Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Cancer”

Those Words – “You Have Cancer”


cancer

As I mentioned the other day, it was around the upcoming Thanksgiving holidays, nearly 27 years ago, I heard the words, “you have cancer.”  Actually, it did not go that smoothly.  Just three words are spoken in just over a second.  The moment that I was told that I had cancer, actually seemed like hours.

It began with something so simple as an itch, a really bad itch.  Enough to make me want to scratch-my-skin-raw itch.  Five doctors later, and six second opinions as to the mysterious lump on the left side of my neck, I was finally directed to an “oncologist”, or at least that was the title on the sign in the lawn of the front of the building.  I was seeing a doctor, and had never seen a specialist before in my life, so “oncologist” did not send up any flags to me.  I was dealing with either an infection or injury.

I was led directly to an office which was odd for someone who needed to be examined, but I went along with it.  And then into the office came Dr. G.

thefly

Yes, the pictures above described how I saw Dr. G from the moment he walked into his office, through the entire conversation that followed.  And this is exactly how the conversation began:

“Hodgkin’s Disease is a very curable cancer that is often found in young adults.”  So Dr. G went from the first square above, to the next square.  What they hell was he telling me this for?  And then his appearance began to morph through the next few pictured squares and uttered this comment (heard by nearly ALL Hodgkin’s patients), “in fact, if you are going to get a cancer, this is the one to get.”  Oh, hell, Dr. G just skipped all the way to the final square of the photo collage and became the fly.  The thing is, Dr. G actually did resemble Jeffrey Goldblum.

No handshake.  No stethoscope.  No physical exam.  Dr. G went from 0 to 100mph.  I do not even think he confirmed my name.  I am not exaggerating.  I know there was no handshake.  But this doctor had just diagnosed me with having a blood cancer.  I do not care how treatable it was, and most certainly was not wanting to get a cancer and somehow winning the lottery getting this type of cancer.

I would storm out of his office and never return.  His office tried several times to reach me over the next few days, urging that I return to follow through on biopsy plans.  I would eventually seek out a different oncologist, and yes, be diagnosed with Hodgkin’s Disease (that is what we called it before it was referred to as “lymphoma.”).

Wow, 27 years ago.  That is over half of my life.

Last year, just before my father passed away from lung cancer, my father was in the hospital.  Dr. G was still practicing oncology, and was in the clinic next to my father.

I apologized to Dr. G for my reaction and wanting to swat him with the world’s biggest flyswatter ( he was never told my analogy).  He said he was used to that kind of reaction.  He had told thousands of patients that they had cancer of some form or another.  No one ever told him, “hey, thanks for giving me that news.”  And though Dr. G’s bedside manner or tact in communicating the diagnosis had a lot to be desired, I am sure that I am not alone in how I reacted to him.  But I somehow get the feeling that I may be one of the few who actually apologized for the difficult job he had to do.

Diagnosis And The Holidays


thanksgiving

Like millions of other people, the beginning of the holiday season, starting with Thanksgiving, is a difficult time of year.  And as the weeks continue, the season can be even more overwhelming.  I was diagnosed with Hodgkin’s Lymphoma over 27 years ago.  Thanksgiving was a week later, and the last thing I felt like being, was thankful for anything.

Years later, during marriage #1, my father-out-law, also the weekend before Thanksgiving, is misdiagnosed with having Alzheimers, leading to a 3-year medical imprisonment until the accurate diagnosis is made, and he actually recovered.

And two years ago, someone very close to me, unknowingly spent the last Thanksgiving with her son.  Having just recovered from a complication from cancer treatment, things suddenly changed, and instead the last memory she now has of her son, was the decoration of a tree that she otherwise would not have purchased that early.

And besides those who faced trials and tragedies at the holiday onset, there are so many who are facing the holidays for the first time without their loved ones.

And I find myself once again, heading towards another “anniversary” that is a reminder of a period in my life that I would rather not be facing.

