Paul's Heart

Life As A Dad, And A Survivor

The Panic Room


Wrapping up the anniversary of my emergency heart bypass for this year, is a topic that I have not previously talked about before. But perhaps of all the things that traumatized me about this surgery, to this day occurred after the surgery was completed.

In the hours prior to the surgery, all I knew was one elementary level thing, the doctors were going to cut open, and break open my chest, to perform heart surgery. There was no time to dwell on the “after” part, as many patients often have weeks or even months to ponder what is going to be done. In that aspect, I was appreciative to not have been tortured with time to dwell on my surgery.

I have been placed under anesthesia many times, and I have never had any issue coming out of it. A slight fog, some focusing, and usually the cobwebs were clear in about a half an hour.

My younger daughter had been placed under anesthesia for ear tubes. My older daughter had this done, and breezed through it. So my younger daughter was expected to go the same way. It did not. As my daughter awoke from her short, forced slumber, her eyes wide open, you could see “fear” in her eyes as her head jerked back and forth, trying to get her bearings. Clearly she recognized that she was not in the room she fell asleep in, and woke up somewhere else, and did not know why. Panic, from a two year old. It was heart breaking to watch. But I was there, talking to her, calming her, and in less than a few minutes, that silly little smile was back on her face, ready to go home.

It was my experience from the heart surgery, that helped me to understand what my daughter was going through.

When my eyes began to open, there were no thoughts at first. I did not even realize that I had just had open heart surgery. The room was very dark. I could not move my head. So what little I could make out, moving my eyes in different directions to figure what I could see, I saw lots of electronic lights throughout the room.

I could not talk. I began to hear noises. A slight humming. Some beeps. My vision began to clear up. My eye movement was quicker as I tried to make out where I was.

Just then, I heard a voice from one of the sides of my bed. It actually sounded like a young boy.

“Mr. Edelman. My name is Joe. I am your nurse. I need you to try to calm down. You are okay. The surgery is over. You did great! But I need you to try to relax.”

That is all I remember at that moment, because I went back out. “Joe” had given me medication to sedate me, as my heart rate was escalating higher than it should have, because I was panicking as I awoke.

Unaware of how long I was out, as I came to, I could see “Joe” by my side, still unable to move my head, but he was in my peripheral viewpoint, tinkering with something by my bedside. The noises all around me were much more clear as well.

“Hey there Mr. Edelman. My name is Joe. You saw me a little while ago, but I had to give you medicine to calm down. I have some things I need to tell you. You are not able to talk right now, as you have a tube down your throat helping you to breath. It is okay. You are breathing on your own, the machine is just helping you.”

Just then I could feel my hand being touched.

“Mr. Edelman, I am going to ask you some questions. But since you cannot talk, I want you to lift a finger on your right hand if you want to answer ‘yes’, a finger on your left hand if you want to answer ‘no’. Do you understand me?” I raised a finger on my right hand. So far, so good.

“Do you know what happened to you?” Typical me, instead of just a simple answer, even without being able to use my mouth, I raised my right hand by the wrist, rocking it back and forth, as if to explain, “kind of.”

“Do you know where you are?” Again, I answered with my whole right hand.

“Mr. Edelman, you had heart surgery. Do you remember having to have it?” I raised a finger from my right hand. I remembered I was supposed to have heart surgery, though at the moment, I was not really feeling anything with my body, including whether anything had been done at all. I had put my trust in “Joe.”

“Your surgery was successful. You are in the intensive care unit. You are doing great.” Funny, I was not sure what I was feeling, because I was not feeling anything, except for confusion. Why couldn’t I move? What are all these lights and noises around me for?

“Are you in any pain or discomfort Mr. Edelman?” I lifted a finger from my left hand, no.

Just then, another individual came into the room. Still darkened, I could not really make out who it was, but from the silhouette of the hair, I could tell it was a female. Still unable to move, I tried to see who it was. But then she started to speak to Joe.

“Is this Mr. Edelman?” she asked. Joe responded, “yes it is.” “I’m Heather. I was his nurse over in the cath lab yesterday. I had heard that he needed to undergo a double bypass and just wanted to stop by and see him.”

Okay. So far, two total strangers. I have yet to see anyone familiar to me from prior to this “fog” I was in, or anyone personal. I did not expect to see my daughters as they were three and five years old. But surely someone had to be around. It’s not like the last two years dealing with Covid, there was only the restriction of limiting one immediate family member. I had Joe and Heather, that was all.

Joe spoke to me, “Mr. Edelman, I need you to try and calm down. Your heart rate is higher than we would like. I can tell something is upsetting you. And I know you must be frustrated that you cannot explain it right now.” At that moment, I raised my right wrist, rocking it back and forth, as emphatically as I could muster. “I know Mr. Edelman. But I need you to try and relax. Someone will be here soon.”

