Paul's Heart

Life As A Dad, And A Survivor

Archive for the month “January, 2013”

Happy Birthday To Me


 

The following was a fun piece to write – I have chosen this particular “moment” to shock my family.  It is fictional in content.

Here it is, the middle of December, exactly five days away from my big day.  So of course, I must now be paranoid that any time we go to a restaurant my children will blab to the waitress that it is my birthday.  At some point in the next week, my wife’s family will also insist on a birthday dinner. 

Here is how it plays out.  Dinner is done.  So far so good.  Okay, here comes the cake and the gaggle of waitresses.  They do whatever birthday chant they have done over and over and probably dread singing it almost as much as I dread listening to it.  This particular birthday wish, is a military cadence – foot marching, hands clapping.  “I don’t know but I’ve been told.  This customer is getting old.  A birthday wish from us to you, and hear you’re turning 42.”  Nice, they even got my age in on that one.

I do not ask for any gifts, for any occasion.  Decades ago, an understanding was reached with the supreme being that I believe in.  And again four years ago, I was reminded of that understanding.  As a result of my survival from cancer and heart surgery, I received the greatest gift of all:  my life.  There is no greater gift that I could ask for or need.

But this birthday will be different.  A door of opportunity is opening, and the circumstances are aligning themselves like Jupiter with Mars when the moon is in the seventh house.  Along with my wife Wendy, and our daughters, we are joined by my in-laws and Wendy’s sister and husband.  My family did not get invited to this dinner, but when they are eventually told of tonight’s news, I know the reaction will be received more positively.  But that is another story.  Tonight, I unwrap a gift from me to me.  No one has any idea what I am about to state, including Wendy.  Though the topic has come up a couple of times during our marriage, Wendy has always remained firm with her choice, which does not agree with mine.  Tonight, our lives will change.

I interrupt the conversations at the table.  I visualize standing at the bottom of a huge, snow capped mountain when just the slightest noise causes a crack in the cap.  Then it begins.  The unstoppable onslaught of an avalanche.  The path of the avalanche is unknown.  The strength of the impact is sure to change my life as the snow rushes towards me.  There is no turning back from what I am about to start.

 ”Um… Wendy and I are going to be selling the house next year.”  I know that our table had the loudest conversation (wife, sister-in-awl, mother-in-law all talking simultaneously) but it seems the entire restaurant went silent as I got our family’s attention.  In the split seconds that follow, I scan everyone at our table.  Wendy has two projections at this moment.  The first is directed at me, for the lack of inclusion and discussion prior to this announcement.   The second look from Wendy is directed to her family – denial.  There was a denial of moving, denial of any contemplations of moving, and denial of her even know that I had the thought in my head.

Continuing to look around the table for reactions, Wendy’s sister seems to be taking it all in.  So before jumping into the conversation, or on Wendy and I, she methodically contemplates her comments.  On the other hand, Wendy’s mother is raring to go.  “What do you want to go and do that for?  Wendy’s father is much more laid back.  Our eight year old Madison has a habit of picking up only key words of adult conversations and then kicks up the drama with the look of concern.  “We’re moving?”  Then she switches gears, “YEAH!!  Are we moving tomorrow?”  Not to be outdone is our six year old Emmalie, who routinely just blurts out nonsensical words because it amuses her, but this time it ends up being an exclaimation point to the conversation.  “BOO YAH”.  Awkward pause.

I lay under tons of crushing snow now.  The damage has been done.  All I can do now, is hope for recovery and be given a second chance.  This is clearly a situation that I did not want to be in, but that does not change the fact that it did happen.  I must dig my way, up through the snow in hopes of reaching daylight.  I rely on hearing voices to know that I have come out of the hole that I am currently in.

 The multi-voice conversation picks back up, clearly several decidbles higher.  As usual I am not included in this conversation as is custom in Wendy’s family for the men.  Our daughters have returned their attention to Daddy’s birthday cake.  I let a few minutes go by and then I interrupt them again.

 ”This is not a decision that is being made lightly because there are so many factors that have played a vital part.”  Wendy and I have worked for the same employer for fifteen years.  I continue to explain that in five months our contract at work will expire.  Over the past two contracts, resistance to signing new contracts has grown, resulting in a growing effort and support for calling a strike.  I am convinced that if our union walks the picket line, we will lose our jobs.  There are already people in place to fill company needs.  The best case scenario if this were to happen, is that at least hopefully one of us would be hired back or retained as a non-union employee.  This would result in a financially devastating 75% loss of income in our household.  This cannot be overcome.

