Paul's Heart

Life As A Dad, And A Survivor

Archive for the month “January, 2013”

Hard For The Holidays


It is officially time for me to turn off the “anti” Christmas sentiment as Thanksgiving has passed.  I have always resisted and pretty much objected to not being allowed to celebrate Halloween and Thanksgiving without being overlapped by Christmas sale propaganda.  I have not always been this way.  But I have to go back to my childhood to remember when I embraced Christmas.  But my childhood is also when it began.

It was the year of my seventh grade, I was thirteen years old.  And of course, during the Christmas holidays.  Three relatives had passed away between Christmas Eve and New Year’s Day.  That was the first year that I was not able to enjoy everything that I had received.

And then in 1988, just prior to Thanksgiving, I was diagnosed with cancer, Hodgkin’s Disease.  Admittedly, I was a “seasonal” Christian meaning that I went to church at least on Easter and Christmas Eve.  I still approached my minister as I chose that particular moment to recognize God.  And just as Job did, I questioned why, when for the first time I appeared to have turned my life around, everything going right for me, I would have it all brought crashing down.  Even two years later, as I was finally able to breath as I had been pronounced in remission, the scars had developed.  Over the next decade, things would get much worse as it seemed every crisis, whether it resulted in someone passing away or not, occurred around one of the big two holidays.

*  my stepmother, crossing the street, hit by a car, two days before Christmas

*  my former father-in-law being misdiagnosed with Alzheimer’s Disease being kept in a nursing home drugged up on psychotropic drugs instead of realizing it was his regular meds that were causing the mental issues as his vitals were not being followed properly

*  my ex-wife (then still married to her) was hit head on in a car accident just after a New Year’s Day

*  Wendy was experiencing a severe bleeding issue that brought on other concerns right before an Easter holiday

*  my heart surgery was done just after an Easter Holiday

*  I was diagnosed Septic just before this past Easter

This list is more than three times longer.  But you get the general idea.  An approaching holiday to me, means most likely another crisis/tragedy for me to deal with.

This thought process, though in full swing though, has been shaken at least a little bit beginning in 2004 with the adoption of our oldest daugther.  The issues and events still occur, as I have come to expect, but I do my best now to not let these things interfere with my daughters’ enthusiasm.  Tonight, as we are walking through the Christmas Tree Shoppe, Madison came right out and asked me, “Daddy, why don’t you like Christmas?”  I love my daughters more than anything on this Earth and the last thing I would ever want to do is take their innocence away, especially when it comes to Christmas and Easter.

And even though every holiday comes and goes, and their smiles are endless as they spot their gifts under the tree, or see that the Easter bunny had delivered them baskets, at least my oldest has noticed that there is a grown up aspect to the holidays.  I have so much work to do to make sure that they do not grow up to believe about the holidays as I have grown accustomed to.

The Lesser Of The Two Evils


You can tell a decision that one does not want to make, when it is looked at as a decision between “the less of the two evils”.  This kinf of outlook is often given to political races as it is nearly impossible to find a candidate for a postition that meets 100% of your values.

Today is not a very good day for me health wise.  My back is acting up, and fatigue is kicking the crap out of me.  I knew this day would come.  I had a bone density scan last week and got the call Friday with the results.  As expected, my back has gotten worse, with my 9th vertebrae now suffering with osteopenia.  This is a change from the scan done four years ago, where osteopenia was diagnosed in L1-L4.  Last year my back also showed facet joint arthritis, perhaps the reason for the pain and shape.

Osteopenia is like the little sister to osteoperosis, bad enough to be called something, not bad enough to be called osteoperosis.  Osteopenia is still loss of bone density.  Translation, it is an increased chance of breaking a bone, especially in my hip, back, or legs.  From what I understand, the pain in my back does not come from the osteopenia, but rather facet joint arthritis which I am now just starting to read up on.

So, when you hear the word osteo, just like mentioning breast cancer, our assumptions go straight to a concern for women.  The truth is, men can develop both of these diseases.  In my case, there is a good likelihood that I could develop both due to cancer treatments.  The radiation therapy has increased my chances with breast cancer, and hi dose, extended use of prednisone is most likely the factor to the already diagnosed osteopenia.  So while treatments have their positive intended effects, there are side effects both short term and long term.  Now that I have a new diagnosis, that must be treated.

But the medication that I need to take, at the beginning level will only be equivalent to vitamin supplements.  Of course, that is possibly going to have side effects as I continue to alter the physiology of my body.  In this case, the two supplements, Vitamin D and OSCAL were to help boost calcium needed for bone support which I was now needing.  There is one major drawback with taking on all this calcium, kidney stones.  I’ve already told that story (see “Congratulations It’s A…” under the links at the top of the page), so this is going to be about the aftermath.