I could see Heather walk around the foot of the bed. I remembered her from the day before. I could not understand what she was doing now by my side. She told me that so many people in the cath lab were pulling for me, knowing how serious the situation was, and of course, mentioning “for someone my age.” Heather encouraged me that I was going to be fine. The hard part was done. Now I needed to heal.

Joe had asked Heather, if she had a moment to spare, if she could help him “clean” me up, also known as bathe me. Together, they got any remnants from the surgery done earlier removed, dried blood, betadine, and anything else. I could not move my arms or my legs, evidently if I wanted to or not, whether I could feel them or not. And though I could not verbally talk to them, they included me in their conversation while they took care of me, and I responded in the same manner as I had done since I came out of the surgery.

When they were done, I could begin to feel some pain. A good thing to me, as I wanted to at least feel something to know that I was in fact alive. “Are you in pain Mr. Edelman?” I raised a finger on my right hand to indicate yes. Joe disappeared from view momentarily, and returned with a syringe that he injected into my IV.

While I was taken care of so well by Heather and Joe, as the medicine began to take effect, I started feeling groggier. Before my eyes closed, I did what I could to take one look around the room, best I could, other than Heather and Joe, I was still alone. Something about this “dream” was not right. Why wasn’t anyone here for me? Doesn’t anybody know what happened to me?

When I woke some time later, having no windows, I had no concept of time, I had a new nurse, Jackie. Joe was reviewing everything that happened from the surgery, through his care. Importantly, he explained how I was answering “yes” and “no” questions. The room was still darkened when she came in. But taking a look around, I could see that there was still no one there, other than my nurses.

“Mr. Edelman, I am going to need you to try to relax,” Jackie calmly tried to ease my stress, beginning to turn towards panic. “Everything is going to be okay now. Very soon, we are going to start removing some of these things, especially the breathing tube. That way you will be able to talk to me. You are doing great!” Though she was very reassuring, it did not have the desired effect of reducing my heart rate, and out I went again.

The final paragraph of this post, I would wake to Jackie by my side, and now some others, who were going to disconnect me from the respirator, and some of the other machinery. More aware of my surroundings, as well as noticing some more level of pain, once everything had been removed, I had the freedom to turn my head to look further around the room, thinking that was why I did not see anyone in the room in the ICU, because just my eyes could only see so much of the room. Maybe who I was looking for was just out of my view the whole time.

Nope. Nobody else was there. Just Jackie, Joe, and Heather. I would never forget that night.

A Super Hero Effort


Continuing on with my post from yesterday, on the 14th anniversary of my emergency double bypass, the fog had worn off from the prior anesthesia, and all I could do was look at the clock. It was now after 8pm, I had just gotten a slight appetite, but now not allowed to eat because of the need to fast prior to the surgery.

With the pre surgery testing complete, not being able to eat, all I could do is wait. I could not sleep as my nerves definitely were getting the best of me. How could this be? I was only forty-two years old, and in fairly good shape. I had been exercising regularly. I was active. I did not smoke.

Per my request, an orderly came into my room around 3am, I was not able to sleep. I had asked to be taken down to the hospital chapel for a few words. I do not believe in organized religion, but I do believe in a higher power and that is as far as I will go with that. Upon my return back to my room, a large figure, I could only compare to the actor Michael Clarke Duncan, feeling specifically like I was in my own movie of “Green Mile.”

He was there to prep me for surgery, as well as take me there. Why did I get the feeling there was a need to have someone so much larger than me and more powerful than me, as if necessary to make me comply? In reality, one of the few people in my care during any procedure, never a word spoke between us, hence, never knowing his name. And for as big as he was, he was a gentle giant of a man.

I was placed on a gurney to go down to the operating room. It was 4:30am. Other than the pre testing, I was completely unaware of what was about to happen, other than the simplistically put, “having open heart surgery,” which I clearly understood. Unlike other patients who would have days, weeks, or even a couple of months to dwell and think about what they needed to go through, I had no time to worry or obsess, or stress.

The actual operating room that I was delivered to, was twice this size, and filled with so many television screens, multiple pieces of equipment, and of course, the operating table, which I was transferred to upon my arrival. I could see piles of materials and surgical tools, I knew all of them meant for me. I was scared, but I was also amazed by the clear effort that was about to take place.

Of in the distance, I heard one of the nurses make the comment, “he’s too young for this.” I normally do not respond to conversations I was not meant to hear, but this time I did. “I am young. Quite young. And I want to get through this. I need to get through this. My daughters need me.” Still, they were my focus on this, even more than the surgery.

As they continued to position me, and organize everything, the last thing I remember, was them removing my hospital gown. Yep. Just laying on the table, all sprawled out, in my glory, also now being restrained. Nowhere near ready to begin yet, my anxiety must have been registering, as I remember nothing after that moment.

But clearly, a lot was about to happen. And it was only by reading the operative report, that I could not only see, but appreciate the extraordinary efforts that went into saving my life.

