Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “The Heart”

The Best Of You


I was sitting in front of the television one night, watching one of the award shows.  I cannot remember which one.  During an acceptance speech by, I cannot remember who, I heard the following words, “Life is not just about the moments, it’s who you spend them with.”  I was too concerned about the actual quote when I wrote it down, I figured I would remember who said it.  I did not.  Help.

I am sure winning one of these awards is an awesome moment, but it means nothing if you have no one to share it with, or worse, share it with the wrong person.  Another expression that comes to mind begins with “surround yourself with good people…”

Being an advocate, as well as a participant in the causes I advocate for, there are moments when faced with multiple levels of toxicity.  The key is not to absorb them.  Regardless of the many health issues that I face from my days as a long term cancer survivor, I take advantage of my good days.  Regardless of any disagreements I have with my former spouse, I cherish all the moments that I get to spend with my daughters.  It is not about the moments, it is who you are with.

Some wait for a health scare to make the conscious decision to release toxicity or eliminate stress.  Some go through a major event, and still are not convinced a change needs to be made.  For some, it just takes time to realize, that is what you truly want, inner peace.

On paper, there is a lot on my plate that I have to deal with, likely overwhelming for most.  And at one time, it led to high stress for me, as well as aggravating my health issues on an accelerated basis.  But recognizing the things I face, do I choose to obsess about them, and ignore all the good that is around me?  Or do I take the approach, “I will do what I can, and that is going to have to be good enough?”

One of the ways that I have dealt with this thinking, is to take a “prepare for the worst, hope for the best” attitude.  Why?  Because even being aware of the worst case scenario, takes away the surprise factor when it comes to emotions.  When faced with bad news, we often are rattled by our emotions, which leads to more bad things because we are not thinking straight.

An example, I am followed up annually for my cardiac issues related to my cancer treatment late side effects.  My issues are not about “will they happen?”, but rather “when?”.  As I go through each follow up, I go through my strategy… worst case, it is time for the surgery, best case, still waiting.  And I apply this to every situation that I face.  This allows me to remain calm and focused.  I know that if I need the surgery, there is nothing I can do about it, I need it.  Worrying will only make it worse.  I will be in good hands.

But it is important, to keep the “who” you spend those situations with.  As my daughters have grown older, they will soon take on a role, of educating themselves about my health issues, and I will have two very strong advocates along with those that already offer me support.  A far cry from what I used to have.  It makes a difference.  It is not just about the moments, but who you are spending them with.

A Tree With No Roots


I have no problem amusing myself.  Because my health often does not allow me to remain in one position for too long of a time, I often have many “irons in the fire.”  A recent project I have started up again, is my family lineage.  My father had given me documentation just before his passing, which allowed me to trace back nearly 150 years of his side of the family.

I did not know that much about my mother’s side of the family.  In spite of having a family tree project in school, information on the paternal side of my mother’s family was sparse.  I was able to go back several generations on the maternal side.

Until recently.  A project started by a cousin on my maternal father’s side has sparked a new interest for me.  There is actually information about that part of the family that I had not known previously.  There is some information that confirmed what I did know already.

I did not get to know my maternal grandfather very long as he passed just passed my first birthday.  All I knew about him was how I was drawn to him.  Now I know why.  As his obituary shows, he loved music.  I recall hearing an actual vinyl recording of him singing “The Battle Hymn Of The Republic.”  From that point, I was hooked into music.

From church choirs to school choruses and chorales, competitions, symphony choruses, cover bands, and karaoke, I found my place in music, singing.  I did also further music studies, including guitar and piano.

Music would take a bigger part of my life, during my battle with Hodgkin’s Lymphoma.

Have you ever heard a song that pops into your head, and automatically your mind takes you back to a specific time or place?  Mine used to take me back to fun memories such as an amusement park, or maybe an ice cream shop.  But because I spent so much time in a chemotherapy suite, I listened to a lot of music to get me through my treatments.  During my recovery and rehab, I listened to even more.

This is when I realized music was not only fun, but had healing potential as well.  Now, my singing also plays a pivotal role in assisting with my pulmonary rehab, a lot more fun than using the spirometer thingy I have.

But the best thing, my daughters have the appreciation of music as well.  And like me with my grandfather, they have heard me sing as well.

Anyway, it was during this search, I not only confirmed where I got my interest in music, but also shined a light on the other side of the family that I did not really know.  It was interesting and exciting.  Always looking for more grown up things to talk about with my daughters, I saw this as a good one.  And then it hit me.

