Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Family and Friends”

Really Not A Grinch, But…


I hate broccoli.  Allow me to expand on that.  I hate all vegetables, at least the green ones, also known as “the good ones for you.”

Reality TV… cannot stand it.  Well, except for the vocal competitions, as long as they do not waste my time with those just looking for fifteen minutes of fame.

Do not call lists.  We either have them and are on them until we take ourselves off due to some masochistic issue, or leave us the hell alone.

But there is one thing that really irritates me, like having sand in your swim trunks.  And yes, I know what that feels like.  I was really not smart at five years old.

To quote Jim Carrey’s “Grinch” character… “I looooooaaaathe” these things!  Reindeer antlers for cars.  The odd thing is, I have seen other decorations on cars that do not antagonize me the way these things do, even cars totally wrapped up in Christmas lights.  But these antlers!  AAAARRRGGGGHHHH!!!!

Now, I need to give a little bit of transparency.  I am not a big fan of the holiday season in general.  To me, November and December are the grim reaper of the calendar.  I have had to deal with so many crisis and tragedy during these months over my life.  That said, I do celebrate the holidays, and to levels that might surprise you.  And as the things that have caused me such grief in these months, two of the most important people in my life, keep me in the moment of recognizing how each year, this holiday is important to me.

Yes, because of my daughters, I embrace the Christmas holiday.  Just as they helped my father embrace the holidays also.

I fully embraced the holiday.  Look at the smiles on their faces.  I had to keep those smiles forever.  I was fully committed to the role.

Every year I dressed up in a Santa suit.  My fur friend Pollo, always knew it was me under the suit, but he needed to be influenced to stay silent.  Christmas Eve, photos and video were taken of me with Pollo, eating the cookies and drinking milk, even putting presents under the tree.  And then, to reinforce the belief in the big guy, I showed the proof beyond the half-eaten cookies and now warm leftover milk, photos.  And much clearer than the photos of Big Foot.  Unfortunately, this was the final year that I did this, because, I was lazy.  And lazy got me caught.  My older daughter, who can find an earring back in three inches of shag carpeting, something unusual about Santa.  “Why is ‘HoHo’ wearing your sneakers Daddy?”  The gig was up.  I got away with the initial explanation of him having dirty boots, he took them off, and my sneakers were by the fireplace so he put them on, not be rude walking barefoot in our house.

And I am not against decorations.  Quite the contrary.

Every year, the day before Thanksgiving, I was outside, working on the thousands of lights that I would put up.  The picture shown is incomplete, because I had lights along the roof, and over 12,000 lights strung in my huge holly tree.  And there were hand crafted wood ornaments I had not put out yet.  My point is, I am not anti decoration.

But there is something about these things, that I cannot let go.  I am not a hunter.  So it is not a primal urge to shoot at something resembling a deer.  I just cannot explain the feeling.  Making it worse, don’t let me see that stupid red nose on the front grill of the car.

You don’t think these things don’t belong on a car.  Let me prove you otherwise.  Besides the fact that I think they are stupid (I know many will not share that sentiment), they are actually dangerous.

WHAT?

That’s right.  Sure, they may look cute driving through streets looking at houses decorated for Christmas, where you are driving five miles an hour.  But they are not meant for higher speeds.  Allow me to explain, because I actually get joy out of this.

These antlers are not meant for high speeds, unlike Santa’s actual reindeer.  And if these antlers have bells attached for authentic reindeer sleigh bells, even worse.  So, while one Christmas season, driving to the Poconos via the Pennsylvania Turnpike, there arose such a clatter, against my driver side window as I drove on cruise control at 70mph.    That clatter got louder and faster, and then all of a sudden, there was silence.  At least from the driver side of the car.  The passenger side was still noisy, but not as loud with my distance from it.

