Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Education”

“It’s Not The Heat. It’s The Stupidity.”


Not a surprise to those of us who live in Florida, we just began hurricane season a month ago. And we now have our first hurricane approaching, Elsa. Such a friendly name, a Disney princess in fact. Nothing like Katrina who would likely be a rushing spy, or Irma, a cranky old librarian (Harry Potter reference to Irma Pince).

A surprise to those who do not live in Florida, we just began hurricane season a month ago. And now there is a hurricane approaching.

For those of use who live here, having been through strong named storms, most recently Irma, we know how to prepare. More importantly, we know not to panic. But for those that vacation or migrate here for periods of time, it is a different story. But how we handle it as residents, and how they handle it as tourists, our priorities could not be more different.

A post this morning torqued me the wrong way, not easy to do, but if there is one thing that I fault in people, is not keeping perspective in life, the things that are important. The post read, “HELP! I am arriving on Wednesday! What is going to happen with the storm?” Social media did not disappoint with their responses. I chose to bite my tongue because I would not have been as kind as the smartass answers that were posting. “You’re going to get wet.” “Party!” Eventually the post was removed because I am certain the responses were getting quite extreme either in sarcasm or worse.

This is a photo from the aftermath of Irma several years ago. I was living 50 yards from where this photo was taken. Yet, within two weeks of the hurricane landing here, people were travelling here to continue with their plans to vacation. And then, they were shocked and pissed because their environment had not been cleaned up yet after just two weeks. The truth is, many in this particular area were still without power.

This was not the first time I saw this behavior. The year prior, the Everglades had a monstrous brush fire. That was more than twenty miles away from me, yet, I had quarter coin sized ashes falling in my parking lot. Vacationers would come in to the building off the beach, complaining about being showered with ash, and it was ruining their vacations. Living here, I was more than aware of the totality of loss that residents were experiencing, and I snapped. “What the hell is wrong with you! You are worried about your vacation? You do realized people have lost, or are losing their homes to this fire?!”

A close friend of mine used to quip during the summers, especially during heat waves, “just remember, it is not the heat, it is the stupidity.” I have now come to realize just how true this actually is. It is no longer “not the heat but the humidity,” but rather the stupidity and the drama that people seek.

Amusement parks have finally opened and are doing what they can, especially when it comes to mitigation efforts and staffing. Many are struggling to get back to full operating capacity with staffing. And of course, the griping and the sniping of the inconveniences to those who want their park to be open now and in full are sounding off. These people do not care about the problems that the park is dealing with, and they are dealing with them, it is an inconvenience to the individual consumer… DAMMIT! I can only sit here shaking my head.

Even on local levels, local residents struggle balancing their selfishness with understanding, and what they know to be the situation. Snack shacks at community pools and the shortage of staffing, have led to rudeness by adults waiting in line, not kids, but adults. I guess they would be happier with the snack shacks closed until they could be open. But wait, we have just been “closed” for over a year, and DAMMIT you want everything opened 100% just like it was prior to the pandemic.

Even our skies are no longer friendly. Statistically speaking, there have been more incidents on airplanes in six months, than there were all of the prior year. And of course, 65% of those incidents were sparked by morons refusing to follow orders of the attendants to wear the masks and properly. While they do not go into individual detail, that means there is still 800 cases this year, non-mask related, that people got out of hand with flight attendants. What the hell is wrong with people.

The US is in the middle of this ridiculous heatwave like we have never seen before. But clearly these behaviors were happening before the heatwave. Maybe my friend was right, it is not the heat, but the stupidity that is causing people to lose perspective of what is important.

Then again, not everyone has had to deal with life threatening situations to remember what is actually important in life.

Adding An Insult To An Injury


I have to go back to 2007, for the last time that I visited a doctor for anything not related to my Hodgkin’s Lymphoma and treatment past. Since April of 2008, it seems that all of my appointments following my emergency heart surgery, have had some sort of tie to what I had been exposed to.