Each and everyone of us mentioned above, would give anything to have the precious moments back that we no longer get to experience other than the memories.  But that does not mean, that this post should be perceived as sad, or negative.  In fact, quite the contrary, and I honestly believe that everyone that I am thinking about as I write this, deep down is quite thankful.  We are thankful for the support of everyone who helps us through our difficult times.  We are thankful for everyone who encourages us.  We are thankful for those in our lives who have the patience to allow us to reflect on our losses, offer a shoulder, and then hold our hands to lead us forward.

Please have a safe and Happy Thanksgiving.

Paul

November – A Bittersweet Awareness


I have many things that I advocate.  And you have probably seen me write about all of them at least once, if not, at the beginning of the month, when everyone begins to announce that month’s “awareness” cause.  I used to have only one thing that I advocated in the month of November, until a couple of years ago.

lung cancer

My father died a year and a half ago from lung cancer.  His diagnosis did not come as any surprise to anyone except for him.  The side effect of denial affects only the smoker, “it will never happen to me” or “I wish I would have known.”  He smoked tobacco products over 50 years, trying multiple times to quit, unfortunately being unable to fight off the addictive additives of the various tobacco products.

Over the years, I have done my best to protect my children from second hand smoke, even witnessing the act of smoking.  I am more than aware of the peer pressure that I have no control over, but one thing was certain, my children were not going to learn to start smoking by witnessing me smoking.  It was hard enough for my daughters to have witnessed the later stages of their grandfather’s life, and knowing what his fate was going to be, just because he smoked tobacco.

It was a shame really.  As his fate became more of a reality, the bargaining stage of his life had become apparent, begging for more time, wishing that he had never started.  It is too bad the tobacco companies did not care enough to create an antidote to reverse the addictiveness of their product.

But now, as my daughters are “tween” in age, they have become more aware than ever of their environment.  It may not have been enough for them to have witnessed their grandfather die of lung cancer, caused by decades of smoking.  I am certain that before they become adults, they will not only witness someone close to them smoking (or now, vaping).  My only hope is that they remember what happened to their grandfather died from, and that it was not good enough to just hope “I can quit any time I want”, because you cannot.

I realize that I am overstating the obvious that smoking does cause cancer, and not just lung cancer.  But to be fair, there are other circumstances that cause cancer, that really are no fault of our own.  Every day we breath in chemicals and pollution.  And if you are a cancer patient, especially a long term survivor like myself and many others, there is a pretty good chance, that due to either chemotherapy or radiation therapy, that we have an increased chance of developing lung cancer, having traded a cure for a cause.

That point I am trying to make, there are enough things that we have no control over in our lives, but smoking is one that we do control and the role it plays in developing lung cancer.

But as I said, November is a bittersweet month for me as far as advocacy.  One of the happier and more positive causes that I support is adoption.

adoption1

The process of adoption gave me the opportunity to fulfill a dream, to become a father.  Cancer took away my ability to have children biologically.  And though science provided some opportunities, it was not successful.  And in 2003, the process began to adopt the first of my two daughters.  There are pros and cons to domestic and international adoptions, closed (private) and open.  But China gave me the opportunity that could not be achieved through the United States due to financial and my health history.

I will never truly understand the feelings either of my daughters will have as to the absence of their origins, other than the country we know that they came from.   I have some information for them, about how and where they were found, who took care of them prior to their adoption, and of course, lots of photos during the visits to China to complete the process.

And although our family has gone through a major disruption, that many seem to say is “unfair” to children who have gone through so much in their lives already, nothing should really change.  Both their mother and I play major roles in their lives, and I have made it clear that the girls will have only one “mother” and only one “father.”  Our responsibilities to our children have not changed.  And it is “unfair” to the children, to make a blanket assumption that somehow the children would be better off under any other circumstances, especially when the complexities of the family have not been discussed publicly.

As they children get older, they will have to deal with the fact that they are adopted.  Our agency had given us material a long time ago to prepare us for the times that would come, dealing with identity, racism, bigotry, in a multi-racial family.  Of course, there is going to be the serious relationship issue as well to deal with.  Parenting will continue.  While the adoption circumstance is obvious, I have always treated my daughters, as my daughters.  And through the adoption process, my dream of becoming a father has been realized.  There is a lot to be done yet as I prepare them through their education and life experiences.

Adoption is a wonderful opportunity to build a family, under any circumstance.

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