Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Adoption”

Becoming Your Parents


I used to kid my grandmother, so firm in her ways, how she fought, kicked, and screamed at the mere thought of having a dishwasher (other than her grandson), a microwave, or a VCR.  By the end, she did have all three, appreciating all the conveniences.

I have done my best not “become my parents” as my daughters have gotten older, a typical “guarded” father.  But my older daughter has a very peculiar sense of humor.

I have been lucky that there have not been many instances of major “crushes” or interests for me to deal with by either.  Just opportunities to offer fatherly advice and reminders about what they should expect from anyone who wants to spend time with either of them beyond a basic friendship.

I speak to my daughters nearly every night, exceptions would be when there is homework, perhaps they are out with their mother.  Or, she was “over at my ‘friend’s house.”  Of course my radar goes off as there is no name of such friend mentioned, and I pressed further as if looking to have myself feel uncomfortable on purpose.  “Who was it?” as I rattled off a list of the friends I knew of, all who happened to be girls.  She gave me a name I did not recognize.  It was a boy.  My instincts were right.  She was hiding something from me.  So I thought.  She was toying with me.  “Come closer father” she was probably thinking as a predator in the wild kingdom stalking its prey.  And she enjoys that game.  And I oblige.

“So, what were you doing?” I asked.

“Just hanging.”  I have to pull the details out.  She knows what she is doing.  The trap is set.  “Did you have dinner there, with his family?”  “Yep.”  “So then what?  What did you do?”  Slowly she the predator gets closer to the prey.  “What movie did you watch?  What did his parents think of it?”  The silliest question, and clearly let my daughter know that she had caught her prey.  Now it was time to go in for the kill.

“We were watching it on Youtube in his room,” saying it so innocently.  Of course, it was innocent.  All I had to do is just stop right there.  And just like I had some sort of case of parental turrets, it came out…”but you had the door open right?” I seemed to have been begging and hoping, remembering my time as a teenager, and rules expected to be followed by parents.  “Nope.”  That was it, just a one word reply.  She made it clear that there was nothing to be discussed.  But, I am her father.  She then burst out laughing at watching me squirm with discomfort.

To be clear, I trust both of my daughters, and there are situations that will come up that are bound to push my boundaries of comfort.  I am becoming my parents.

Geico Insurance even capitalized on these moments with a commercial series of various situations where adults morph into their parents, something we swear never to allow to happen.

But there are signs, and not just my recent conversation with my daughter, that change is happening, being so set in my ways, not wanting to accept change.

There is one are however, I really feel firm about, and I believe it makes a difference.  I want to be clear, when it comes to the world of medicine, and as involved as I am, personally and with knowledge, I respect every medical care personnel working.  To them, their job is not just a shift, of following procedures, these people, heroes, all have emotions connected to their jobs, constantly under duress, rarely knowing of successes, but never able to forget those that have not survived.  So I want it understood, I am not undervaluing any nurse, tech, doctor when I say what I am about to say.

I am not okay with the new system of medical care, recently finding another change I was not aware of happening.  Others I have been able to see the change, and if unable to object to it, and least strategize around it, so I could accomplish what I needed to, to feel I got the care I was looking for.

I have stated many times, my current primary care doctor I have had over thirty years.  No matter where I have lived, she is the only one that I will see, which is miraculous given that most reading this are less likely to have seen the same primary care doctor from a practice, twice in a row, and especially how fragile my health is.  Yet, if she is not available, I put the “pause” button on what I am dealing with and ask, “when will she be available?”  And then I wait.  I don’t care how long.

If it is something I feel I can handle with the nurse, I do it.  Not sure the difference between a nurse and a nurse practitioner is, and I have no interest in knowing.  I am guessing a nurse practitioner is like saying a “nurse plus.”  Either way, I know that I am dealing with a nurse.

My doctors, I know who they all are.  I know the care I am getting, and I know the information they give me is based on their education and experience.

These are the two medical professionals that I am used to dealing with.  If not something a nurse can handle, my doctor takes care of it.

Now, here comes “my parent” mode.  Enter the “physician’s assistant.”

Over the years, I have heard this term used around me multiple times.  My doctor either still performing other surgeries, or for any other unavailable, would result in another individual coming in on his behalf.  Ok.  I am cool with that.  The doctor was not available so he sent his peer, another doctor, to discuss my concerns.  They appear just as experienced, so I am unsuspecting as to who I am actually talking to.  Once that particular event is done, I move on, noticing nothing.