My health history prior to me having cancer back in 1988 and the time between the end of my treatments in 1990 and April of 2008 could not be any more simple. I had only three primary care doctors. One died still practicing in his eighties. Another retired. And then the current doctor I still have, now well over thirty years. The most challenging thing I usually gave them, was a seasonal allergy that resulted in a steroid injection to get through the Spring. Other than that, if they saw me in the office, it is if everyone was put on red alert, something had to be seriously wrong. Like the time I got into some poison sumac (I will spare you the pictures), way worse than dealing with poison ivy let me tell you. My medical record could not really be more than maybe a half an inch thick.

Even my battle with cancer did not change the size of my file too much with my personal physician. Cancer records would be kept with my oncologist. But once it was determined that I was dealing with issues related to my treatments, and that multiple disciplines of medicine would be followed, I needed to have a central advocate for my care, the main communicator between them all, and that was my primary care doctor.

It was not long before I would have more frequent communications and visits with her, coordinating everything from all the specialists that I would eventually see. Soon, my file grew to two inches thick, and then a second folder would be started. Today, with everything being digitalized, I am happy to see that a tree will no longer be sacrificed for my record keeping.

As I said, it has been a long time since I had a “normal” doctor visit, not related to my Hodgkin’s past. The last injury that I had to deal with was back in 2003, a tear of my left triangular fibro cartilage in my wrist.

Concern over carpel tunnel was eliminated because that would have occurred on the other side of the wrist. I was performing a function at work, that caused a “jerking” of the wrist, hence tearing that cartilage. The workers compensation process was a major thorn in the side as I was originally denied the claim, went through the legal process of appeal, and it was determined that this type of injury only occurs at someone’s employment.

With one caveat. Apparently, as you approach your middle ages, forty-ish, this cartilage begins to deteriorate until you have none according to my understanding. I was in my early thirties at the time, so this was not the issue. The injury was determined to be work related.

Seventeen years later, I found myself in need to seek medical help for the first time, something not related to my Hodgkin’s.

I had a huge pain in my foot. I tolerate pain fairly well, so it is often quite a time before I do anything about it. But with levels reaching between 7 and 9, and a well pronounced limp, and given my history of high dose prednisone during my chemo treatments, leading to one of my many late side effects, osteopenia, I have a higher risk of bone breakage. For the life of me, I could not recall when or where the pain first started, but I was concerned that I could have had some sort of stress fracture in my foot.

Now used to all of my medical appointments beginning with me explaining my cancer history and where I am healthwise today, I was cut short by the PA and I quickly realized, this was not an appointment having to do with my cancer past, well, as far as they were concerned. But because I did emphasize my osteopenia, to which I was immediately questioned how I knew, they opened the door, and I explained briefly, a word not often used with me, a DEXA scan confirmed it due to my chemo past. And with that, an x-ray was ordered. Fortunately, no break was found.

But as the PA ran her finger underneath my foot, from the ball of my heel, towards my large toe, my pain level shot through the roof.

I am not sure how, as I am not overly active, more than a daily walk, but I ended up with what is called Plantar Fasciitis. The tendons under my foot were angry, very angry. So, I was given a list of things to do to help the healing and recovery for a common ailment for many, concerned friends and family inquired to my diagnosis.

It is one thing to have to deal with this injury, but as one of my “concerned” friends promptly pointed out, while this kind of thing is common, it is also associated with getting older. Thirty-one years out from my cancer, I have gotten to that stage in my life, I did not think I would see, getting older. But having done so, not only do I have my cancer issues to deal with, but now I get to add “getting older,” adding insult to injury.

Trying To Outrun The Inevitable


I was asked not too long ago, “when did you know that you wanted to be a Dad?” And when I answered “right after graduation,” it was not because I was looking to go out an populate the world right away. Rather, I had been so hurt by my father at that point, I wanted to prove to myself, that I would not make the choices that he did. I would be there for my children. I would be the father that I wanted, needed to have.

