Paul's Heart

Life As A Dad, And A Survivor

Archive for the month “January, 2013”

I Can Taste My Chemotherapy


Besides the anticipation of nausea from starting and continuing chemotherapy, I experienced another unpleasant side effect, and this was immediate.  I do not recall the drug that was injected that caused it, but it produced a horrible “metallic” taste.  I cannot even describe the flavor, but it desimated my taste buds.

My oncology nurse had explained to me, that indeed it was the drug causing that, and knowing that I would have seven more injections of that crap over the next 7 (eventually 8) months, I asked what alternatives there were to make that infusion more tolerable.  Unfortunately, there were no suggestions.  So, being the picky eater that I am, I can get really resourceful when it comes to making food tasty if I do not care for it. 

After I was done with the infusion, I grabbed a piece of candy from the receptionist’s desk.  It was a peppermint hard candy.  That was it!  If I could suck on one of these during the infusion, that might just overwhelm the metallic taste.  After getting the blessing from the oncology nurse that it would not interfere with the chemo drugs themselves, she said that I could eat the candy during the infusion.  The flavor of the candy was stronger than the drug.

I cannot say that this strategy works in all cases, but if you are a patient having this type of issue, by all means, ask your oncology nurse if you can have a piece of hard candy, something that will not aggravate your stomach either.  It might just help.

I Am A Horrible Caregiver


The truth is out.  I am a horrible caregiver at least by Wendy’s description.  Wendy could not believe her eyes with the first cut that Madison received as I sent Madison to her mother for care instead of my simply just washing it, putting some disinfectant on it, and then a bandaid.  It sounds simple, but it is not, for me.

I have surgery scars all over my body, the biggest being the scar over my chest from the heart surgery.  I have been through cancer and chemotherapy.  Hundreds of needles for bloodtests.  I have even had blood coming from somewhere no man ever wants to see blood.

But show me a papercut and I will hit the floor.

As a patient, I was compliant with whatever the nurses and doctors wanted me to do.  I was called inspirational because I truly wanted to recover, from the cancer, from the heart surgery, and countless other maladies that required a period of rehabilitation.  I am a very proud person.  I am not in the habit of asking for help or assistance.  If I completed tasks before the event on my own, I could to it on my own afterwards.  Nurses were especially supportive while the doctors did the recognizing and congratulating for the efforts.  No one can tell me I cannot do something when I am so focused.

Maybe I was inspired by Rocky in the second movie when Adrian finally wakes up from her coma.  Rocky tells her that he is done fighting, he wants to care for her, and draws him close and repeats, “win, win.”  Mickey yells out, “What are we waiting for?” 

When I went through my recoveries, I know people watched me.  If they knew me, they were inspired by me.  And if theydid not know me, they saw someone fight to get back, what once was.

I take that same approach when the shoe is on the other foot, and I am the caregiver.  With cuts and bruises, I am just pretty much shake it off, get it cleaned up and move on.  But when it is something of a serious level like a heart attack, cancer, or car accident, you have obviously been given a second chance.  And I know what that feels like.  I want you to have that too.  I am not short on empathy, but I have zero supply of pity face to face with the individual.  As far as I am concerned, there is only one time when it is acceptable to give up.  Otherwise you fight.  I will stand by your side and help you, but the sorrow goes away once you are given the order to get well.

My daughters call it being “mean”.  Instead of hugs, and “that’s okay” comfort quotes I am more like Jillian Michaels.  If the doctors have given you the all clear to rehab, then you have no reason not to.  I am telling you, that you have no right to give up.

My cancer diagnosis, heart surgery and my never ending late side effects from my cancer treatments, I have done nothing but look forward.  I want to function.  There is no reason for anyone to have to care for me, except offering me encouragement.

But I have been on the other side of the field more than double the times I was a patient.  A car accident, a crippling illness, surgery.  I will make sure that as a caregiver, that you follow the doctor’s orders.  I will not let you give up.  I will do your grocery shopping for the temporary time, your laundry, and cleaning.  We will go for walks.  I will not let you sit on the couch by yourself, in the dark.   I will be your advocate and help you ask those that you need answers from.  As far as dealing with blood… I do what I have to.

Maybe I am not such a bad caregiver after all.

A Little More On The Jersey Turnpike


So this will be the first sequel post that I am writing on this blog.  It seems that I touched a nerve and set off a bit of discussion at home and on this site.  I already admitted that I would be willing to be called a hypocrite, a prude, etc.  But argument still cannot be made to convince me, the dad, that this is okay behavior.

I was a dog in my younger days.  Yes, that taints me or give me prejudice against anybody that wants to date my daughters.  I want to, and will do everything I can to make sure that our daughters will be open with us when it comes to sex (among other things).  But what I was suggesting, was that two things should have happened.  The first, since parents were not allowed inside the gym, which I totally agree with, there were chaperones inside.  The chaperones should have interrupted the grinding.  The disc jockey should have changed the “atmosphere” of the floor by switching to other genres of music.  This can be done.  I have done it.  There is plenty of music that kids can listen to, without having the need to rub junk and privates.

The excuse that “this is what kids do today” or “all the kids are doing it” does not carry any merit.  While entertaining on an adult level, for adults, that is up to the individual.  I will admit that I have no problem with this particular dance move while watching a television show like Dancing With The Stars, but not a four-year old on Toddlers and Tiaras.  But I will provoke you with an additional thought that popped into my head after I hit “publish”.

A parent would no sooner tolerate a boy grinding his junk on their daughter’s private bit, any more than a parent would allow the old “yawn and reach around move” at the movie with his hand ending up resting on her breast.  No, there is absolutely no difference.

I know that the values that Wendy and I are instilling in our daughters will be tested, stretched, and some perhaps ripped to shreds.  We can only hope that they will respect themselves enough not to participate in such a demonstration.  Can it be harmless?  I think not.  There is a big difference from doing “the bump” and getting poked by wood.  The girl may not realize any satisfaction or tease out of it, but he will.  And that is what makes it wrong.

Finally, consider this.  What if it is not all fun and games for the girlfriend-less kid who just happens to be joining in on a grind session and gets caught up in a moment?  Thinking the girl might be interested in him because she continues the grind with his participation causes him to misjudge what is actually happening.  And then, while waiting for their parents to pick them up after the dance, the boy tries to carry on a conversation, but the girl wants nothing further than what happened on the dance floor.  And if he does not accept that response… then what happens?

So do we continue to just react as parents, or do we do our best to prevent?

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