When we got to our destination, it appears our “reindeer wannabe car” had a mishap.  It broke an antler.  Funny.  Hysterical at least to me, because I never liked it in the first place, nor did I like feeling emasculated driving a car adorned with this crap.  But for the other passengers in my car, including my daughters, they wanted to laugh, because they saw that I saw it was funny, and “daddy is always funny.”  But the other parent was not amused, in fact, actually accusing me intentionally of driving a speed that somehow I knew would cause injury to the antlers.  Right.  Because I obtained secret information from the factory warning of antler stress fractures due to high rates of speed of 70 mph or more.  It was a conspiracy.

Just like in Scooby Doo, I had been caught like Mr. Chaumers.  I was glad that antler broke off.  But now I wondered whatever happened to the flying projectile from my car.  Did it fly into the windshield of the car behind me, either cracking the windshield, or worse, causing the driver to panic, perhaps getting into a car accident?

I may have not been thinking it originally, as to why I did not like these things.  But I do know now why I don’t like car antlers.  They are dangerous.  May not seem like it, but they have the potential for harm.

At the least, once Christmas was over, then the f*@cking Easter Bunny ears, nose, and fluffy tail were purchased next.  And those met a similar fate.  But that is a different story and a different season.

 

Understanding Drug Interactions


I got an unusual phone call the other day.  It was from my pharmacist.  She wanted to make me aware of two medicines that I was having renewed, they could cause a potential problem.

Unfortunately, while typically I write about my experiences based on the world of cancer, there are literally millions of people, either currently or in the past, having dealt with Covid19, need to be aware of the medicines and potential interactions.

Up until around 2008, all I had really taken was a prescription for my thyroid, damaged from my radiation therapy for Hodgkin’s Lymphoma, something for my high cholesterol, and to help with my blood pressure.  In 2008, that all changed.  To date, I now take nine different medications, all related to the late effect issues that I deal with.  In twelve years, this is the first time I had heard from a pharmacist personally though.

I have a large number of doctors that I deal with, and I trust them with the medicines I need to take.  I trust them to be aware of any interactions between the medications, and to weigh the benefits and risks.

In 2019, I had to have yet another procedure, the second on my heart.  But unlike the open heart surgery I had in 2008, this procedure was going to involve a stent (ironically for an artery that they knew about in 2008 with the other surgery, just did not fix it).  Because of the stent, I would need to take more than the baby aspirin I took from my open heart surgery.  I was prescribed an actual blood thinner.

Later in the year, I saw a different cardiologist, who noted on my record, the list of medications that I took, and noticed a medicine I take for gastrointestinal issues.  He was concerned.  As he stated, there is a likelihood that that medicine and the blood thinner interaction could actually negate the benefit of the blood thinner.  I would need to change the medicine I took for my stomach.

There was only one problem with that.  No other medicines are able to handle the issue I deal with for my stomach.  We are talking quality of life at this point.  Not to mention the fact, not being able to take this medicine would also increase risks of complications with my GI system, and likely lead to aspiration pneumonia (I have written other posts on this).

Then the suggestion, was to try a newer blood thinner.  The problem with that, the cost was enormous and unaffordable.

As a consensus made among all of my doctors, 95% of us, including me, agreed that I would continue on the path that I had been for the last year.  And that was the last I had heard of it, until the phone call from the pharmacist.

I want to be clear.  I completely am so appreciative for a pharmacist who does so much more than just fills prescriptions.  This is the first time in my life, I have ever had a pharmacist even tell me of a potential conflict.  Up until then, if you wanted to find out about conflicts, you went to the web site drugs.com for the potential issues.

Now, with Covid19, and the treatments for it, things get really complicated for me, but not necessarily a cakewalk for someone who has never had cancer.  You still need to have that awareness.

