Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Cancer”

The First Time Around


When you go to the doctor because you do not feel well, you give the doctor all the symptoms that you are feeling so that you can get an accurate diagnosis.  While driving through the drivethru of your favorite fast food hole, the attendant repeats back the order you just gave so that you can enjoy your meal when you get home.  Trick-or-treaters give you fair notice when you answer your door, what your best response should be.  All of these things are examples of the importance of communication.  Relationships, such as boyfriend/girlfriend, spousal, or parternships all require good communication in order to live “happily ever after.”

I was diagnosed with Hodgkin’s Disease just six months before my wedding (the first one).  I had been with Judy close to two years at that point.  Looking back, we sure did a lot of partying and whatever else.  But when it came to what we had planned for the next 10, 20, 30 or more years, I do not think we ever talked about it.

But when I sat across from Judy, and told her that I had cancer, that door of communication should have been blown clear open.  Though there are not many people who would bail on someone in their greatest time of need (and no one can blame them when it comes to having to deal with a serious issue such as mine), I still offered Judy the opportunity to back out of our pending nuptuals, with no ill feelings.

It was clear that our lives together would no longer be “Fairy Tale” or perhaps as she had once dreamed.  There was a good chance that I would become sterile from the treatments (which did end up happening) and we would have no children.  I could die.  There was no conversation, just silence, some tears, and an embrace.  Her only reply was that we would get through it together.  I want to go on the record and state, Judy had a great heart, and there was never any chance that she would bail on me.  She had been through tragedy before when a boyfriend lost his life in a motorcycle accident.  I went through the rest of the diagnostic staging, radiation treatments, and we were married on May 20, 1989.  We came back from our improvised honeymoon to find out I had new disease and began chemotherapy.

Judy drove me to my appointments, but that was pretty much it for her as far as involvement.  She preferred not to talk about what I was going through, in fact, could not understand why my words flowed so freely with anyone willing to lend an ear.  But I went through nine months of chemotherapy, seemingly all on my own.  My recovery, on my own.  The years that followed it was obvious that we were drifting apart.  Words were hardly spoken, intimate contact nearly non-existent unless alcohol had been involved.  My doubts about recurrence were so strong, and then it had been confirmed I could not get Judy pregnant (good news if I ever decided to run for president and somone came forward claiming to be my illegitimate child).

I got more involved in activities that took me away from home to occupy my time.  Arguments began, and since there was no communication about our feelings, resentment started to show, and silence inside our two-bedroom rancher became the norm.  Imagine sitting across from someone, only five feet away, not saying a word, for as long as two weeks at a shot.

Judy had been involved in a head-on car collision that in all honesty, should have killed her.  But as soon as she was able to talk, and listen to me, I expressed my wishes that we take the opportunity of her survival and run with it.  It was a second chance.  Surely she would have to appreciate the new lease on life that I had often talked about.  Perhaps we could discuss options of still pursuing a family.

“We’ll talk about it soon.”  The famous war cry I heard repeatedly whenever I brought up starting a family.  And nothing would come of it.  Until March of 1999.  I decided to finally communicate.

“Ever since we found out that I couldn’t get you pregnant, you stopped showing any interest in me physically and emotionally.”

“Don’t you think for one minute, that if I really wanted to have children, we would have had them by now?”

Two different statements, two different meanings, but one result.  It was over.  Thirteen years came down to two sentences.  And there would be no turning back.  I left the house that evening as I was totally crushed.  She called my cell phone repeatedly in an attempt to get me to return home but I just could not do it.  Soon, she would make the statement, “I didn’t mean that I never wanted to have children.”  Instead of me accepting her explaination and continue our marriage as if nothing had ever happened, now the feeling running through my head was, which was the truth at this point?  Did she not want to have children?  Or was she just desperate to keep our marriage together to avoid embarrassment?  I was no more happy about our marriage ending.  I saw it as failure.  I had finally “quit” something.

We made an attempt at counseling.  But it was clear that there was no chance to save our marriage.  She did not care about the concerns I raised as far as feelings of mistrust and betrayal over just that one statement.  Even the counselor tried to get her to comprehend what I was trying to get across.

At that point, I was faced with a critical decision.  I could either continue with the counseling, with the feelings that our marriage would still not work, and risk becoming too much older to start a family, or perhaps the counseling could work.  Or should I move on and start another relationship?  And would that be enough time?  My history was complicated enough – did not know how to communicate, ended one marriage, and whoever would be my next partner would have to accept that I had cancer, when I decided to bring it up, if ever.

