Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Family and Friends”

When Medicine Is Not Working


I am sitting in one of my specialist’s offices waiting for my turn, which is being delayed by the constant interruption of drug reps and insurance reps. And since I wrote yesterday that I would talk about medicines in my last post, I felt it ironic that everything is coming together at this moment.

My entire life, I grew up rarely taking any kind of medicine. When I do get sick these days, my family doctor is always amused that my body can probably get by with simple Penicillin because I have not built my immunity against all other kinds of antibiotics. Of course, that all changed when I was diagnosed with Hodgkin’s Lymphoma. At that point, I had all kinds of toxins put into my body. This was supposed to be a good thing. These medicines were going to make me better. That is what medicines are supposed to do. But what happens when medicines stop working?

I continued my record of not taking medicines following the completion of my cancer treatments. I believed that enough garbage had been put into my system. I experienced all kinds of side effects in the short run, and long term. Back when I was exposed to all of those drugs, potential side effects were not really discussed openly, simply as “matter of fact.” Today, you cannot escape the television commercials for long awaited hopes for cures to crippling illnesses only to have to face the disclaimers at the end of the commercial that warns of all kinds of horrible and potentially fatal side effects. After hearing most of the possibilities, I cannot for the life of me wonder why anyone would take that risk.

But I do not want this post to be about side effects, but more about what happens when the medicines are no longer working, yet we continue to take them, just because the doctors tell us to. Just a few years prior to my open heart surgery, after more than ten years of my doctors bugging me, I finally relented to take a simple drug called Synthroid to help me with a thyroid that was pretty much destroyed courtesy of my radiation therapy. My alternative would be to face a good possibility of thyroid cancer otherwise. Soon, other drugs would follow as my cholesterol got out of control, and after that, my blood pressure. Following my heart surgery, more blood pressure medicines, and then pain became an issue as various muscles and bones began to show their effects from the radiation and chemotherapies. But, the bottom line, they worked. Next to the pain I was dealing with, the biggest issue I struggled with following the heart surgery was insomnia.

I began taking Ambien, low dose to get me to sleep. Not helping, I graduated to the higher dose, but that too would not keep me asleep more than two to three hours. Then it was up to the controlled release, a pill meant to keep you asleep for eight hours. Just like everything else, it was not doing the job. To make matters worse, I was developing memory issues, and the first half of my days were pretty much spent in a “fog”. You see, Ambien CR can last in your system much longer than the eight hours it is meant to work. From my understanding, it can last up to twelve hours.

I have said before, I believe most medicines “mask” the ailments, in other words, they just treat the symptoms, not cure the cause. I believe medicine is just too quick to say, “here, take this” whether it be for depression, sleep, or pain.

Getting back to my Ambien problem, and that is what it was, a problem, because I was taking a pill to help me sleep, and it was not working. The trick was trying to find out why. It was not long until I discovered that it was the enormous amount of daily stress I was under. And once I learned to recognize and deal with my stressors, I was able to get to sleep, and without the Ambien. But another neat thing happened soon after. With less stress, I got more sleep, my pain levels seemed to get better. My body was finally getting the rest it needed. Do not get me wrong, I still have chronic pain, but it is easier to deal with because of increased sleep, and I have stopped pushing my body harder than I felt that I needed to.

As of today, I am now off all sleep medicines, and all pain medicines. I still have an occasional bad day, but I have more good days that I can tolerate them. The only pills I have to take are for my thyroid, and my cholesterol and blood pressure. I have already asked my doctors to consider taking me off of those meds, but to no avail. It is felt with my health history, I have enough stacked against me, and any preventative help I can get I should take. For now, I am still complying.

But when the medicines no longer work, why would I continue to take them? Exposing myself to long term risks and side effects and possibly addiction? My ailments are real, just as many others, and those ailments should be dealt with, not covered up by drugs that simply cover up the pain and discomforts. What is causing the issue, and deal with that, not just the symptoms.

Accidents Happen?


“Accidents happen.” That was the quote that I heard over this past weekend. Only I am not in a position to allow it to be called an accident. In fact, if I were to allow the incident to have been called an accident, then I believe like other accidents, this could have been prevented. And it should have been prevented. But no, I will not label this incident an “accident.”

This post is not about placing blame either. I want to explain to you what happens when you get complacent and overconfident in your parenting and just how dangerous that attitude can be. To be honest, what I am about to share with you, can happen just as easily to an adult as it did my youngest daughter. I am sharing it with you, because if there is ever going to be an accident involving anyone else, I want to help you prevent it.

