Paul's Heart

Life As A Dad, And A Survivor

Archive for the month “October, 2022”

“I Love My Dad”


Okay, my usual disclaimers… this post has nothing to do with my own divorce or my life as a child of a divorce myself, though there are similarities. The issues in this post, while reflective of the role of the father, can also apply to the mother.

In this movie “I Love My Dad”, “Franklin”, the son, played by James Morosini, who also happens to be the writer and director and whose life the movie’s premise is based on, has severed his relationship from his father, played by actor and dark comedian Patton Oswalt. Admittedly, I am a fan of Oswalt’s which is what drew me to watching the movie.

I must admit, watching a movie like this does have the potential to trigger memories that I have not dealt with or resolved. So it can be a bad thing or a good thing to watch them. I have the unique position of viewing movies like this from a child’s perspective, being alienated from his parent, and from a parent doing all he can to keep and maintain the relationship with his daughters.

What the movie does not address is why, what was behind split of the parents, and what role was played by the mother in the dissolvement of the relationship between the father and his son. Do not misunderstand me, it is clear the later issues that built up the resentment by the son, but not the catalyst, which is relevant as it is more than likely, Patton’s character was not the only problem. So that I do not spoil the movie, there is an issue that the son faced, that was not addressed in detail either, and again, I think relevant to the movie, as could it possibly have been the reason, the father sought to make amends with his son?

An all too common situation, with any number of causes, a parent’s relationship with their child gets fractured as a result from the divorce. There is audio played during the beginning, of the father constantly disappointing his son, with the failure to attend events in his son’s life. Again, as an ACOD, I get how that feels. At some point in “Franklin’s” life, likely after the undetailed event, he cuts his father off from communications via social media, also known as “blocking” him. We did not have this option back in the 1970’s and 1980’s, but it is possible, I would have done that to my father as well if I had the chance.

At the advice of a friend, the father is encouraged to create a fake profile on social media, which might allow him to follow what his son is up to, commonly referred to as “catfishing,” pretending to be someone you are not, leading someone else on. This is where things really get messed up, because emotions get involved, and the son is already challenged emotionally. And there is the expression, “the truth always comes out.” And when that happens, results can be even more devastating. The father creates a profile based on a female waitress at a restaurant he eats at. Not realizing the potential for how far this effort could careen out of control, it does just that, when the son insists on meeting her, the real woman unaware that this is even happening. “Franklin’s” mother does not know of the catfishing, but thinks that her son is actually pursuing someone real, regardless, given what he has gone through, and still does not think it is a good idea, providing the opportunity for the father to step in, and the attempt to repair the relationship can begin.

The end of the movie is predictable, but also a bit disconnected. There, I have not spoiled anything about the movie.

As I said, as an ACOD, I know there has to be more to the story that led to the estrangement between the father and his son. But I also know, as a father myself, having gone through a divorce with children involved, I was NEVER going to allow the things that happened when I was a child, stand in the way of a relationship between me and my daughters. NEVER! Albeit, I had a couple of things in my favor that my father did not have, technology for one. I truly believe, that having the tool of video chat via apps such as Facetime, made all the difference in the world. Whereas with a phone call, there was no way to see if attention was being paid when we talked. More importantly, there was an obvious impact, being able to see each other every day.

Now, as for the issue of “not being there” was presented constantly in the movie, again, as an ACOD, I get it. And I know the finality of “having enough.” But unlike Patton’s character, as a father, I have done all I can to make sure that I have been there for events in my daughters lives. As older teens, they were able to see for themselves, and judge for themselves, and understand if there was a reason I was not able to make something. This became a frequent challenge during Covid times, between restricted flying, and of course, prevention, as I had multiple life saving surgeries that needed to be done, and would be delayed with an exposure to Covid. But even pre-Covid, there were “speed bumps” in my way that at times prevented me from seeing my daughters. I never let my daughters believe that they were unloved, forgotten, or not important to me. Today, I help them prepare for college life and beyond. Giving up on my daughters, getting into a situation as my father did, and as Patton did, was never an option.

So unlike Patton’s father character, I did not have to resort to means to try to get back into my daughters lives. I am a fan of Patton, but I do wish that perhaps a different approach would have been taken. Easier said than done, as I have no idea how else that could have been done. The easiest option is never get into that situation in the first place, but depending on the level of antagonism from the other parent, it might not be unavoidable.

