Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Cancer”

On No! It’s Snow!


Next week is going to be a very busy week, and a very important week.  I suppose I will get a lot of time to prepare for it this weekend as the weather fearmongerers are at it again.  We are to prepare for a snow storm of historic proportion.  My area is not expected to get hit as hard as say New England, but I need to take this storm, called Nemo, seriously.

Seriously.  Nemo?  An epic disasterous snow storm has been named after one of Disney’s most beloved characters?  I wonder if there are royalties in it for ABC for every time the Weather Channel mentions the name.  I do not see the point to have to give snow storms names now, but it looks like it is something I have to accept.

But again, seriously, the weather service could not come up with a more ferocious or evil name that begins with an “N”?  Nosferatu.  Napoleon.  Nixon.  Nina (of 99 Luftballoons).

In areas of severe amounts of snowfall, you never hear local residents express fear, despiration, panic as today’s trends seem to take us.  Syracuse, Erie, Denver, Minnesota all see more snow in one day often more than we see in an entire year.  Growing up, I remember being able to shovel out tunnels from the snow piles, barely able to lift my legs above the surface of the snowfall.  Of course, as a child, this often meant a snow day off from school.  Snowball battles, skiing, forts, were all the pure enjoyment of a major snowfall.

I recall in my high school years, attending school in a district that did not provide bus transportation, we never saw snow days.  You either took public transportation, a relative drive you to school, or you walked.  Now if you will excuse me, I will now channel my grandparents for the following speech… “why, when I was a kid, I had to walk uphill and downhill, four miles each way, across high bridges, heavy rains, head high snow piles and…”  Phew they are gone just before they can add “barefoot”.  But where I lived that is exactly what happened.  Whenever I visit home with my family, I am always quick to remind them, I actually did it.

But on February 11, 1983, we did get hit with a major snow storm that did have an impact on school, over two feet.  It did shut everything down.  But I definitely do not recall every hearing “end of the world” tones and having to rush out and strip the shelves of everything from bread to toilet paper.  It would snow.  The snow would stop.  We would shovel.  Then move on.  In fact, while many schools had cancelled even the next day, our schools were open, even without a delay.

I still love the snow today.  I have had to alter my lifestyle a bit due to recent health issues.  My heart surgery caused an approximate ten degree drop in temperature tolerance meaning the cold bothers me a little easier.  To think, just five years ago, I was still wearing shorts in January and February regardless of the weather.  Pulmonary issues make it a little more difficult to trudge in the snow.  But then of course, there is age.  Once we hit our mid-30’s it seems we become concerned with the act of shoveling snow.  It is a fact, that snow shoveling is one of the more strenuous acts many of us do, made worse by the fact that it is not often that we have to do it, and we do not train for it.  But we have heard story after story of someone having a heart attack while shoveling snow.

Nearly five years ago, unknowingly, I could have faced that fate.  With a fatal condition developing over the years from radiation therapy for my Hodgkin’s Disease, the main artery to my heart at that point of winter was now close to 90% blocked or scarred.  As it would be discovered just two months later during a stress test, it was literally seconds before the blood flow was restricted to my heart.  I felt it happen.  It scared me.  I stopped.  The feeling stopped.  I went about my business.  Until April.  Following that stress test and subsequent heart bypass surgery, I was told that I had actually prevented what was destined to be a fatal heart attack.  This should have been enough of an attention-getter.

The following winter after my heart surgery, I must admit, I was outside with the snow shovel as always.  I have a three care driveway and approximately 150 feet of sidewalk to shovel.  That winter was not particularlly difficult as far as deep amounts or frequency of storms, but I was out there with shovel in hand.  I found out, that I have neighbors as well, who knew of my health history and quickly came out with their own shovels and snow blowers scolding me to put the shovel down and get back inside.

