Paul's Heart

Life As A Dad, And A Survivor

Archive for the month “May, 2016”

Does This Help You Understand?


I wrote the other day about my inability to grieve.  I want to grieve.  I just cannot.  All too often I find myself unable to give me the levity to allow me to feel and show my emotion, because all too often, I am dealing with other issues at the same time, which do not allow me to let my guard down, be weak,  show my emotions, grieve.

I was reminded of this, when this morning my memory was jogged by two posts, one from this blog (May 18, 2014 – you can search the archive for the date), and a Facebook memory that came up today.

It was two years ago today, with my father’s health rapidly declining, that I had to appear at Family court, in spite of the possibility that my father could pass away at any moment.  Of course, the courts were not going to grant any continuance, unless it was agreed on by the other side.  It was not, and the custody hearing was held.  At its completion, I rushed back to the nursing home to be by his side.

his empty chair

This was my father’s wheelchair.  Two years ago, it had been more than two weeks that he had even been able to sit in it.

just before

The cancer at one time, had been classified as stage 1, the best chance for cure.

At this point, my father was of sound mind, when he asked me to be his health advocate.  Though I had a lot going on in my private life, my job, a school board campaign, a spouse battling an “illness”, and my own health issues, I knew that I could easily handle what my father asked me to do.

And then things went wrong, nearly everything went wrong.  My father’s cancer turned aggressive and rapidly grew to stage 4, and terminal.  Suddenly, time which was only fairly frequent with his care, became more frequent, with me often spending several nights a week with him in the hospital or nursing home.  But issues developed in my personal life that my father knew about, and in the middle of this fight, I ended up separating from my wife and filing for divorce.  Again, with all this, I was dealing with my own health issues.

My father was well aware what was happening in my house, and was still trying to offer me guidance and emotional support.  But once my father was declared terminal, I chose to no longer disclose the issues that I was facing with my divorce.  In fact, I spoke to no one about my situation, except for when the doctor, the nursing home or hospice staff needed to get in touch with me.

I dealt with bullshit rumors and innuendo, which only warranted any kind of merit, because ignorant people chose to make comments about stuff they did not know anything about, having no information.  The comments that I had to endure about my father and his final weeks, because of issues with my divorce were hurtful, and unforgivable.  These people, and I am not just talking about the obvious who were affected by the divorce, but my own family members, who had no idea the challenges that were against me, chose to attack me.

My divorce process had pressed enormous pressure on me, and decisions had to be made in my life, which were perceived as being anything but necessary.  But from a legal standpoint, I had no choice.

My father was dying.  Yet a pending court order had my back against a wall.  I had been advised by my attorney, the enormous support award that had the likelihood of being issued based on an income that I was no longer making, nor able to make.  This is called “earning capacity” and is used to prevent spouses from sandbagging their income to influence an award.  I also had someone aggressively pursuing and promising ultimate sanctions against me if I did not comply.  I was not allowed to ask for a “time out” while my father was dying.

My siblings and I got the call from hospice that my father was in the active stages of dying.  At the same time, I had plans for a job interview that was going to help me with my divorce issue, but with my father expected to soon pass, neither seemed it was going to have an impact on either.  But many days went by, and my father hung on.  Everyone was puzzled by this, as the systems of his body had clearly indicated the end was imminent.

But as the days went by, there was growing concern that I was going to have to make a decision, between honoring the orders of the family court, or being there for my father as he passed.  I had a job opportunity, out of state.  It was not a sure thing, but I had only this one opportunity.  The court would not care if I came back empty handed, the orders would stand, and my domestic situation would only get worse.

I spoke with the hospice staff about my situation, and my concerns, and my father.  Though it offered little consolation, we all came to the understanding, that my father would have wanted me to go for the job opportunity.  That job, if I were to get it, would have had major implications for my children.  My father would not have wanted me to waste that chance.

And before anyone opens their mouth about this, let me tell you something about my father.  He had over 15 years that he lost with me, because of decisions that he made in his life, following his divorce from my mother.  That man had so many regrets that he never got the chance to amend.  His granddaughters, my daughters, gave him at least some chance at his own personal redemption.  So, he understood my angst.  And I know that the decision that I made, on the morning that he passed away, was the right one.  And so I said goodbye to my father.

I got the phone call later that afternoon that he had passed away, peacefully.

I did not get the job I was hoping for, but because I was still out of state, aggressively pursuing employment, I asked that a memorial service be held for my father, on Father’s Day weekend, and I would return back home for the service, along with visiting my daughters.  It was going to be a very quick weekend, mixed with all kinds of emotions.  But never did I expect the backstabbing and innuendo that would follow.

As much as my father did not want any drama following his passing, we all blew it.  But there have been those who have chosen to take it to a different level spreading rumors and innuendo.  And that is all it is, because not one person has any of the facts because I have not discussed anything with anyone about that day, until now.

