Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Education”

Remembering Dad This Weekend


Many will spend this weekend, having an opportunity to spend Father’s Day with their Dads and Grandfathers. Some will not for any number of reasons, whether it be a matter of circumstance such as location (living too far away), domestic situations such as custody orders, and those whose Fathers are no longer with us.

This is Billy Joe Armstrong, of the rock band Green Day, one of my favorite bands. A popular hit, “Wake Me Up When September Ends” was a song that Armstrong wrote for his Father who had passed away from esophageal cancer when Armstrong was just ten years old. He carried the grief of his Father over twenty years when he finally penned the lyrics and recorded one of the major hits of the “American Idiot” album. I only recently learned of this explanation, and have a new profound respect for the singer and the song.

If there is one thing that I could have considered one of my biggest fears, that was leaving my daughters behind in my death with them at such a young age. My daughters had already been witness to so many other kids their age, who suffered the imaginable loss of a Father or Mother, too young to understand why, just that they were never coming back. There are three families that come to mind immediately for me, specifically who lost their Fathers due to either an illness or fatal event.

I was petrified back in April of 2008 when I underwent emergency heart surgery for a condition known as a “widow maker,” for the obvious reason, that if you suffered a heart attack due to this condition, you were fairly likely to die. Caused by my treatments for Hodgkin’s Lymphoma eighteen years earlier, this situation caught me completely off guard. Not only that, but as my cardiologist explained at my first follow up from the surgery, “it was not a question if you were going to die, but when.” Considering that I had been dealing with noticeable symptoms for months prior to the surgery, no one needs to explain just how dire this was.

But with this only being the first of many health crisis I would face that were considered life and death, and remembering the family friends of my daughters and their losses, I never wanted them to hear those words, “your Father passed away.”

Losing a parent does not get any easier, as an adult child either.

When my Father passed away from complications of lung cancer, we could not have been any closer with each other. The loss of my childhood from my Father and divorce, long forgotten, our relationship grew as adult Father and son, and more importantly, getting to watch him with his granddaughters. Prior to his diagnosis, we really had grown much closer together. He had become not only my Dad again, but also one of my most trusted confidantes. My Dad passed away nine years ago, and much like Armstrong, I still miss my Dad all these years later.

As I said, there are other circumstances that can make Father’s Day difficult. Divorce, separation, or any other form of domestic conflict. Some Fathers are actually kept from their children, legally and illegally. In a form of child abuse, there are cases where children are actually encouraged to shun or dislike their fathers in what is called “parental alienation,” often times for nothing more than petty vengeance of the other parent. And then there is what I can only call the despicable, the Fathers who want nothing to do with their children. I will never understand a parent that can just walk away and forget.

Then there is the unthinkable, a Father having to get through Father’s Day, with the loss of a child. Whether it be because of an illness such as cancer, a tragic accident, or as today, an all too frequent occurrence, gun violence, it is unimaginable what it takes a Father to get through this day.

Father’s Day is a day to celebrate, to be grateful for one half of your parental unit, whether alive or passed on. And if you are a parent, it is a day to hopefully celebrate with their child or children, who naturally love their Dad. If there is one thing I convey to my daughters, I do not care about Christmas or any other holiday with them, as much as I care about this one time of year, my day, Father’s Day.

And if you are one of the many parents who do find it hard to celebrate Father’s Day, for any reason, please know that I am keeping you in my thoughts, that either your grief or situation improve, so that either memories can restore joy, or being present again in each other’s lives is made possible as it naturally was meant to be.

Flag Day Memories


Yesterday was Flag Day. Established in 1777, the flag, originally comprised of 13 stripes, alternating red and white, with a field of blue with white stars, was adopted as our national symbol, and proclaimed “Flag Day” in 1916. Oddly, as a national symbol, it is not a national Federal holiday. Go figure.

But in 1998, Flag Day took on a whole other meaning for me, that the reminder of Flag Day each year, would remind me of one of the deepest losses in my life, the passing of my grandmother.

My grandmother, like for many, was a major influencial person in my life, perhaps, the most influencial. My grandmother was a moral compass for me. She was also my role model as I faced my battle with Hodgkin’s Lymphoma, as she was a cancer survivor herself. Her passing on June 14th left me devastated.

Seven years later, I would adopt my second daughter. She was named after my grandmother. Though I have always lived my life wanting to be the main role model for my daughters, it was both of them, that helped me to live up to that status, so much so, they became my moral compass, just as my grandmother once was.