I recently had a conversation with a physician’s assistant, whom I have had many conversations in the past.  When it comes to my care, I know my doctor cannot be monopolized by me, and has many other patients.  And I know that he has others around him, who he has trained to deal with our unique situations.  And they are very good and have bright futures ahead of them in survivorship care.  So then, what bee flew up my shorts with what happened next?  Obviously I have become my parents in another aspect.

I referred to him as doctor, as I often do, because I thought… well, I thought he was one.  “Please, not Dr.”  I began to feel like a television episode or movie scene where someone trying to escape in a hospital slaps on a lab coat to look like a doctor.  Have I been played?  He was so convincing, so knowing.  And while I knew he would not be the one doing any kind of procedures on me, I was okay with him relaying  information from my “other” doctor, and being able to answer my questions.

So, what exactly a physicians assistant?  It is not a nurse, or nurse practitioner, or else they would be referred that way.  I though a nurse was an assistant to the doctor.  A PA is not a nurse, but also is not a doctor, though works under the supervision of a doctor.  Both have the education, and likely the experience.  Ultimately though, the doctor is the one in charge of the patient.  However, that does not change the fact, this assistant is not a “doctor”.

Here comes the parent.  “Back in my day…” we had doctors and nurses.  And if doctors were too busy, or nurses could handle the situation, that is what happened.  I have to admit, I really feel weird about this situation.  I have dealt with this PA many times, and up until he had me stop referring to him as doctor, I would never have been the wiser.

But when it comes to my care, I need the best possible.  And at least up until now, he had me convinced he was, as long as I thought he was a doctor, because I was convinced he was.  There is a reason I have had only one PCP for three decades.  I trust her, and only her with my care.  Specialist I need to see, I need the best.

Again, I want to be clear, I do not want to be perceived as cutting anyone down.  I have been used to one form of health care my entire life, and things have changed for whatever reason, but my needs have not.  Probably my fault for not understanding who I was seeing, and I likely would have cancelled any appointments, waiting to see the actual doctor.  Worse, refusing to see anyone other than.

This “becoming your parent” thing is not only real, but a serious issue.  That said, I do respect the PA I see, but at least I now know, his “teacher may teach him everything he knows,” but may not have taught him everything his teacher knows.  And now I am aware of that.

Best Wishes For A New Year


I think the majority of us could not be more anxious to get the year 2020 over with, never to spoke of again.  Covid19 became the new worst word beginning with the letter “C”.

I was able to get some things out of 2020 that were positive.  An annual trek in January took my daughters on a detour through an actual “ghost” town, that is doing all it can at this point, at least developers anyway, to make it disappear.

A town in Pennsylvania called Centralia, famous in the area for having a coal fire burning underground for nearly 70 years, totally abandoned except for four remaining homes, had its main road closed off, deserted.  As the road no longer carried vehicles, soon vandals marred the highway, spray-painting the road until soon, it became a ritual for any visitor to the area, to leave a remnant of their visit in the form of graffiti.  This road would of course be called the “Graffiti Highway.”  Soon after our visit, the developer bulldozed dirt over the entire road, never to be seen again.  Our timing was perfect.

Another huge moment for me in 2020, was marking my 30th year, cancer free.  A party was held in my honor just before Covid started wreaking havoc.  Again, all about the timing.

Covid did take away from me as well, especially time, time with my daughters.  Until safety precautions were determined and implemented, travel back and forth was not a good idea given my vulnerabilities to the virus.

BUT, once the recommendations came out, I did manage to return to visits with my daughters again, safely, with minimal risks to each other.

2020 gave us a lot of time to think, and prepare.  We still do not know when the end point of this crisis will be, but we are now learning not only that we need to be able to move on, but how to do it safely, some would call it, “living with the virus.”  Honestly, it is not the first time we have faced a virus crisis, though clearly in my lifetime, this is the worst I have ever seen.

But here we are, finally getting to the year 2021.  And I already have so much on my calendar that I am looking forward to, Covid or not.  During this time period, I have made real progress writing my first book, based on survivorship, now two-thirds of the way finished.  I am looking forward to another great year writing this blog, and hopefully maybe making it a podcast.

Most importantly, I am looking forward to more time with my daughters.  I am so proud of how they have had to handle the diversity in regard to schooling, socialization, and more.  And they did it without complaining.  They knew the right things that had to be done.

Holy Cow!!!!  I just realized this year, I will be the father of an adult daughter.  Reality is setting in.  My emphasis on teaching and encouraging values, now turns to life survival lessons, about money and how to save it, spending wisely, negotiating, and to not be taken advantage of.  The decisions she soon faces are more serious, the rewards greater, but so are the consequences for any wrong decisions.

