Paul's Heart

Life As A Dad, And A Survivor

Archive for the day “January 6, 2013”

Why The Delay? Did I Miss Something?


All through my life, I have never been known as a complainer when it comes to my health.  The inside joke with my doctor and staff, is that if I am spotted in their office, there clearly has to be something wrong.  I do not ask for an office visit unless I can no longer tolerate what is ailing me, or it has gotten so bad, that over the counter methods no longer have any effect.

Even during my days undergoing cancer treatment, between February 1989 and March of 1990, I made no phone calls to my oncologist about any side effects that I did not feel I could not tolerate or deal with.  My goal following my treatments was to be free once again, to be in control of my health.  I wanted to return to the days when my doctor only saw me in times beyond my ability to care for myself.  Perhaps that thinking might have had the opportunity to cost me my life as I endured four months of chest pain before finding out I could die any moment.  If ever there was any example of needing to be prudent in my care, this should have been my light bulb moment.

So what takes me so long to respond yet today?  Why do I allow my tolerance to pain and discomfort to dictate my judgement?  As I sit in front of one of the doctors who specialize in the care of long term cancer survivors at one of the top cancer hospitals in the country, I confound him as he struggles to understand, why I tolerate levels of pain and discomfort.  Late side effects from my treatments cannot be reversed, but they can be slowed down, managed.  But in order for that to happen, I have to let all of my doctors know the simplest of concepts, when I do not feel well.  It should be that easy.

In the last year and a half, I have had to deal with three major issues related to my cancer history.  I had developed a swallowing issue that prevented me initially from swallowing foods occasionally, toward the end, not even able to swallow water before reaching out to my doctors.  Twice within the last nine months, I have ended up in the emergency room, once by ambulance, with fevers over 103.5.  In March, the diagnosis was sepsis and pneumonia, and this month, it was a case of bilateral pneumonia, formerly called “double pneumonia” or “walking pneumonia”.  To get to this point, my body had to have given some sort of warning signs which I either ignored or never recognized.

It was a nurse during my recent hospital stay who helped me to recognize what I cannot see or sense.  At one point in my life, I had been heard saying that I deserved everything that has happened to me since I made the decision to save my life from cancer.  It was a choice that I made, to either let the cancer take me, or put up with the costs of the treatments and surgeries that saved my life.  No one else made that decision, except for me.  But it was not so much a price that I paid every day for my cure, but it was a tolerance that I was unknowingly building.

I have had over two weeks to try and figure outwhat could have possible led to my latest medical crisis.  There had to be some sort of warning that I failed to recognize.  There were actual spots on both of my lungs.  I deal with chronic pain every day.  How do I differentiate what is old and which is new pain?

Someone who constantly calls their doctor about every little pain, sniffle, cough, or ache, is referred to as a hypochondriac.  And this is one of the main reasons that I speak for only myself, and perhaps other cancer survivors, why we do not react sooner.  So that we are taken seriously because quite clearly, when it gets to the point of sepsis or double pneumonia, there will be no mistaking it.  There will be no accusation of hypochondria and the resulting dismissal.  And because of this, we become tolerant.

Though there are currently studies on late effects on cancer survivors, there is still so much more to be learned.  but for those of us who know what we have been through, we owe it to ourselves and our families to not underestimate anything that does not feel right with our body.  Of course, it is one thing to talk the talk, another thing to walk…

My “Son In Law”


There are two possibilities of thought running through your mind right now.  The first is that I am really rushing things with my oldest daughter only being less than ten years old.  The second, no, this is not going to be an arranged marriage. 

I was introduced to my “son in law” many years ago.  My daughters were invited to a birthday party for two friends, who were twins.  I had never met them before this party.  This was no ordinary birthday party.  It was a karate themed party at an actual dojo, being led by two 2nd degree black belts.  Both kids are very friendly, though it is the boy who has the more outgoing personality.  He is a clown.  The karate instructor knows this boy very well and capitalizes on his hilarious any playfulness.

Showing a demonstration of a blocking technique, the master feigns a punch in the boy’s direction.  The kid reacts in an overexagerated demonstration and falls to the floor with all limbs flapping in different directions.  I hear an immediate defensive scream careening towards the instructor.  He is under attack.  Thinking this is cute, one of the boy’s little buddies running to his defense.  And then I hear it, “You get your hands off my husband!” 

I recognized that voice and it definitely matched the sound of the attacking scream.  It was my oldest daughter, then five years old.  And she was now clinging to the karate master’s leg, chopping at him, struggling with him, and repeatedly defending her little friend.  And then it sinks in.  Madison said “husband”.  I know I was not just hearing things.  I turned to Wendy with a very confused look on my face.  What I got in return, “I’ll fill you in later.”

That was five years ago.  And through all of these years, the word “husband” gets tossed around alot when describing Matthew.  Wendy has used it.  Matthew’s mother has used it.  And Madison has used it.  As children, we all pretended.  We pretended to be cops and robbers, maybe firemen, and depending on the make up of  the neighborhood, we pretended to be family. 

Their friendship is harmless.  I know that.  It is quite playful as they are more buddies who roughhouse than a boy and a girl trying to sneak in a “smooch”.  I actually envy them.  They have been friends longer in their short lives than I have had with most others in my four decades.  Their innocence with each other, their loyalty to their friendship, and their ability to not judge each other, means that they will have at the least, a very long friendship with each other.  I envy that.

