Paul's Heart

Life As A Dad, And A Survivor

Archive for the month “January, 2013”

My First Tatoos


If you read my page “U. R. Sharpe,” I think I have made it perfectly clear where I stand with needles.  Only during chemotherapy, could I get passed the anxiety of the of five to seven attempts of hitting the first vein seen.  But once the chemo was done, I went right back to my phobia.

Up until my 23rd birthday, my skin surface had remained unblemished from tattoos.    But with the amount of radiation I was going to receive, every detail needed to be exact, spot on, or risk of spreading the radiation to areas not meant.

Before radiation therapy could begin, the linear accelerator would need to be lined up the same way for every treatment,  The cross bar on my chest would have to be lined up perfectly.  The only way to assure that, was to place a dot at the nape of my neck, a dot on each the balls of the shoulders, and the final down in the middle of the abdomen.  Surprisingly, this did not hurt.  The needle is so small, and the process was so quick, just a small dot, which I still have today.  So there is now a constellation on my upper body in the form of a cross.

Years would go by, and the only times that you would hear me talk about needles, was going for blood tests or procedures that required anesthesia.  But following a family vacation many years ago, both my father-in-law and brother-in-law each came home with tatoo.  My father-in-law had a Porsche tatooed on his leg, my brother-in-law, the Harley Davidson insignia across his shoulders.  The artwork was very nice, though I wondered what the motive might have been for a 70 year old, and a major upper manager for a world-wide company.

It was the next year, they went on vacation again, and came home with yet another tatoo.  This time, my father-in-law with the symbol for The Saint (a television show in the 60’s) and my brother-in-law, a number 4 inside of a baseball in tribute to Lou Gerhrig.  Earlier that summer, my brother-in-law had been diagnosed with Lou Gerhrig’s Disease (ALS).  He was only a couple of years older than I, and now we both faced an uncertain fate.  He was looking at a very grim future with a disease that would leave him unable to physically function at all, or communicate.  His mind would work 100% as it always had, the cruelest thing about that disease.

Myself, I was still coming to terms with learning about the world of late effects from cancer treatments, and how all of a sudden, some of these issues could pop up, but also how some could take time to develop.

Finally, it happened.  I got why Mike had started getting the tatoos, and now I wanted to get one as well.  For me, it was going to be once and done.  I just wanted one tatoo, and of course, it would probably be the most expensive, most time consuming, but clearly the most beautiful tribute I could ever give my daughters.  It would take up at least 1/3 of my upper left back/shoulder.

A couple of years prior, while on a family vacation for our wedding anniversary, my wife had stepped aside to do some shopping, something my children and I try to avoid at all costs.  An opportunity came up, to have my daughter’s photos taken without my wife knowing.  I say it like that, because when it comes to posing the girls, it is probably one of the more stressful times for our daughters.  But with me, I like a natural photo.  And I was able to pull it off with our daughters.  I simply told the photographer what I was going to do, and he had literally two seconds to do it.  I did not care about shadows or lighting, I wanted the pose.

painting

I had this picture made into an oil painting which now hangs above our mantle.  Now if I can just tolerate a few more needles, they will be immortalized forever.  This will be my first “artistic” and meaningful tatoo.

Time Travel – Changing History


H.G. Wells did it.  Sam Beckett did it.  Bill and Ted did it.  Superman had to do it for Lois.  Even Bart Simpson has done it.  Time travel.  All had the desire to go back into time to either research or alter time.  Each had their own mode for making the journey – an actual time travel machine, Ziggy the computer, a phone booth, a cape, and as a parody of “Back To The Future,” a DeLorean complete with Christopher Lloyd.

The concept is simple.  Go back in time.  Fix what needs to be corrected.  Come back to the future.  Of all the time travelling media, Sam Beckett in Quantum Leap was my favorite.  You see, when you change the past, you change the present and the future.  Beckett had to be careful so that he only changed the history of the person he was sent to help.  And there were times when it was extremely personal for him, like saving his wife, or even stopping this project which he found out eventually was much bigger than the invention that he created.

There is a different way to change history though, without going back through time.  We do it as children, and we often live through it as adults.  We study history.  The idea of studying history in one aspect, is to not repeat it.  Wars.  Space Shuttle disasters.  Tough economical times.  Medical crisis.  We study the examples so that we learn from them, and do not repeat them.

When we are born, our path is set.  There is a natural progression to aging, infancy to toddler, toddler through child, child into puberty, then to adulthood, and senior status.  And there are things that we know, are likely to happen to our bodies as we get older and our bodies get tired.  But just as travelling back into history to “fix” something, for me personally, the cancer diagnosis being the time traveller, forever changed my present and future.  There are bad things that came of it, but there are also good things that came of it.

For example, when I went through the radiation treatments, there were some things that were known that could happen as a result (called a side effect), but there was so much that was unknown.  Of course I knew what could happen.  Mr. McGee could make me very angry and I would go through my wardrobe very quickly not to mention look like I belonged on a can of vegetables (Incredible Hulk reference for those that need it).  Well, I did get a lot of radiation, too much in fact.  At the time, it was what worked, that is all researchers knew.  In today’s treatments, doctors know that they can use much less and by that, I mean ALOT less and have just the same effect or better.

So as I said, I received too much radiation, amounting to four times the lifetime allowance of exposure.  There are many who work at nuclear power plants that are not exposed to what myself and others were exposed to.  The sad thing, I know plenty more people who were treated with much more radiation and different types, like Cobalt.  We have all been told as children that radiation is bad – “don’t stand too close to the TV”, “don’t stand in front of the microwave”, “cell phones cause brain cancer.”  Not only does it treat cancer, and cure cancer, but it can cause cancer.  That is why if you are smart and able, you put sunscreen on your body.

Well, just like on the outside, when you get sunburned, with radiation treatments like I received, the burns were on the inside as well.  To my knowledge, it is something that I will always have.  So the radiation and chemotherapy start doing damage to my body, inside and out, which gradually gets worse over the years.  To understand, if you drive a car that has one tire that is not inflated properly, do you think that will affect the other tires?  The overall performance of the car?

As it is, that I believe about my body.  With the first lymph node that was removed and biopsied, so my body had to adjust.  With the staging laparotomy, my spleen was removed leaving my body challenged forever against infections and contagions.  When my heart bypass surgery was complete, blood was flowing at the rate once done before, my body parts not used to.  The list goes on.  My body’s natural physiology was changed back in 1988.  As far as I am concerned, everything that is happening to me today, is because of the things that happened from that time on.  And so far, this has been confirmed.

So given the chance, would I go back in time?  Knowing what I know now, would I take the opportunity to change my mind to any of the procedures, or even to allow the doctors to treat me?  Given the two choices that I had, death or most likely cure, how would today be different for me today? 

Hodgkin’s Disease has been one of the more curable forms of cancer for decades.  Treatments have gotten better, safer.  But would I have had that much time to wait decades for a cure that would not have had the impact on my health today?    I have two very very good reasons to not even entertain that option. 

Mad and Em 12813

All I can do now, is make sure that any more decisions do not give me cause to want to go back in time to correct a regret.  Then again, what if I already had gone back in time?  What if…

Paul’s Heart Has A Beat Again


Amazing, I have a couple of days to relax from reality, and I realize that I have not been writing.  Tomorrow starts a new week for me, and so, back to reality.  Back to Paul’s Heart and  a lot more stories.

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