Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Politics”

Buh-Bye


I feel at the moment, like life is imitating art. The above video clip actually applies to this situation. The skit from 1994, featured actress Helen Hunt and SNL actor David Spade, as two flight attendants for a fictional airline, Total Bastard Airlines. The tone is set right from the beginning as the plane is landing and the pilot announces, “this concludes the safest part of your journey.” From there, passengers are rudely guided off the aircraft, neither flight attendant open to any other conversations or questions. Any attempt at such delay of departure, would result in the response “buh bye” from either or both flight attendants.

So a couple of days ago, I was feeling deja vu with this skit. While the skit clearly was parody, my situation was far from it. But the ending result feels the same. Especially when you are someone who has a slight cynical edge to his personality, like I do when it comes to large organizations and corporations. ESPECIALLY one that you feel personally connected to.

If there is one thing that frustrates most of us long term cancer survivors, if not all of us, is that we feel abandoned by science, medicine, cancer organizations, even the one that specifically uses the actual cancer we had in its name, Lymphoma, because when we need help, support, guidance, all too often, we have only peer support to rely on. Some of us are lucky in that we found doctors who do realize that there is more to beating cancer, such as surviving the treatments afterwards. At least now, again, courtesy of peer survivor efforts, there is finally an organization, non-profit, that does exactly just that, provides support, information, and guidance for those dealing with, or surviving from Hodgkin’s Lymphoma, called Hodgkin’s International.

But back to the “other” lymphoma” organization.

From the beginning of the pandemic, I have been clear that I have relied solely on information provided to me by my personal medical providers, a.k.a. doctors. I tolerated some trying to convince me that I needed new doctors because what I was told went against what some wanted to believe, conspiracy theories and flat out misinformation, to protect their political agendas and opinions. In the middle, was science, their efforts compromised by the relentless and merciless mortality of an unknown disease racing to get information out before all the lies.

And while the CDC, FDA, WHO, and every other scientist were looking for solutions for normal or “healthy” people, you had those like me, immuno-compromised, making me even higher risk, making my survival as urgent as the elderly that Covid19 was killing rapidly, the Leukemia & Lymphoma Society stepped up, performing their own study, a much smaller scale, on patients who either have or had a form of blood cancer such as leukemia or lymphoma. When vaccines became available, it was the LLS that had taken the time and effort to study how many doses it could take to establish immunity, and just how long immunity might last.

The rest was up to me. My doctors were clear. Do not get Covid19. If I did, with the condition of my heart and other issues, I would likely die. The orders were clear: wear a mask, wash my hands, social distance, avoid large indoor gatherings. You know the drill all too well by now. The last part of the mitigation was to get vaccinated, something I knew that I would have issues building immunity to based on other vaccines that I have received in the past. Bloodwork, known as titers, would be done before and after each dose to check for responses. That is how science works.

For me, it went as expected. 1st dose, no reaction to the vaccine. 2nd dose, just a slight reaction. It was the 3rd dose, considered a “booster” for the healthy people, that finally put me at a level of immunity that others had achieved with two doses. But bloodwork would show months later, the immunity did not last like it was for others. I needed a 4th dose to get my immunity back up, which bloodwork confirmed. Knowing my history with vaccines, especially this process, I know I am a candidate for dose #5, but how soon, and now which vaccine, even the upcoming new variant specific vaccine, would I need? And then what after that?

So I reached out to the LLS for my “what’s next?” I wrote, “I received my 4th dose early May, followed by bloodwork two weeks later. My question, will their be additional bloodwork, and will it have any impact on a decision towards a 5th dose?  And if a 5th dose determined, will I be waiting for the pending vaccine covering the variants that is rumored to be coming out?” In other words, with so much still to be learned about Covid19, and from known results of the study thus far, there are those like me, who clearly will need continued support.

This was the response I got. “Thank you for your participation and update. Unfortunately, we are not testing prior to fifth doses or after. Based on CDC guidelines, you should receive a fifth dose at least 4 months after your first booster. We are giving our recommendations as the CDC advised.”

In other words, “buh bye.” I am now on my own. The LLS know there are immunity issues, but this is where they get off.