The movie, “I Love My Dad” is no “Kramer vs. Kramer” or “Mrs. Doubtfire” as far as the portrayal of the complexities of the alienation between parent and child. But this dark and very twisted comedy, at least puts a current spin on the attempts to resolve the relationship, and sometimes in a very cringe-worthy way.

Happy TAVR-sary?


If you have followed “Paul’s Heart” for at least a year, you know that I mark various health anniversaries and milestones, beyond my cancer survivorship of 32 years from Hodgkin’s Lymphoma. Today marks a new anniversary, an amazing procedure, replacement of my aortic valve.

This is a picture of the replica of my actual valve replacement, actual size, in the palm of my hand. Now for the cool part of this post. If you are wondering how they put this large device inside my heart, as I did once I received this replica, here is a short, and very cool video, showing how the procedure is done.

@ghostmedical

Aortic Stenosis is a type of heart disease where the valve becomes narrowed and doesn’t open properly. #medicalanimation #awareness #heartdisease #interestingfacts

♬ Somebody That I Used To Know (feat. Kimbra) – Gotye – fiona

Pretty cool, right? What is even more cool, is that just a few years ago, I would never have been eligible for this surgery, because of the late effects I live with from my cancer treatments. You see, the radiation damage that caused so much extensive damage to my heart, this is my 3rd heart surgery, is also, what made this type of surgery, nearly impossible years ago, from “scarring” caused by radiation damage. But because of progress and technology, I was able to avoid having my chest opened again, and have the procedure go through my leg, into my heart as the above video demonstrates. The obvious advantage, much faster recovery time, I was doing stairs in two days as opposed to building up a tolerance to walk even at eight weeks.

I knew this day was coming. However, when I arrived back home from a visit with my daughters, there was an envelop in my mail, which I recognized the sender as the manufacturer of my valve.

I was initially jarred by the surprise mail. Other than receiving the package with my valve replica, I have only received emails with surveys and topics related to good heart health. Over the years, I have also learned to recognize signs, such as when you are the first patient to arrive, yet the last to leave, you know a doctor wants to see you, and that will likely not be a good thing. In this case, if it was going to be bad news, I know it was not going to be about my heart, as testing recently showed my valve was working as it was supposed to. If it was going to be bad news, it would have to be some sort of recall, which would mean yet another surgery.

But there was also one other possibility. Have you ever gotten a “birthday card” from either a dentist, auto insurer, which of course came with a reminder of a soon due premium or appointment? I allowed my mind to take a slight detour from the usual “oh here we go again” path, and recognizing the upcoming date, could it be possible…?

The manufacturer of the valve, sent me an “anniversary” card. They referred to it as a TAVR-sary, TAVR standing for Transcatheter Aortic Valve Replacement. Transcatheter, meaning, it would either go through the arm or the leg, to the heart, no open heart surgery.

It is hard to believe that it has been one year already, fourteen years from my first heart surgery, open heart for an emergency double bypass, and three years from my second heart surgery. It is also hard to believe, that this needed to be done during one of the most difficult times for hospitals, in the middle of a pandemic.

But unlike my open heart surgery, I was walking long distances the next day, and no discomfort from the surgery.

One question that I always get when it comes to all of the procedures I have faced since my days with Hodgkin’s Lymphoma. “If they knew all of these things were wrong, especially back then, why didn’t they fix them all while they were in there?” This is a perfectly reasonable question, and one that I could not grasp the answer until this procedure. The position had always been:

  • “we need to wait until the risk of a heart attack outweighs the risk of the surgery”
  • “we need to wait until the risk of a stroke outweighs the risk of a stroke during surgery”

You get the idea. My body is treated like it is a ticking time bomb. But here is the reason why, I have to live my life on the edge, waiting for another shoe to drop in an event, much like the Sword of Damocles.” All of the repairs that have been done thus far, are not permanent. My bypass, the stent with my heart, the stent with my carotid, and now the valve, all have potential expiration dates. And if those times come, I will have a very difficult decision to make, because going through them again, will be even more risky than the first time. On top of that, I still have two other issues with my heart, considered stable at this point that could require attention in the future.

