Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Cancer”

Beautiful But Deadly


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Yes, quite a lovely photo.  This picture was taken back in 2010, but I can easily envision the same sight in 2016 from my current home in Florida.  The snow is quite beautiful.  There is a peaceful aroma that comes with a large snowfall, as well as the chilling silence.  Once the snow has finished falling, you will begin to hear the echoes of snowblowers, and neighbor helping neighbor to shovel out from the unsuspecting amount of snow.

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The amounts of the current snowfall, while pictured here, have been stated up to 30″ localized, meaning some pocketed areas could see larger amounts.

As a child, these were amounts that we could only dream of.  Undoubtedly, school would be missed because it would take literally days to dig out, and often times, areas were without electricity.  But that was of no concern to us.  We were more than happy to grab a shovel, and start taking care of sidewalks and driveways because that would mean one thing, SNOW FORTS!

Shoveling snow as a child however is much different than it is for an adult.  And even if we are in our most fit condition, shoveling snow can be dangerous, if not lethal.

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Of course, we hear the warnings all the time.  And we also hear of the tragedies.

In 2008, I underwent emergency heart surgery to perform a double bypass.  But unlike millions of adults, my cardiac issue was not related to weight or diet, but rather long term effects from cancer therapies.  So, it should not come as a surprise that being fairly physically fit and active, when we got hit with snowfalls, especially in the Winter of 2007/2008, I did not plan on taking any precautions when it came to shoveling.  I just simply went out and did it.

Prior to my heart surgery, for a period of 4 months, it turned out, I was having symptoms of a major blockage, often referred to as a “widow maker”.  It is called that for only one reason.  You have a fatal heart attack.  By the time the damage is done, it is usually too late for paramedics to do anything.  My symptom, was fairly simple, but ignored.  After all, as I said, I was in decent shape, and in spite of my father having a major heart attack, I was fairly certain I was not having a heart attack.

From the moment I lifted the first heap of snow, a “tightness” from the middle of my chest to my left shoulder occurred.  And the sensation would last approximately a minute and then go away, and I would continue shoveling.  Now it should mention, the amounts of depth would vary, but my driveway was 30′ x 10′ and I had about 100′ of sidewalk to do every time.

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Now while the picture above is the actual scan from prior to my heart surgery, this was done following less than one minute on a treadmill when I complained about the same symptom as shoveling, and confirming from the EKG that was attached to my chest, that something had just occurred.  Now imagine, this photo was basically showing every time I was shoveling snow (or anything else physical that resulted in that symptom) and what was about to happen.

My cardiologist refers to me as the luckiest man on earth, because I prevented my fatal heart attack by seeking help before it happened.  Yes, I played with fire for 4 months.  The problem for me is I am not a complainer, so I just tolerated the discomfort, and it could have been fatal.

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While I did heal, the winter of 2008/2009 was on us in no time, and without a snow blower, I was faced once again with shoveling snow.  Of course I was going to be careful, but this was clearly an activity I should not have been doing.  And it ended up being a very busy winter with snowfalls.  By the 3rd snowfall of the season, I had finally purchased a snow blower, which got used a lot from then on.

But my warning is no joke.  Most reading this are not young, and perhaps should not be shoveling snow.  And this weekend, so many that I know are going to be busy shoveling out from a major snowstorm.  Please, if you must shovel, and it is still snowing as of this posting, so you hopefully have read this post, please read the warnings from the American Heart Association I have pictured above.  And please, please, be safe.  I have a lot more posts that I would like you to read.

Upcoming Publication


I am once again thrilled and honored to have one of my written pieces being published in the annual anthology called “Visible Ink”, published through Memorial Sloan Kettering Cancer Center, more importantly, written by the patients and survivors of MSKCC, of which I am one.  This is my 5th year in a row having a chapter submitted to this anthology.  Last year I was honored among 15 other authors/patients in having last year’s piece performed live in Manhattan.  All of my submissions over the prior 4 years can be found on my “pages” of this blog.  To see the actual performance from last year, titled “My Dad Was Just Like Me,” go to this link:

Visible Ink was such a wonderful opportunity for me, as it is for many others patients and survivors.  It is hard for many to understand how hard it is for us as patients and survivors to convey our feelings.  To be honest, we can accept that a lot of people are just uncomfortable talking about cancer.  And many times, it is not enough just to talk to our doctors, nurses, therapists, and anyone else involved in our care.

Visible Ink is a volunteer peer writing program that assigns each writer a professional writing coach, who assists us in writing not just submissions for this anthology, but for any writing assignment that we choose to take on.  We can be as active or inactive as we choose to be.  But each year, most of us will put together a special chapter that will appear in this annual anthology, much like the “Chicken Soup” books.  Not every chapter is written about cancer either.  Some chapters are about experiences that many of us have had following cancer, things we might now have ever had the chance had we not beaten our cancer.  While those who read this book may feel inspired, hopeful, for the writers, this opportunity is therapeutic.