My younger daughter will also turn a milestone as well.  And as both of my daughters get older, they are learning more about what I have gone through in my life, through my cancer journey and beyond.  That images in the memory that make no sense, have a story behind them.  Those stories will become important to them because there will come a day, that they will need to know what I have gone through.  But that is a long way off.  I have graduations to attend and daughters to walk down the isle.

I wish everyone a Happy, Safe, and Prosperous New Year.  See you on the other side.

Make This Difference In 2021


I feel odd trying to write an inspirational message, using the television serial killer Dexter as an example.  But here goes.  First, to be fair, Dexter’s status as a serial killer is complicated in that he is really a good guy.  One of his major flaws (besides the ease of killing criminals released by the judicial system often on technicalities), is he is emotionally barren, for at least half of the series, before his “feelings” begin to mature.  I am trying to be respectful in not “spoiling” anything.

You get it though, Dexter does not show, or pretty much, have any emotions, or feelings.  His sister Deb, with a mouth more colorful than a truckdriver or sailor (or whatever metaphor you want to use), has emotions, but has not control of them, often leading her to make decisions that involve regret.  She often tells Dexter she loves him, but he is unable to respond in kind to his sister.  This is not the only time that Dexter has been in this position, through no fault of his own.  It is just who he is.

Anyway, as the series draws to a conclusion, Dexter is moving away, far, far, away.  Deb’s only request, a hug before he leaves, something I do not recall seeing in any of the episodes.  I will leave it there.

There are no second chances.  I wrote just a couple of days ago about my father’s situation with my stepmother, an argument, never being able to be resolved.

That had not been the first time, that I had experienced that guilt, of a lost opportunity.  Growing up, though different circumstances, I did not deal with emotions well either, in fact, not at all.  But early in my adulthood, when my grandmother had been diagnosed with cancer, and the mere thought of losing her, I found out, that I did have feelings, and they mattered.  And for the first time, I began to show my emotions.

On a daily basis, I made sure that I told my grandmother that I loved her.  When I visited her, I always gave her a hug.  Except for one time, and it was the last time that I saw her alive.

She was about to begin her second fight against cancer, beginning chemo the Monday after the weekend.  I stopped by to visit with her Saturday morning as I had a full day planned on Sunday with my church’s youth group that I ran.  I had discovered that she had cut her her short, to prepare for the hair loss that would accompany her chemotherapy.  But then I noticed something odd.  Her booklets on her chemo information had still not been touched.  I just attributed that to my grandmother’s nature of just accepting things, and doing what she had to.  That is how she rolled.

As I sat across from her in her living room, she had a distant look on her face.  There was a lot on her mind, clearly with the chemo beginning in just days.  I would soon find out, she had a lot more on her mind than she let on.  I asked her what was wrong.  She just responded that she “just want to get this over with.”  She definitely was not her normal “brave” self with me.

When I went to leave, she did not get up from the couch as I approached the door.  I told her, “ok grandma, I am going to get going.  I will give you a call tomorrow, then come see you on Monday.”  My hopes of thinking she would take that as her cue to come over and hug me goodbye, nope.

The next day, she had passed away.  The one time I did not hug my grandmother or tell her I loved her, because I was distracted by her “distance” and distraction, is how we parted.

You see the pattern here.  Three examples, all three, “coulda, woulda, shoulda.”

My daughters never got to meet my grandmother.  They never knew what happened to my stepmother and the impact it had on my Dad.  What I do not know, is if among all the other stuff they have watched, if they ever watched Dexter.

But one thing is for sure, from the moment they were placed in my arms, they have always been told “I love you” by me.  They get as many hugs as I can give them.  There is no “given” that just because I am their father, they have to love me or that I love them.  No, for the first time in my life, my daughters made me feel that way, and I made, no, make sure that they know every day how much I love them.  There will be no regrets with not having said the most important words to my daughters.

We never know when the inevitable is going to happen.  And 2020 has been extremely cruel with Covid19 devastating so many families permanently.  And now, faced with recommendations, proven to be at least helpful in reducing risks, we are asked to make sacrifices, which could very well be the last time, we see a loved one or friend.  Nobody gets that more than me.

Whether you believe in the severity of Covid19 or not, and whether you have been personally affected by Covid19 or not, does not change the fact, that you only get one last chance with someone, and we do not know when that moment will be.  But Covid19 has made a huge impact on hundreds of thousands of lives, permanently.

2020 has been extremely cruel, and likely filled with a lot of regret, of things left unsaid.  Regardless of what you believe about Covid19, or any other situation that at one moment can change your life forever, you can make one huge difference in 2021, every day.

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