I have never been able to get a firm answer on how long my bypass should last, but I have been able to estimate approximately fifteen years on average. The good news so far, as I approach my fifteenth anniversary in April, the stats are still encouraging that I have a few more years to not worry. Stents are usually patent ten to fifteen years. The type of heart valve I received, should last between seven to ten years (a mechanical valve, is thought to last a lifetime, but there are several factors that led me not to consider that option, mainly having to be done by open heart, and a lifetime of maintenance of heavy blood thinners and other potential complications).

While doctors were aware that I had these other heart problems when my bypass was done, at the age of 42, had those things been corrected back then, while they had me opened, it is very likely, at least the stent and the valve would have needed to be replaced again by now. So I get it why they made that decision years ago.

So until that time comes, that either additional procedures need to be done, or re-done, the company that made my artificial valve, had a message inside of my anniversary card, how to take care of my heart, suggestions that actually can apply to anyone, regardless if you have had heart surgery or not.

It is not easy being a long term cancer survivor. But I have had, and continue to have, a great life.

I have had fourteen more years with my daughters than I quite possibly might not have had. I have gotten to watch both grow into adults, and will get to see who they become and the lives they will have. And that in the end, is all that matters to me.

Time Is Running Out


One month is done into the new school year already. My one daughter is approaching mid-terms in college. My younger daughter about to approach mid-term of her quarter of her senior year of high school. As their Dad, I play a separate role for each.

Throughout their elementary and middle school education, I could be described as a very involved parent when it came to their education. Not to be confused with “helicopter parenting,” I simply made sure that homework was completed, quizes and tests were studied for, and best efforts were always encouraged, and achievements were recognized and praised.

Once my daughters reached high school, they each developed their own unique study habits. I turned over all of the responsibility of their schooling to them, with the exception of important deadlines pertaining to milestones, the college application process, and of course, graduation. Not one to have any place to ridicule their methods and means as students and their study habits, I did not have great study habits either, they have done nothing but produce great grades.

The school district has a very well constructed communication tool to keep parents apprised of the status of their childrens’ grades and other personal information. All I had to do at that point, is just sit back and watch. Every now and then, I would be approached by either of them for help with a specific assignment, whether it to spellcheck, or provide information. Both knew not to come to me for math, at least the “new math”.

With my college student, I no longer have that ability to see how she is doing. I can ask her how here classes are going, and I get simple answers, “good.” Instead of seeing her daily progress, I am now just an observer and must wait for the end of the semester to hear of her results. I am just an observer.

But with my high school senior, I still have a little more time of usefulness as a role model with her education. As her senior classes seem more geared to current events of the world today, whether it be business, economics, or politics, I am watching her develop as an independent thinker, something I think a lot of people fail the ability to be.

Part of her Summer assignment for her AP Government course, was to select five topics, and then find three news stories with different leans; extreme right, right, center, left, extreme left. She had to summarize each and compare it with all of the facts that she had gathered with each topic. Her first impression while undertaking this assignment, is she now understands why so many adults cannot get along with each other. The confusion for my daughter, is that when only facts are considered, solutions should be able to be found. Of course she realizes that each media resource she looked at, many have a political lean or agenda, aligned with a certain party or sub-party. Again, another observation on her part about the generations ahead of her, by ignoring the facts, too many put a party affiliation over issues that really matter to people.

She will turn 18 years old next year, and I am proud to say, I will be two for two, with registered independent voters, such as myself. My daughter will not be swayed by one particular news source, but a variety, and only when all the facts are laid out, she will make her decisions.

Another assignment she has been assigned, to argue either that “greed is good for the economy” or “greed is bad for the economy.” The assumption that we have gone from a society based on capitalism to one of greed, simply by “trickle down economics”, going back to the Reagan presidency. Simply put, make the rich more wealthy, and then they will eventually share it with those below them. Only in the forty years since the concept, that has never happened. NEVER. With the values I have taught my daughter, greed being bad, I encouraged her that she would be able to make an easy and well defined case that greed is bad for our economy.

I have to admit, with the exception of the new math, I have enjoyed assisting my daughters with their schooling when asked. I know that as adults, they have been well educated, and can have intelligent and informed conversations with people, not based on media influences. But this time is going to end when she graduates from high school, and like my older daughter, totally independent with her future endeavors.

As I see many of my friends who have just begun sending their children to school, I find myself thinking, “oh how long ago that was.” But it wasn’t. The time really flew by.

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