Hodgkin’s Lymphoma took that opportunity away from me. However, through adoptions, I was given that chance back again. And regardless that my marriage ended in divorce, that did not mean that my role as a father would cease either. In fact, I faced a similar crossroad that my father faced, when it came to his children. But I chose the other path.

As I often state, I will not go into details of my divorce, but the one thing that has been constant in the eight years since? I made the choice to stay involved with my daughters. Certainly it has not been perfect, or ideal, but I have done all that I can to make it work. Hell, even a pandemic could not stop me.

So, having followed through on my self-promise, as a father, and managing the multitude of health issues from the late developing side effects from the treatments of my Hodgkin’s, I have arrived at an even bigger stage of life, my daughters having grown up, and becoming women of their own selves.

All parents go through it, their “babies” growing up. So this is not something unique upon me.

My emergency open heart surgery, was the first time that I had been separated from my daughters, ever! It was the longest week of my life, with the night before the surgery, the most difficult, because prior, I was just supposed to have a simple catheterization to correct the problem, so my goodbye to my daughters was nothing more than a “I’ll see you tomorrow morning.” But that next afternoon, turned into a “life and death,” a very risky surgery, something that I might not survive. All I wanted was to hold my daughters one more time.

Obviously I survived, but divorce would soon lead to time apart via custody agreements. But with the help of technology, Facetime, texting, and other media, I was at least able to make daily contact with them. But for my daughters, with the exception of an overnight visit with a friend, they have never been apart from each other.

A friend of mine warned me a long time ago, of the time coming, as his daughters got older, they would ask for moments when he was scheduled to spend time with them, that one or even both, might have either plans, of course to a teenager, they would be important to them. That would result in his visit with perhaps only one of his daughters, or both, or even perhaps none. I could tell it was hard on him. I would dread that time coming, and resist it as best as I could.

I do not know what I did that was different from my friend, but I managed to spend every available moment with both my daughters. But with one daughter now eighteen, she is now able to express her own decisions, and yes, now I am at yet another crossroad, and this one is not up to me to decide. All I can do is hope that I had enough of an influence, that decisions that affect both of us, will keep our relationship in mind.

While the term “empty nest” does not really apply here, because that would imply no children at home any more. I have many friends who have already experienced their children having moved on and are now on their way through grandparenthood. But I do have a few friends that are or have just gone through this similar stage, one child of multiples having gained independence, the feelings of “loss” are still just as painful. I am not looking for sympathy, but I do know that there is empathy for me.

I have had one of the best Father’s Day visits with my daughters. But for one, the time was cut short, as she chose to travel home before her younger sister, staying with me a few extra days. As we dropped off my older daughter to return home, it did not take long to realize someone else was being affected by this, my daughters. As I mentioned, they have been together basically their entire lives. This day would be inevitable when they would go off to college, but it is happening now.

You could see what this meant to them, all day prior to the departure. While they have always gotten along with each other, there was definitely some last minute bonding happening. Back at the house, now with just one of my daughters, this was a new experience for both of us. It is only a short few days more before my younger daughter heads home, and back to her sister, so this short “test run,” will help us to adjust for the future. The summer visit will be a true test, as it is several weeks, my older daughter has arranged other things during her summer, and is likely at best, maybe to only visit a few days. It will definitely be the longest time the sisters have been apart from each other. I see this as an opportunity to help them to establish a line and need for communication for when the actual college departures come in to play. I will do all that I can to make sure that they talk to each other frequently.

It is going to be an adjustment for all of us for sure. My daughters know that I love them both equally. The only advantage one can even claim, is simply by age. When it came to gifts, decisions on activities, help with homework, and more, both daughters know they can count on me. I had time with only one daughter by herself, way back, waiting to adopt my second daughter. And now, with visits, it will be my younger daughter who will get focused attention.

I am sure all the while, we will be wishing my older daughter, my younger daughter’s sibling, would be with us.

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