Of course I know I am wrong for thinking that there was a potential gain to be had for us long term cancer survivors that nearly EVERY organization and most medical personnel have forgotten about (here comes the cynicism). This study was just to find out how the body reacted to both exposure to Covid19 and the vaccine. It does not make it sting any less the fact that an organization with the name of the disease I fought 32 years ago, the Leukemia & Lymphoma Society, still does not recognize or offer any substantial support or guidance for us. As I said, I am thankful for Hodgkin’s International (www.hodgkinsinternational.org) because they are doing what others are not.

So, just as I do for other viruses and other illnesses, I use precautions and awareness of my surroundings and those I am around. I trust my doctors to order the right surveillance, recommend the proper vaccinations, and hopefully the ability to talk me into getting those vaccines. I have resumed what I would call my “pre pandemic” life with only one major adaptation, wearing the mask around others. I am literally able to do everything I was before and not contract Covid19, something just as lethal to me as pneumonia, meningitis, the flu, and actually, wearing the mask will assist to some level, protection from them as well. Because, in full disclosure, I do not get every vaccine recommended, and it literally is a judgement call on my part, taking only into consideration, my doctor’s opinions, science, and my gut. Not the media, not social media, and not what others tell me. I do what is best for me because I know what is best for me.

A Chapter Has Closed


Back in 2009, as my older daughter was preparing to begin first grade, our school district was in turmoil. The teachers were in the process of negotiating a new contract, and the school board had chosen some very unfortunate methods in dealing with the teachers and the negotiations. Someone from the school board felt it was wise, to take out a full page color ad in the local newspaper, stating the salaries of every teacher, guidance counselor, and school nurse by name. The intent was clear, to rally the community against the teachers, and against any opponents challenging school board members in the next election cycle.

It was a huge mistake for them. A sleeping and ignorant giant had been woken. Like most, up until that moment, I was like many, who had no knowledge of school district operations, and just exactly what is expected of a teacher, which is what makes them worth every penny they are paid (and this was before the constant school shootings we expect our teachers to die for, or be exposed to lethal viruses). If there was one thing about me I knew and despised, it was bullying. And I knew from experience not only when someone was being bullied, but what was behind it.

And so, I attended my first school board meeting, actually my first public meeting ever, just to see what was going on. That first meeting was all that was needed, to set me on a path I never saw coming, running for a public office. There were nine bullies on this board, five were going to be up for re-election, and all five needed to go.

There were several problems that I was about to face as I began the process of campaigning for one of the school board director positions. One, I HATE POLITICS! This was a war cry my campaign cringed every time those three words left my lips. But I was not a politician, and that was the reason why I kept repeating this credo. Another big problem was that our country is mainly a two party political system by majority, something our forefathers warned against (please note, there is a difference between understanding history and not being political). I was an independent registered voter. And with my state being closed for its primaries (being only able to vote for those in your registered party), an independent candidate has an uphill climb to get to the general election. I would have to swallow political “poison” and force myself to choose a side, neither of which I believed in 100% to have a chance. And even this decision was not mine to make as the incumbents on the board, were all Republican, who all had a grip on their seats for decades. Clearly I would not be able to unseat them as a conservative. I had no choice, but to run as a Democrat, and changed my voter registration to do that.

There was one final hurdle to get over. Other well known candidates had tried to go against these power hungry bullies, and lost. There is an expression, “strength in numbers.” That saying applied in this case. Often, only one or two candidates would run against the entire slate of the other party, clearly leaving them outnumbered, out-fundraised, and out-campaigned.

And with that, I met four of the most wonderful and diverse people, a tech guy, an accountant, a lawyer, and a retired school teacher. But we shared one thing in common, we all had a direct connection to our school district besides being a taxpayer. We were either graduates of the district or parents of students either currently in school or graduated. Our greatest quality amongst ourselves, we could communicate with each other, and respected each other. Better yet, spoiler alert, after all was said and done, we became great friends.

We came up with a campaign slogan and theme, from the least likeliest source, and least qualified, me. We were taking a step like none others to change this school board. We were taxpayers who wanted accountability, but we also had responsibility to the children to do what was best for them. And the current situation was not accomplishing that. Things were not progressing as they needed. And that is how I came up with “1st STEP – Students and Taxpayers Expect Progress.” And while as the least qualified on this slate, I was shocked, by group consensus, this was how our campaign would begin.