My grandmother never got to meet my daughters, but she would have loved both, and they would have loved her. But my younger daughter, named after my grandmother, has given me new reason to remember Flag Day in a new way, and finally turn Flag Day for me, from a sad remembrance, to a happy memory.

Yesterday, my daughter graduated from high school, my second graduation in two years. I now have two adult children now into the next chapter of their lives.

I had no experience, and really no personal reference as to how to be the best Dad I could be to my daughters, unfortunately due to the mostly absent relationship with my own Father. I would like to think that in spite of how things turned out with their mother, the decisions that I made, and the actions that I took, gave them the best of me that I could offer.

And now, just as my Father and I re-established a relationship in my adulthood, I know what I can expect to prepare for and hope for, in relationships with my daughters, as we now deal with adult issues, grown-up to grown-up. Looking back, I have nothing but fond memories of my Dad during this stage of my life. And I look forward to conversations and days, that I have these similar grown-up conversations with my daughters.

All of these connections between my younger daughter, and my grandmother, leaves me believing that my grandmother might just be watching down over us. And she has the smile that I have always remembered. I think of her every time I see my daughters smile.

Once again, I can be happy on Flag Day.

National Cancer Survivor Day 2023


Today is National Cancer Survivor Day (the entire month is recognized as National Cancer Survivor Month). Today, marks 35 times I have seen this day since my fight with Hodgkin’s Lymphoma occurred back in 1988. Being a survivor of cancer, regardless of how long it has been, is no easy fete. The struggle to survive is both physical and emotional, and though remission is often reached, and the struggle seems to fade, it never completely goes away.

I often consider milestones or anniversary recognitions in regard to cancer, as bittersweet. To this day, 35 years later, cancer is still the number two leading cause of death, just 20% less than heart disease, and 33 % worse than deaths related to Covid according to the CDC (Center For Disease Control). Cancer has taken six of my relatives. I can no longer count how many friends and fellow survivors I have said goodbye to, either directly from cancer, or survivorship related issues, their bodies just unable to take any more of the trauma from long term side effects from their treatments. Bitter.

But the sweet part, a continued life I never thought I would have, mostly, a family. And here I am, less than two weeks away from seeing my youngest daughter graduate from high school. There is irony. She was named after my grandmother, a two-time cancer survivor, and will graduate on the same date as the day my grandmother passed from her second cancer, changing the mojo of that day from one of sadness, to one of joy. And I know my grandmother is looking down and watching all of this unfold.

Merriam-Webster defines “survivor” to “remain alive” or “continue to exist, function, or prosper.” When we think of surviving something, our first thoughts usually go to some sort of catastrophic event, such as an earthquake, plane crash, or cancer. When we think of surviving an event on that level, there is one stand-out characteristic that all of those events and more have in common – we do not volunteer for them. There is nothing or no one on standby to prepare for something horrible to happen, to reduce casualties or injuries.

Which is what really frustrates me about television shows that hype themselves with “survivor” as the theme, of course I am referring to “Survivor” and Bear Grylls new show “I Survived Bear Grylls.” While I do enjoy competition style television, one major peeve I have are shows that claim survivorship. Again, an actual trauma victim does not volunteer. If they survive, they have every right to call themselves a survivor. But competitors on television shows like this, are volunteer, actually auditioned for. These shows are not about survivorship other than being the last person standing, a matter of endurance and strength, oddly enough, two characteristics of most if not all cancer survivors. But again, the difference being, cancer survivors never volunteered to get cancer. There is no cash or prize award for beating cancer.

I think what triggered me on this, while flipping through channels, I came across Grylls’ new show. The competition at the moment, Grylls hyped up as “man’s worst fear – being buried alive”, the contestants being placed inside a container, made of snow, with more snow piled on top of it, to simulate being trapped in an avalanche. Now, to be clear, if this had happened, an actual avalanche, and you survived, you get to call yourself a survivor because you did not volunteer for that to happen. While I doubt being buried by an avalanche is man’s worst fear, again, cancer? Hello?, Grylls explained what needed to be done and how fast. In the real world, you would either live or die, but this is a set, granted a natural set, but with several crew there to assist, risks of fatality are kept to a minimum. Cancer patients don’t have that kind of protection or assurance.

So, if you really want to know what a cancer survivor is and actually looks like, take a look around. We are all over the place. Some have gotten to enjoy life, completely worry free and in remission, others like me, continue to deal with late effects from our treatments, but we are still surviving.

How about someone making a television show about real survivors?

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