I have enjoyed writing nearly my entire life.  I took a looooooooonnnnng break from recreational writing (I wrote many opinion columns for newspapers), and several years ago, I was introduced to Visible Ink which I write for, along with “Paul’s Heart”.  As a 25 year cancer survivor, I can still be inspired by all of the stories that I read in this book.  And each year, I get to meet so many of the authors either in person, or just over the internet, but the reaction is still the same, I am inspired.

No clue as to what this year’s chapter is written about, as I will wait until the book is released at the beginning of April.  If you would like to find out how you can buy the book, or any of the previous books, feel free to contact me, or go to Visible Ink at the MSKCC web site, or better yet, if you go to the gift shop, I know that they carry each book from the previous years.

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Cancer Silences Yet Another


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The music world lost yet another influential composer, musician, singer, artist.  Humanity said goodbye to an individual who used his celebrity to make a difference in the world, whether it was for world hunger, gender acceptance, or world peace.  This post is about David Bowie, and will be written in two parts, because, upon learning about the surprise passing, I am reflecting on the influence he had on me as a musician and entertainer, but also the impact as a fellow cancer warrior.

From my early days of college radio where I started, I always had the reputation of being “Mr. Bubblegum”, a reference to my constant need to play popular music.  I had heard Bowie’s music on AM radio back in the 1970’s, but it really meant nothing to me.  That would all change with the very first radio show that I did.  I was thrown into a “classic rock” segment, protesting that I did not know anything about classic rock.  I relied on listeners who would call in to my debut show, who supplied me with many song selections, that miraculously, I had heard before.  I just never thought of the particular songs as “classic rock.”

One of the artists that I played a lot of songs from their catalogue, was David Bowie.  And for those of us who know his catalogue, his career produced a lot of hit songs.  But it was when I dug into some of the history of Bowie’s songs, it was when I learned that John Lennon actually sang on Bowie’s hit “Fame”, during the descending notes toward the end of the song, several of the “Fame”s were recorded by Lennon.  And that it when I learned to recognize more about music than just the notes and the sound.  There were actually stories behind many songs.  It was from this moment, that I know that I started to look deeper into the appreciation of the many genres of music that I follow.

There will be many collaborations that Bowie participated in, duets such as with the Christmas favorite “Little Drummer Boy” with Bing Crosby, and of course, Bowie sang along with Freddy Mercury of Queen with “Under Pressure.”  Fortunately, although many hailed the combination of Mick Jagger along with Bowie, the two of them strutting with each other to “Dancing In The Streets,” I would much rather forget.

But as many will say, Bowie’s death at a young 69, and from cancer, when no one was aware that Bowie even had cancer, came as a shock.  There are some celebrities who announce that they are battling cancer, and clearly, there are some who wish not to disclose it at all.  Ultimately, it is the individual’s business, and we need to respect that wish.  That does not make it any easier to accept.  For some of us, we are selfish, and we want to know why.  And I have mixed feelings about this.

One of the first things that I learned as a cancer counselor, is that there will be two types of patients, those that want to talk about it, and those that do not.  And how cancer is handled can be complicated.  Back in the 1950’s, people were actually ashamed to have been given a diagnosis of cancer, never mentioning the diagnosis.  In the 1970’s, more cases of cancer were being publicized, but hardly with any, hardly any success stories.

So, when I was diagnosed with Hodgkin’s Lymphoma in 1988, I not only made it a point that I was going to beat cancer, I was also going to be quite vocal about it.  Following the completion of my treatments, my first wife constantly tried to encourage me to just “move on.”

But then you take my grandmother, who upon diagnosis of ovarian cancer, actually instructed her doctor to tell us all, that surgery was successful in removing the cancer, when in fact, she was in the terminal stages, soon to pass away just weeks after the surgery.  Only she and her doctors were aware of the prognosis, and how fast it was happening.  It was her wish, not to have people spending her final days, not hanging over her, all solemn.  This was not how she wanted to be remembered.

Then my father, who for most of his life, was fairly solitary, was engulfed in support from a multitude of people who had just come into his life, after he began a brief career as an elementary school bus driver, when he was diagnosed with terminal lung cancer.  My father could never grasp how he could mean so much to so many, in just so short of a time.

And then of course, there is the advocate in me.  If I had my way, mainly because I do not have the resources myself to do it, I do wish that every celebrity who faces cancer, or knows someone who has, would step up, if for nothing more, than to bring awareness to the fight, and what is needed.  After all, as a celebrity, you have the world’s ears and eyes.

But ultimately, I can respect Bowie’s decision to not reveal his cancer.  Cancer is awful, and no one wants to go through life being remembered for the thing that took life away.  Even as Bowie completed and released his final album, “Blackstar” just days before he passed, Bowie never let on what he was facing.  Though clearly, in his video for the song “Lazarus,” you get an eerie display of Bowie laying in his death bed.  Perhaps this was art imitating life, just as Freddy Mercury did with Queen’s last project which included, “Who Wants To Live Forever?” and  “I Was Born To Love You.”

As a fellow cancer patient, I am always saddened to hear when someone was unable to overcome their battle.  As someone who truly appreciates music, I am saddened that the world of music has lost a true genius.

As Joe Elliot of Def Leppard said in an interview with Eddie Trunk, “this is it, there will be no more David Bowie music being written.”

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