At this point, I still felt pure, in that my effort had nothing to do with politics, which I was fine with. My running mates were all registered Democrats, so I left the political crap up to them. I was focused on my targets, the bullies sitting on the board. I was not going to lose sight. And then this happened.

Our campaign had started to get the attention from the incumbents. This photo is the front side of a political mailer sent out attacking us. To be clear, I have had disagreements with people in my life, but never on this level, and by complete strangers no less. The intent was to imply that myself and my running mates and I had the support of the teachers, who clearly had been abused by the current board. This would come in the form of an “endorsement.” But the bigger issue, was the optics of this political piece, meant to shock the community. Oh, it shocked the community alright. Using a photo, depicting violence, involving a school body, sent outrage of inappropriateness across the country. That’s right. The local news picked up on this, and the bumbling interviews they did with the incumbents running for re-election showed their plan had backfired, badly. Though, they still stood by their effort.

This was the catalyst that finally brought a movement of change and decency to our school board. Unfortunately, all five of us had lost our bid for school board, but collectively with less than 500 votes, three of us losing by less than 200 votes. We had gotten the attention of the voters in the district.

We would take one more shot two years later, with our relentless efforts to expose what we thought was wrong with the district operations, and what we could do to improve them. Two of our candidates won their seats that year, with a third, just barely losing, again by a small margin of votes, that all it would have taken were some people to think their vote would have counted, it would have. She would run again, and this time not only make it on to the board, but become board president. In fact, the entire board has changed over.

I have since bowed out of politics all together. Though, with students still attending school in the district, I feel I still had a right to express my concerns, and when needed, speak up in defense of our school board. With the boorish behavior of so many attending school board meetings speaking up during public commentary, as was typical, those who felt the board was doing right, either did not attend, or did not feel the need to speak up. Most figured that these negative speakers were doing themselves their own disservice, and nothing further needed to be said. To a degree, that was true. But just as I got involved back in 2009 when my daughter started school, I was not standing for this abuse in my daughter’s senior year.

I do not envy my fellow campaign members, in their roles of volunteerism, that’s right, their position on school board, subject to all kinds of verbal harassment and abuse, was volunteer. Two have since passed away, and one is currently a local judge. I still keep in touch with those who are still with us, and consider them friends. Wherever they all end up, I will always say proudly, I knew them when they started their ride.

But now, it is time that I close this chapter for me. And it was a fun ride.

Done Asking What It Will Take


It has happened time and time and time and time and time again. And no matter who are the victims, or where the violence occurs, the cycle is repeated over and over and over again. As a country, when twenty innocent babies, six years old, were slaughtered by a deranged killer in the one place they should have felt most safe, elementary school, we said back then, “this could never happen again.” Twelve years and many mass shootings later, it has happened again, this time, nineteen innocent babies, aged nine to eleven years old, mowed down by over one hundred rounds of ammunition, by yet another deranged and evil killer.

How does this keep happening? Wait, that is a foolish question to ask, because we know the answers, and “answers” is pluralized because there are several factors. No. The question is “why does this keep happening?” The answers should be obvious, and the goal should all be the same, whether it be school, church, the mall, or a movie theater, we should feel safe in all of those spaces and more. The truth is, we lost that guarantee years ago.

It starts with a lack of common sense. We may think we know what common sense is. The term common sense in fact gets thrown about quite too easily, most likely with the assumption that we know what it means. Though the majority of us may know what common sense is, there are still too many who do not. Otherwise I would not be writing this post.

Merriam-Webster defines common sense as “a sound and prudent judgement based on a simple perception of the situation or facts.” For example, if it is raining, and umbrella would help to keep me dry. There were much larger meaning examples I could have used, but I kept it as simple as I could. Common sense. An umbrella covers you. So if it rains, it should protect you from getting wet. Common sense.

