Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Side Effects”

Best Wishes For A New Year


I think the majority of us could not be more anxious to get the year 2020 over with, never to spoke of again.  Covid19 became the new worst word beginning with the letter “C”.

I was able to get some things out of 2020 that were positive.  An annual trek in January took my daughters on a detour through an actual “ghost” town, that is doing all it can at this point, at least developers anyway, to make it disappear.

A town in Pennsylvania called Centralia, famous in the area for having a coal fire burning underground for nearly 70 years, totally abandoned except for four remaining homes, had its main road closed off, deserted.  As the road no longer carried vehicles, soon vandals marred the highway, spray-painting the road until soon, it became a ritual for any visitor to the area, to leave a remnant of their visit in the form of graffiti.  This road would of course be called the “Graffiti Highway.”  Soon after our visit, the developer bulldozed dirt over the entire road, never to be seen again.  Our timing was perfect.

Another huge moment for me in 2020, was marking my 30th year, cancer free.  A party was held in my honor just before Covid started wreaking havoc.  Again, all about the timing.

Covid did take away from me as well, especially time, time with my daughters.  Until safety precautions were determined and implemented, travel back and forth was not a good idea given my vulnerabilities to the virus.

BUT, once the recommendations came out, I did manage to return to visits with my daughters again, safely, with minimal risks to each other.

2020 gave us a lot of time to think, and prepare.  We still do not know when the end point of this crisis will be, but we are now learning not only that we need to be able to move on, but how to do it safely, some would call it, “living with the virus.”  Honestly, it is not the first time we have faced a virus crisis, though clearly in my lifetime, this is the worst I have ever seen.

But here we are, finally getting to the year 2021.  And I already have so much on my calendar that I am looking forward to, Covid or not.  During this time period, I have made real progress writing my first book, based on survivorship, now two-thirds of the way finished.  I am looking forward to another great year writing this blog, and hopefully maybe making it a podcast.

Most importantly, I am looking forward to more time with my daughters.  I am so proud of how they have had to handle the diversity in regard to schooling, socialization, and more.  And they did it without complaining.  They knew the right things that had to be done.

Holy Cow!!!!  I just realized this year, I will be the father of an adult daughter.  Reality is setting in.  My emphasis on teaching and encouraging values, now turns to life survival lessons, about money and how to save it, spending wisely, negotiating, and to not be taken advantage of.  The decisions she soon faces are more serious, the rewards greater, but so are the consequences for any wrong decisions.

My younger daughter will also turn a milestone as well.  And as both of my daughters get older, they are learning more about what I have gone through in my life, through my cancer journey and beyond.  That images in the memory that make no sense, have a story behind them.  Those stories will become important to them because there will come a day, that they will need to know what I have gone through.  But that is a long way off.  I have graduations to attend and daughters to walk down the isle.

I wish everyone a Happy, Safe, and Prosperous New Year.  See you on the other side.

Marci – A True “Wonder Woman”


Wonder Woman!  Wonder Woman!
All the world is waiting for you and the power you possess
In your satin tights fighting for our rights
And the old red white and blue

Wonder Woman!
Wonder Woman!

Now the world is ready for you and the wonders you can do
Make a hawk a dove, stop a war with love
Make a liar tell the truth

Wonder Woman!
Get us out from under, Wonder Woman

All our hopes are pinned upon you, and the magic that you do
Stop a bullet cold, make the axis fold
change their minds and change the world

Wonder Woman!
Wonder Woman!

You’re a wonder, Wonder Woman!

Marci, this theme song from the 70’s super hero television show Wonder Woman was a song clearly written for you.  And for those of us who had the blessing of knowing you, our “Diana Prince,” we knew you as a true “Wonder Woman.”

This has been a difficult year for so many reasons, but toughest made by yet another passing of a fellow long term Hodgkin’s Lymphoma survivor.  Grief has been piling and piling on top over the last several months, normally occurring over a year instead.

Marci’s passing has affected me differently though.  The impact that she had on me, the way she lived her life, while clearly sad for the loss of a good friend, she “wrote” an amazing story with her life.

For many of us, treated for Hodgkin’s Lymphoma back before the turn of the century, especially during the 50’s, 60’s, 70’s, and 80’s, treatments were barbaric, and often considered by today’s standards, experimental in value, because though they worked, the long term effects that would develop, were never researched, leaving many of us struggling not only to find care for these issues, but even finding a doctor willing to try.  These issues could be minor, or quite severe.  Some might have been fortunate, not to have developed any.  Sadly, Marci had been one to develop serious issues which I won’t go into detail here, other than a few appropriate places.

But it is the way that Marci always presented herself, a common personality trait of a Hodgkin’s survivor, only presenting the “shell” of what we are dealing with as it is hard enough for us to deal with.  But Marci, she was one of a kind.

To describe Marci as colorful, is an understatement.  Marci and I first met several years ago on a support page for survivors of Hodgkin’s Lymphoma.  I could tell she was going to bring a lot of life to our group.

Though out of privacy, I am not posting pictures of her family, she had a large family that she loved very much.  She also loved her pugs and activities abound.  One art project she was working on, actually a cross-over, was a jeep that was being decorated to reflect her persona of Wonder Woman.