This was my super hero. He did not wear a cape or mask. But he did have the most steady hands, nerves of steel, and the best skills necessary. Reading through the operative report is an amazing story, and quite surreal. This stuff was actually done to me. I won’t post the entire report, but some of the highlights:

  • a median sternotomy incision was made, exposing the sternum. Simultaneously, a vein was being removed from my left leg to be used for the bypass
  • a decision was made to use a different artery, the mammary artery for the bypass

This next part is what still shakes me to this day. It is extraordinary.

  • “The patient was placed on bypass, cooled, and emptied.”

In other words, I was put onto a heart/lung machine, that would do everything for me, my body about to be unable to do it on its own. Cooled and emptied? Yep. My heart was drained of all blood. And then came the ultimate moment, planned and necessary of course.

  • “The heart became asystolic.”

My heart no longer had any electrical activity. My heart was no longer beating. My mind is still blown seeing these words. Clearly I am here, as I am writing this post. But technically, on my own, I would have been dead. To keep risks against survival from this process, patients are intended to not be on this machine more than one to three hours if possible. My documented time was forty-five minutes.

  • the bypass process had been completed

And then the really cool parts:

  • “hot shot of warm oxygenated blood solution was given.”
  • “the heart was allowed to fill.”
  • “the heart fibrolated at this time.”

My heart was beating on its own again. How chilling that is to see in writing. And I survived this.

And finally:

  • “I closed the pericardium loosely, rewired the sternum, and closed the wound.”

The surgery had been a success. I was off to recovery.

My doctor was a hero once again.

The “Oh Sh*t!” Moment


Continuing on from yesterday’s “anniversary” post, as promised, I arrived at the Cardiac Cath Lab at six in the morning for what the cardiologist had described as an “in and out” procedure, “a stent or two and would be good as new.”

Without getting too lost in the weeds, a catheterization process involves a thin tube being inserted through an arm or leg, in my case a leg, fed through a blood vessel to the heart with a small camera to look for issues such as blockages or irregular heartbeats. During this process, if the doctor sees something that needs correction, which was already assumed in my case, he fixes it, again, expecting to place a stent to open up what is expected to be a blocked artery. Textbook procedure.

My nurse Heather had prepared me for the procedure. I do not remember why, but a conversation about my surviving Hodgkin’s Lymphoma came up. It might have been, because I was only forty-two years old, way too young for heart surgery, and I had explained that I had already been through a major event, so, age really had nothing to do with it.

My biggest concern, was that I had no spleen, removed as part of the diagnostic and staging procedures for my Hodgkin’s. So, I urged Heather to make sure all involved, knew that I was at an increased risk of infection and to take all necessary precautions. I wanted this to go as simple as possible.

When I came to, in my room, I saw my cardiologist, and a friend/co-worker who had stopped by to see how I was doing. The looks on their faces were serious. Though I remember the conversation, at that moment, it was not sinking in.

These are the actual images from my heart, and a drawing to make sure I could clearly see and understand the moment. A moment that was so extreme, and because of coming out of the anesthesia, I could not grasp how dire the situation was. Perhaps that was a good thing.

It was explained that I had three blockages that were of concern, one to the degree that even as a cancer patient I had not given the prognosis a possibility. The most serious of the blockages was the main artery, blocked between 80-90%. My friend, who also happened to be a paramedic, blurted out, “oh my God, it’s a ‘widow maker.'”

This simplified exclamation from my friend, though accurate, caught my cardiologist by surprise. “Yes, though we don’t like to call it that.” As I mentioned, I was fortunate to still be groggy from the anesthesia. I had no idea, that I could die at any moment, a fact that my cardiologist would tell me at my first follow up appointment a month later.

A blockage like this, nicknamed “a widow maker,” is referred that way, because the result is a major and fatal heart attack and unless it is able to be responded to immediately, the likelihood of survival is zero. The fact that I had symptoms for as long as I did, and did nothing about the situation, even more astounding as to my luck of survival. As my cardiologist phrased it, “it was not a question of ‘if’ you were going to die, but ‘when.'”

Oh shit! But as I was not understanding fully what was going on, my cardiologist was also confronted with his own “oh shit!” moment, clearly not expecting to have run into what he did.

I was scheduled for an emergency triple bypass the next morning, April 18, 2008, which was Friday, as in the anniversary of that day is tomorrow.

I thought the worst I would have ever had to deal with in my life, was going through cancer. My heart said…

As the anesthesia wore of, I discovered I had a busy twelve hours ahead of me in preparation for this surgery. The doctor had to find a vein to be used for the bypass, likely from either of my legs. Chest x-rays would be done, and tons of blood work. All of this had to be done quickly, as I was scheduled for surgery first thing in the morning. But there was one thing that I could not do before then.

See my daughters one more time. Hug my daughters one more time. It was an awful feeling. I could not even tell them I loved them one more time. And as long as the surgery was successful, it would still be days before I could see them.

Post Navigation