Common sense has been thrown out the window. With gun violence now the leading cause of death for children, just look at that, “gun violence the leading cause of death for children,” (as stated by the CDC), not cancer, not car accidents, GUN VIOLENCE! Cancer is not very preventable and car accidents are unpredictable. But gun violence is something that can be prevented. And yet, it is not. Our government leaders, lobbyists, and the ever powerful NRA shout “more guns”, “arm teachers” (would not have helped in Ulvade as the killer actually wounded three officers, and it is a stupid thought anyway), and both sides of the political spectrum are so dug in, I do not expect to see any reverse in gun violence statistics in my lifetime, which is so sad for my daughters, as they will raise their children with this violence. Most of you reading this are old enough to remember back in school, WE DID NOT HAVE MASS SHOOTINGS IN SCHOOLS! And before anyone chimes in, “that’s because we had Jesus and prayer in our schools.” No, we did not. At least I did not, from the years I was in school, from 1971 to 1983, there was no religion taught in school, and no prayers were spoken. None. And we did not have mass shootings on a near daily basis.

So enough with pissing on our shoes and telling us it is raining. These are not the solutions:

“more guns” = nope, we have more guns every year, and all we have seen is more violent crime and mas shootings.

“arm teachers” = nope, we need our teachers to keep our students safe, something that should not be that hard. Their attention cannot be to pursue the attacker leaving the children vulnerable. Again, trained officers were wounded in this recent attack.

“guns don’t kill, evil people will find a way to kill if that is what they want to do” = yes, that is correct, but all efforts must be made to reduce if not eliminate mass casualties. Depending on the weapon chosen, makes the difference between one person killed and nineteen children. Which is true. While the assault weapons ban of 1994 banned some assault weapons, it did not ban all of them. And while crime with an assault weapon did go down, use of other guns in violent acts did go up. So yes, if someone wants to kill, they will find a way. But there is no reason to have a magazine that can hold more than ten rounds. If you are defending yourself, and cannot get the job done with an AR with ten rounds, you need better training.

“if you ban certain weapons, we will lose all of our weapons” = nope, not even close. This war cry has been going on for decades. And not one president has kept a US citizen from being able to possess a gun, whether a pistol or a rifle. As a 2nd amendment supporter, I support the right to defend myself, and though I do not hunt, I do enjoy some of the treats my fellow hunters share in certain game meats. But in either case, self defense or hunting, I am baffled as to the need to possess a weapon that is used in war, such as an assault rifle. I have tried to ask my friends who have those types of guns, why they have them, and responses are nothing more than a “want”, than a “need.” But if there is that much of a desire to fire an assault rifle, then why are those owners not enlisting in the armed forces if they want that kind of power and destructions in their hands?

“mental illness, mental illness, mental illness” = buzzwords, but no solutions, by ANYONE! To deal with mental illness, we need universal health care, and well, we all know that is not going to happen. And what good is dealing with mental illness, if we ignore the warnings? As usual, it is now coming out, conversations by the recent killers, as far as many months ago, hinted something was seriously wrong. And no one did anything. But there is also the concern over free speech when it comes to someone making a threat to kill someone. Make no mistake, just as the 2nd amendment is not absolute (you do have a right to bear arms, but you do not have a right to own a howertzer), the 1st amendment is also not absolute (you do not get to yell fire in a crowded theater). If someone makes a threat to harm someone, there must be zero tolerance at this point.

An eighteen year old man, in actuality, still just a child with a developing brain, bought two AR’s and thousands of rounds of ammunition. He had over sixty magazines with thirty rounds each at his ready to slaughter. And the mistakes by law enforcement are unforgivable.

But the cycle will repeat. Need proof? Late night talk show host Jimmy Kimmel, as he is known to respond during such tragic events, went as far during his monologue, to offer this rare and unusual request, to that of Senator Ted Cruz of Texas, who has often been the brunt of Kimmel’s humor. He said, he didn’t think of Cruz “as some sort of monster” when it comes to this shooting, as Cruz has children himself. And he spoke to his audience that he really wanted to believe that, and for Cruz to respond properly. Well, I am expecting a different conversation from Kimmel on Monday night, because Cruz actually did what he has always done, while at the NRA convention in Texas, Friday night, zero compassion, defiance of anything that was meant to prevent mass shootings at the expense of the NRA. In other words, typical Ted, and he is a monster after all.

And it does not matter how many of the survivors they interview from this latest massacre, their horrific recall will still not be enough to convince our government to make any meaningful attempt to at least reduce the frequency of the massacres.

