Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Education”

From The Beginning, “Over The River…”


Thanksgiving with my Grandmother. I certainly have many memories. For most of my childhood, I lived with my Grandmother and her sister (pictured on the left), and come Thanksgiving Day, that meant the most wonderful smell in the world. Unfortunately, that smell began wafting up to my bedroom early in the morning, as the two of them began to make the holiday meal to feed a total of ten of us. Our kitchen table on sat eight of us, so that meant…

the dreaded “kids” table, usually a fold up card playing table. We had another full dining area, with another dining table, but since there were only two kids, the folding table is where we were put. Regardless of being in a different room for the dinner, I still got my hands on my favorite, the dark meat of the turkey, mashed potatoes, sweet potatoes, stuffing, and something called “stuffing from the bird.” This is when you take some of the already mixed homemade stuffing (it was never boxed), and stuff it into the turkey as it cooks. It was the same stuffing that was being served separately, but cooked inside the carcass, the “bird stuffing” basically is marinated with the flavoring of the turkey, an entirely different stuffing flavor, and SO GOOD! And I cannot forget the homemade pumpkin pie and pumpkin custard.

Eventually I would get promoted to the full table, which by then, was able to squeeze ten around, so perhaps the kid table had nothing to do with the capacity around the main dinner table.

In high school, Thanksgiving would be delayed for us to be able to attend high school football games. The dinner was ready once I got home after the game. I discovered there was a big difference with smelling the dinner being cooked all morning, and walking into the wall of the aroma of the feast to come.

Fives years after my high school graduation, Thanksgiving would never be the same.

In October of 1988, I had an itch on the back of my neck. I had discovered what felt like a huge lump, much larger than what would have been left by a mosquito. I was confused by the mass, as I was a relatively healthy kid growing up. I made a call to the doctor, a general practitioner, who made the diagnosis of a swollen lymph node due possibly to the common cold. He prescribed an anti-inflammatory drug called Naprosyn and recommended I take a break from exercising to give my body some rest it likely needed.

Two weeks went by, and the swollen lymph node did reduce considerably in size. Back to the gym I went. As I am prone to do, I resumed back to the exercise routine I had been doing without easing back into it. The next morning, I believed I had paid for that judgement, as I had developed such a pain in my left armpit, whenever I stretched out my arm. Clearly, I had overdone it.

I had spoken to as co-worker about my new “injury” and how it was likely I was going to miss our city league basketball league game. I mentioned my frustration with having just missed two weeks of the season, and being left-handed and unable to shoot or toss the basketball. He had recommended his physician as being good with sports injuries, so I decided to give him a shot.

I gave him the synopsis of how I got to his office. I noticed a lump. Took a medicine for it. Took a break from exercising. Started exercising. Now my left arm hurts. Simple. Cause and effect, a sports injury.

The doctor examined me and was concerned about the lump more than my arm. The lump had increased in size again. I grew frustrated with the doctor as I was not there to see him about the lump, which had been getting better. I was there because I hurt myself weightlifting. He did some bloodwork, which showed nothing. And I recall throwing in his face, “of course, I know there is nothing wrong with my blood. I have a sports injury.” I would repeat that sentence several more times over coming weeks. The doctor was making a recommendation for me to go see a hematologist/oncologist. Now, if you do not know those terms, do not look them up. I will tell you what they are soon enough. I just asked the doctor, “do they see sports injuries?” and he replied no. But I needed to get that lump looked at.

I stormed out of his office. Two days later I had begun receiving phone calls from that doctor, leaving me voice mails, insisting that I follow through with his recommendation to see the specialist, who was not a sports doctor. I walked over to my co-worker, and asked what this doctor’s deal was, why was he bugging me? He told me, “my doctor is a good guy. If he feels something is of concern, I would trust him.” Looking back at that particular moment, would be a life-changing, life-saving conversation. I made the phone call to that specialist the next day, and made a humble phone call back to my co-worker’s doctor, to inform him that I was following through on his recommendation. Subliminally, I was not doing it because there was something wrong. I was doing it because I wanted to prove to this doctor that I was the one who was right.

It was a rainy, dreary Tuesday, just before Thanksgiving. I pulled in front of the clinic, and there was a sign in the front yard with the doctor’s name that I was going to see, along with the title “Hematology/Oncology.” Still not recognizing the titles, only knowing it had nothing to do with sports, I walked inside, soaking wet from the pouring rain. I was handed at least a half dozen papers to fill out which I thought was a waste of time for a sports injury. Truth be told, having never really been sick, I had never had to fill out all of these forms. As a kid, my mother did it for me.

When I finished, a nurse had taken me back to an office, not an exam room, but an office. Moments later, in walked a man who resembled actor Jeff Goldblum, The Fly version, not Jurassic Park version.