I do not know if some day in the future they will be husband and wife.  Over my lifetime, I know several couples who have been at least high school sweethearts, their first and only true loves.  I do know that Matthew meets one of my main criteria for my daughters, he treats her nicely.  Personally, he will have his hands full if she is indeed his future bride.  To use the term high maintenance to describe Madison is fairly understated.  I do not know if they are a modern day Thomas J and Vada.  Only time will tell.

         

Which Is Softer? Butter? Or A Dad With His Daughter?


After decades of disc jockeying weddings, anniversaries, milestone birthday parties, graduation parties and such, one moment that I have always enjoyed is playing a special song that would always be remembered by the parents and the child, one special song that both would remember where they were when they hear it again and again.  I have played many of these opportunities for mother and son, mother and daughters, sister to sister, but almost always garunteed to be the tear-jerker, is a song for a father and his daughter.  I learned this to be extremely appreciated from wedding receptions, but soon found out, that even with a child as young as kindergarten, loved that three to four minutes, alone with her daddy.

I was never short on songs to choose from either.  With an endless supply of country artists writing song after song about their daughters growing up, Daddy/Daughter dances actually became one of my favorite events to play at.  Tim McGraw – “My Little Girl”.  John Berry – “How Much Do You Love Me”.  Steve Kirwin – “My Little Girl”.  Alabama – “Daddy’s Little Girl”.  It is during moments like that the relationship is founded, established, and remembered, forever.  And you can see clearly who has who wrapped around her little finger.

I love both my daughters equally and unconditionally.  I am fairly strict especially when it comes to getting the homework and house chores done.  There is a joke that if you ask the girls what kind of dad I am, they will tell you that I am the “no” daddy.  I say “no” to most impulse things because I would rather surprise them with a “yes” than disappoint them with a “no.”  You know what I mean, when walking by those stupid impulse machines with the little plastic eggs with the waste of money tatoos or finger rings, but they “want one.”

I would consider both of my daughters master manipulators.  It is not unusual for those around me to consider me an ogre as Madison and Emmalie turn on the water works for anyone who will believe them.  I will suffer defeat nearly all of the time, and the girls know this.

One of the biggest moments came while visiting with friends, hours away from home.  Not an exageration, we live on opposite sides of the state.  But it took no time at all for our friends to invite us to the neighbor’s home to see the eight week kittens that lived under the neighbor’s grill.  I know my weaknesses, so of course, I do not need to go see the kittens.  I knew they were cute and fluffy with tiny stubby tails and quiet mews.  But twenty minutes later, Madison would mount her biggest assault on my “melt button”.

Several of our friends were arriving back at our host’s home, all with the same words, “oh Paul, you are in trouble.  Big trouble.  Wendy’s bringing one with her.”  I have now only a 5% survival rate at this point.  I face this challenge by sitting on the patio chair, arms folded, ignoring the fact that the three conspirators were now going to wage the biggest guilt trip on me.  Wendy places the tiny calico kitten on my shoulder.  I refuse to look it her.  I tried to remain strong.  Then Madison stepped up to the plate.

“Daddy, please.  She has no home.  How would you like it if you had no one?”  And then her tears began.  There is silence except for the increasing sobs.  A couple recongitions from the two of the other dads, “You are really a jerk.  You are doing the right thing.  But wow, you are being harsh.”  Five minutes (seemed like an eternity to me), Wendy grabbed the kitten from my shoulder and told Madison, “I’m sorry Maddy.  Daddy is right.  We cannot take the kitten home with us.  I should not have brought her over like this.”  Wendy begins to walk the kitten back to her makeshift nest with her siblings.  Madison burst into hysterics.

I had to do something at that point.  I asked Madison to follow me to the front of the house so that we could have a calm conversation with each other, so that my seven year-old could understand.  We had a sick kitten at home already who was not expected to survive.  It was a six hour drive home.  We already had a full house of animals.  And so on.  And then, as I am known, I placed the decision in the hands of Madison.  She has an understanding of consequences and rewards.  I explained to her, that I had planned a surprise for her on the way home (and I did have this planned), to stop at the Boyd’s Bear Factory and Dutch Wonderland Amusement Park.  Which we could not do either if we had a kitten in the car as we were in the middle of summer and she could not be left alone in the car, nor could go into either place.  Madison took about five minutes of thought, and then gave me her decision.  “I want the kitten.”  I gave her the choice.

It should come of no surprise, that a nearly every day occurence is me proclaiming “no more pets.”  And then Christmas Eve, another attack was being planned.  While gathering with family for the holidays, one cousin informed us that their pair of bunnies had little bunnies.  NNNNNNNNNNNNOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO!!!!!!!!!!  And so it began, everyone handling and carrying these little furry bodies that could easily fit inside of a coffee mug.  Though I was surrounded by family instead of friends, I still expected no different a result in regards to support for me.  And of course, the tears from Madison came, as well as the confirmation that at least one of her cousins was going to be taking home one of the babies for Christmas.

Butter.  Parkay.  Butter.  Parkay.  Butter.  Parkay.  What the Hell am I going to do when the decisions get even more difficult and important?

 

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