Our only option, while we are still in good standing financially, is to sell the house before our finances fall into disastrous disarray and beyond our ability to control our financial fate.  The only way to sell the house without too much of a loss, is if the mortgage is current.  Falling behind on our mortgage gives the advantage to the buyer and works against us.  Earning one fourth of our income will make it impossible to afford real estate in this area.  This leaves only one option, to relocate.

The change in our employment status will have another major impact.  We will no longer have access to the specialized health care that we rely on.  A major factor that contributes to our health issues, though not the origin, is stress.  In order for us to survive health-wise, without the special health care, we would need to base our decision on a new residence based on the level of stress that would be cast upon us.  In other words, we will need to live in an area that will be within our means.

Where we live and what we have can no longer be based on the need of approval by others. 

Where we end up will have no impact on familial events and visits.  Therefore the main factors affecting our relocation will be our daughters and their education, and what will be affordable to us.  Currently, areas that I have been looking at are Lake Erie, Vermont, and Colorado.  All have a weather climate that is comfortable to us, have jobs available, and affordable housing.  I tell everyone that they are all welcome to visit any time, just like they do now.

I end my announcement with “Anyone for some cake?”  Just like the icing on top of the cake, that was sweet.

My Doctor, My Friend


“Health care costs are out of control!”

“Doctors need to stop ordering wasteful tests and pushing prescriptions!”

“They are all in ‘bed’ with big pharmaceuticals and insurance!”

Nearly everywhere I turn there is a constant assault on the medical profession due to neverending cost increases.  This assault unfortunately discredits a field many of us are not qualified to do, and many owe our lives to.  Society wants to have someone to blame.  And in order to blame something, you have to be able to see it to judge it.  We do not really get opportunities to see big pharm and insurance companies in action to see the millions in profits that they take from risky bets on our health.  But doctors are located everywhere, and we know where ours our located.

I have had exactly three doctors in my short life of 46 years.  My first doctor died still practicing medicine at the age of 86.  His hands were quite shaky so it was as good thing that I only needed care for common colds.  But he was the perfect example of the old “house call” physicians.  No matter time of day or night, day of the week, or holidays, if he had been treating your for some ailment, you could expect follow up calls no matter what.  There was an artifact in his office that I will always remember him for, an uncancelled ticket for the Hindenburg.  Yes, he was that old.

My next doctor only saw me for a couple of years before he retired.  But it was he that made one of the biggest discoveries in my life, my diagnosis of cancer.  Well, not exactly.  Based on the symptoms that I had, he treated me for a common cold.  Go ahead, rapidly shake your head back and forth and go WHAT!?!?  Confuse cancer with a cold?!?!  What kind of doctor…

My answer, he was a great doctor.  Medical history would show, that diagnosis of Hodgkin’s Disease was difficult, and rare.  It was his persistance with me, when I did not respond to low level treatments that led him to press me to see my first of several oncologists where I would be introduced informally to cancer.  Then several doctors later, formally introduced with Stage 3b Hodgkin’s Disease, nodular sclerosing, very serious.

But my third and as far as I am concerned, final family doctor took over my last doctor’s practice.  I have been her patient for over twenty years.  Our age is similar, so I have warned her that when she chooses to retire, I will retire from seeing doctors.  Her husband practices with her, yet it is she that I insist on seeing (though to be quite fair, he is just as good a doctor – I have never asked if they have ever wondered who was better).

Up until the 1980′s, you went to “a” doctor, one.  To help ease overhead costs, doctors took on partners.  Eventually the term “clinic” would be included in the name with the doctor’s practice.  Doctors would be able to extend hours, take certain days off each week, and probably much more conveniences.  But it would also mean that doctors could see more patients.

Currently, I live an hour away from my family doctor.  Admittedly, I have tried to find someone I could be comfortable with locally, but gave up trying a long time ago.  I will even put off an appointment with her husband or the other partner, and wait for her first opening perhaps three days later.

My stubbornness is quite easy to understand.  Dr. J is more than just a doctor to me.  She is an advocate for me.  Her knowledge of me, makes her more valuable than the latest diagnostic machinery.  Her persistence and commitment with my health is never questioned.  And though we have never hung out with each other, I consider her one of my closest friends.  She is loyal, honest, and definitely cares.  Dr. J knows me well enough, if I complain about something, even if it does not show up on an MRI, she will find the cause, not just throw a prescription at me to see if it will do the trick.

Unfortunately, critics state, in general terms, doctors order too many nonsense tests and prescribe way too many drugs.  This statement is shouted so loud from disgruntled patients to politicians.  And because of its generality, it unfairly characterizes the great doctors such as Dr. J (and her husband too!).

