Paul's Heart

Life As A Dad, And A Survivor

How Can This Story Get Any Worse?


This is Larissa Boyce, 36 years old.  Twenty years earlier, she was sexually assaulted by someone she trusted, that her parents trusted, to treat her in her dreams of participating in gymnastics.    Originally, when I wrote last week (“Defining Insanity”), the number of victims of Larry Nassar, team doctor at Michigan State University, was publicly being stated at over 150.  Today, the number has climbed as high as 265 victims.

Nassar was sentenced severely enough, that he is expected to die in prison.  But sadly, there is going to be yet more court actions as further sentencing is forthcoming.  And that is what has led to the increase in the number of his victims.  In listening to reports, Nassar believed himself to be a “body whisperer” which he probably felt gave him the right to do what he did to all of his victims and that people just did not understand, that is what made his practice work.  Nothing could be further from the truth.

The whole point of my “Defining Insanity” post, was that no matter how extreme these stories get, we still keep ending up going through the same cycle over and over.  Victim makes an allegation.  Victim is discounted, often made to feel as if the problem.  Repeat.  Incidents made public.  Outrage.  Denial of knowledge of the abuse.  Repeated over and over again.

As was reported in Boyce’s case, Boyce, who was one of many children, non MSU students treated on campus, she was made to believe she was the problem.  Denial that Nassar did anything.  Boyce was made to believe that she simply did not understand what was being done to her.  No one would be notified.  This would stay within the four walls of MSU.  People she looked up to in the MSU Youth Gymnastics program had not only let her down.  But by being complicit, over 265 victims are now the latest count.

Defining insanity.  The Catholic Church priest sex scandal.  The sex scandal at Penn State involving Jerry Sandusky.  These were all major publicized events, and yet, here we are again.  The definition of insanity – doing the same thing over and over again, yet expecting a different result.

All it would have taken was for not just the first victim to be believed, but even within the first dozen victims if even that many were needed.

I have often found myself wondering about those adults in my childhood, especially teachers in high school, where comments were often made about certain teachers and possible inappropriateness.  Might the rumors have been true, and we were all just led to believe they were not?  Were fellow students being abused, and shamed into secrecy?  Were any of my friends made to think they were the problem?

And then there is the “how” this could happen.  That is an easy one.  It is all about “power”.  Because dreams are so high, yet success limited in numbers, opportunities are far and few.  And that power is held over heads to keep a victim compliant.  To have any success, keep your mouth shut.  And it does not matter what the pursuit in life is.  And this does not happen to just children.  As we are finding out with the “Me Too” movement, it happens to plenty of adults as well, female AND male.

How many is too many before a complaint is taken seriously?  How, with all the publicity, things like this still occur?  How do we keep letting abusers get into positions that enable them to feed their needs to abuse?

As a father of two teenage girls, this is my reality now.  And it should make no difference if I had sons either.  But I would hope, that if anyone would put my daughters in a situation that clearly was unacceptable, that my daughters feel they could trust the adults in their lives, myself, their mother, a teacher, a friend’s parent, as many as it took to deal with the situation.  But to do this, we need to believe their claim right from the beginning.  We cannot afford to be complicit and just blow it off.  Perhaps just even as bad, if we are made aware of such a claim of another child, not even our own, we still have that responsibility to act, even if not our own child.

Of course, there is the risk of the accused perpetrator being an innocent victim themselves of a vicious rumor campaign by mean and vindictive students or adults, retribution for a denial of an opportunity that was sought and denied.  And this has its own consequence as a career can be ruined, and a family destroyed.

But as an average human being, without training in recognizing and dealing with sexual abuse, we are not qualified to make the determination, which is a legitimate accusation, and which is not.

Think about it, and the investigations will reveal just how many people at MSU knew what was happening.  The number is now over 265.  How many people were told, then made the victims to accept the blame?  How many people knew, and then turned their backs?  If the victim count is 265… how many people knew?  And this is just the MSU situation.  There have been so many other institutions rocked by this type of scandal, and there probably will be more.

The question is, do we just keep doing the same thing, over and over again?  It is time to take the first complain seriously, whether our child or not.

Blame It On The Moon


Sure, many of us got to experience a Super Blue Blood Lunar Eclipse this morning.  When it is worded that way, it not only sounds cool, but also like it might be the theme of some sort of apocalyptic movie.  Three events of the lunar cycle combined for an occasion that has not happened in over 150 years, a Blue (new) moon (the second full moon within the month), a “blood” moon (colored from the sun), and a lunar eclipse.

But for me, what makes this event even more special for me, is I got to share it with my daughters this morning.  Not physically, as we live several states apart.  But through Facetime, I was able to share an experience, and tradition that started many years ago back when my oldest daughter was in second grade (during the marriage).

We were experiencing a “blood moon”, just a normal one that evening.  But we would have to wake up at 3:00am.  My daughter was so excited as things such as dinosaurs, dolphins, and the moon excited her.  We had an understanding with each other, that if I woke her, to witness the blood moon, it was no going to eclipse that night, just turn red, she had to promise me that she would go right back to sleep once it was over.  After all, she had school later that morning.

We had been outside for approximately 45 minutes, but it gave us one of our many special daddy/daughter moments.  The next lunar event, my youngest daughter insisted, all too happily to be included in these family science lessons.  I was all too happy to oblige.

So, this morning I went outside, and started filming the moon’s trifecta event.  It really is something special to be able to witness something that does not happen more than once in a lifetime.  So, along with experiencing an eye of a hurricane (Irma) this Fall, I can now add another event I had not expected.  I took video and snapshots of the different stages.