Here is the truth.  Prior to me even filing for divorce, my employer was in the process of downsizing.  Though I felt I was in fairly good standing with my union seniority, I never thought my health and my position would be an issue.  But 5 months following the filing of my divorce, it was discovered that the building that I worked in, was going to be shut down.  This meant, that movement of employees from our building to others was going to have an impact on me.  There are many who can confirm this is actually what happened.  And because of my health issues, that my employer had protected me with health restrictions since my heart surgery in 2008, there was no longer going to be enough work to keep me employed without going out on disability, which my employer was in the process of assisting me.

But the courts, and I want to be clear, I am not criticizing the court, see things only in black and white.  They did not see that this was an unintentional or preventable reduction of income, the laws allowed them to look at the salary that I once made when my issues were not as severe.  And so, in spite of submitting medical file after file confirming my disability, and of course my ex remaining silent, the court made the following ruling, that if my disability pay would not be enough, then I would have to seek additional work.  But that was impossible for two reasons.  First, how do I work (moonlight) at another job when I would be out on disability from my main employer?  Second, when I made that assertion, I was told then that I would have to just get multiple jobs.  In reality, I had not worked a regular and consistent 40 hour work week since before 2008.  And any time that I pushed my body to do so, I ended up in the emergency room, twice in serious condition (one septic), and a third time, with an undiagnosed heart episode, all within 2012.  Again, my ex knew this.  If it meant getting 4 or 5 part time jobs, this was the court’s order.  And so, I had no other choice, than to seek out employment that would accommodate my restrictions, and pay me the salary I once made that was ruled by the courts.  And time was running out for me with the court to do so.

It was not bad enough, that I had to leave my father’s side and his imminent death for one hearing, but then had to leave his bedside for an employment opportunity out of state just so that I could prevent any kind of sanctions against me.  All that I knew, was that the eventual award was going to leave me with approximately $200 per month to live on given my current disability income.  I did what I had to do, and I know my father would have understood.

But he would have been more upset not only with this criticism and judgment that I have faced from some of my own family, simply because they did not have these details, but during the weekend of his memorial, again I was criticized for my lack of “sticking around” more than just the weekend back home.  But again, here I was, trying to find employment and had interviews scheduled.  I arrived on Friday, spent the day with my daughters, and on Saturday morning/afternoon, the memorial was held.  That evening, my daughters and I took a small road trip overnight, returned on Sunday, to celebrate Father’s Day, and on the following Monday, my greatest fears were confirmed in the award that was officially handed down.  I returned to my current home that evening to continue my efforts of finding employment.  It is the opinion of some, who felt that I should have stuck around to help with the affairs.  But again, with no one knowing what I was up against, it was very easy for people to cast judgment on me.

Lost in all this, was not only not being able to mourn my father, but two little girls were also caught in this drama, and are still in the middle of it today.

I wrote the other day about myself not being able to grieve for my father, now I know why.  And the fact that I see the hurt that some have chosen to insult my father’s memory, may have something to do with it.

My dad was my best friend.  My confidante.  My dad.  And there is nothing any of you can do to take that away from me.

Censorship vs. Effect


My writing has been kind of heavy lately as I struggle with my emotions in remembering my father as of late.

So here goes an “every day” dad post.

I talk to, and see, my daughters on Facetime nearly every night.  And we talk about everything from the day at school, friends that they hang around with, Q & A, and many times, homework assistance, and often, just some plain silliness.  Every now and then, we read to each other.

My daughters have always loved reading, and being read to.  So, any time that there is an opportunity to have either read to me, I jump  on that opportunity.  Of course, my daughters are long passed Dr. Suess and the Magic Tree House series.

My oldest daughter is into “anime” these days, in particular something called “hetalia.”  I am not really sure what the whole thing is about, and to be honest, it does not matter to me.  What does matter, is that my daughter takes the time to share something with me, that makes her happy, and even happier knowing that she can share it with me.

Now of course, this level of literature, is more geared towards teenagers, so the language, imagery, and activities will be a lot stronger.  As she was reading to me, she got to a sentence that she felt the need to warn me:
“Daddy, I just need to tell you, there are occasionally some bad words.”

I held back the slight giggle I wanted to release, but this just goes to show, that my daughter did recognize that there are things that are not looked at favorably, especially for a child to say or repeat.  But since I was reading along with her on my laptop, I could see the word in question, “asses” which was being used to describe a troublemaker in the story.

That opened up an opportunity for me to explain about censorship, when it is carried too far, and just when, it is not as much necessary for censorship as much as consideration.

My oldest has always loved singing.  She went through the Kelly Clarkson phase before she was two, then Ashley Tisdale, and by age 4, she was into a catchy song by Avril Lavigne, “Girlfriend.”

girlfriend

I got a phone call from daycare one afternoon with a very concerned teacher, “Mr. Edelman, do you know what your daughter is singing?”  Innocently I said, “not really.”  I was not concerned.  “Mr. Edelman, she is singing ‘Girlfriend’ from Avril Lavigne.”  Again I held back the laughter, and then asked, “did she sing it edited or unedited?”  I knew what the concern was.  In the song, Lavigne uses what is considered two “curse” words, one definitely considered offensive.  Now my daughter had heard both versions, so my question was legitimate.  As it turned out, she did sing the edited version, so there was nothing more for me to address.

