Paul's Heart

Life As A Dad, And A Survivor

Archive for the category “Family and Friends”

Wills And Living Directives


It is the most unpleasant thing to think of, your own death.  We all know it is inevitable, yet so many of us do not want to think about it, let alone plan for it.  For many like myself, with several serious health issues, it should be a no-brainer.  To make the point even stronger, I have two young children who would need to be taken care of in the event of a premature passing of both my wife and I.

Over 22 years ago, I beat cancer.  Though companies refused to deal with me, because of the risk.  Four years ago, I underwent emergency life saving open heart surgery.  This past March, I battled sepsis and pneumonia.  Three major events in my life which could have ended much differently with consequences from family to adminstration.

So two days ago, Wendy and I met with our attorney to finally draw up a will, and a living directive.  I have seen all five “Final Destination” movies so I know when it is my time, it is my time, and it could happen just like that.  And there needs to be a paper trail to tell others what you want done.  Word of mouth, “knowledge” of me, political offiliation, even statements from my children would mean nothing in a court of law.

The first thing that Wendy and I had to decide was an Executor, the person for making sure the will is followed to the letter.  As our children are far from age to do this task, we decided on Wendy’s sister.  Easy enough.

Next, a trustee was needed.  Who is going to make sure that the money is used as it is directed by us?  Again, Wendy’s sister would be able to handle this, and she is quite good with money.  So no doubtedly, our daughters would be taken care of financially.

Finally, and it is a doozy, guardian.  Who would be placed in charge of the girls in the event of anything happening to Wendy or I?  This was not an easy thing for us to agree on, though for Wendy, her answer was quick and immediate, her sister Robin.

We had a conversation years ago, pre-kids about this very issue who would get our children?  Wendy was adamant, her sister and husband.  Mike had a great job with great income.  The conversation had been pre-children,  and only recently into the marriage.  But I had felt differently as I had a friend whom I looked at as a brother.  He was part of a very nice family, wife and two children as well.  But that discussion was a long time ago.

With time seemingly not on my side, especially as spontaneous as events have become, here we were sitting in front of our attorney having only a slight difference in opionion from those years ago.  Wendy was still strongly choosing her sister, while I still chose to rely on friends who showed strong family support, friends that we have kept relationships with since the day before we met our oldest daughter in China.

The difference?  I was concerned for her sister and current circumstances that would put impossible stress on an already stressful situation.  I am purely thinking of effects on our daughters.  They have already been exposed to health crisis one after another with me, which has not been fair to them.  They are small children and all I want is for them to live a child’s life during their child years.  There is no doubt that Robin and Mike would take them in as their guardians.

As in the past, I had been considering friends who had adopted with us.  Over time, we have become more like family than friends, and we have a large amount of trust in them.  But Wendy was firm, only family.  The only downside to one of our adoption families, is that most live a fair distance from us and that would mean less accessability during holidays and family get-togethers, though I am certain, that any family chosen would do their best to make sure our daughters saw our family members.  And then our attorney brought up a point that I had not even considered, even though I claim of doing what is best for them.  If our daughters end up without us, due to an unfortunate accident, their lives will be upset enough.  How unfair and upsetting would it be to them, if they were uprooted and forced to move away from their family and friends.

And so, in preparing for a situation that we never hope occurs, all the discussion over a hypothetical situation, we, we have decided on Aunt Robin and Uncle Mike.

The Living Directive… that is another post.

Blinky, Pinky, Inky, And Clyde


As a child, I had heard of this “thing” that connected to your television that allowed you to play games on the same unit that you watched programming.  The downside to this invention: It burned the images of the game on to your television screen.  So perhaps it was for that reason, along with the cost, that the only time I ever saw an Atari System or Coleco game was when visiting a friend’s home.  It was amazing.  Four man football games played with X’s for the players.  And you could take turns with friends playing the game.  Then there was this game that a light bounced back and forth from side to side, whenever it hit a one-inch bar on each side making a “pong” sound.  Arcades became popular with the invention of games such as Asteroids, Q-bert, and one of my favorites, Pac Man.

 It would take ten years or more, but I would finally have my own system.  I had to be an adult to buy one and take the risk of damage to my television.  But I reasoned that it had to be safe.  Nintendo had already been out for three or four years and there were rumors that a company called Sega was going to produce a game system of their own.  The time was right to take the leap.  I bought the console, which came with its own game pack, Duck Hunt and Super Mario Brothers, but of course I had to buy a football game, Tecmo Bowl.  There were eight NFL teams, and the players kind of resembled people.  And you could actually play against the computer or another player.

 The Nintendo actually served another purpose other than visual stimulation.  As a cancer patient, there were often times that I felt isolated either because treatments had left me physically drained or a pending appointment might have had me stressed out, providing me with a much needed distraction.  And it worked too.  One day well into the evening, I played a strategy game called Final Fantasy for over fourteen hours straight.  I took no break for the bathroom or to eat.  My wife had left for work in the morning,and when she returned home in the evening, there I was, right where she had left me.  But I got through the whole game, something I had never done up until that day.

 Over the years, more game systems came out, even new versions of Nintendo.  But I had amassed a collection of over seventy-five games that whenever I needed a distraction, whatever mood I was in, I popped either a sport game, puzzle game, or arcade game into  the console.  I kept everything in mint condition for nearly fifteen years.