So while our leaders continue to spin wheels, go nowhere to even reduce the incidence of mass shootings, I do what I can for my daughters to let them know that not all adults have given up hope.

During a screening of the movie “8th Grade,” there was a scene in which an “active shooter drill” was executed. Keep in mind, in my education, all I ever had to go through was a bad weather or fire drill. My daughters said it was fairly accurate, that the film showed the way it was supposed to be done. However, after all these years, during these drills, and the mass shootings continue to happen, students are often found not paying attention (you know, like those on an airplane not paying attention to emergency instructions prior to takeoff). It was not the student’s behavior that really upset me, but the reason why. And I could not believe this came from my daughter, and yes, students now feel this way. “We know these drills may save some kids, but not all. We just accept that if it happens here, the drill is not going to keep us from being shot.”

My God! It is one thing for us to have grown numb to these mass shootings. But I have no doubt, my daughter was sincere in her assessment. She goes to school every day, with the knowledge that a mass shooting could happen at her school. But if it does, she could die. And there is nothing she can do about it. We have failed our children.

Now I know I will have some respond, “oh, you’re just being dramatic. It won’t happen here.” You mean in a town of 15,000 people. Big violence doesn’t happen in small places? In a small populated area in Pennsylvania, called Upper Perk, on May 24th, 1993, a 15 year old student walked into his classroom, and murdered another student. I know this story personally, because I knew children from that school, who then had to deal with it back then. And the statements are always the same, “how could that have happened here?” Violent crime happens everywhere. It does not matter how big or populated an area is. And it is the wrong reason for a place to become famous, or infamous, like Ulvade, Texas.

While we wait in futility for our government to come up with a solution, we need to have conversations with our children, not just about how to deal with any feelings of despair, anger, hopelessness. We need to have conversation about events like what happened at Robb Elementary School.

Dr. David Schonfeld, according to his autobiography, is a developmental-behavioral pediatrician at Childrens Hospital of Los Angeles, among many other credentials such as the director of the National Center For School Crisis And Bereavement. The point is, he is well respected, and well utilized in his knowledge of handling crisis like Ulvade just went through. He has actually been involved in these efforts going back more than thirty years.

Dr. Schonfeld states that we must have these uncomfortable conversations with our children, to help them through these crisis, even if it was not their school. Because just as with my daughter, who believes that it could be her school some day, has feelings and thoughts that need to be dealt with. It serves no purpose and actually harms our children, if we have them just bury their head in the sand like an ostrich, and protect them from hearing anything like the news coming from us. Our children will hear of tragedies like this, one way or another, social media, word of mouth, or the news. But who should be the most trusted of all when dealing with news like mass shootings? The parents. By not making ourselves available to talk to our kids, will only result in them becoming more upset, because they need to hear the truth from us, their parents.

According to Dr. Schonfeld, we as parents need to help our children cope, listen to what our children have heard. You will be surprised what they actually know. Their concerns will be different than those of their parents. The doctor also states that it is important not to minimize the distress (like “you have nothing to worry about, it won’t happen here”). That distress is real. You must not dismiss that distress or tell them they should not, or have no reason to feel that way. A parent needs to make themselves available to listen to their child in times like these. And just as important, the parent not hide their own distress from their child. Kids are very intuitive, I know mine are. Hiding things from them only will serve to develop mistrust from the one person they should have unquestionable trust from.

I am tired of what has not worked to at least reduce these tragedies, political talking points, meaningless tropes such as “hopes and prayers” which do nothing to bring back the dead children and other victims. I am frustrated that my daughters will never know, and likely their children will never know what it is like, to just go to school to learn, never giving a thought that today could be the day they die in a school shooting.

Something needs to be done. We know it can be. We know the 2nd amendment will not be sacrificed by any regulation to prevent ownership of certain weaponry and ammunition. We know that people are hurting, and that may lead them to do awful things, so we need to pay more attention. The chances are, someone’s ill feelings will be over our heads, and it will be up to us to do something, just like the mantra “see or hear something, do something.” But this cycle of shooting, hopes and prayer, Democrat this Republican that, forget shooting, and repeat is the true definition of insanity, doing the same thing over and over and expecting a different result. It is not working.

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