But as I had the conversation advance last night, I brought this situation up.  I mentioned that it was unfortunate that an artist like Lavigne, with connections to Disney, felt the need to include at least one very offensive word in the lyrics to that hit.  And other artists who felt the need to do so as well.  I named some artists that I knew my daughter would recognize, and she acknowledged that there were bad words in some of their songs.  And I told her, that while the songs were good, and the artists were talented, they did not need to use offensive words to get their talent out.  And who knows, they might even get more attention that way.

We also discussed how times had changed even from reading certain literature, or movies that had been edited to censor what at one time was okay to produce for effect.  Yes, both books and movies have lost their “tone” by this censorship.  We talked about how and when is the appropriate time to use the stronger words.  She had been tested a few months ago when she referred to certain presidential candidates as a certain name, not commonly heard by a teenager, but clearly adults.  Whether I agree with her sentiments or not, her teacher did not appreciate the method that was expressed to get her opinion out.  And so, we did have that talk.

That brought back a memory I had when I flipped my first middle finger, having been taught by my elders that “the middle finger doesn’t mean anything,” as if using reverse psychology would keep me from doing it.  It did not.  And as I repeatedly gave that same middle finger to my elementary school principal, proving to him that it not only meant nothing, but actually did not physically hurt anything, only got me in deeper trouble.

I am glad I have this opportunity to keep my daughters on the right track.

Hospice Makes A Difference


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Grief is a powerful thing.  If there is anything more powerful than grief, it is my ability to not deal with it.  And that is not a good thing.

When the time came to have my father placed in a facility, where he was expected to pass, it was important that we would be able to reunite him with his wife, which between them living together and being married, spent over 40 years together.

the day he passed

Out of respect for my stepmother and my brother, I am not posting her photo on this post, but this is the last picture I took of my father and stepmother before his passing.

I was going through a lot emotionally during this time period.  I had to make sure that my father was being tended to and his comfort was being taken care of.  I had to make sure that my stepmother was also being cared for.  I was (and still am) in the middle of a divorce, and unfortunately spending a lot of time away from my children tending to my father.  And of course, there were the issues of my divorce itself.

The hospice that cared for my father, reached out to many family members for support, as well as providing medication that would help keep my father comfortable in the end.  And with hospice taking care of that, it allowed me to keep in check the many things that I was having to deal with at that moment.

I spent so many nights and days with my father, by his side.  And as difficult as it was, and for others to understand, I made sure that my father’s wishes were met.  With the emotions removed, something I have always been known to do, I am able to deal with things that I need to, with focus.  And as cold as that is, that is who I am.

There were frustrations with decisions that were made, or not made, with hospice involved.  There were opinions that other last minute options were available and needed to be considered.  And I understood where everyone was coming from.  But unfortunately, they were coming from raw emotions.  We were losing someone we all cared very much about, and they wanted every last possible miracle attempted.  But the reality of it was this, any attempt was only going to prolong suffering on the part of my father.  Frustrations from the failure and lack of cooperation for last minute treatments were only going to take away valuable “closure” time with my father.  This was a time that everyone needed to come to terms with, and take advantage of because some day soon, that time was going to be gone.

And therein lies the difference with allowing emotions to interfere with decisions.  My father trusted me enough, to know if everything possible was being done, to ask the questions, to fight for the answers.

While everyone expressed their emotions, and eventually revealed their grief, I was not doing so.

It is a difficult position to be in, as the medical proxy for someone, especially a loved one.  My emotions were buried as deep as ever.  I loved my father, do not mistake that.  We lost half of our life with each other because of divorce, but the second half of my life, was spent learning about him, growing close to him, and confiding in him.

There was not time to grieve for him.  I could not afford to do that because there was too much to take care of with his care.  And the ugliness of my divorce was also playing a major role as there were those who felt the right to judge my activity with my father, neglecting my family by caring for my father.  In fact, even as he passed, because of my divorce issues, I could not be by his side at that final moment.  Many say this is not forgivable.  But what they do not know, understand, nor want to, is the fact that due to my divorce proceedings, I had not choice.  And so again, even as I was told the news that my father passed, I had to focus on my current task, related to my divorce proceedings.  There was no time for grieving.  My father’s passing even came up during testimony in one of the hearings, which it had no business, but because an accusation of my absence was made, I had to bring my father’s death into the divorce.  This was not right.

So, for the second year in a row, as this time comes up, I find myself, still not grieving for my father, because all I remember are the bad memories of the other shit that I was forced to deal with at the same time as my father’s passing.  I will remember my father’s passing in a few days on that anniversary.  And I will definitely remember the better times that we shared.  But it still will not be grief.

I still do hear from hospice who calls on me every six months to ask how I am doing.  And I appreciate that, but I am still not ready to grieve.  I have too much other things that must be dealt with.

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