 Then my wife had a yard sale and for whatever reason, thought that it would be a great idea to put my Nintendo and games up for sale.  $25.00.  No warning, just gone.

 So I drop another quarter in to continue…

 I often work Saturdays as overtime.  It allowed us opportunities to travel, purchase things for the house, and with a new arrival coming into the family, the extra cash allowed us to save for our childrens’ futures.  But with all the purchases we have made over the years, we had to make new ones.  We had to buy things for what we had been told would be our one-year old daughter, Madison.  Children grow, but houses do not, unless you build on.  So, we needed to make room.

I am all too familiar with yard sales, and really, though the concept is better than just throwing things into the garbage, the thought of selling anything in near-mint condition that cost more than a tank of gasoline for the cost of a candybar, makes absolutely no sense.  I had no worries.  Most of our purchases were all “girly” type objects, decorations, knicknacks.  If she wanted to sell her stuff for the price of a grocery store Xerox photocopy, that was her business.

I came home from work that Saturday afternoon.  I could tell by the smile on her face, and the emptiness of the driveway that had previously been filled with her belongings, I said, with her belongings, her yard sale was a success for her.  “I made $225 dollars!”  That was almost a car payment so it was no small amount of money.  But when you consider that there was well over $2,000 worth of clothing, lamps, decorations, and furniture, okay.  I let her have her moment.

“I sold almost everything, and then I thought everyone was buying everything, so I put your Nintendo out, and it sold right away.  I also sold the Sega and Playstation.  Nobody would buy the Atari” she said.  Okay, while I was not expecting this at all, she just got done telling me that she made $225.  My game systems were all in near-mint condition.  The only thing that kept them from being mint, was that I opened the packages in the first place.  So, that was one Nintendo and seventy five games valued at over $1000, a Sega system with fifteen games worth approximately $400, and a newly purchased Playstation with five games, which because of the novelty of the Playstation, all was valued at $600.  Now, I was not sitting in front of the television for hours anymore playing video games, and work around the house still got done, and we went out on some nice dates.  So, I know she was not mad at me or trying to exact revenge on me.  She did not sell the Atari which means it was not about killing any free time I had.  Why would she do this?  There was no warning.  “I got $25 for each system,” she said with a sense of pride. 

I stood there in disbelief.  What could have possessed her to make this decision?  Have I been giving her too much attention that she felt I no longer needed the games?  Our future daughters of course would not play with television games.  Did she have other plans for my rec room?

To me, it was simple.  These systems helped to provide distraction, relieve stress, and yes, live vicariously through the electric medium.  I could throw the football like Joe Montana.  I had the accuracy of a marksman, though I’ve never held a firearm in my hands.  I logged in dozens of successful shuttle missions.  I was a constant hero to princesses in all lands. 

She did not sell my Atari, and I still had games on my computer.  But this was more than just what I had remaining.  This is about what I lost and how I lost it.   To this day, she has never told me why she sold my Nintendo and Sega.  But truly, someone realized the bargain that they got – a mint-condition console and dozens of games still in their original casings – for just $25.00.  I spent close to $2000.00 on just the Nintendo.  I am constantly watching just to see if someone else might be selling their system for the steal that my systems were sold.  There are times when I could use that trip to the Super Bowl or just want to check my hand/coordination.  The only difference between then and now, is that now I have my own princesses to defend, and to look at me as their hero.  Though it is still the classic and original, I never looked at the Atari again.  It still sits in my closet.  I even went as far as to purchase the latest craze, a Wii.  But just as my other game systems, the Wii was sold.   The Atari is still here.  Why?

In the later years of my life, I do miss my Nintendo.  I have faced several health crisis just over the last four years, two of which have been life threatening.  Given the treatments that were used to treat my cancer over two decades ago, I am told the risk of more issues is likely.  There are things that I can no longer due physically.  But probably the hardest thing for me to do, is deal with the emotions that have developed.  With so much time on my hands, and so much limited ability, and the fears of what could come, I should could spend some time playing Final Fantasy (the original version), Othello, or even Tecmo Bowl.

I clearly have not forgotten about the older game systems that I once owned.  My time spent with the newer systems was short spent.  But the Atari dates back to a much simpler time.  Electronic entertainment was affordable.  Decisions made during the games came with less consequences.  Today’s games place our lives at a level of experience, only witnessed by professional athletes and high ranking politicians.  But the best thing about the Atari, it would take me back to a time before I had to deal with any of this stuff.

The First Time That I Laughed


The question had been put to me:  When was the first time that you laughed following your diagnosis of cancer?

I consider myself to have a good sense of humor.  I enjoy jokes and funny tv shows.  However, my diagnosis took my ability to purely laugh.  It was not until my daughter Madison’s 3rd Christmas, 19 years later,  that I discovered the innocence of laughter.  No shadow of my diagnosis or prognosis hung over me at that one moment.  I was showing my daughter pictures of our visit from “Santa Claus” the night before.  She looked at the pictures and said “Look Daddy.  Ho-ho has your sneakers on”.  It was a laughter I had not felt in 19 years.

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