Last week, my daughter ingested over 75% of a bottle of Children’s Tylenol in a four hour period, clearly overdosing on the amount of medicine, unintentional of course. Those who know me, know I will not spend a lot of time on the “why”, which was crucial in this situation. You see, Tylenol, or acetaminophen, as it is also called, is toxic to the liver. There is a reason that the dosage marked on the box says not to take more than four times in an twenty-four hour period. So imagine drinking the large quantity that my daughter did in just four hours. I will show you what happens.

I took my daughter to the emergency room as soon as I found out what had happened, but it was unknown exactly how much in how short a time, and how long ago, my daughter had drank the Children’s Tylenol. But I brought the bottle with me, so that the hospital could measure the remaining contents, and determine the next step, following a the first of seven blood tests, measuring two very important liver enzyme levels. How serious did it get?

Beginning with levels at 125/103 and then increasing at each blood test to:
182/163
497/448
682/720
751/878

As you can see, the levels continued to climb over the initial 48 hours, and that was with the antidote to the Tylenol being injected into my daughter via intravenous fluids. Imagine had I not brought her to the ER, left her to just “let it run through her system”. When those liver enzymes hit 1000, that is when liver failure becomes a real possibility. There are other blood levels that were being watched, but that AST and ALT levels were the numbers that were the most concerning and watched.

On the next day, the blood test showed that the numbers had finally reflected the treatments being administered in a 1 hour dose, a 4 hour dose, and a sixteen hour dose. Only my daughter required two more sixteen hour doses of the antidote.

Today she is feeling much better and will see our family doctor one more time for this incident, and will get one more blood test, and hopefully those numbers will be normal. That would be 35-ish, not triple digit.

Not to ignore “why” this happened, there are many possibilities, some obvious, and some not. Like many parents, we use the flavored medicines to help get them into the girls, so I know she is drawn to the taste. My daughter has also noticed many people take medicines for various ailments, so when she does not feel right, she does what she sees. I do not know why she chose to do it on her own, or how she even came to ingest it on her own, let alone open the bottle. Although, she did inform me that she learned to open the bottle by reading the instructions on the bottle cap. But instead of bothering a grown up, she snuck off through the house with the bottle, and gave herself the medicine.

NOTE TO PHARM COMPANIES – that bottle is only childproof if the child cannot read!!!

My warning to you, if you suspect your child has ingested anything that he or she should not have, do not take the chance. Take the bottle and the child to the ER and let the doctor there figure everything out. Even if your child is vomiting the substance out, like my daughter, chances are, the ingredients have already entered the bloodstream. And at that point, you cannot help any more than getting the child to the doctor. Your child needs medical intervention. My story could have turned out tragic. So, if you want to call it an accident, however I will not, but hopefully my story will prevent an “accident” from happening.

For Michael


As many of you are aware, I lost someone very special to me recently, a good friend, and also a cancer survivor. I am working on a special tribute for him right now. But in the meantime, I would like to share with you a tribute written by author Stephen Kaufman:

For Michael
Stephen Kaufman
Author of “Into My Life Unexpected…A Journey To Me”

How to make sense
Of the senseless
How to speak
When we are speechless

How to grieve
When we cannot comprehend
How to move forward
When we are numb

There is a plan
Not for us to question
There is a method
In the midst of the madness

So we will accept
And we will remember
That the joy of his life
Will forever remain

In the hearts of all
Whose life he touched
And the tears we shed
Shall be his testament

Michael was only 24 years old. He fought cancer, Hodgkin’s Lymphoma as brave as anyone I had ever known. Unfortunately, following that battle, he faced side effects from the treatment that would eventually be too much for his young body to handle. And so, we lost Michael too soon. And as many often do, we find ourselves struggling with “why”. But Stephen’s words provide some comfort, especially if you can believe them to be true as I do.

Michael was just a few credits away from graduating from Florida Gulf Coast University when he had to deal with his Hodgkin’s, and had plans on finally returning before this latest round of events. It had been announced at Michael’s funeral, that the university was going to give Michael his degree posthumously.

Michael’s family has set up a scholarship in his memory. Please consider making any amount of donation, none too large or small, to:

Michael Scheidemann Scholarship at FGCU
Attn: Christopher Simoneau, VP, Advancement and Executive Director
Florida Gulf Coast University
10501 FGCU Boulevard South
Fort Myers, FL 33965

Make the check out to Florida Gulf Coast University Foundation, and write “Michael Scheidemann Scholarship” in the memo section.

I am always saddened to hear of anyone passing, but am adversely impacted when it is someone who has battled cancer, the same cancer as me, and someone so young.

I miss you Michael.

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