The doctor sat down at his desk, took a glance through my folder. There was no way I was prepared for next. “Hodgkin’s Disease is a very curable form of cancer, especially when it is caught early.” I felt like the cartoon characters when they are caught shocked or in disbelief.

I honestly do not remember another word he said from that point on. I know that I argued that I cannot possibly have cancer. I had a sports injury. He had not even examined me. Who the Hell did he think he was? I have never considered myself an angry or violent person, but for the first time in my life, I felt pure rage. I could not have gotten any further away from what I felt was wrong. I do remember ending up in an exam room eventually, but not a single word of what was said. Literally, I likely only heard “blah blah blah blah blah” from that point on.

A few days later, I had begun receiving calls from the prior doctor, urging me to go forward with additional bloodwork and a biopsy. Biopsy? I do not remember that discussion, but as I said, I tuned everything out the minute the other doctor began talking about cancer.

I went through that Thanksgiving weekend in 1988, with my mind in turmoil and denial. But two more “2nd opinions” later, I had finally been convinced that I needed to undergo the biopsy, if for nothing more than to prove I was right and every doctor I had seen was wrong. Spoiler alert… I was wrong.

Every Thanksgiving after that, this memory gets triggered, the exact scenario playing over and over on an endless loop. I am not able to stop it, or as some have suggested to simply “get over it.” The next Thanksgiving, 1989, I was undergoing chemo for a relapse of my Hodgkin’s, and for the first half of the 1990’s, all I could think around Thanksgiving, “is this the year it is going to come back?”

Simultaneously, as I struggled with my survivorship, the dynamics of our family traditional Thanksgiving dinner began to change. Talk had begun about the bond that at least held us together on this day, my Grandmother. We soon began to realize that without her, we would likely no longer gather together. And in 1998, my Grandmother passed away from her 2nd battle with cancer, this time, ovarian cancer. And just like that, we no longer spent any holidays together with each other.

In the beginning of the 2000’s, if there would have been any hope of me finally getting a grip back on the holidays, it was going to be with the arrival of my daughters. But by then, I had developed a mindset as an employee and provider, that I worked every holiday offered by my employer. That in spite of having two young impressionable children who of course would have loved to spend time with me, it was felt that it was more important for me to bring home the extra cash for the family. We could spend time with each other after I got home.

And there you have it, why holidays mean nothing to me, especially around this time of year. Because even though I consider myself blessed in over 32 years of survivorship, I still carry the trauma of what happened 34 years ago.

How Ya Been?


I stopped into a convenience store the other day. As I was entering the door, a customer was walking out. He had just bought himself some PowerBall tickets (he lost I am sure). Just as we passed each other, we realized suddenly, we knew each other. But it had actually been awhile, nearly three years in fact, yes, since the Covid pandemic broke out. Prior to that, we might have seen each other pretty much weekly. He had also aged some. My hair had grown quite a bit longer as well. So we both had changed over time. I was also wearing a mask, something I have done indoors most of the time, and occasionally outdoors depending on how dense the crowd may be.

We actually stood there and caught up with each other. Of course, Covid was part of the conversation. He had his experience with it at one time, I to this day, as of this post, have still avoided the virus (knock on wood). My friend was glad to hear that I had gotten to spend time with my daughters, and happy to hear of their future education plans. And finally, we both mentioned that hopefully, some day, better mitigation and control would be in place to prevent the continued infection of Covid. For me, my life is going to depend on it.

I am one of only three people that I am in personal contact with, who have not had Covid. The three of us, all realize the vulnerabilities that I have, which make me more susceptible to not only infection of, but complications from Covid. I am fully vaccinated, up to my fifth dose, the new bivalent booster which covers many strains of the Omicron variant. And with the current strain, called “Deltacron,” named after the strains of Omicron and Delta being combined, now having the serious effects on the lungs that the highly fatal Delta strain was known for, with the easy spreading capacity of Omicron, it is beginning to look like another rough year dealing with Covid.

The good news for most, is the newer booster, covers most of the Omicron strains along with Delta. Unfortunately for me, as I have written in the past, my body does not hold immunity very well, especially when it comes to the Covid vaccine. That has been proven. I received my 5th dose, of the bivalent booster back in October. As blood tests showed with the other doses that I got, my immunity levels last roughly four months. And currently there is not any protocol for any future boosters, which means come January, all I can do is prevent getting Covid on my own. But as I said, decisions I have made have worked so far.

Besides wearing the mask, avoiding crowds, and the obvious, washing my hands, I have made smart choices. I have given up nothing. I do what I want, but I have made sure, that if there was an increased risk of Covid, I dealt with two criteria, how important was the situation that I was going to be in, and how comfortable did I feel that my efforts to protect myself would work.