But being from a stubborn family, I believed that I could still shovel.  Two things I did under my own power, mow my lawn and shovel snow.  Last winter, I finally caved in.  After the first of three decent snowfalls, I could tell that my body was no longer up to shoveling, lifting, and tossing snow.  To push it any harder would have been foolish.  And I know that (see the post “Stress Kills).  So prior to the second storm, I broke down and got a snowblower.  And it was not so bad using it.  And I could still enjoy being out in the snow, and not end up being “out” in the snow.

So for those of us in the path of the Might Nemo, have fun, do not be afraid.  Snow is no different than when we were children.  But the consequences of not using common sense as adults is what is to be of concern.  If you must shovel, pay the neighbor kid to do it.

writer’s note = I woke up this morning (February 9th) to a history, epic, monstrous two inches of dry powder snow.  Of course, the local grocery store shelves were empty, gas got bumped up a nickel a gallon just in time… thank you Nemo and the weather mongerers for the shot into the local economy you gave us.

“Milk. It Does A Body Good.”


That is the campaign slogan I believe from the Ad Council.  And in every magazine ad for this slogan is a celebrity with a milk mustache.  But we know, you did not need to be a celebrity to wear a milk mustache.  As kids, we did it all the time, often getting scolded for making a mess.

Today we can be “scolded” over Vitamin D for another reason.  We in the northeast corner of the United States suffer from a Vitamin D deficiency.  This appears to be a relatively new concept but fairly obvious to understand why.  We do not get to see a lot of quality sunlight as it is, and then when the colder weather comes, and seasons change, we see even less daylight.  So unless you take suplements or drink tons of milk, your body is not replacing Vitamin D sufficiently. 

Beginning in the late Fall months and into Winter, we are destined at one point to develop at least one common cold.  If we are unfortunate, it will get worse and turn into bronchitis.  However, if you get repeated illnesses, or their duration lasts entirely too long, some doctors are now turning away from five prescriptions of more and more antibiotics and instead looking at blood levels of Vitamin D.  It should be of no surprise if our Vitamin D levels fall below the range of 30-100.

For myself, during what is considered standard protocol for me when it comes to my annual bloodwork, I hit a Vitamin D low of 22 three years ago.  I was given a prescription for 50,000 units for the quick shot, followed up by 2000 units a day.  Currently, I just take 1000 units a day and have maintained a safe level at this point.  I rarely develop colds.

Wendy on the other hand, comes down with a sinus infection monthly, if not more frequently.  She is also dealing with other issues.  But one of the first things that was checked as a concern was growing that she was dealing with something auto-immune, was her Vitamin D level.  Vitamin D as it turns out, plays a major role in supporting your immune system.  So besides living in the northeast with the winter blahs, your immune system may also pay a price.  A couple of years ago, when this first became a concern with Wendy, her level was checked and scored in the single digits, practically non-existent.  Today, Wendy knows she is battling something more serious, as she continues to struggle to get her Vitamin D level up to a decent level, which if achieved, might reduce the number of colds and sinus infections that she gets.  But for now, the plan is only to continue on the supplements.

In my case, it is the same thing.  I have a low level, right around the minimum.  I do not get sick as often as Wendy does, but with my immune system being compromised already by not having a spleen (asplenia), it is important for me to do what I can to boost that blood level.

In recent months, I have come across many people, close friends and family, who have been battling bronchial symtpoms for a long time with no resolution.  It is almost instictive of me now to ask, “did you have your Vitamin D checked?”  Almost always, the answer is going to be “no.”  But it is something that is reasonable to be requested.  Some insurance companies, or even some practices will tell women that Vitamin D will not be checked until having gotten through menopause, which is just plain silly.  If you are sick a lot, right now, you should not have to wait for the big change to get this checked.

I must stress, that I am not a doctor, but I would like to play one on TV.  I am however, an advocate for getting an accurate diagnosis, leaving no stone unturned.  I believe the sooner you get diagnosed, the sooner you can get treated with the least severe of modes.

So… drink you milk.