Marci started this with our group long ago, and many group members jumped on that bandwagon, encouraging her, as our “wonder woman.”

This photo was from a post that I sent to her a month ago, as I was driving here in Florida, immediately making me think of her.

Sadly, Marci faced many issues from her Hodgkin’s past.  One of which was a battle with colon cancer.  This left her as a colostomy survivor as well.  But in case you could not tell from the above picture, Marci even managed to rock that situation in her own style, with her own “wonder woman” pouch.  Only Marci could pull that off.

And in spite of dealing with her own issues, as is coming among us Hodgkin’s survivors, she took time to help and support others advocating for childhood cancer and colon cancer.

Marci, you were truly one of a kind, with emphasis on the word “kind.”  And sadly, we know that “Wonder Woman” was mortal after all.  But all that you gave to us, especially to remember by, will be a blessing that will last forever.

“Wonder Woman!
Wonder Woman!

You’re a wonder, Wonder Woman!”

Make This Difference In 2021


I feel odd trying to write an inspirational message, using the television serial killer Dexter as an example.  But here goes.  First, to be fair, Dexter’s status as a serial killer is complicated in that he is really a good guy.  One of his major flaws (besides the ease of killing criminals released by the judicial system often on technicalities), is he is emotionally barren, for at least half of the series, before his “feelings” begin to mature.  I am trying to be respectful in not “spoiling” anything.

You get it though, Dexter does not show, or pretty much, have any emotions, or feelings.  His sister Deb, with a mouth more colorful than a truckdriver or sailor (or whatever metaphor you want to use), has emotions, but has not control of them, often leading her to make decisions that involve regret.  She often tells Dexter she loves him, but he is unable to respond in kind to his sister.  This is not the only time that Dexter has been in this position, through no fault of his own.  It is just who he is.

Anyway, as the series draws to a conclusion, Dexter is moving away, far, far, away.  Deb’s only request, a hug before he leaves, something I do not recall seeing in any of the episodes.  I will leave it there.

There are no second chances.  I wrote just a couple of days ago about my father’s situation with my stepmother, an argument, never being able to be resolved.

That had not been the first time, that I had experienced that guilt, of a lost opportunity.  Growing up, though different circumstances, I did not deal with emotions well either, in fact, not at all.  But early in my adulthood, when my grandmother had been diagnosed with cancer, and the mere thought of losing her, I found out, that I did have feelings, and they mattered.  And for the first time, I began to show my emotions.

On a daily basis, I made sure that I told my grandmother that I loved her.  When I visited her, I always gave her a hug.  Except for one time, and it was the last time that I saw her alive.

She was about to begin her second fight against cancer, beginning chemo the Monday after the weekend.  I stopped by to visit with her Saturday morning as I had a full day planned on Sunday with my church’s youth group that I ran.  I had discovered that she had cut her her short, to prepare for the hair loss that would accompany her chemotherapy.  But then I noticed something odd.  Her booklets on her chemo information had still not been touched.  I just attributed that to my grandmother’s nature of just accepting things, and doing what she had to.  That is how she rolled.

As I sat across from her in her living room, she had a distant look on her face.  There was a lot on her mind, clearly with the chemo beginning in just days.  I would soon find out, she had a lot more on her mind than she let on.  I asked her what was wrong.  She just responded that she “just want to get this over with.”  She definitely was not her normal “brave” self with me.

When I went to leave, she did not get up from the couch as I approached the door.  I told her, “ok grandma, I am going to get going.  I will give you a call tomorrow, then come see you on Monday.”  My hopes of thinking she would take that as her cue to come over and hug me goodbye, nope.

The next day, she had passed away.  The one time I did not hug my grandmother or tell her I loved her, because I was distracted by her “distance” and distraction, is how we parted.

You see the pattern here.  Three examples, all three, “coulda, woulda, shoulda.”

My daughters never got to meet my grandmother.  They never knew what happened to my stepmother and the impact it had on my Dad.  What I do not know, is if among all the other stuff they have watched, if they ever watched Dexter.

But one thing is for sure, from the moment they were placed in my arms, they have always been told “I love you” by me.  They get as many hugs as I can give them.  There is no “given” that just because I am their father, they have to love me or that I love them.  No, for the first time in my life, my daughters made me feel that way, and I made, no, make sure that they know every day how much I love them.  There will be no regrets with not having said the most important words to my daughters.

We never know when the inevitable is going to happen.  And 2020 has been extremely cruel with Covid19 devastating so many families permanently.  And now, faced with recommendations, proven to be at least helpful in reducing risks, we are asked to make sacrifices, which could very well be the last time, we see a loved one or friend.  Nobody gets that more than me.

Whether you believe in the severity of Covid19 or not, and whether you have been personally affected by Covid19 or not, does not change the fact, that you only get one last chance with someone, and we do not know when that moment will be.  But Covid19 has made a huge impact on hundreds of thousands of lives, permanently.

2020 has been extremely cruel, and likely filled with a lot of regret, of things left unsaid.  Regardless of what you believe about Covid19, or any other situation that at one moment can change your life forever, you can make one huge difference in 2021, every day.

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