With my daughters being adopted, there are moments that I have learned, extra sensitivity and attention are needed.  And this was one of those moments.  It is one thing to be adopted domestically.  There would be some glimmer of hope, if it was desired to trace and find where someone came from.  But being internationally adopted, there is a “needle in a haystack” chance of discovering this information.  My excitement could easily cause heartache, and I do not want that.

A favorite television show of mine growing up was “I Dream Of Jeannie.”  Typical story.  Someone rubs the lamp, a genie pops out… yada yada yada.  In this series however, the genie stays.  One episode had “Jeannie”, the main character, sad, because she did not know when her birthday was.  And due to that sadness, she had begun to physically fade away.  In spite of all her happiness that she had with her “master” and eventual husband, the lack of knowledge of her birthday proved powerful enough, it needed to be found.

This has always stuck in my mind with my daughters.  And up to this point, I have actually taken several steps to help them, should they ever decide that they would like to see if they could trace their past, perhaps even find their birth parents.  Research and investigations provided me with information on caregivers, foster parents, and locations.  My daughters are now aware that the information exists, should they decide that they want to go further.

And I have given them both my word, if they do decide to pursue finding their origins, I will do all in my power to help them both.  It won’t be easy.  But who knows what can happen in a decade or two?

But at this point, there is no reason to risk any kind of hurt to my daughters, with my research on my family from a geneology standpoint.  But on the family tree, they are on there, and so will their children, and so on.

You Only Get One Warning


I need to provide a disclaimer before I proceed with this post.  This is not my current condition.  Do not panic.  I am fine currently.  But I am a hypocrite, offering the “do as I say, not as I do,” advice.

You only get one warning.  That’s it, just one.  Depending on which function of the body it is, it could be nothing, or it could be really bad.  Involved in as many of the peer support groups that I am, it is all too common for the messages “asking” what should be done, when an excruciating pain or uncontrolled dizziness is occurring.

You do not need to be like me and my fellow survivors either.  You could be in perfect health when one of these situations sneak up on you.  The point is, if it grabs your attention, it needs your attention.  So then why is time wasted, when the answer should be quite simple?  What good does asking my or anyone else, what we think you should do?

For the most part, fear.  We do not want it to be what we think it might be.  But there is literally only one way to find out, and only one person who can, and that would be a doctor.  The good news is, that a doctor can also be the one to tell us it is nothing.

But if we are getting that warning, we are only getting that one warning, and there is likely not a lot of time to react.  I have had multiple events over the last fifteen years, here comes the hypocrite part, that I have ignored warnings.  One time, I was left no choice as I was taken out of my house on an ambulance stretcher at 3am.

In 2008, I was suffering a chest tightness for nearly four months before I went to the doctor.  And then only on a hunch by my doctor, an unusual test was ordered, and thirty-six hours later I was having emergency open heart surgery.  I was about to die from a fatal heart attack.

In 2012, as I mentioned, an early morning ambulance ride resulted in me being diagnosed with aspiration pneumonia, full blown septic.  The bad part, I do not think I had any symptoms, or at least I did not recognize any.  Yet, my bloodwork showed I had been septic for at least 48 hours.  I should have been dead by then, untreated.

In 2019, again, a follow up test revealed I had another major blockage with my heart, yet I felt no symptom that I am aware of.  The repair, thanks to advances in technology with my health history, was a lot easier than open heart surgery.

But while several of my episodes have been without recognizable symptoms, I have had plenty that did have warning signs.  Years ago, I was left paralyzed in the middle of my work area, alone (because everyone else was on lunch break), with a piercing chest pain, unlike my other condition.  I thought for sure I was having a heart attack, and was afraid to move, thinking that would be the last thing I would do.  I would actually have several of these “attacks” over the years.  Some would result in a trip to the ER, sometimes not.  The point is, only one person could determine if it was something or not.

Later in 2019, I had another one of those episodes, that resulted in me being admitted.  They were certain that something had happened, just not sure what.  It is believed that I suffer from “lightning strikes” as one cardiac nurse calls it, a result of the type of bypass that I had done back in 2008 (more complicated to explain without detail on this post).  There is nothing that can really be done for them, but let me tell you, they get my attention.

I know that I am not healthy as the rest of most I know.  So when I do see a friend or acquaintance, talk about an unbearable pain in the side, chest, dizziness, whatever, I do not hesitate telling them to go straight to the ER.  Time wasted with a serious warning like that can mean the difference between life and death.  The best that can happen, is be told you are fine.  But hopefully the worst, you are diagnosed with whatever is causing the symptom and it can be corrected.  But you only get that one warning.

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