Throughout the pandemic, there were three things that mattered to me; seeing my daughters, my older daughter’s high school graduation, and my health. If I wanted to be able to deal with all three, I needed to avoid Covid. It was not hard to do. But those three things, would also put me at my greatest risk of exposure. I would have to fly for my daughter’s graduation, so there was the over crowded airports. I say over crowded because for the life of me, I do not remember airports being that packed prior to the pandemic. Maybe one percent of the people besides myself wore masks. And at the graduation itself? See for yourself.

A couple thousand people, shoulder to shoulder, indoors, with as rising case number of new infections. As the picture shows, besides the camera person, there were two people a couple rows in front of me, that were wearing masks besides myself. Needless to say, my anxiety was high, but this was one of those moments I was not going to miss. And then of course there were the flights back and forth, and dealing with crowded airports, again, most other passengers not wearing masks. Fortunately, and again, because I followed the prevention recommendations, I did not get Covid.

But there was another opportunity, that put me at a high risk, and I had no choice in the matter. Through the course of the pandemic, I needed three surgeries, two for my heart, and one for my carotid artery. Of course, where were you more likely than not to run into Covid, than in a hospital. But fortunately, hospitals were following the protocols to protect patients as well as themselves. Again, I managed to get through all three surgeries, without getting infected by Covid.

If I received any ridicule, it was from a minority of friends, who I feel had other agendas with their position on Covid, in spite of knowing what an infection could do to me. With those friends, I simply ignored the false “pity” of having given up my “freedom.” To be honest, I am not sure what I gave up, but rather that I had either lost interest, or could not really afford any longer. I do my own grocery shopping, pump my own gas. I even took my daughters on vacations. Clearly I travel. I very rarely eat in at restaurants, depending on the crowded conditions and if booth seating is available. I do not really consider this a “loss” as I will take the food to go. My server still gets a tip. I do not get Covid. There are really only two things that I can say are 100% not happening currently, and though a small part of it is Covid risk, cost is definitely a final factor. I can wait for movies to come out on Netflix, Redbox, or any other streaming service. I do not need to pay the value of a quarter tank of gas to see a movie, and that is without snacks. And of course, concerts. While I have seen most acts that I have ever wanted to see, some multiple times, and some that I at one time, had hoped to see again, with the rising costs of tickets, it is not Covid that made me give up concerts.

While the circle of people I know of, who have not had Covid yet is getting smaller, I do not think I have suffered at all by choosing to take precautions. My personal doctors have given me sound advice, and over all the years in their care, they have always been honest with me, and I know have always cared. The holidays are coming up again, and that means spending time with my daughters again. And then soon, it is going to be another high school graduation I will have to look forward to.

No, I have not given up or sacrificed anything for Covid. I have simply recognized and prioritized what is important to me. And that is the only time I want to be positive when it comes to Covid.

Always Remember Them Young


As an uber-music-nerd, there are a lot of moments in my life, that memories are triggered when I hear certain songs. And the catalogue in my mind is not only large, but diverse, when it comes to the genre of music.

I told my daughters that I would get better at accepting the fact that they have grown up. Our family impacted by divorce, I do not have the benefit of seeing my daughters every day as when I lived in the house with them. So, the days that I did not see them, either by visitation or by video chats, I would go through the thousands and thousands of files of photos I have taken of my daughters over the years. They have long gotten to the point of perfecting the “eye roll” when I ask for another picture. But as an adult child of divorce, I do not have many photos of my younger years, especially with either of my parents. The example that I have set for my daughters, these photos matter and will always help me to remember.

So, I am sitting in my car, stopped for a school bus stopped with its red lights blinking, loading what appeared to be elementary school age children. There was a gaggle of parents standing at the bus stop to make sure that their children were off and safe. Up until that moment, I did not have any other thought on my mind. And then… my Ipod began to play Thomas Rhett’s “Remember You Young.”

That is all it took. The time it takes to load the amount of kids onto a school bus, I got through half of the song. My mind had taken me back to the time pictured above, a time that I remember so well. With one away at college, and another soon to be, these memories will be all that I have. As I said, I have many of them to reflect on.

But this was not the only time in recent weeks that this flipped switch had occurred.

A friend and fellow Hodgkin’s survivor recently visited the “house of the mouse”, Disney with her young son. Like any doting parent, it took no time for her to share the beautiful and fun photos of the pure enjoyment that her son was getting to experience. Again, looking at the beaming photos of her son, I remembered what it was like for me, when I took my daughters, close to the same age, to Disney for the first time.

But I digress. I told my daughters that I would do all that I can, to let them grow up, and be grown ups. They each have an exciting pathway in life ahead of them. And hopefully many of the experiences they have had, their memories, will help them to be great parents someday as well. As they grown however, I will always remember them young.

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