The hospital that helped me get rid of that pesky stone, screwed up, and did not test the remnants leaving it up to me to figure out what could have caused the stone.  All things considered, I blamed the supplements.  My dilemma?  I need to take those supplements to keep from being crippled by an increased chance of broken bones, but if I do, I can look forward to many more kidney stones.  To avoid the kidney stones,  I could end up incredibly hurt.

So following the release of my urologist, so too I made the decision.  There would be no more kidney stones.  I had to hope that my decision would be correct and there would be no further issue with my bones.  But a bone density scan to be compared with a scan done four years ago illustrate that I was wrong.  The osteopenia has continue to spread and worsen over recent years with the cessation of those supplements.  While I have not had any more kidney stones, it is clear what my doctor forewarned me, “it can be five years or twenty years.  It is a matter of your choices and how fast it progresses.”

This is not the first medical dilemma I have been caught in the middle of:

1)  treat and survive my cancer vs. potentially severe late effects even worse

2)  removal of spleen which was fully involved with my cancer vs. immune system permanently compromised with little certainty of protection

3)  carotid bypass due to conditions of carotids, risk of causing a stroke same as just allowing it to happen

4)  take calcium supplements to slow process of crippling or prevent the crippling pain of kidney stones

5)  to have a colonoscopy because it is my time vs. exposing an area of my body that has yet to be invaded and in 46 years, have not had an issue with.

The choice between the lesser of the two evils.  I have many more to make, some just as serious, and some a little on the lighter side.  But when it is looked at a between two choices we do not want to have, clearly it is something I would rather avoid all together.

Side effects of medications are perhaps the most confusing things we have to decide to follow through with.  Just watch a television commercial for a new drug and to cover the company’s ass you hear the following disclaimer, “may cause suicidal tendancies, high blood pressure, kidney failure, depression, stomach ulcers, and memory issues.”  But other than that, it is great.  You will not see me rush to the pharmacy counter I can tell you that.

It Is Time For Snow


Growing up in Eastern Pennsylvania, I feel that I saw my fair share of winter snow.  I cannot tell how much we got every year, but there are countless photos of me playing in the snow with my sibling.  One year, we clearly had enough snow that we could buil a huge igloo/cave couresty of those red plastic snow brick makers.  Of course back in the day, before we worried about car seats and seat belts or bike helmets, we also built our snow forts in the streets often between parked cars.

If you lived in the northeast your entire life, the chances are pretty good that you grew up hearing the tales from your grandparents of the struggles of getting to school in the winters, walking miles upon miles, uphill and downhill, and of course, barefoot through snow waist deep.  There were no such thing as snow days.  “Kids today.  They’re so spoiled.  They don’t know how good they have it.”  Sound familiar?

For those of us who attended school in the Allentown School District, you know what I am about to say is true.  The distance from my home near South Mountain Junior High School to William Allen High School was around four miles.  It was definitely up hill no matter which way, and across this huge bridge at 8th Street.  Our school district also happened to be one of the only districts without school bus service.  To get to school, we either walked, had mom or dad drive us, or took public transportation (which actually took longer to get to school than walking).  So guess what?  There was no such thing as a “snow day”.  It took a blizzard on February 11, 1983 for me to remember an actual “snow day” resulting in the schools closing.  Of course, the local Catholic schools would close at the sight of the first snow flake.

At 46 I occasionally bring this story out as a joke amongst friends, but really have no intention of using it as a tool with my daughters.  As a parent I definitely have a different outlook as I wait for their school bus to pull up as it is more than 20 minutes late, sidewalks flooded with slush and the streets appearing very icy.  The weather forecast had called for the snow/rain mix and my faith was in the girls’ bus driver as the district chose not to release the children before road conditions got bad.

Normally I would be excited to see the white precipitation.  Just a month ago, Madison actually asked about learning to ski.  I have not been on my skis since before we adopted the girls, and since my heart surgery, really thought I would never hit the slopes again.  My skis have been stowed in the closet upstairs since the day we bought the house, me being afraid to push myself with an adrenaline rush swooshing down snow covered mountains.  For Madison, I need to relive those times way back when I walked through three feet of snow, four miles each way up hill and back.  At least the way I tell the stories I had shoes on.

So with our first snowfall today, I opened up that closet door to show Madison my ski equipment.  Her eyes lit up and her excitement was obvious.  All we need now is some more snow.

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