Of course, timing was becoming an issue, as I wanted to share this with my daughters on Facetime, and I knew that they would be leaving for school shortly.  “Hurry up Moon!  Would you?!”

As soon as the moon had eclipsed, I raced back inside my apartment, and called my daughters.  I could not wait to share this moment with them.  Where they live, the sun was already out an hour, and would not see this.  I showed them the videos and pictures with the same enthusiasm as our first lunar experience, and their reactions were the same.

Always the parent who makes their education a priority, this morning I gave them both something  that they could share in school, if the conversation came up, either with friends, or even during science class.  More importantly, we continued a tradition, that in spite of our distance, continues today.

As one of my friends mentioned to me just yesterday about this Super Blue Blood Moon Eclipse, “it is a special day, and only good things will come.”  I am looking forward to it.

Does It Really Make A Difference “How” or “Why”?


Surely it has happened to you at some point in your life.  You spill a drink, and not just any drink, but one that will leave a huge and permanent stain, and definitely only get worse the longer it sits.

There are all kinds of hacks to clean up a spill that will cause a stain.  But they all rely on how quickly you respond.  If done immediately and correctly, perhaps there can be nothing noticeable remaining.  As the liquid sits, the stain will become more difficult to deal with.  And of course, to do nothing, well, say goodbye to the carpet then.

This is not just a metaphor.  This is a life saver.

Do you stand there and wonder how it happened?  Why it happened?  What you could have done differently so that the drink would not have spilled in the first place?  Does it really make a difference once it has occurred?

I was 22 years old when I was diagnosed with Hodgkin’s Lymphoma.  To my knowledge, I am the only person in my family history to develop this type of cancer.  I had five other family members who had battled a different form of cancer, all have passed away.

I am on several social media pages for cancer as well as life after cancer.  Usually two or three times a year, a discussion comes up wondering about the cause of Hodgkin’s Lymphoma.  While we know there are hereditary possibilities with certain cancers such as breast cancer, dietary influences when it comes to colon cancer, and of course smoking linked to lung cancer, there are no confirmed actual causes of Hodgkin’s Lymphoma.

There are similarities however, amongst many of us, in regard to our health histories that should not be ignored.

Please read this next sentence carefully, very carefully.  Most of us who have had Hodgkin’s Lymphoma at one time or another, dealt with the Epstein Barr virus.  THIS IS IMPORTANT!!!  This does not mean that everyone who gets EBV will get Hodgkin’s.  Like the lesson taught in school, “all mammals are animals, but not all animals are mammals,” the same applies here.  I have never been tested for the Epstein Barr virus, and with my Hodgkin’s having occurred almost 30 years ago, if I got the test done, I am pretty sure I would test positive for having had it.

But the EBV does often lead to another illness, mononucleosis, “mono.”  And again, though just as prominent among Hodgkin’s patients and survivors, many of us have had mono, though not as numerous as just having EBV.  Now the same rule applies as with the EBV, not everyone who gets mono will develop Hodgkin’s.  And considering how prevalent a diagnosis of mono can be, Hodgkin’s is considered rare with an average 50,000 diagnosis each year.  So, sadly, at best, EBV and mono appear, or are at least looked at as just coincidences.  Just as a matter of fact, I was diagnosed with mono at the age of 18, four years before I was diagnosed with Hodgkin’s.

Agent orange is a mixture of an herbicide and chemicals, most popularly used during the Vietnam War, having exposed so many to its toxicity.  And for several long term survivors of Hodgkin’s Lymphoma, another similarity, from exposure.

Then there are also conversations about “clusters” or “hot spots”, locations with higher incidents of diagnosis of Hodgkin’s Lymphoma.  In my early days of survivorship, I had first learned of this situation, concerning areas of Ohio.  I have since learned of other areas, from Los Angeles to Ohio to New York to Norway.  Again, there seems to be a causality due to exposure to chemicals such as Benzene.  There are many of us who lived near Three Mile Island (though I know some who lived closer to TMI than I did when the crisis occurred back in the 1970’s) so radiation is yet another coincidence.  I had even seen reports narrowing down a cluster to a particular high school.  But in the end, these are all just treated either as numbers, or coincidences.

Ultimately, if I really wanted to pinpoint anything, especially with Hodgkin’s being a cancer of the immune system, I would point a finger at stress, not necessarily as a cause, but definitely a trigger.  Like many other things I have had to deal with medically, my events were all preceded by higher amounts of stress than normal.  And what effect does stress have on the body?  It lowers the immune system’s ability to respond and defend.  At the time of my diagnosis, I could not have been under more stress – a challenge I would well exceed fifteen years later.  But again, I want to stress, no pun intended, stress does not mean you will end up with Hodgkin’s.

In the meantime, for those of us in this world of Hodgkin’s, are you letting that “stain in the carpet” sit longer, or have you just taken care of it and have moved on?  To obsess about the “how” or “why”, especially in the beginning of the Hodgkin’s journey can cost valuable time in regard to treatment.  And as most of us HD survivors will tell you, time is critical in treating Hodgkin’s.  And to obsess about the “how” or “why” in survivorship, will only mean that we are not paying attention to the things around us that should matter more.  Sure, it would be nice for closure, to have the “a-ha” moment that we could tie our Hodgkin’s to.  But in reality, I do not see this in my lifetime, which I am hoping for another 30-40 years.

 

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