Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Recreation”

A Marked Man


Here is a little known fact about me that not even those close to me are aware of… on my body I have four tattoos.  They are not blatantly hidden, but you cannot see any of them as long as I am dressed.  Together, they form a cross, actually a crosshair across my chest.

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Of course now you must be asking yourself, “why on earth would you get a ‘crosshair’ tattooed on your chest?  It is not as morbid as you think, nor as detailed, but actually quite valuable, and important to save my life.  You see, prior to beginning my radiation therapy for Hodgkin’s Lymphoma, I had been given 4 tattoos, one at the base of my neck, one each on the balls of my shoulders, and one on the middle of my abdomen.  This was done to help align the linear accelerator accurately for each of the 30 doses of radiation I would be given to help me beat my cancer.

But that does not mean that I have not thought about getting an actual tattoo.  In fact,  I have several concepts ranging from a tribute to my daughters to recognizing my fight with cancer.  One thing that stands in my way is my ridiculous fear of needles which also sounds like an odd thing to hear from someone who has gone through so much medical trauma in his life.

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I am really fascinated by tattoos, as long as they are tasteful.  And it does not matter if they are done on men or women.  I do not want to see tattoos glorifying violence or hatred.  The tattoos that really spark my curiosity are those that consume an entire area like a “sleeve”.  Again, I do have an appreciation for ink when it is done tastefully.

This unusual post was sparked by someone with an unusual location for a tattoo, although it is quite popular.  I do not recall the design exactly, something floral with some words.  But it was done on the top surface of her foot.  Now, that particular area  I am more than familiar with its sensitivity.

One of the prehistoric diagnostic tests I underwent was something called a “lymphangiogram”.  Simply, the idea was to inject a radioactive dye into the lymph vessels which would then be followed up by an x-ray, lighting up your entire lymph system.  It was a very long procedure, but to see the x-ray was quite fascinating.  But the thing I will never forget, was just how sensitive that area of skin was.  And I could only shake my head wondering how much that particular tattoo must have hurt while she was having it done.  The fact is, our bodies have a lot of sensitive areas like this, and it does not stop anyone from being inked there.

One of the first things many of my fellow cancer survivors due is get a tattoo to mark the completion of their fight.  And I admire that.

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I cannot say that I will ever get one.  Like I said, I have several ideas if I ever do decide that I want to get a tattoo.  This is just one of those “by the way” posts, an observation that sparked a memory for me.

Cancer Silences Yet Another


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The music world lost yet another influential composer, musician, singer, artist.  Humanity said goodbye to an individual who used his celebrity to make a difference in the world, whether it was for world hunger, gender acceptance, or world peace.  This post is about David Bowie, and will be written in two parts, because, upon learning about the surprise passing, I am reflecting on the influence he had on me as a musician and entertainer, but also the impact as a fellow cancer warrior.

From my early days of college radio where I started, I always had the reputation of being “Mr. Bubblegum”, a reference to my constant need to play popular music.  I had heard Bowie’s music on AM radio back in the 1970’s, but it really meant nothing to me.  That would all change with the very first radio show that I did.  I was thrown into a “classic rock” segment, protesting that I did not know anything about classic rock.  I relied on listeners who would call in to my debut show, who supplied me with many song selections, that miraculously, I had heard before.  I just never thought of the particular songs as “classic rock.”

One of the artists that I played a lot of songs from their catalogue, was David Bowie.  And for those of us who know his catalogue, his career produced a lot of hit songs.  But it was when I dug into some of the history of Bowie’s songs, it was when I learned that John Lennon actually sang on Bowie’s hit “Fame”, during the descending notes toward the end of the song, several of the “Fame”s were recorded by Lennon.  And that it when I learned to recognize more about music than just the notes and the sound.  There were actually stories behind many songs.  It was from this moment, that I know that I started to look deeper into the appreciation of the many genres of music that I follow.

There will be many collaborations that Bowie participated in, duets such as with the Christmas favorite “Little Drummer Boy” with Bing Crosby, and of course, Bowie sang along with Freddy Mercury of Queen with “Under Pressure.”  Fortunately, although many hailed the combination of Mick Jagger along with Bowie, the two of them strutting with each other to “Dancing In The Streets,” I would much rather forget.

But as many will say, Bowie’s death at a young 69, and from cancer, when no one was aware that Bowie even had cancer, came as a shock.  There are some celebrities who announce that they are battling cancer, and clearly, there are some who wish not to disclose it at all.  Ultimately, it is the individual’s business, and we need to respect that wish.  That does not make it any easier to accept.  For some of us, we are selfish, and we want to know why.  And I have mixed feelings about this.

One of the first things that I learned as a cancer counselor, is that there will be two types of patients, those that want to talk about it, and those that do not.  And how cancer is handled can be complicated.  Back in the 1950’s, people were actually ashamed to have been given a diagnosis of cancer, never mentioning the diagnosis.  In the 1970’s, more cases of cancer were being publicized, but hardly with any, hardly any success stories.

So, when I was diagnosed with Hodgkin’s Lymphoma in 1988, I not only made it a point that I was going to beat cancer, I was also going to be quite vocal about it.  Following the completion of my treatments, my first wife constantly tried to encourage me to just “move on.”

But then you take my grandmother, who upon diagnosis of ovarian cancer, actually instructed her doctor to tell us all, that surgery was successful in removing the cancer, when in fact, she was in the terminal stages, soon to pass away just weeks after the surgery.  Only she and her doctors were aware of the prognosis, and how fast it was happening.  It was her wish, not to have people spending her final days, not hanging over her, all solemn.  This was not how she wanted to be remembered.