February 5, 2013


Today was an unplanned trip to MSKCC for an extra test ordered by Dr. M.  He is considered one of the best in the discipline and has experience with radiation damaged bodies.  Today he had ordered a barrium swallow scan.  I am dealing with a recurring swallowing issue.  Two years ago, I let it get bad enough that I was barely able to get water down my throat.  This period last well over eight months.  With the symptoms returning, I was not going to wait as long this time.

My doctors do not like that I wait until I hit DEFCON 5 to do something about my discomforts, and I am slowly coming to grips with living that way.  When it comes to the area of my body that took a major hit from radiation therapy, I know that symptoms, decisions, and actions will be critical.  My appointment is early this morning, earlier than I can normally get there using public transportation, but I was able to pull it off.  My tech was young, very polite, and soothing.  It is very easy to become overwhelmed once you see all the fancy equipment.  Even from twenty three years ago, I have always been fascinated with the technology.  I am not advanced enough to understand it fully, but enough to know what is going on.

Because of my fascination with the procedures, I am also able to pay attention and understand what is happening.  I probably should have added an asterisk when it comes to observation.  I am SUPER squeamish.  In spite of everything I have been through, I will pass out looking at a paper cut.  Back to topic.  The barrium swallow test is going to be basically a live xray of me swallowing a “radioactive” solution multiple times to watch how the liquid (and a couple of solid items) pass down my throat.  They will also be looking for areas that food and liquid get caught.  The substance is not the greatest tasting at all, and being warm does not make it easy to go down.  But it does go down.  At one point, I was given a small amount of a “fizzy” substance (similar to “pop rocks”) which I was supposed to swallow to get closest to my throat as this substance was going to dialate the throat.  That was wierd.  I was told to resist the urge to belch which I did not think was going to be difficult, but as soon as it went down, yep, I wanted to burp.  I held out though.

So that is all for the swallowing part of it.  What did they find?  I cannot stand when a tech tells me, “okay… good to go… the results will go to your doctor and you will hear from them.”  I should be happy with that after all, the last time I had to see a doctor immediately following a test, was when I had my heart surgery.  Unfortunately, I do not like surprises.  With my colonoscopy and endoscopy planned for next week, what currently stands as an outpatient procedure, I know can now be somewhat involved.  I am a “plan for the worst, hope for the best” kind of guy.

The first thing that they found clear as day was a hernia.  And yes, it is one of those discomforts that I have had for a long time, as in years.  As a long term survivor, I do my best to have my symptoms and complaints responded to and treated, so I do not want to come across as a hypochondriac.  If I recall, this was picked up on last year’s endoscopy, but was not of concern then.  The other item that was discovered they called a diverticulum.  I do not know if this is related to a diagnosis of diverticulitis or not, but one thing was clear.  The muscles of my esophagus were forcing this protrusion out which blocked off my esophagus.  Definitely a clear indication towards my swallowing issue.  I am not sure how it will be or if it will be corrected.

The one surprising thought that caught me off guard was when they explained to me what this condition had the potential to lead to, pneumonia.  For weeks, it drove me batty trying to figure out how I came down with pneumonia.  In the case of diverticulum, they call it aspiration pneumonia.  My last bout of pneumonia was all infection, which means that the pneumonia could have been caused by this.  The important words to me though, were when the doctor said I had true symptoms.  Duh!!!  I know they were true. 

As I left the hospital, I called home to Wendy to let her know how things had gone and that is when she told me that our youngest was getting quite ill from her ear infection and needed to get to the doctor.  I had the only available car, so I did what I had to.  Tear open my shirt exposing the capital letters SD on my chest, my cape now flowing, and got home as quickly as possible.  Okay, quick bus ride, quick train ride, and quick ride down the pike, up the pike.

Fortunately for my daughter, who has a hard time looking sick (remember this as adults, we require people to look and act sick when they are really sick) is happy as a seven-year-old who just downed eight ounces of pixie stix coated Sour Patch Kids.  So, neither of us gives the outward appearance that anything is wrong, but thanks to the doctors who care for us, care and knowledge result in diagnosis and healing.  Thankfully, Emmalie’s issue is less complicated than mine.

Post Navigation