One of the early popular drugs thought to be helpful, now disproven, when combined with an antibiotic, could cause cardiac issues.  The use of steroids?  Not when you have a known heart condition.  Treating someone like me who has a history of a drug called Bleomycin (for my chemo) with oxygen, a huge no-no.  I have spent decades being aware of the medicines I need to stay alive, or save it.  Even foods you eat can impact a medicine you need such as grapefruit.  Certain statin drugs (for cholesterol) actually have their effects reduced by grapefruit.  If you take a medicine for your thyroid, they tell you not to take any other medicines with it, because the drug will affect the absorption of any other medications.  I have learned way more than I have ever wanted to about medicine and prescriptions.

It would be just so much easier not to have to take any of them.

Tammy


One of the posts I never wanted to write about.  I actually don’t want any opportunities to write memorials of fellow cancer survivors.  When one passes, it is a stark reminder, that in spite of beating our cancer, issues that may have developed from our treatments, we are still vulnerable.  Our fight is not over.

I barely had my first computer when I first came across Tammy.  In fact, I recall using “dial up” with a 56k modem and an “aol” address.  We were both on a list serve (an old style email list) for people who had battled Hodgkin’s Lymphoma.  We were both around the same age.  Treated around the same time, approximate two years before me, though different cancer networks in different states.  In spite of the similarities, she was treated with a much stronger attack of treatment than me.

I was barely five years passed remission.  Tammy spent a lot of time, encouraging me to keep vigilant on follow-ups, all the while, occasionally filling me on some serious issues that she dealt with, related to her treatments.  I could not understand, why she was dealing with these severe issues, and I seemingly had none.

Her list of health issues caused by her treatments is way longer than I could write or even comprehend.  I would eventually develop some of the many issues that she experienced.  And if you have followed my blog, my list is only 10% of the size of Tammy’s issues.  And the number of critical events that she experienced defied comprehension that we would have a friendship decades long.  But she just kept going.  The energizer bunny had nothing on her.

Regardless of how many issues she faces, or how often, life for her continued on.  So proud of her children, I saw them all grow, and much to her surprise, witnessed her becoming a grandmother, several times.  Always an inspiration to me with what she had been through, the one comment that she said to me that always has stuck in my head, as an order to never stop fighting, “I never thought I would see being a grandmother.  And look at how I have been blessed.”  I will never forget those words.

My oldest daughter’s name is Madison.  Upon finding out that she was having a granddaughter, was also going to be named Maddison (just a coincidence), seeing all the photos of “my” Madison in cute baby clothes gave her a rush of excitement to once again shop for baby girl clothing, something she had not experienced since the birth of her daughter.

Tammy, like many of my fellow survivors, was 100% selfless.  No matter how awful she felt, even in her weakest moments, when she had the strength to respond, she took those moments.

We lived in different states, but still made arrangements for families to get together, including gatherings of other Hodgkin’s survivors.  I just posted this photo the other day:

We were not just fellow survivors.  Our lives were not just about cancer and survivorship.  She was one of the first to show me there was still so much to be thankful for, so much to strive for, and so much to live for.  But I will be forever grateful for learning to face the health issues with a resolve not to accept anything less than the best care, and to not settle for medical personnel having no idea what to do with us.

I won’t lie.  I never allowed myself to feel sorry for myself, or to feel I want to give up, because of Tammy.  Everything she had gone through, I had no right to ever say, “I’ve had enough.”  And now, the one I looked to, to keep me going forward, is gone.  Don’t get me wrong, I have so many reasons to keep going on myself.  But I always believed, as long as Tammy was still here, I was still going to be here.  If anyone was proving immortality, against all odds, it was Tammy.

Tammy, I am selfish.  I wish you had more time down here.  But I know it was hard.  And now you get to spend some time with your other grandson, to spend a belated birthday.  I will never forget you and what you did for me, to get me through some of the toughest moments I faced in my life.  You are going to be so missed, not just by me, but those wonderful children I got to witness grow, and all the beautiful grandchildren you were blessed to spend time with.  There is also a large community of survivors who also knew you and what you had gone through.  It does not hurt any less, the only consolation being, you are no longer in that pain.

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