the order to get well.

My daughters call it being “mean”.  Instead of hugs, and “that’s okay” comfort quotes I am more like Jillian Michaels.  If the doctors have given you the all clear to rehab, then you have no reason not to.  I am telling you, that you have no right to give up.

My cancer diagnosis, heart surgery and my never ending late side effects from my cancer treatments, I have done nothing but look forward.  I want to function.  There is no reason for anyone to have to care for me, except offering me encouragement.

But I have been on the other side of the field more than double the times I was a patient.  A car accident, a crippling illness, surgery.  I will make sure that as a caregiver, that you follow the doctor’s orders.  I will not let you give up.  I will do your grocery shopping for the temporary time, your laundry, and cleaning.  We will go for walks.  I will not let you sit on the couch by yourself, in the dark.   I will be your advocate and help you ask those that you need answers from.  As far as dealing with blood… I do what I have to.

Maybe I am not such a bad caregiver after all.

Stress Kills


Please be warned, this post is definitely not recommended for younger readers.

The following pictures are just one example of what an impending death looks like.  To be more specific, my death.  The top photo was taken after my treadmill was stopped suddenly.  Some event showed up on the EKG leads after just a couple of minutes.  What you see is my heart not getting enough blood.  The question is where and why?

My Death 1

Less than 15 hours later, my cardiologist attempted catheterization, stints, but upon realizing that it was not plaque blocking this artery, but rather scarring from radiation received eighteen years earlier for my cancer.

My Death 2

My Death 3

The last picture, a sketch of the heart, and where my three blockages were.  Another 15 hours later, I was in the operating room, having emergency bypass surgery.

This was only discovered because anytime that I did something fairly physical, anytime I let my emotions get worked up, or let someone upset me and stress me (which happened alot back then), this is what happened to my heart every time.  A blockage of the LAD (the artery on the right side), this is referred to as a “widowmaker”.  The name says it all.  According to my cardiologist, it was not a question of “if ” I would have a fatal heart attack, but “when.”  These pictures are what stress looks like, and what stress can do.

If You’re Going To Get A Cancer…


The following story suggestion was made by a fellow Paul’s Heart blog reader and fellow Hodgkin’s Disease Survivor.   Thank you Cathy. 

Imagine that you have been just told that you have cancer.  The very first thought that came to my mind was, “I’m going to die.”  That is all I knew about cancer.  I would be subjected to horrible chemotherapy that would make me vomit, was painful, go bald, and would eventually cause me to lose so much weight that it would look like I was starving.  No one survived.

Not even knowing what an oncologist-hematologist was, I was sitting in a waiting room of one.  My name had been called, and I was escorted back to an office, not an exam room.  This had never happened before.  In walked Dr. G, who resembled Jeff Goldblum in The Fly.  He walked around his desk and sat down.  There was not even an introduction.  He just went right into this speech:

“Hodgkin’s Disease is a cancer of the lymph system.  It is very treatable either with radiation or chemotherapy.  It has a cure rate of 85%.  It is one of the more curable forms of cancer.  In fact, if you were going to get cancer, this would be the cancer you would want to get.” 

I do not know which was harder to comprehend, the fact that he was telling me that I had cancer, or that if I wanted to get cancer, I got the good one.  I was twenty-two, healthy, somewhat physically fit, engaged, and happy.  Cancer was for other people who were not… happy-ish with other things going for them.  I had never even heard of Hodgkin’s Disease.  But now I had to embrace it with the confidence of getting over a common cold.

I was still going to have to deal with the chemotherapy and/or radiation therapy.  I was going to puke.  I was going to go bald.  I was going to die.  I did not want to die.

Three months later, following months of testing and biopsies, I began my treatments.  It did not take long to confirm, that I did not want any cancer.  Treatments were not easy though I put on the brave face for each one.  It took four weeks for my hair to fall out, I puked in less than an hour from treatment, and I gained sixty pounds.  But in the end, I did beat it.  I was hopefully not only going to be one of the 85% to be cured of Hodgkin’s Disease, but perhaps help move the stat up to 86%.

I get it.  From a survivorship standpoint, Hodgkin’s Disease is a very curable form of cancer when caught early enough.  On March 10, I will recognize my 23rd year having beaten HD.  I very rarely celebrate it just out of respect for those who still battle the disease, or worse, have lost their lives.  It does not feel right for me to celebrate this.  But as I come across so many other people who have beaten cancer, and look for something, hope, inspiration, perhaps celebrating at least the milestones,   Because there are millions today now looking to find people who have beaten cancer.  If you know someone who beat cancer but wants to know someone who has lived longer, send them to “Paul’s Heart”.

I feel that I want to finally celebrate my longevity now.  With so many offering such nice compliments, support, and comments and suggestions, the cancer that I beat has given me an oppotunity to reach so many more.  I am hoping in time, we will see even more progress made in other cancers such a lung, colon, breast, and leukemia just to name a few.

I would make a safe bet, that of my readers at Paul’s Heart and beyond, there would probably be a minimum 15 people, usually younger in age, who have Hodkgin’s and were told it was “the cancer to have.”  But I think as we meet other survivors with similar cancers or different, the message is getting out.  We are winning the battle against cancer.  We are still far away, but we are getting there.  Soon, another cancer may take the place as the one to have.

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