Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Cancer”

Counting Down To 30 Years


This picture is more than 30 years old.  In fact, as I am reminded by an invitation to my school class reunion, it is actually 35 years old.

But as the clock on this page states, I am approaching 30 years cancer free of Hodkgin’s Lymphoma.  In fact, I will hit that huge milestone in exactly 18 months.

And so, as I approach this milestone, over the next year and a half, I know that I will spend a lot of time personally reflecting on the path I took from discovery, to diagnosis, to treatment, to remission.

Of course, waaaaaay back in the early 1980’s, no one ever thought of turning their cameras backwards to take a picture of themselves, today referred to as a “selfie.”  And no one as far as I knew, never really thought of photodocumenting their cancer journeys.  You have to realize, as late as the 1980’s, at least as far as I was concerned, cancer was a death sentence, no matter what type of cancer it was.  The last thing on my mind was taking a picture of me, on a path to my demise.

And so, there are no photos of me during my time dealing with Hodgkin’s Lymphoma.  Fortunately, I have a lot of my records, and those are things that I will most likely publish to demonstrate just how far we’ve come.  To my knowledge, and if I find them before that 30th year milestone, there are only 3 photos taken of me during this time.  One, a photo for a church directory.  A second, a candid photo of me resting on my couch.  And finally, my current driver’s license taken during the middle of my chemotherapy treatments.  That I know for a fact will never see the light of day, because I was so adamant when I saw the photo, I never wanted to remember that time period again.

I have experienced so many things over my survivorship, some good, some not so good, and some awful and tragic.  But the fact is, I would not have changed anything that has got me here today.

I know so many survivors today, personally who have a lengthier longevity than I do.  And it means so much for me to have someone to chase after as far as longevity.  But I also realize my role for all of my “newbie” and “younger” survivors, and I hope some day that you all can enjoy similar memories and happiness, and of course the longevity that I have for all these years.

And a quote that I have used so many times in writings I have done…

“As I continue down the road of remission, I will keep looking in my rear view mirror to make sure that you are still following me.  And if you are not on that road, hurry up!  It’s a great ride!”

My 29th Hodgkin’s Lymphoma Month


It is really so humbling to realize, I am approaching 30 years of survival from Hodgkin’s Lymphoma.

It is humbling because 30 years ago, you did not hear very often about people surviving cancer.

It is humbling because of the many health issues that I have had to deal with, as late side effects, not known possible at the time I was treated, have often left me feeling worse than the cancer itself.

It is humbling because of all the wonderful people I have met over the decades of my survivorship.

It is humbling because of the many fellow survivors I have had to say goodbye to, either the disease, the treatments, or the late effects too much to take.

It is humbling because my daughters are coming to an age, that while they were not there during my treatments, they are faced with my care in the future for my late side effects.

It is humbling, because I never thought I would be writing this, nearly 30 years from my diagnosis.

What Happens To Dragons? They Die!


From the time that many of us learned what cigarettes were, the main reason for smoking, was to be cool.  It was cool because of the other cool kids you hung around that smoked.  But what was even cooler, smoking allowed you to breath smoke, just like dragons.

Do not worry, I am not going to go off on a rant on cigarettes and tobacco, much.  Because in our quest to find a safer way to breath smoke like a dragon, vaping came a long.  Instead of smoking tobacco and all of its toxins, it was believed that inhaling a vapor, with its known chemicals (some toxic) would at least be healthier, and you could still look like a dragon.  It has not been around long, but it did not take long to figure out, vaping has its own safety issues, and is actually considered more dangerous.

With laws targeting kids under 18 to prevent smoking, kids have found an option to not getting caught smoking.  Vaping.  And as usual, there is the sense of invincibility that nothing will happen to them.  Best yet, with no hot tip to extinguish, the vaping stick can be easily hidden, with an appearance that quickly dissipates, and an aroma that can often pass off for either a body spray or perfume.  While we assume it is happening in high school, do you realize it is already happening as early as middle school?  Seriously, the kids know it is going on in the bathrooms.

While walking through the mall the other day with my daughters, we came across a dessert stand.  They were selling “Dragon Breath”.

Dragon Breath is the latest craze that allows you to ingest something, and exhale “breath” like a dragon.  A cool mist resulting from liquid nitrogen sealed in the puff treat.  Once in your mouth and eaten, you can begin to breath like a dragon.

Cool, right?  Do you really know about liquid nitrogen?  You know the solid form of liquid nitrogen… dry ice.  Do you know what happens if you handle dry ice with bare hands?  Frost bite.  Do you have any idea how long it takes to heal from frost bite?  You get the idea.  While the liquid nitrogen being used in this “food” is nowhere near the temperature of dry ice, it is still super cold.  In fact, now there are ice cream parlors that freeze ice cream in front of your eyes in minutes using liquid nitrogen.  Liquid nitrogen itself is not toxic, but the damage it can cause from frost bite or other cold issues, is serious.

Recently, a child had an asthma attack in Florida.  How could someone have an asthma attack from eating cold.  It is not the eating cold, but inhaling to cold liquid nitrogen.

While I do not smoke, I do not vape, and I certainly will not eat “Dragon’s Breath”.  First, personally I do not see anything appealing about smoke or mist coming out of someone’s face.  I know, that makes me a killjoy.  But seriously, you need to understand how fragile our only set of lungs really are, and how crucial they are to every day living.

I wish this was what my lungs looked like today.  This is actually a picture of lungs after having been exposed to 20 grays of radiation.  You can see it does not look healthy.  So, thirty years ago, I was hit with nearly 4000 grays to treat my Hodgkin’s Lymphoma.  To this day, the lower lobe in my left lung is described as “dead”, and I have many “spots” on both my lungs that have never been identified, but rather are being watched to see if they turn into cancer.  Pulmonary function testing reveals that over the three decades, my lung capacity has been reduced down to 76% which is one of the reasons I sometimes experience a shortness of breath, especially during peak times of humidity or cold air.  That’s right, inhaling humidity or cold air trigger a response similar to an asthma attack for me, the only difference is, inhalers offer no relief.  I simply have to find a comfortable climate, sit, try to breath, and wait for the episode to abate.

Most of us at one time or another have been drinking something, and it has “gone down the wrong pipe” and we begin to cough.  There is a reason.  Liquid does not belong in our lungs.  Sick and elderly patients near the end stages of life often experience fluid build up in the lungs, often only to find relief in having the fluid drained.

Yeah, I know I am being a fuddy-duddy.  But going what I have gone through, and watching my dad die from lung cancer from nearly 6 decades of looking like a dragon, I have no interest in ending up like one.

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