I would like to give an example of just how good she is as my doctor.  I was hurt at work, and going through the Worker’s Comp program, there could be no firm diagnosis of the injury so I had been treated with cortico steroids.  Still in pain, the WC doctor told me there was nothing more that could be done.  After the time limit expired, releasing me to see the doctor of my choice, I went immediately to Dr. J who ordered an MRI.  I ended up being referred back to the orthopedist that told me he could do nothing more for me.  He scoffed at the idea of doing a second MRI on me and refused.  When I explained to him that this order came from my physician outside of WC, he complied.  And guess what?  A small tear in a minor piece of cartilege in my wrist was the cause.  The cartilege itself was not a big piece, but the tear was enough to cause the pain.

But I will give you a better example of just how good my doctor is, and that as far as I am concerned, I am worth every test that she orders.  A few years ago, after dealing with chest discomfort for nearly four months, I placed a call to Dr. J’s practice.  There were no other obvious symptoms, yet she ordered a test that is not normally given to a 40 year old man.  Immediately following that scan, I was discouraged from even leaving the office and was advised to check in immediately to the hospital next door.  I would have emergency life-saving heart bypass surgery.  They call the type of damage to my artery a “widowmaker” because people do not normally survive this situation.  It typically leads to a fatal heart attack as EMT’s are not prepared to do open heart surgery in the field which is what would be needed.  Her being able to judge me, and know me, led to her preventing my fatal heart attack.  As I was warned by the cardiologist, “it was not a question if I was going to die, but when”.

Dr. J will be my doctor for the rest of my life.  I trust her not to presribe anything that I do not need.  In fact, she goes as far as to research any meds that I do take, to make sure that they do not interact or interfere with each other.  She does not see me often, perhaps once or twice a year at most, so she does not make hand over fist from me.

That does not mean that I am naive as to billing practices of pharmaceutical companies and insurance companies.  I have seen my bills.  But when it comes to the rising costs of health care, Dr. J (and her husband) are off limits!  And I am certain there are other doctors in the world just as good who are unfairly lumped into the administrative crisis of health costs.

This Day Had To Come


I was raised in a house with four women, all at different stages of their life.  There was my younger sister, my mother, my grandmother and her sister.  Only in an all-girl’s school would I have to deal with such a high percentage of estrogen.  It is ironic that decades later, I would be repeating that similar lifestyle.  Only now instead of being a pre teenager, I am a father with a wife, and two daughters.  The thing is, I definitely was not prepared for a discovery from my oldest daughter, at nine years old.

From the time that Wendy and I decided to be parents, and knew our first child would be a girl, we had begun to strategize and plan for “her” future.  How old would she have to be to date?  What curfew would she have?  How about what she would wear?  And what about experimentation?

And so, over the next several years, I would rehearse in my head what I would subject my daughter to when it came to dating.  Ah yes, grilling the unsuspecting boy who will clearly be convinced of returning my daughter in the same condition as when he took her out.  I know my daughter is not a car, but if her date treats his car with care and respect, I am certain he will get my drift.  And for my suggestion to be honored, he would have to know that there would be consequences for failing to honor my suggestions.  I play it out in my mind, he rings the door bell as he should (if he honks the horn instead of coming up to the door he already has lost his opportunity).  Then as my daughter comes down in excitement, tells the boy that she is just about ready, returns back upstairs, and then I go into action.  My daughter comes downstairs, ready to go, and I “have such a proud, yet sad look on my face as my little girl goes out on a date”.  She would be totally unsuspecting of the riot act that had just been read to her date.

There are plenty of different versions of how this played out.  It seems as I will never get the chance.  Recently, while cleaning off a countertop, I came across a piece of artwork done by my oldest daughter, then eight years old.  It was drawn in great detail.  Under each character sketched was the name of each person.  There was Madison laying in a hospital bed, her sister standing next to the bed, and her “boyfriend” or as she once informed me, her husband.  In the door walks a nurse wearing a cap that has not been worn by nurses in over four decades.  In her arm was a baby.

Cue the sounds of a multi-car wreck.

Too many details.  Too many easily identifiable characters.  Did I say too many details?  I called Wendy on the phone as she had been out with her sister for a girl’s night out, and she could not believe it.  Then I called the “boyfriend’s” mother, a great friend of ours, but now, evidently unknowingly to each of us, a potential in-law and grandparent.

I know, it was just a drawing.  But why couldn’t she have drawn a butterfly, a princess, a dog?  Everything I had hoped to some day play out, now would face a different strategy.  Being raised in a house with all women was supposed to give me an advantage, prepare me, have the upper hand.  Instead, I am still learning.

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