Then my father, who for most of his life, was fairly solitary, was engulfed in support from a multitude of people who had just come into his life, after he began a brief career as an elementary school bus driver, when he was diagnosed with terminal lung cancer.  My father could never grasp how he could mean so much to so many, in just so short of a time.

And then of course, there is the advocate in me.  If I had my way, mainly because I do not have the resources myself to do it, I do wish that every celebrity who faces cancer, or knows someone who has, would step up, if for nothing more, than to bring awareness to the fight, and what is needed.  After all, as a celebrity, you have the world’s ears and eyes.

But ultimately, I can respect Bowie’s decision to not reveal his cancer.  Cancer is awful, and no one wants to go through life being remembered for the thing that took life away.  Even as Bowie completed and released his final album, “Blackstar” just days before he passed, Bowie never let on what he was facing.  Though clearly, in his video for the song “Lazarus,” you get an eerie display of Bowie laying in his death bed.  Perhaps this was art imitating life, just as Freddy Mercury did with Queen’s last project which included, “Who Wants To Live Forever?” and  “I Was Born To Love You.”

As a fellow cancer patient, I am always saddened to hear when someone was unable to overcome their battle.  As someone who truly appreciates music, I am saddened that the world of music has lost a true genius.

As Joe Elliot of Def Leppard said in an interview with Eddie Trunk, “this is it, there will be no more David Bowie music being written.”

A Different Kind Of Secret


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I had never heard of the book “The Secret” before I moved to Florida a year ago.  And I will say, the book has nothing to do with just Florida, and as I have found out, the book’s popularity extends well beyond the panhandle state.  To summarize the book, and video (identical to the book), the belief is that the universe alone is responsible for everything that happens to us.  Good thoughts will reward us with good thoughts.  Bad thoughts will inflict negativity on our lives.  Whichever we send into the grand universe, positive thoughts or negative thoughts, the universe hears these thoughts, and comes back to your life in the positive or negative, depending what your thinking was.

“The Secret” to me is a nice concept really, but a bit more extreme, and sadly for me, since I cannot give it full confidence, I will fail the book’s message.  But my faith does not really provide me with wiggle room to believe that there are other’s responsible for my well-being, other than the Creator I choose to believe in.  But that does not mean that I do not believe in the intent of the book, to try to live your life in  as positive a direction as possible

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One of the first things I learned as a cancer counselor, was to be careful not to instill “false hope”, or as some would describe it, being too positive.  You do not want to give someone false hope by simply saying, “just be positive, all will work out.”  There will be no reason necessary, for when that concept fails, and it is completely unfair to tell someone, “well, you must have been thinking a negative thought.”  That kind of comment is even more cruel.

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From the very first true test of life versus death, my battle with Hodgkin’s Lymphoma, I defined how I was going to live my life.  Life for me as a child was not easy, but I was happy.  I would describe myself as a fairly positive minded child, whatever I set out to do, if I succeeded, great, and if not, I tried.  But I never went into anything thinking I was going to fail.

But being told you have cancer?  Well, that is a totally different situation.  And for anyone having battled cancer, I think we all will agree, the calendar cannot move quickly enough for us until the day we get to hear the words “remission.”  I was never known for quitting anything, whatever I took on, I finished to the end.  But faced with having to deal with cancer, for close to a year and a half, there had to be a way to make that time go faster.  There had to be a way that I would be able to maintain a positive outlook, while dealing with something so ugly, so lethal, and the treatments just as toxic.

I was told about the book “Positive Imaging” by Norman Vincent Peale.  The book is exactly what the title suggests, positive imaging.  From day one, in my mind, all I saw was what my life would be like, once I was done fighting the cancer.  As each day went by, I got another day closer to that goal.  And even after I concluded my treatments, I used the same strategy in my recovery from cancer.

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Did I struggle along the way?  Absolutely.  Side effects from the treatments were brutal both physically and emotionally.  Were there setbacks?  Sure, but that had nothing to do with having an occasional negative thought in my mind.

Over the years since my cancer battle, there are many in my life who have made the unfortunate comment that I am such a “negative” person, or that I “invite drama” into my life.  That is silly.  Really, who wants to deal with negative issues on a daily basis.  But then again, who better to deal with negative issues on a daily basis, and get through them, than someone who has a positive attitude.

I assure you, over the last 25 years, “I’ve had my share of sand kicked in my face.  But I’ve come through. And we mean to go on and on and on and on.”  Thank you to the late Freddie Mercury of Queen for these most inspirational words.  And each time, as I face yet another issue or crisis (I am really beginning to feel like a cat having “nine lives” with the severity of some of these events), I use the same strategy that got me through my battle with Hodgkin’s.

I imagine what life will be like, once the current situation gets resolved.  I accept that just like needing doctors to get me through my cancer, I need friends to get me through the non-medical issues I face.  And just like the horrible side effects from the treatments, you face them, and deal with them, just like the things that occur in real life with other non-medical issues.  And in the end, just as sweet as hearing the words “remission,” the trials I face will also reach their conclusion, and it will be yet another day of celebration for me.

But the bottom line for me, has been my secret, I know I will get through.  But instead of relying on the universe, I rely on myself.  I have lived through enough practice, and just because I accept that there may be another trial in my life, whether medical or not, does not mean that I am a negative person.  It means that I am strong enough to take whatever the situation, and give it all I have to get through it.

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