There Is Something I Need To Tell You


In my younger days, some of the hardest decisions that I had to make when dating were:

1)     asking for a second date

2)     snagging that first kiss, or not to

3)     going for it

When it came to relationships, I have usually been up front and completely transparent.  What you saw was what you got.  I never pretended to be someone that I was not.  When dating or committed to a relationship, it is almost always the same routine.  Boy meets girl, boy falls in love with girl, girls falls in love with boy.  They have lots of fun, and then either get married or move on.

Most aspects of a relationship are obvious:  looks, personality, status, etc.  But what happens when you carry something that has the potential to scare a potential partner away?  How and when do you tell someone that you are on a first date with, or would like to date that you had/have cancer?

My first wife found out that I had cancer when we were engaged.  We went through the experience with each other.  Though I offered her the chance to get out, she stayed.  With the cancer behind me, our marriage lasted about nine more years.  Under normal circumstances, beginning a social life in my mid-30′s, with a history of cancer, and side effects that would have to be recognized as it would impact any family plans with another significant other.

My current wife, Wendy, knew my cancer history before we dated.  She knew that I had been cancer free for over ten years.  She also knew that I would be unable to get her pregnant because of the one chemotherapy drug.  We were co-workers and friends before we decided to pursue a more serious relationship.  There was no awkwardness of “Hey, I had cancer” any more than the awkwardness of the first kiss.  But had it not been for Wendy, I often wonder if I would have, or could have had another relationship.

But what if I had not made the decision to date Wendy?  What if Wendy had made the decision not to date me?  Admittedly, I was damaged goods.  In fact, what if Wendy had known (note – I had no idea of my future health issues either) that I had the possibility of needing heart surgery because of my cancer treatments?

I have no intention of wanting to date again and be faced with having to tell someone “Hey, I had cancer, and now all this other stuff is happening like heart surgery and other issues.”  Do I mention it before I ask someone out?  Do I bring it up on the first date during dinner?  Or is it pillow talk after I discover that she really likes me?

Cancer (and other health issues) does not define who we are.  As a survivor I need to be accepted for who I am, not how I got here.  It would make things much more complicated by keeping things a secret.  Unless I would be planning on a platonic relationship, my shirt would eventually come off, revealing two six inches scars, one over my abdomen, and one over my chest.  And I would probably be left with a lot of explaining to do why I waited until that moment to say “Hey, by the way…”

Nobody Puts Baby In The Corner


I am not comparing myself to Jennifer Gray, but I definitely do not take kindly when I am told I cannot do something, must not do something, or will not do something.  As a small child does when you give the warning “noooo” and the child looks at you while reaching for the forbidden activity, defiance rules.

After I had completed my cancer treatments, I had just one goal, to lose the sixty pounds that I gained.  Yes, I gained weight while on chemo.  I had my mind made up, through exercise and diet (a really bad one), I committed to a daily regimen and got my physique back to my pre-cancer condition.

Following my heart surgery, I could not wait to begin physical therapy.  The surgery had taken so much out of me in just a matter of days, but again I was not going to take “no” for an answer.  I completed my cardiac rehab taking any opportunity that I could, when my trainer was not watching, to test my limits.  Again, I was determined to get back to my condition that I was in before the surgery.  Repeated warnings about heavy weight training went ignored, all because I was told I shouldn’t do it.

But something happened after that.  My body started to reject my efforts.  Other issues that had developed over the years, along with my cardiac issues, finally started to make themselves present.   And with that, came the warnings, “you shouldn’t do that”, “you mustn’t do that”, “you can’t do that.”

You see, while I recognize my cancer anniversary every year, currently standing at 22 years, each year, side effects from radiation and chemo have been wreaking havoc on my body.  Decades ago, cancer patients were not expected to live more than five or so years.  But now many live decades and beyond.  And if a patient is fortunate enough as I am, I can find out why my body has begun to feel the way that it does.

With the recognition of the damage has come two things.  The first is the reality that the damage cannot be reversed or cured.  It can be slowed down, but is something that will continue to worsen or develop.  But the second thing is that I have been warned that I could actually make things worse by not heeding my bodies cries for rest.  Pushing my body too hard could actually make my health issues worsen or even devastating. 

“You cannot do this.  You must not do that.  You should not do this.”

So unlike the past, I finally listened to the negative.  I finally quit fighting.  Emotionally it has taken its toll.  I am at a crossroad.  Physically my body is failing because mentally I am allowing it.  Actually it is my attitude making a bad situation worse.

Tonight, I made a change.  I have finally made the decision that I am going to fight again.  I realize the risks involved at making some things worse.  But as I completed my first night, once again I felt like I was fighting.  I was not letting the things I am dealing with decide for me how I am going to be defined.  I am going to be careful as I do not want to get hurt.  But until my body has finally had enough, I am not going to live that way.

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